[ { "id": "nhgri-2aaafd54c6a30ae81b35", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2007 State Bills Arizona 2007 HB 2629", "primary_url": "http://www.azleg.gov/DocumentsForBill.asp?Bill_Number=HB2629&Session_ID=85", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires hospital or medical service corporations, health care service organizations, and individual, group and blanket disability insurers who provide health care coverage to pregnant women to cover the cost of genetic testing for thrombophilia if it is ordered by a physician. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1 }, { "id": "nhgri-9c09efcd2a8002b1f612", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2007 State Bills California 2007 SB 164", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_164&sess=0708&house=B&author=migden", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill amends existing law pertaining to pregnancy blood samples. Existing law provides for the use of samples for approved research projects and establishes confidentiality and privacy protections with regard to samples and related personal information. This bill renames the term \"pregnancy\" blood samples by referring to them as \"newborn\" blood samples. Measure failed.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 2 }, { "id": "nhgri-36b0d9a4b4a3e9273cbd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2007 State Bills California 2007 SB 962", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_962&sess=0708&house=B&author=migden", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "This bill requires the health department to charge a fee to researchers and health care providers who have been approved by the department to use stored umbilical cord, pregnancy blood, or newborn blood samples for research to cover the costs of administering the program. Signed by the Governor October 11, 2007. (The bill goes into effect only if 2007 AB 34, which was enacted during the 2007 session, becomes law before January 2008.)", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 3 }, { "id": "nhgri-47c55796e02a8cba4e7d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2007 State Bills Florida 2007 SB 2384", "primary_url": "https://www.flsenate.gov/Session/Bill/2007/2384", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires individual and group health insurers to provide benefits or coverage for periodic colorectal cancer examinations and laboratory tests for individuals over 50 and for individuals under 50 who are considered high risk. Definition of high risk includes individuals who, because of the presence of recognized genetic markers, face a higher than normal risk of colorectal cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 4 }, { "id": "nhgri-de48c294b081afedd5d4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2007 State Bills Georgia 2007 HB 276", "primary_url": "http://www.legis.ga.gov/Legislation/en-US/display/20072008/HB/276", "source_topics": [ "Employment Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "This bill creates guidelines such as consent requirements for the creation and storage of biometric information, which is defined to include DNA samples. The bill also prohibits life insurers from requiring genetic information to determine an applicants eligibility or rates to be charged for life insurance; however, any pre-existing genetic information must be supplied to the insurance company upon application. The bill forbids employers or employment agencies from using information derived from genetic testing for identification purposes or as a condition of employment. The bill provides remedies for individuals whose genetic information is inappropriately used. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 5 }, { "id": "nhgri-1287db71c242bacd3342", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2007 State Bills Idaho 2007 SB 1107", "primary_url": "https://legislature.idaho.gov/sessioninfo/2007/legislation/S1107/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "The bill amends the state genetic nondiscrimination law by prohibiting discrimination on the basis of genetic information or a genetic test in the issuance of coverage, or the fixing of rates, terms or conditions, for any policy or contract of hospital or medical insurance or any health benefit plan. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 6 }, { "id": "nhgri-4987b580376e4f7b0e4f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2007 State Bills Illinois 2007 SB 1365", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=1365&GAID=9&DocTypeID=SB&LegId=29454&SessionID=51&GA=95", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "This bill requires coverage for a mammogram at the age and intervals considered medically necessary by the woman's health care provider for women under 40 years of age and having a family history of breast cancer, prior personal history of breast cancer, positive genetic testing, or other risk factors. This bill also requires coverage for a comprehensive ultrasound screening of an entire breast or breasts if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology or if the woman is at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's health care provider. Signed by the Governor August 24, 2007.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 7 }, { "id": "nhgri-5adc1cb9507b6d40da64", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2007 State Bills Illinois 2007 SB 939", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=939&GAID=9&DocTypeID=SB&LegId=29062&SessionID=51&GA=95", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "This bill amends the Genetic Information privacy Act and makes technical changes to the section of the law pertaining to employers. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 8 }, { "id": "nhgri-f19cac6835d01cb4993f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2007 State Bills Illinois 2007 SB 940", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=940&GAID=9&DocTypeID=SB&LegId=29034&SessionID=51&GA=95", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to firearms.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 9 }, { "id": "nhgri-1110a3aa38df995e1db8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2007 State Bills Illinois 2007 SB 941", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=941&GAID=9&DocTypeID=SB&LegId=29035&SessionID=51&GA=95", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill was introduced as an amendment to the Genetic Information privacy Act. All language was stricken in a senate amendment and new language was added related to cancer drugs.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 10 }, { "id": "nhgri-7164defb406fb5a4e8b6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2007 State Bills Mississippi 2007 HB 233", "primary_url": "http://billstatus.ls.state.ms.us/2007/pdf/history/HB/HB0233.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 11 }, { "id": "nhgri-3dba6856b5fcf55c5bac", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2007 State Bills Mississippi 2007 HB 266", "primary_url": "http://billstatus.ls.state.ms.us/2007/pdf/history/HB/HB0266.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits employers from using genetic testing for discriminatory purposes. Civil and criminal penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 12 }, { "id": "nhgri-dbbd83f01020448c7ce2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2007 State Bills Missouri 2007 HB 364", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB364&year=2007&code=R", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill, as substituted by the Senate, prohibits the treatment of genetic information as a preexisting condition in the absence of a diagnosis and prevents the establishment of rules for eligibility or continued eligibility on the basis of a health status-related factor, including genetic information, in health insurance. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 13 }, { "id": "nhgri-ffe93a54736324394dc9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2007 State Bills Missouri 2007 HB 586", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB586&year=2007&code=R", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill authorizes designated administrators to take action if it is determined that a person has engaged, is engaging in, or has taken a substantial step toward engaging in an act of discrimination prohibited under the state genetic nondiscrimination laws that applies to employers. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 14 }, { "id": "nhgri-c0019e32791303e3a1de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2007 State Bills Missouri 2007 HB 818", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB818&year=2007&code=R", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill prohibits individual, small group and large group health insurers from treating genetic information as a pre-existing condition in the absence of a diagnosis. The bill also prohibits health insurers from establishing rules for eligibility based on genetic information. Approved by the Governor June 1, 2007.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 15 }, { "id": "nhgri-23c473bf76a3324510d7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2007 State Bills Missouri 2007 HB 948", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB948&year=2007&code=R", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "Unless otherwise directed under this section, a biological specimen may be released for purposes of anonymous scientific study. At the time of newborn screening specimen collection, the parent or legal guardian of the child from whom a biological specimen was obtained may direct the department to: (1) return the specimen after all tests have been performed; (2) destroy the specimen; or (3) store a specimen but do not release is for anonymous study. Signed by the Governor July 13, 2007", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 16 }, { "id": "nhgri-a6cd0254912bb8610cba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2007 State Bills Missouri 2007 SB 325", "primary_url": "https://house.mo.gov/Bill.aspx?bill=SB325&year=2007&code=R", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill authorizes designated administrators to take action if it is determined that a person has engaged, is engaging in, or has taken a substantial step toward engaging in an act of discrimination prohibited under the state genetic nondiscrimination laws that applies to employers. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 17 }, { "id": "nhgri-0f696b1f43a6a463560f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2007 State Bills Nevada 2007 AB 578", "primary_url": "http://www.leg.state.nv.us/Session/74th2007/Reports/history.cfm?ID=1168", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill prescribes the requirements for surrogate decision makers to give informed consent for certain human subject research. Measure failed.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 18 }, { "id": "nhgri-1b098e192eca62cd9e90", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2007 State Bills New Jersey 2007 A4170", "primary_url": "http://www.njleg.state.nj.us/2006/Bills/A4500/4170_I1.PDF", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits employers from (1) seeking to obtain or use a genetic test or genetic information, (2) requiring a genetic test or genetic information, (3) accessing or requesting or requiring consent to access genetic information, (4) requesting or requiring a genetic test from an individual or family member, or (5) inquiring about whether an individual or family member has taken or refused to take a genetic test. Civil penalties are set forth for violations. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 19 }, { "id": "nhgri-fae6c9d964c02f051333", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2007 State Bills New York 2007 A288", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A00288&term=2007&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 20 }, { "id": "nhgri-a87552b50e13a15ce482", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2007 State Bills New York 2007 A3113", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A03113&term=2007&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires health insurers to cover genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 21 }, { "id": "nhgri-5f458c1caf4b851fbf88", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2007 State Bills New York 2007 A4662", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A04662&term=2007&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on a insured, applicant or family member of insured or applicant. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 22 }, { "id": "nhgri-52d27a0525ac5fd78818", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2007 State Bills New York 2007 S2696", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S02696&term=2007&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 23 }, { "id": "nhgri-631e12123a86500d0692", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2007 State Bills New York 2007 S3449", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S03449&term=2007&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 24 }, { "id": "nhgri-3b987400b3f5beeef45a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2007 State Bills Oregon 2007 HB 3341", "primary_url": "https://olis.oregonlegislature.gov/liz/2007R1/Measures/Overview/HB3341", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the Oregon Health Insurance Exchange and prohibits the treatment of genetic information in the absence of a diagnosis as a pre-existing condition in the exchange. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 25 }, { "id": "nhgri-1d4cdc3505d79f4a1c1b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2007 State Bills Oregon 2007 SB 244", "primary_url": "https://olis.oregonlegislature.gov/liz/2007R1/Measures/Overview/SB244", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends the state genetic privacy law by allowing health insurers to retain or disclose genetic information without written authorization if (1) the retention is for treatment, payment or health care operations by the insurer; and (2) the disclosure is in accordance with ORS 746.607 (3). Signed by the Governor July 17, 2007.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 26 }, { "id": "nhgri-d0c5a2c27917dab99d5e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2007 State Bills Oregon 2007 SB 759", "primary_url": "https://olis.oregonlegislature.gov/liz/2007R1/Measures/Overview/SB759", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "This bill amends the state genetic privacy law by changing retention and disclosure provisions that apply to health insurers. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 27 }, { "id": "nhgri-8b004db4925db885ece4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2007 State Bills South Dakota 2007 HB 1166", "primary_url": "https://sdlegislature.gov/Session/Bill/22304", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 28 }, { "id": "nhgri-5fc2de13a66d1fc73dcc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2007 State Bills South Dakota 2007 SB 132", "primary_url": "https://sdlegislature.gov/Session/Bill/22323", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "As introduced, this bill included a provision that prohibited pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 29 }, { "id": "nhgri-f2f5cbe73d77492f7d47", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2007 State Bills Tennessee 2007 HB 2082", "primary_url": "http://wapp.capitol.tn.gov/apps/Billinfo/default.aspx?BillNumber=HB2082&ga=105", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prior to amendment, this bill exempt insurance pools created by an association of private, not-for-profit educational institutions that has been in existence for at least 25 years from the provisions governing genetic information nondiscrimination. This language was removed from the final version of the bill. The companion bill substituted with SB 343 signed by the Governor May 15, 2007.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 30 }, { "id": "nhgri-450085101647e64e8adf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2007 State Bills Tennessee 2007 SB 343", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=%20SB0343&GA=105", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prior to amendment, this bill exempt insurance pools created by an association of private, not-for-profit educational institutions that has been in existence for at least 25 years from the provisions governing genetic information nondiscrimination. This language was removed from the final version of the bill, which was signed by the Governor May 15, 2007.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 31 }, { "id": "nhgri-385f61e47c9998e6fc9d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2007 State Bills Virginia 2007 HB 2120", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=071&typ=bil&val=hb2120", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the treatment of genetic information as a preexisting condition in the Small Employer Health Insurance Exchange in the absence of a diagnosis of the condition related to such information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 32 }, { "id": "nhgri-db37ea13aa31ba66f853", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2007 State Bills Virginia 2007 HB 2121", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=071&typ=bil&val=hb2121", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the treatment of genetic information as a preexisting condition in the Small Employer Health Insurance Exchange in the absence of a diagnosis of the condition related to such information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2007, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 33 }, { "id": "nhgri-1d26e213ed5549c7e565", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2008 State Bills Arizona 2008 SB 2658", "primary_url": "http://www.azleg.gov/DocumentsForBill.asp?Bill_Number=HB2658&Session_ID=86", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill amends existing law that prohibits health benefit plans from terminating coverage based on a health status-related factor, including genetic information, by adding a group disability policy or a certificate of insurance for a group disability policy that is not issued in the state of Arizona to the definition of \"health benefit plan.\" Signed by the Governor on April 28, 2008.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 34 }, { "id": "nhgri-e67701d4bc261775f36f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2008 State Bills California 2008 AB 2599", "primary_url": "http://www.leginfo.ca.gov/pub/07-08/bill/asm/ab_2551-2600/ab_2599_bill_20080930_chaptered.html", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "The bill establish fees, which the department may collect from researchers who have been approved by the department and who seek to umbilical cord blood, pregnancy blood collected by the Genetic Disease Screening Program, and stored by the Birth Defects Monitoring Program, and newborn blood collected by the Genetic Disease Screening Program. Fees may not to exceed the costs of administering the program and collection and storage of the samples. Signed by the Governor September 30, 2008.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 35 }, { "id": "nhgri-9a6ab64aaa6d48f34e1e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2008 State Bills Colorado 2008 SB 241", "primary_url": "http://www.leg.state.co.us/CLICS/CLICS2008A/csl.nsf/fsbillcont3/42E9CD8C7DC76F8F8725742C007B9726?Open=&file=241_enr.pdf", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill prohibits the reduction of an employees permanent total disability when the disability is a result of a work-related injury or a work-related injury combined with a congenital, genetic or similar conditions except that the law does not apply to reductions in recovery or apportionment allowed pursuant to Colorado Supreme Court decision in Anderson v. Brinkhoff, 859 P.2d 819, (Colo. 1993). Signed into law June 2, 2008.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 36 }, { "id": "nhgri-44aec071a58e4c00c53d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2008 State Bills Florida 2008 SB 2730", "primary_url": "https://www.flsenate.gov/Session/Bill/2008/2730", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires individual and group health insurers to provide benefits or coverage for periodic colorectal cancer examinations and laboratory tests for individuals over 50 and for individuals under 50 who are considered high risk. Definition of high risk includes individuals who, because of the presence of recognized genetic markers, face a higher than normal risk of colorectal cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 37 }, { "id": "nhgri-e9ec9f8e792bd91cd3db", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2008 State Bills Illinois 2008 SB 2399", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=2399&GAID=9&DocTypeID=SB&LegId=36372&SessionID=51&GA=95", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends the Genetic Information privacy Act. The bill adds and amends definitions under the law, makes changes to the employment provisions, adds requirements to be consistent with federal laws such as GINA, and further specifies prohibited actions by covered entities. Monetary penalties are increased, and a private right of action is afforded to any person alleging a violation of the law. The bill allows local governments to enact genetic privacy measures equal to or greater than the protections provided under state law. Approved by the Governor August 26, 2008.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 38 }, { "id": "nhgri-0fd056b5a82e8cca2668", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2008 State Bills Maryland 2008 HB 29", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2008rs/billfile/hb0029.htm", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill prohibits long-term care insurance carriers from requesting or requiring a genetic test to deny or limit coverage or charge a higher rate for the same coverage. These entities may not use the results of a genetic test, genetic information, or a request for genetic services to deny or limit coverage or charge a higher rate for the same coverage except that genetic information or the results of a genetic test may be used for such purposes if based on sound actuarial principles. Approved by the Governor May 22, 2008.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 39 }, { "id": "nhgri-1d3af968a05dbe5f64de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2008 State Bills Maryland 2008 SB 918", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2008rs/billfile/sb0918.htm", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill prohibits long-term care insurance carriers from requesting or requiring a genetic test to deny or limit coverage or charge a higher rate for the same coverage. These entities may not use the results of a genetic test, genetic information, or a request for genetic services to deny or limit coverage or charge a higher rate for the same coverage except that genetic information or the results of a genetic test may be used for such purposes if based on sound actuarial principles. Approved by the Governor May 22, 2008.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 40 }, { "id": "nhgri-24cf83016eb89ce1b0df", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2008 State Bills Minnesota 2008 HF 1905", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF1905&ssn=0&y=2008", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill modifies the definition of genetic test under the Genetic Insurance Discrimination Act and adds a new section restricting the use of genetic information in individual and group life, disability income and long-term care insurance. For underwriting and ratemaking purposes, these insurers may not request or require a genetic test, use genetic test results other than those in the medical record or use genetic test results in the medical record without claims experience, substantial data or actuarial justification. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 41 }, { "id": "nhgri-83c4e8b4fe51152ef51f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2008 State Bills Minnesota 2008 HF 3438/SF 3138", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF3438&ssn=0&y=2008", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill excludes the health department's collection, use, storage and dissemination of genetic information and blood specimens for testing infants for heritable and congenital disorders from the law governing genetic information collected by a government entity. The bill also requires that parents are provided information about how specimens may be used and allows parents to opt out of public health studies or research. Measure failed.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 42 }, { "id": "nhgri-d77eebd11bb80d7fb0db", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2008 State Bills Minnesota 2008 HF 4242", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF4242&ssn=0&y=2008", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 43 }, { "id": "nhgri-89c73a96fdf2e6477e30", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2008 State Bills Mississippi 2008 HB 364", "primary_url": "http://billstatus.ls.state.ms.us/2008/pdf/history/HB/HB0364.xml", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 44 }, { "id": "nhgri-09792e8f61a03fbc285f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2008 State Bills Virginia 2008 HB 593", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=081&typ=bil&val=hb593", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the establishment of rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, in Virginia share health insurance policies. This bill also prohibits pre-existing condition exclusions in these policies based on genetic information in the absence of a diagnosis of a condition related to such information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 45 }, { "id": "nhgri-856d7f7d857493484e16", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2008 State Bills Virginia 2008 SB 578", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=081&typ=bil&val=sb578", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the establishment of rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, in Virginia share health insurance policies. This bill also prohibits pre-existing condition exclusions in these policies based on genetic information in the absence of a diagnosis of a condition related to such information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 46 }, { "id": "nhgri-fc84f3f421717db3c364", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2008 State Bills West Virginia 2008 HB 2978", "primary_url": "http://www.legis.state.wv.us/bill_status/Bills_history.cfm?input=2978&year=2008&sessiontype=RS&btype=bill", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information privacy Act. Genetic testing and genetic information derived from testing may be released only to the individual tested or people specifically given written authorization to receive the information by the individual. Accident and health insurers may not request or seek information derived from genetic testing. If the federal government or others propose guidelines, the bill authorizes the insurance commissioner to propose rules to authorize further disclosure of information derived from genetic testing for insurance purposes beyond what is permitted in the legislation. The bill requires employers to treat information derived from genetic testing in a manner consistent with federal law, including but not limited to the Americans with Disabilities Act. Exclusions under the definition of genetic testing includes research governed by the Common Rule, tests conducted purely for research, tests for somatic as opposed to heritable mutations, tests where direct personal identifiers that reveal the patients identity are encoded or encrypted and tests that are composed of de-identified or anonymized information. Penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2008, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 47 }, { "id": "nhgri-95f3dd7d7067932d69f7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "2009 State Bills Alaska 2009 HB 222", "primary_url": "http://www.akleg.gov/basis/Bill/Detail/26?Root=HB%20222", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill requires health care insurers in the individual market to comply with genetic information nondiscrimination requirements established under 42 U.S.C. 300gg-53. Health care insurers in the group market must comply with genetic information nondiscrimination requirements established under 42 U.S.C. 300gg-1(b)(3), 42 U.S.C. 300gg-1(c) - (f), and 42 U.S.C. 300gg-91. Signed into law August 5, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 48 }, { "id": "nhgri-0623f3d7a91767080e33", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2009 State Bills California 2009 AB 1543", "primary_url": "http://www.leginfo.ca.gov/pub/09-10/bill/asm/ab_1501-1550/ab_1543_bill_20090702_chaptered.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill requires an issuer of a Medicare supplement contract, policy or certificate to adhere to the requirements imposed by the federal Genetic Information Nondiscrimination Act of 2008. Approved by the Governor July 2, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 49 }, { "id": "nhgri-c4f430b825e018a64841", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2009 State Bills California 2009 SB 1330", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_1330&sess=0910&house=B&author=committee_on_judiciary", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "This bill specifies that money from the genetic disease testing fund may be used for costs related to data management, and newborn blood collection, storage, retrieval, processing, inventory, and shipping. The health department, any entities approved by the department, and researchers shall maintain the confidentiality of patient information and blood samples in the same manner as other medical record information with patient identification and may use it only for approved research to (1) identify risk factors for children's and women's diseases;(2) research to develop and evaluate screening tests;(3) research to develop and evaluate prevention strategies; and(4) research to develop and evaluate treatments. The State Committee for the Protection of Human Subjects (CPHS) must determine if all of the if specified criteria are met for purposes of ensuring the security of a donor's personal information, before any blood samples are released pursuant for research purposes. Signed by the Governor September 25, 2010.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 50 }, { "id": "nhgri-1c88e7b68e5faef921c2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2009 State Bills California 2009 SB 145", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_145&sess=0910&house=B&author=desaulnier", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "This bill prohibits the denial of a workers' compensation claim solely because the motivation behind what caused the employee's injury or injury resulting in death was related to an immutable characteristic of the employee. The bill also states that physicians assigning apportionment to the causes of permanent disability by finding what approximate percentage of the disability is a direct result of the employment-related injury versus other factors may not consider genetic predisposition a cause or other factor of disability. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 51 }, { "id": "nhgri-64563ff9de234dcfa8f6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2009 State Bills California 2009 SB 482", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_482&sess=0910&house=B&author=padilla", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill states that all biological data derived from post-CLIA bioinformatics services shall be considered to contain genetic characteristics, as defined in section 1374.7 of the Health and Safety Code and section 10146 of the Insurance Code and is subject to the prohibitions in those sections of the statutes. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 52 }, { "id": "nhgri-60622e6f6197fce77b8e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2009 State Bills Colorado 2009 HB 1338", "primary_url": "http://www.leg.state.co.us/CLICS/CLICS2009A/csl.nsf/fsbillcont3/4B1364ED512F0F01872575890071DD65?Open=&file=1338_enr.pdf", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "This bill amends definitions in the Colorado genetic nondiscrimination in health insurance law. The bill also adds a new section to the Colorado statutes pertaining to limitations on disclosure of genetic information and allows the use of genetic information by research facilities provided that the information is not disclosed to third parties other than to an individual's physician with his or her consent. Signed by the Governor May 25, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 53 }, { "id": "nhgri-d35db864011d93f16d07", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2009 State Bills Connecticut 2009 HB 6333", "primary_url": "http://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=6333&which_year=2009&SUBMIT1_x=18&SUBMIT1_y=8&SUBMIT1=Normal", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends the state genetic nondiscrimination law for employment by creating an exemption for state or local law enforcement, the department of public safety and the division of scientific services that allows those entities to request or require employees to provide genetic information for the purpose of detecting contamination of samples examined by the division of scientific services. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 54 }, { "id": "nhgri-b4bdd91914e0d3001c39", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2009 State Bills Illinois 2009 SB 2493", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=2493&GAID=10&DocTypeID=SB&LegId=48828&SessionID=76&GA=96", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill deletes provisions in the statutes related to pre-existing conditions and the treatment on genetic information as such a condition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 55 }, { "id": "nhgri-3abb814728c9d18d2ed3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2009 State Bills Louisiana 2009 HB 406", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?s=09RS&b=HB406&sbi=y", "source_topics": [ "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "This bill amends Louisianas genetic nondiscrimination in health insurance law. The definition of genetic information and genetic test is revised. The bill also prohibits health insurers from requesting, requiring or purchasing genetic information; requesting or requiring a genetic testing (with some exceptions); establishing rules for eligibility based on genetic information; adjusting premium or contribution amounts based on genetic information; or imposing a pre-existing condition exclusion based on genetic information. An insurer may request that an individual or a family member undergo a genetic test for research that complies with the Common Rule. Signed by the Governor July 7, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 56 }, { "id": "nhgri-933d6359b3150eb38df5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2009 State Bills Maine 2009 LD 1180", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?ld=1180&PID=1456&snum=124", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Enacted", "source_summary": "This bill prohibits carriers of hospital, health or dental insurance from discriminating based on genetic information, refusal to submit to a genetic test or to make available the results of a genetic test, or on the basis that an individual or dependent received a genetic test or genetic counseling. A carrier may request but not require a genetic test pursuant to the Common Rule, or equivalent federal regulations and any applicable state or local laws, rules or regulations for the protection of human subjects in research and in compliance with specified conditions. Other provisions limit the ability of carriers to request, require or purchase a genetic information for certain purposes. Signed by the Governor and Public Law as of June 3, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 57 }, { "id": "nhgri-230b3872177a756a1f1b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 HB 1", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/hb0001.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill repeals an exemption for disability insurance under the state genetic nondiscrimination law and amends the definition of genetic information used in the health_insurance_nondiscrimination law. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 58 }, { "id": "nhgri-7c36285890dacdbd84c1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 HB 11", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/hb0011.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 59 }, { "id": "nhgri-51dceda01904870c152e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 HB 12", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/hb0012.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exceptions. The bill also provides personal property rights to DNA samples and DNA test results. The bill requires the health department to develop a uniform written informed consent form. Civil and criminal penalties are set forth, and individuals whose rights are violated may bring civil action. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 60 }, { "id": "nhgri-46a2cb47e670665a5165", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 HB 2", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/hb0002.htm", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 61 }, { "id": "nhgri-e2ec4b31332262f9d872", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 SB 1", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/sb0001.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits an insurer from requesting or requiring a genetic test or from using a genetic test, the results of a genetic test, genetic information, or a request for genetic services to deny or limit life insurance coverage or benefits or to charge a different rate for the same coverage or benefits under an annuity contract; defining terms; and providing for an exception if the use is based on sound actuarial principles. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 62 }, { "id": "nhgri-d2b43b67e4f6cb3191e6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 SB 2", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/sb0002.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill repeals an exemption for disability insurance under the state genetic nondiscrimination law and amends the definition of genetic information used in the health_insurance_nondiscrimination law. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 63 }, { "id": "nhgri-e200244788e9d177cbde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 SB 54", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/sb0054.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill restricts access to, use of and retention of DNA samples and disclosure of DNA test results without consent with some exemptions. The bill also provides personal property rights to DNA samples and DNA test results and requires the health department to develop a uniform written informed consent form. Penalties are set forth for violations. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 64 }, { "id": "nhgri-8f8dbd6f5c952220fc10", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2009 State Bills Maryland 2009 SB 57", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2009rs/billfile/sb0057.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill provides an individual with a right to civil if the state genetic nondiscrimination insurance statutes are violated. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 65 }, { "id": "nhgri-9481ce27d1c671cdcf9b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2009 State Bills Massachusetts 2009 H 3809", "primary_url": "http://www.malegislature.gov/Bills/192/H.3809", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract to provide benefits on a nondiscrminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing. Accompanied a new draft 2010 H. 4935, which was enacted.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 66 }, { "id": "nhgri-b55b6b4b9f3559a2c897", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2009 State Bills Michigan 2009 HB 5234", "primary_url": "http://www.legislature.mi.gov/(S(4y1txu3rap3gsnuh3igvodmq))/mileg.aspx?page=getObject&objectName=2009-HB-5234", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Died", "source_summary": "This bill applies to insurers that provide Medicare supplement policies or certificates only. Denying or conditioning the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information is prohibited. These insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 67 }, { "id": "nhgri-06f3414f70a1730aa542", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2009 State Bills Michigan 2009 SB 744", "primary_url": "http://www.legislature.mi.gov/(S(4y1txu3rap3gsnuh3igvodmq))/mileg.aspx?page=getObject&objectName=2009-SB-0744", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Enacted", "source_summary": "This bill applies to insurers that provide Medicare supplement policies or certificates only. Denying or conditioning the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information is prohibited. These insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met. Approved by the Governor December 31, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 68 }, { "id": "nhgri-58d12c222ae84c7d4483", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 HF 1341", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF1341&y=2009&ssn=0&b=house", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill excludes the health department's collection, use, storage and dissemination of genetic information and blood specimens for testing infants for heritable and congenital disorders from the law governing genetic information collected by a government entity. The bill also requires that parents are provided information about how specimens may be used and allows parents to opt out of public health studies or research. Measure failed.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 69 }, { "id": "nhgri-91d01f797730f49a578e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 HF 1821/SF 2865", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF1821&y=2009&ssn=0&b=house", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill adds third generation pedigrees to health data protections that apply to the state health department. This bill also requires government entities to obtain written informed consent to collect genetic information and human biological specimens. Consent must include the purpose for collection, the length of retention, and any dissemination outside the organization that will occur. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 70 }, { "id": "nhgri-a7ef1d0f828d497c529f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 HF 1853/SF 1653", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF1853&y=2009&ssn=0&b=house", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Enacted", "source_summary": "This bill applies to insurers that provide Medicare supplement policies or certificates only. Denying or conditioning the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information is prohibited. These insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met. Approved by the governor May 22, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 71 }, { "id": "nhgri-91ca9bf21f1870006c8d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 HF 901", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF0901&y=2009&ssn=0&b=house", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill amends the definition of genetic information and creates a new section of the state genetic privacy law to separate the provisions that apply to government entities versus any person. The requirements imposed on government entities and any person with respect to written informed consent and appropriate use of genetic information are identical. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 72 }, { "id": "nhgri-d2eb1dd8f3b8903f1e9d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 HF 902", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF0902&y=2009&ssn=0&b=house", "source_topics": [ "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill creates personal property rights human biological specimens, defined as tissues, organs and body parts from which DNA may be isolated and requires written informed consent for the use of biological specimens in medical or genetic research. Consent forms must provide at least three options, including consent for a specific research project, consent for future research projects that are yet undefined, or consent for future research projects that are yet undefined, contingent on the research entity returning to seek specific written informed consent if the project is or could be considered controversial. The bill allows limited use of biological specimens for the calibration of laboratory equipment. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 73 }, { "id": "nhgri-3570fa09a0f3096e4677", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2009 State Bills Minnesota 2009 SF 1653", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF1653&y=2009&ssn=0&b=senate", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill adds supplemental Medicare policies to health insurance plans covered under the state genetic_discrimination Act. HF 1853, which was approved by the Governor, was substituted for this bill.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 74 }, { "id": "nhgri-5c4584bff40671c27dd0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2009 State Bills Mississippi 2009 HB 402", "primary_url": "http://billstatus.ls.state.ms.us/2009/pdf/history/HB/HB0402.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information Nondiscrimination in Health Insurance Act, which prohibits health benefits plans from denying, refusing or canceling health insurance benefits or coverage on the basis of genetic information or a request or receipt of genetic services. The bill also prohibits health benefit plan insurers from requesting or requiring a genetic test and from disclosing genetic information without prior written authorization. Penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 75 }, { "id": "nhgri-8fd48455ff93725edac1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2009 State Bills Nevada 2009 SB 388", "primary_url": "http://www.leg.state.nv.us/Session/75th2009/Reports/history.cfm?ID=1032", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 76 }, { "id": "nhgri-60fc7284919420c05917", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2009 State Bills Nevada 2009 SB 426", "primary_url": "http://www.leg.state.nv.us/Session/75th2009/Reports/history.cfm?ID=1144", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "This bill requires health insurers to comply with the Genetic Information Nondiscrimination Act. Signed by the Governor May 29, 2009.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 77 }, { "id": "nhgri-8676f8068177dbd8909e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A1445", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A01445&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 78 }, { "id": "nhgri-85dc9a9644302b11782c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A1769", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A01769&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits denial, cancellation or alteration of a life or disability insurance policy or group life or disability insurance policy, including renewals, on the basis of any genetic testing performed on an insured, applicant or family member of insured or applicant. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 79 }, { "id": "nhgri-7461cb38440d299b1fd0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A2464", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A02464&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk of cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 80 }, { "id": "nhgri-c8a54ea738b33a2bfe93", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A3781", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A03781&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 81 }, { "id": "nhgri-6c0300d4e4d0ef41c5d2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A8123", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A08123&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 82 }, { "id": "nhgri-891665ba16415013594d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 A8511", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A08511&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by employers and insurers. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 83 }, { "id": "nhgri-493bd097dd852b3b0d09", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 S3731", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S03731&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the genetics advisory council. The council, if created, will study and make recommendations on various issues, including unfair discrimination by insurers and employers. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 84 }, { "id": "nhgri-6e180db72d107d34da3d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 S4782", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S04782&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits group or blanket policies that cover 51 or more employees for hospital, medical, major medical, or similar type comprehensive coverage from excluding members or dependents or establishing rates based on predisposing genetic characteristics. The bill also prohibits health insurers from requiring or using tests for or information about predisposing genetic characteristics for underwriting. The same restrictions are imposed upon hospital service corporations, health services corporation and medical expense indemnity corporations covering 51 or more employees. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 85 }, { "id": "nhgri-caea288ff0f9c7e8ff07", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2009 State Bills New York 2009 S935", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S00935&term=2009&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "his bill prohibits the use of genetic information for community rating to develop small group health insurance premiums. The bill also prohibits pre-existing condition exclusions in small group health insurance policies based on genetic predisposition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 86 }, { "id": "nhgri-fda86cf1263ad1d25066", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2009 State Bills North Carolina 2009 HB 1183", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2009&BillID=HB1183&submitButton=Go", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill requires health benefit plans and insurers to comply with all applicable standards of Public Law 110-233, known as the Genetic Information Nondiscrimination Act of 2008, as amended by Public Law 110-343, and as further amended. Signed by the Governor July 31, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 87 }, { "id": "nhgri-61bb8290f90c7f33abba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2009 State Bills Ohio 2009 HB 8", "primary_url": "http://archives.legislature.state.oh.us/bills.cfm?ID=128_HB_8", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill prohibits individual or group accident and sickness insurers from excluding coverage for the screening and diagnosis of autism, including genetic testing. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 88 }, { "id": "nhgri-323bec9819d92d34402f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2009 State Bills Oregon 2009 HB 2009", "primary_url": "https://olis.oregonlegislature.gov/liz/2009R1/Measures/Overview/HB2009", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends the state genetic privacy law by designating the Oregon Health Authority (previously the Department of Health and Human Services) as the body responsible for certain provisions of the law. Signed by the Governor June 26, 2009.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 89 }, { "id": "nhgri-2684740b66a39d47ce03", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2009 State Bills Virginia 2009 SB 976", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=091&typ=bil&val=sb976", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits the treatment of genetic information as a preexisting condition in basic health insurance plans in the absence of a diagnosis of the condition related to such information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 90 }, { "id": "nhgri-5b6872472c6795bec45d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2009 State Bills West Virginia 2009 HB 2720", "primary_url": "http://www.legis.state.wv.us/bill_status/Bills_history.cfm?input=2720&year=2009&sessiontype=RS&btype=bill", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information privacy Act. Genetic testing and genetic information derived from testing may be released only to the individual tested or people specifically given written authorization to receive the information by the individual. Accident and health insurers may not request or seek information derived from genetic testing. If the federal government or others propose guidelines, the bill authorizes the insurance commissioner to propose rules to authorize further disclosure of information derived from genetic testing for insurance purposes beyond what is permitted in the legislation. The bill requires employers to treat information derived from genetic testing in a manner consistent with federal law, including but not limited to the Americans with Disabilities Act. Exclusions under the definition of genetic testing includes research governed by the Common Rule, tests conducted purely for research, tests for somatic as opposed to heritable mutations, tests where direct personal identifiers that reveal the patients identity are encoded or encrypted and tests that are composed of de-identified or anonymized information. Penalties for violations are set forth. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 91 }, { "id": "nhgri-871b352e592a5b915a4c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2009 State Bills Wisconsin 2009 AB 31", "primary_url": "https://docs.legis.wisconsin.gov/2009/proposals/ab31", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill allows a person discriminated against or the department of workforce development under the state fair employment practices law to bring an action in circuit court. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 92 }, { "id": "nhgri-ff481a645520506a6e92", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2009 State Bills Wisconsin 2009 AB 75", "primary_url": "https://docs.legis.wisconsin.gov/2009/proposals/ab75", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill amends statute section 631.89 (2) (bm) related to requesting or requiring genetic information from health care providers by amending the definition of covered providers to include providers as defined in section 146.81 (a) to (p). Report approved by the Governor with partial veto June 26, 2009 (section pertaining to genetic testing unaffected by partial veto)", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2009, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 93 }, { "id": "nhgri-5ee68f4125ce497ef8bd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2010 State Bills Arizona 2010 HB 2291", "primary_url": "http://www.azleg.gov/DocumentsForBill.asp?Bill_Number=HB2291&Session_ID=93", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits health care service organizations from imposing pre-existing condition limitations or exclusions. Genetic conditions in the absence of a diagnosis related to the condition are not considered pre-existing conditions and may not result in a pre-existing condition limitation or exclusion. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 94 }, { "id": "nhgri-1f1e9bbdd1f1a2244e93", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2010 State Bills Arizona 2010 SB 1309", "primary_url": "http://www.azleg.gov/DocumentsForBill.asp?Bill_Number=SB1309&Session_ID=93", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "The bill establishes the right of parents to consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as for newborn screening. Signed by the Governor May 10, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 95 }, { "id": "nhgri-60466b6dd882d39c10f5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2010 State Bills California 2010 AB 2244", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=ab_2244&sess=0910&house=B&author=feuer", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill requires carriers and health care service plans offering plan contracts in the individual market, other than individual grandfathered plan coverage, to offer to the responsible party for a child coverage for the child that does not exclude or limit coverage due to any preexisting condition of the child. A health care service plan may not condition the issuance or offering of individual coverage on certain factors, including genetic information. Signed by the Governor on September 30, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 96 }, { "id": "nhgri-30a6c9dc549692f2c298", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2010 State Bills California 2010 SB 1187", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_1187&sess=0910&house=B&author=strickland", "source_topics": [ "Research" ], "source_status": "Enacted", "source_summary": "This bill amends existing law on the protection of human subjects, which provides an exemption until January 1, 2011 for any medical experimental treatment that benefits a patient subject to a life-threatening emergency if prescribed conditions are met. This bill provides that this exemption remains in effect until January 1, 2014. Signed by the Governor July 15, 2010.", "base_status": "enacted", "mapped_topics": [ "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 97 }, { "id": "nhgri-c12bfe3f660147462bbf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2010 State Bills Colorado 2010 HB 1422", "primary_url": "http://www.leg.state.co.us/CLICS/CLICS2010A/csl.nsf/fsbillcont3/59261F19960440F8872576A80026B474?Open=&file=1422_enr.pdf", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends section 10-3-1104.6 of the statutes by modifying a provision on limitations on disclosure of genetic information. The list of public health entities exempt from limitations on disclosure when conducting certain activities is reworded to include county, district or municipal public health agencies. Signed by the Governor on June 10, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 98 }, { "id": "nhgri-8ba1f279b2a6f35d74e7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2010 State Bills Florida 2010 HB 1593", "primary_url": "https://www.flsenate.gov/Session/Bill/2010/1593", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits appointments, terminations, assignments, and maintenance of status, compensation, privileges and other terms and conditions of employment in the state personnel system based on genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 99 }, { "id": "nhgri-8625452e61989cd7aae1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2010 State Bills Florida 2010 SB 2268", "primary_url": "https://www.flsenate.gov/Session/Bill/2010/2268", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits appointments, terminations, assignments, and maintenance of status, compensation, privileges and other terms and conditions of employment in the state personnel system based on genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 100 }, { "id": "nhgri-162282d902f1c11033be", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2010 State Bills Georgia 2010 SB 408", "primary_url": "http://www.legis.ga.gov/Legislation/en-US/display/20092010/SB/408", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits a health group cooperative from excluding a small employer based on a health status-related factor, including genetic information in relation to an employee or dependent of an employee. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 101 }, { "id": "nhgri-85a6ca56e5f5a044390c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2010 State Bills Iowa 2010 HF 2531", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=83&ba=hf2531", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill adds definitions to the genetic nondiscrimination in employment law. Signed by the Governor April 29, 2010.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 102 }, { "id": "nhgri-6998c460f3cc228cc1aa", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2010 State Bills Iowa 2010 SF 2068", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=83&ba=sf2068", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill prohibits health insurers from discriminating based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established to collect, retain, transmit or use genetic information. Exceptions under consent requirements include medical or scientific research and eduction and for use in medical repositories and registries if it does not contain personally identifiable information. Health insurers may not release genetic information without prior written authorization. Exceptions for release requirements include (1) if an individual is participating in research settings, including those governed by the federal policy for the protection of human subjects, and (2) tests conducted purely for research. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 103 }, { "id": "nhgri-a9658bab44a40e422bb3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2010 State Bills Iowa 2010 SF 2215", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=83&ba=sf2215", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "This bill prohibits health insurers from discriminating based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established to collect, retain, transmit or use genetic information. Exceptions under consent requirements include medical or scientific research and eduction and for use in medical repositories and registries if it does not contain personally identifiable information. Health insurers may not release genetic information without prior written authorization. Exceptions for release requirements include (1) if an individual is participating in research settings, including those governed by the federal policy for the protection of human subjects, and (2) tests conducted purely for research. Signed by the Governor April 23, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 104 }, { "id": "nhgri-2a358f2df796d5028a1c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "2010 State Bills Kansas 2010 HB 2501", "primary_url": "http://www.kansas.gov/government/legislative/bills/2010/2501.pdf", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "As described in the supplemental bill note, this bill establishes additional restrictions on insurance companies that require larger premiums for coverage based on obtaining a genetic test or the results of a genetic test, or that adjust premiums based on obtaining a genetic test or the results of a genetic test. The bill also specifies that the genetic testing provisions in law would apply to group policies and certificates of coverage or individual policies that provide hospital, medical or surgical expense benefits. Approved by the Governor April 15, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 105 }, { "id": "nhgri-00438e833d90e3880dea", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "2010 State Bills Kansas 2010 SB 390", "primary_url": "http://www.kansas.gov/government/legislative/bills/2010/390.pdf", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "As described in the supplemental bill note, this bill establishes additional restrictions on insurance companies that require larger premiums for coverage based on obtaining a genetic test or the results of a genetic test, or that adjust premiums based on obtaining a genetic test or the results of a genetic test. The bill also specifies that the genetic testing provisions in law would apply to group policies and certificates of coverage or individual policies that provide hospital, medical or surgical expense benefits. Approved March 22, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 106 }, { "id": "nhgri-f569e59403ef2f9e9421", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2010 State Bills Kentucky 2010 SB 155", "primary_url": "https://apps.legislature.ky.gov/record/10rs/sb155.html", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "This bill prohibits the adjustment of premium or contribution amounts based on genetic information; prohibits an insurer from requesting or requiring a genetic test of a member unless made pursuant to the Common Rule, equivalent federal regulations or any applicable administrative regulation for the protection of human subjects in research; prohibits the use of genetic information for underwriting purposes; prohibits the request, requirement, or purchase of genetic information by an insurer prior to an individual's enrollment under a plan; precludes insurers from requiring genetic information for eligibility for health insurance in the individual market; and prohibits the use of genetic information for the purpose of imposing any pre-existing condition exclusion. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 107 }, { "id": "nhgri-bb7fc40542af5b0e099d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2010 State Bills Maryland 2010 HB 1351", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2010rs/billfile/hb1351.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends provisions of law that relate to the use of genetic tests and genetic information by an insurer, nonprofit health service plan, or health maintenance organization. The bill also amends provisions related to the use of genetic information in disability insurance, longterm care insurance, or life insurance. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 108 }, { "id": "nhgri-32cae37ef1a51c8cf390", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2010 State Bills Maryland 2010 HB 504", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?tab=subject3&ys=2010rs/billfile/hb0504.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends the employment discrimination law to state that an unlawful employment practice is established, including discrimination based on genetic information, when the complainant demonstrates that genetic information was a motivating factor for any employment practice even though other factors motivated the practice. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 109 }, { "id": "nhgri-a3003bdb48b92c09286c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2010 State Bills Massachusetts 2010 H.4935", "primary_url": "http://www.malegislature.gov/Bills/186/House/H4935", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "This bill requires individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract to provide benefits on a nondiscriminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing. Signed by the Governor August 3, 2010.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 110 }, { "id": "nhgri-67b32104d379b1c63178", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2010 State Bills Minnesota 2010 HF 1681", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF1681&ssn=0&y=2010", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 111 }, { "id": "nhgri-3278aacb321c429a1815", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2010 State Bills Mississippi 2010 HB 378", "primary_url": "http://billstatus.ls.state.ms.us/2010/pdf/history/HB/HB0378.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the genetic nondiscrimination in health insurance act. No health benefit plan may cancel, deny or refuse to renew benefits or coverage based on genetic information. This bill also places restrictions on health benefit plan's ability to request or require disclosure of genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 112 }, { "id": "nhgri-4e06b580657c41b25697", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2010 State Bills Mississippi 2010 HB 825", "primary_url": "http://billstatus.ls.state.ms.us/2010/pdf/history/HB/HB0825.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits group health benefit plans from imposing pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 113 }, { "id": "nhgri-558997438e366eb1f193", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2010 State Bills Montana 2010 HB 128", "primary_url": "http://laws.leg.mt.gov/legprd/LAW0203W$BSRV.ActionQuery?P_SESS=20111&P_BLTP_BILL_TYP_CD=HB&P_BILL_NO=128&P_BILL_DFT_NO=&P_CHPT_NO=&Z_ACTION=Find&P_SBJT_SBJ_CD=&P_ENTY_ID_SEQ=", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends the health insurance statutes and prohibits a group health plan or a health insurance issuer offering group health_insurance_coverage from imposing a preexisting condition exclusion on an individual under 19 years of age because of a preexisting condition. Genetic information may not be treated as a pre-existing condition under existing law. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 114 }, { "id": "nhgri-b0cead3988cda87137db", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2010 State Bills Montana 2010 HB 183", "primary_url": "http://laws.leg.mt.gov/legprd/LAW0203W$BSRV.ActionQuery?P_SESS=20111&P_BLTP_BILL_TYP_CD=HB&P_BILL_NO=183&P_BILL_DFT_NO=&P_CHPT_NO=&Z_ACTION=Find&P_SBJT_SBJ_CD=&P_ENTY_ID_SEQ=", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends the genetic nondiscrimination law pertaining to life and disability insurance to exclude high deductible plans. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 115 }, { "id": "nhgri-363ac1e744e608caa2aa", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "2010 State Bills Nebraska 2010 LB 1038", "primary_url": "http://nebraskalegislature.gov/bills/view_bill.php?DocumentID=10097", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill amends section 71-551 of the statutes on genetic testing. Proposed changes address the types of genetic tests covered under law and and consent requirements. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 116 }, { "id": "nhgri-467481060c4aafd3d224", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2010 State Bills Oklahoma 2010 HB 2688", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB2688&session=1000", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires individual and group health insurers that provide coverage on an expense-incurred basis to provide reimbursement not to exceed $115 for mammography screening any female under 35 with a genetic predisposition to breast cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 117 }, { "id": "nhgri-0660f26bc006c597cca0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2010 State Bills Oklahoma 2010 SB 1250", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=SB1250&session=1000", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "This bill requires parental consent required to store, transfer, use or database DNA from any newborn child. Signed by the Governor May 11, 2010.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 118 }, { "id": "nhgri-808e60db44edfb6dc335", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2010 State Bills Oklahoma 2010 SB 2054", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB2054&session=1000", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Enacted", "source_summary": "This bill modifies the state Genetic Information Nondiscrimination in Insurance Act. Topics addressed by the modifications include definitions, discrimination in health insurance based on genetic information, and prohibitions for requesting and requiring genetic a genetic test with exceptions for research if conducted in compliance with the Common Rule and certain criteria are met. Approved by the Governor on 5/10/2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 119 }, { "id": "nhgri-a3569b00c3a80fa2e535", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2010 State Bills South Carolina 2010 HB 4298", "primary_url": "http://www.scstatehouse.gov/sess118_2009-2010/bills/4298.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill amends existing statute sections and creates new statute sections pertaining to health_insurance_nondiscrimination, genetic privacy, research issues and enforcement of these provisions. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 120 }, { "id": "nhgri-f29cb8d50b323be80237", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2010 State Bills South Carolina 2010 SB 1224", "primary_url": "http://www.scstatehouse.gov/sess118_2009-2010/bills/1224.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "This bill amends existing statute sections and creates new statute sections pertaining to health_insurance_nondiscrimination, genetic privacy, research issues and enforcement of these provisions. Signed by the Governor on June 7, 2010.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 121 }, { "id": "nhgri-763f72a19a6938ded113", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2010 State Bills Virginia 2010 HB 455", "primary_url": "http://lis.virginia.gov/cgi-bin/legp604.exe?ses=101&typ=bil&val=hb455", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends the state employment genetic nondiscrimination law by adding the Commonwealth or any of its agencies, institutions, or political subdivisions, or any public body to the list of entities covered under the law. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2010, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 122 }, { "id": "nhgri-52a6a800d1faa25d7557", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2011 State Bills California 2011 SB 559", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_559&sess=1112&house=B&author=padilla", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill, referred to as CalGINA, prohibits discrimination based on genetic information in several areas in addition to those addressed by existing law, including in housing, at certain business facilities, at state agencies, entities funded by or receiving financial assistance from the state, and in the provision of emergency services. Signed by the Governor on September 6, 2011.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 123 }, { "id": "nhgri-01627ec649b7e0e7af48", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2011 State Bills Hawaii 2011 HB 1451", "primary_url": "http://www.capitol.hawaii.gov/Archives/measure_indiv_Archives.aspx?billtype=HB&billnumber=1451&year=2011", "source_topics": [ "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill adds a new chapter to the Hawaii statutes on the privacy of health care information. The bill provides for the protection of \"protected health information,\" including genetic information. The bill allows a health care provider, health plan, public health authority, employer, insurer or educational institution to disclose protected health information to health researchers if certain requirements are met, including review of the research by an IRB. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 124 }, { "id": "nhgri-eaf3a3f6fe6851c03bbe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2011 State Bills Iowa 2011 HF 597", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=89&ba=hf597", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill requires a health carrier to notify a covered person of the right to request an external review and include appropriate statements and information in the written notice of a final adverse decision. Health carriers also must include with the notice an authorization form or other document developed by the state that complies with the federal Genetic Information Nondiscrimination Act. Signed by the Governor on April 28, 2011.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 125 }, { "id": "nhgri-b312a7403d88f7069fe6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2011 State Bills Massachusetts 2011 S.1080", "primary_url": "http://www.malegislature.gov/Bills/187/Senate/S1080", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy", "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Bill of RIghts. Genetic information is declared the exclusive property of the individual from whom the information is obtained. The bill also prohibits disclosure of genetic information without informed written consent. The bill excludes newborn screening blood specimens from the definition of genetic information. The bill also excludes research from consent requirements when genetic information is held by particular entities if the information is confidential research information for use in epidemiological or clinical research conducted for the purpose of generating scientific knowledge about genes or learning about the genetic basis of disease or for developing pharmaceutical and other treatments of disease. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "newborn-screening", "research" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 126 }, { "id": "nhgri-1e6825d53432e231bb64", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2011 State Bills Michigan 2011 SB 429", "primary_url": "http://www.legislature.mi.gov/(S(4y1txu3rap3gsnuh3igvodmq))/mileg.aspx?page=getObject&objectName=2011-SB-0429", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill allows a health insurer to request a genetic test as additional information for prior authorization. (See version passed by the Senate). Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 127 }, { "id": "nhgri-bcf3ac6e46571e04fc9d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2011 State Bills Minnesota 2011 HF 1357", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF1357&ssn=0&y=2011", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "This bill requires any person who provides a specimen collection kit to a resident of Minnesota for the purpose of collecting genetic material to perform a genetic test to first provide the resident with the disclosure, as described in the legislation. The bill also requires a study to determine which companies and laboratories are providing direct-to-consumer genetic tests to Minnesota residents. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 128 }, { "id": "nhgri-9431d7c5db7739e8b03d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2011 State Bills Mississippi 2011 HB 904", "primary_url": "http://billstatus.ls.state.ms.us/2011/pdf/history/HB/HB0904.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 129 }, { "id": "nhgri-64362fd6ad646fee462f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2011 State Bills New Mexico 2011 SB 205", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=S&LegType=B&LegNo=205&year=11", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill enacts the Uniform Protection of Genetic Information in Employment Act on employee access to genetic information, confidentiality and retention of genetic information and disclosure of genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 130 }, { "id": "nhgri-07ea398975273ab498f9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A1840", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A01840&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill prohibits the retention of DNA, blood spots or other genetic information with an infant's identifying information for any period of time or for any purpose other than newborn screening without parental consent. Measure failed.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 131 }, { "id": "nhgri-b18ef7fb324540333478", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A2325", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A02325&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires accident and health insurance policies to cover the cost of genetic testing of people with a family history of cancer when his or her physician determines that there is a significant risk of developing cancer. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 132 }, { "id": "nhgri-b574135b2a9b9c2e1699", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A2837", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A02837&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits discrimination based on genetic characteristics in life and disability insurance. Measure failed.", "base_status": "died", "mapped_topics": [], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 133 }, { "id": "nhgri-9fb81e9c7e724d214a50", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A5065", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A05065&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Measure failed.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 134 }, { "id": "nhgri-227fe0619227bef4c89f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A5858", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A05858&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill defines the term \"genetic predisposition\" for purposes of individual and small group health insurance policies, requires that genetic predisposition be disregarded in community rating, and provides that no pre-existing condition exclusion in such a policy shall exclude coverage on the basis of any genetic predisposition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 135 }, { "id": "nhgri-41750da021862bbfb579", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 A6478", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A06478&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill prohibits any group or blanket health insurance policy from excluding coverage for any group member based on a predisposing genetic characteristic, and prohibits any hospital service corporation, health service corporation or medical expense indemnity corporation contract from excluding coverage for any group member based on predisposing genetic characteristics. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 136 }, { "id": "nhgri-4ad79ea7727796b11015", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2011 State Bills New York 2011 S3726", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=S03726&term=2011&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "his bill defines the term \"genetic predisposition\" for purposes of individual and small group health insurance policies, requires that genetic predisposition be disregarded in community rating, and provides that no pre-existing condition exclusion in such a policy shall exclude coverage on the basis of any genetic predisposition. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 137 }, { "id": "nhgri-a872b13645600f339666", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "2011 State Bills North Dakota 2011 SB 2067", "primary_url": "http://www.legis.nd.gov/assembly/62-2011/bill-actions/ba2067.html", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "This bill amends the statute that allows the health council to authorize the use of newborn metabolic screening tests for legitimate research purposes by broadening the term \"newborn metabolic screening tests\" to include \"newborn metabolic and genetic disease screening tests.\" Signed by the Governor April 26, 2011.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 138 }, { "id": "nhgri-86ad0484f09014742754", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2011 State Bills Oklahoma 2011 SB 836", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=SB836&session=1100", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends statutes pertaining to discriminatory practices in employment, housing, and public accommodations. The bill provides exclusive remedies for individuals alleging discrimination in employment on the basis of genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 139 }, { "id": "nhgri-70e343649ee7eada38ac", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2011 State Bills Oklahoma 2011 SB 837", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=SB837&session=1100", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill amends statutes pertaining to discriminatory practices in employment, housing, and public accommodations. The bill provides exclusive remedies for individuals alleging discrimination in employment on the basis of genetic information. Signed by the Governor May 18, 2011.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 140 }, { "id": "nhgri-13b0ed705fe5f4a8b5b3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2011 State Bills South Dakota 2011 SB 38", "primary_url": "https://sdlegislature.gov/Session/Bill/2427", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill amends the definitions used in the health_insurance_nondiscrimination law. Signed by the Governor March 8, 2011.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 141 }, { "id": "nhgri-50b823702bc5f09cf81a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2011 State Bills Texas 2011 HB 2110", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=82R&Bill=HB2110", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill gives an individual property rights to his or her DNA sample. A person may not collect a DNA sample, perform a genetic test or retain a DNA sample, with few exceptions such as for law enforcement purposes. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 142 }, { "id": "nhgri-0e58ee38d89a3a14b8f1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2011 State Bills Vermont 2011 H368", "primary_url": "http://legislature.vermont.gov/bill/status/2012/H.0368", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill creates personal property rights to genetic information. The bill also prohibits disclosure of genetic information without informed written consent. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 143 }, { "id": "nhgri-faef2da77235704f84c4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2011 State Bills Wisconsin 2011 AB 289", "primary_url": "https://docs.legis.wisconsin.gov/2011/proposals/ab289", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 144 }, { "id": "nhgri-38bbcbecf02b9b04f84c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2011 State Bills Wisconsin 2011 SB 202", "primary_url": "https://docs.legis.wisconsin.gov/2011/proposals/sb202", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill would eliminate the compensatory and punitives damages for acts of employment discrmination or unfair honesty or genetic testing. Signed by the Governor April 6, 2012.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2011, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 145 }, { "id": "nhgri-8e68af3144f2ead557e0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2012 State Bills Alabama 2012 HB 78", "primary_url": "http://alisondb.legislature.state.al.us/ALISON/SearchableInstruments/2012RS/PrintFiles/HB78-int.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information privacy Act. The bill establishes procedures for obtaining, disclosing and storing genetic information as well as penalties for unlawful disclosure. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 146 }, { "id": "nhgri-e5da34580837072cea9f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2012 State Bills California 2012 SB 1267", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=sb_1267&sess=1112&house=B&author=padilla", "source_topics": [ "Privacy", "Research" ], "source_status": "Died", "source_summary": "This bill creates the Genetic Information privacy Act. The bill prohibits any person from obtaining, analyzing, or disclosing genetic information without the written authorization of the individual to whom the information pertains and requires a separate written authorization for each separate disclosure of an individual's genetic information, with some exceptions such as for law enforcement. The bill permits disaggregated and anonymized data to be used in the manner specified that was collected before the bill's enactment without the authorization described above. The bill also permits the use of disaggregated and anonymized data, as specified, if written authorization is obtained and the data is used for a purpose authorized by the individual to whom the information pertains. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 147 }, { "id": "nhgri-bb7ee7092943fa726316", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2012 State Bills Hawaii 2012 HB 1810", "primary_url": "http://www.capitol.hawaii.gov/Archives/measure_indiv_Archives.aspx?billtype=HB&billnumber=1810&year=2012", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill requires health benefit plans to include lower deductibles and co-payments for non-tobacco smokers and others at low risk. Genetic factors and pre-existing conditions may not be considered a behavior. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 148 }, { "id": "nhgri-0f800d8ba21403099d21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2012 State Bills Illinois 2012 HB 6248", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=6248&GAID=11&DocTypeID=HB&LegId=68064&SessionID=84&GA=97", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "The Department of Healthcare and Family Services must authorize the provision of, and payment for, a baseline mammograms for women 35-39 and mammograms at certain intervals for women over 40. Women under 40 with risk factors such as positive genetic testing should receive mammograms as medical necessary. Measure failed.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 149 }, { "id": "nhgri-65c86afb7b8d09b30784", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2012 State Bills Louisiana 2012 HB 637", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?s=12RS&b=HB637&sbi=y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill changes the person in charge of promulgating regulations for genetic monitoring from the executive director of the Louisiana Workforce Commission to the chairman of the Louisiana Commission on Human Rights. Measure failed.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 150 }, { "id": "nhgri-9bc0568a6724ceb1e807", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2012 State Bills Minnesota 2012 HF 2967", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF2967&ssn=0&y=2012", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "During the period in which residual newborn screening specimens is retained, the health department may use blood samples and test results for newborn screening program operations. Newborn screening operations are defined to specifically exclude research, public health studies, or the development of new newborn screening tests. Signed by the Governor on May 10, 2012.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 151 }, { "id": "nhgri-9361bd3ba0e18056f3ed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2012 State Bills Minnesota 2012 HF 3025", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF3025&ssn=0&y=2012", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 152 }, { "id": "nhgri-c2468b41199deb0a93eb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2012 State Bills Mississippi 2012 HB 497", "primary_url": "http://billstatus.ls.state.ms.us/2012/pdf/history/HB/HB0497.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "In the group health market genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genet ic information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 153 }, { "id": "nhgri-9821871b36f4d58f55d0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2012 State Bills New Mexico 2012 SB 290", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=S&LegType=B&LegNo=290&year=12", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill removes language in several sections of the statutes related to health insurance, which state that genetic information is not a health status factor. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 154 }, { "id": "nhgri-1801ae00d79ac9e11c2d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2012 State Bills South Carolina 2012 SB 1266", "primary_url": "http://www.scstatehouse.gov/query.php?search=DOC&searchtext=Bill%25&category=LEGISLATION&session=119&conid=6815249&result_pos=800&keyval=1191266&numrows=100", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Existing law requires individual and group health insurers to cover mammograms. This bill requires that Coverage for mammograms required in subsection (A)(1) must include benefits for comprehensive ultrasound screening of an entire breast or breasts if a mammogram demonstrates heterogeneous or dense breast tissue based on: (a) the Breast Imaging Reporting and Data System established by the American College of Radiology; or (b) if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 155 }, { "id": "nhgri-a3ef85ea810ed3f6a56c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2012 State Bills South Dakota 2012 HB 1260", "primary_url": "https://sdlegislature.gov/Session/Bill/3293", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill repeals the authority of the director of the Division of Insurance to promulgate rules governing use of genetic information and enacts certain provisions regarding the use of genetic information. Measure failed.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2012, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 156 }, { "id": "nhgri-828dcf37689c666217fe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2013 State Bills California 2013 AB 58", "primary_url": "http://www.legislature.ca.gov/cgi-bin/port-postquery?bill_number=ab_58&sess=PREV&house=B&author=wieckowski_%3Cwieckowski%3E", "source_topics": [ "Research" ], "source_status": "Enacted", "source_summary": "This bill continue the exemption to informed consent requirements for human subjects in the event of a life-threatening emergency indefinitely. The existing exemption is set to expire on January 1, 2014. Approved by the Governor on Oct. 4, 2013.", "base_status": "enacted", "mapped_topics": [ "research" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 157 }, { "id": "nhgri-4eb1090062d8696ea569", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2013 State Bills California 2013 Extraordinary Session SBX1 2", "primary_url": "http://www.leginfo.ca.gov/pub/13-14/bill/sen/sb_0001-0050/sbx1_2_bill_20130509_history.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits a policy or contract that covers a small employer, as defined in Section 1304(b) of PPACA and in Section 1357.500, or health care service plans offered outside the American Health Benefit Exchange required by PPACA from establishing rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the policy or contract based on health status-related factors, including genetic information. Approved by the Governor May 9, 2013.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 158 }, { "id": "nhgri-3544ff51e2570d8b70c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2013 State Bills California 2013 SB 161", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201320140SB161&search_keywords=", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "A stop-loss carrier must offer coverage to all employees and dependents of employees of a small employer to which it issues a stop-loss insurance policy and may not exclude any employee or dependent on the basis of an actual or expected health status-related factor, including genetic information. Approved by the Governor October 1, 2013.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 159 }, { "id": "nhgri-afd911885fc726c198a0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2013 State Bills California 2013 SB 222", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201320140SB222&search_keywords=", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill states that it is the intent of the Legislature to enact legislation to protect individuals from the unauthorized use of their genetic information, ensure that genetic information is personal information that is not collected, stored, or disclosed without the individual's authorization, provide protections for the collection, storage, and authorized use of genetic information, and promote the use of genetic information for legitimate reasons, including, but not limited to, health care, research, advancement of medicine, and educational purposes, as the field of genomics advances. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 160 }, { "id": "nhgri-542b9ba4039000476415", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2013 State Bills California 2013 SB 799", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201320140SB799&search_keywords=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires every health care service plan contract, except a specialized health care service plan contract to provide coverage for genetic testing for hereditary nonpolyposis colorectal cancer (HNPCC) under certain circumstances. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 161 }, { "id": "nhgri-dbee5e94cecd03f04cab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2013 State Bills Colorado 2013 HB 1266", "primary_url": "http://www.leg.state.co.us/clics/clics2013a/csl.nsf/fsbillcont2/2FF83C17083A577887257AEE005AB558?Open=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "This bill amends existing statutes pertaining to mammography coverage for persons with a predisposition to breast cancer by amending provisions related to copayments and deductibles and the frequency of mammography coverage requirements (breast cancer screening with mammography required annually.) Signed by the Governor on May 13, 2013.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 162 }, { "id": "nhgri-ecfbc3f6c2ee6d045568", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2013 State Bills Colorado 2013 HB 1309", "primary_url": "http://www.leg.state.co.us/clics/clics2013a/csl.nsf/fsbillcont2/05AF1FB23C8EF32B87257AEE0057D70E?Open=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Amends existing coverage requirements for breast cancer screening with mammography for individuals with a genetic predispoition to breast cancer. Requires all sickness and accident insurance policies to provide coverage for breast imaging for all individuals possessing at least one risk factor for breast cancer, including a family history of breast cancer, being 40 years of age or older, or a genetic predisposition to breast cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 163 }, { "id": "nhgri-a0db2cff4f9aef99377d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2013 State Bills Delaware 2013 HB 162", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=22460", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits group health insurers from establishing rules for eligibility of an individual to enroll based on a health status related factor of individuals, including genetic information. Prohibits individual health insurers from establishing rules for eligibility of an individual to enroll under the terms of the coverage based on health status-related factors, including genetic information. Signed by the Governor on July 15, 2013.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 164 }, { "id": "nhgri-67715717a970fc01f322", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2013 State Bills Florida 2013 HB 857", "primary_url": "http://www.flsenate.gov/Session/Bill/2013/0857", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends Florida's health_insurance_nondiscrimination law. The bill removes the exemption for life, disability and long-term care insurance under existing law and states that the law applies to other lines of insurance. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 165 }, { "id": "nhgri-ee79ab2f465e8a5fc2b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2013 State Bills Florida 2013 SB 982", "primary_url": "http://www.flsenate.gov/Session/Bill/2013/0982", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill amends Florida's health_insurance_nondiscrimination law. The bill removes the exemption for life, disability and long-term care insurance under existing law and states that the law applies to other lines of insurance. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 166 }, { "id": "nhgri-90e6be0ec1c672daabfb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2013 State Bills Hawaii 2013 HB 540", "primary_url": "http://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=540&year=2013", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "The board of the Hawaii employer-union health benefits trust fund must require every health benefits plan established or contracted to include lower deductibles and co-payments for non-smokers of tobacco and other persons engaged in low risk health behaviors that are designed, in compliance with applicable federal and state laws, to encourage preventative health care, promote wellness, and discourage medically unnecessary use of health care services; provided that the board consults with medical professionals to determine what should be included as low risk health behaviors. Genetic factors and pre-existing medical conditions may not be considered as a behavior when determining what constitutes low risk behavior. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 167 }, { "id": "nhgri-95d329d423ca00a634cb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2013 State Bills Idaho 2013 HB 194", "primary_url": "https://legislature.idaho.gov/sessioninfo/2013/legislation/H0194/", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Worker's compensation is payable for disability or death of an employee resulting from occupational diseases, including breast cancer, if certain criteria are met. Criteria includes: (1) diagnosis of breast cancer after five years of employment, before the age of 40, without BRCA 1 or BRCA 2 genetic predisposition; and (2) the disease must not have been revealed during an initial employment medical screening exam or during any subsequent medical review. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 168 }, { "id": "nhgri-84cee9d818c6070fdf9c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2013 State Bills Maryland 2013 HB 1430", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb1430&stab=01&pid=billpage&tab=subject3&ys=2013RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Creates the task force on pharmacogenomics to examine questions related to pharmacogenomics, including how the State can adopt genomic testing as the standard of care for patients. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 169 }, { "id": "nhgri-365be4dd5ef71dd20144", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2013 State Bills Maryland 2013 HB 959", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb0959&tab=subject3&ys=2013RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 170 }, { "id": "nhgri-ca1945c60d7a044d7537", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2013 State Bills Maryland 2013 HB 960", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb0960&stab=01&pid=billpage&tab=subject3&ys=2013RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 171 }, { "id": "nhgri-e9718f1559f5a35cd865", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2013 State Bills Maryland 2013 SB 676", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=sb0676&tab=subject3&ys=2013RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Sets forth requirements for governmental units, including an executive, legislative or judicial agency, a department, a board, a commission, an authority, a public institution of higher education, or a unit or instrument of the state that collects or discloses personal information. Defines personal information to include an individual's genetic print. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 172 }, { "id": "nhgri-06887faf1e74b5e3467b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2013 State Bills Maryland 2013 SB 859", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=sb0859&tab=subject3&ys=2013RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses, when destroying a customers records that contain personal or private information of the customer, to take specific steps to protect against unauthorized access to or use of the information. Personal information is defined to include an individual's genetic print. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 173 }, { "id": "nhgri-eaa741770e799fd714a8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2013 State Bills Massachusetts 2013 H.1909", "primary_url": "https://malegislature.gov/Bills/188/House/H1909", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Specifies when authorization to disclose health care information is required. Health care is defined to include genetic information. As of June 6, 2014, accompanied by a study order (see H4147).", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 174 }, { "id": "nhgri-71cbf8f3273712cfee41", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2013 State Bills Massachusetts 2013 H.2070", "primary_url": "https://malegislature.gov/Bills/188/House/H2070", "source_topics": [ "Research" ], "source_status": "Enacted", "source_summary": "This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Signed by the Governor 12/19/2014.", "base_status": "enacted", "mapped_topics": [ "research" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 175 }, { "id": "nhgri-496e1632997f395fc7fb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2013 State Bills Massachusetts 2013 H.974", "primary_url": "http://www.malegislature.gov/Bills/188/House/H974", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Individual or group policies of accident and sickness insurance, except policies providing supplemental coverage to Medicare or to other government programs, delivered, issued or renewed by agreement within or without the commonwealth must provide coverage for breast cancer screening technology, including, but not limited to, Magnetic Resonance Imaging (MRI) for high risk women. Coverage must be provided not less than once annually to women 25 years and older. High risk women, include, but are not limited to women who test positive for BRCA 1 or 2 or who have one or more first degree relatives that have tested positive for BRCA 1 or 2. Reporting date extended to Thursday July 31, 2014, pending concurrence. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 176 }, { "id": "nhgri-46380c050c35b7ea0e15", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2013 State Bills Michigan 2013 HB 4275", "primary_url": "http://www.legislature.mi.gov/(S(4y1txu3rap3gsnuh3igvodmq))/mileg.aspx?page=getObject&objectName=2013-HB-4275", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "An insurer may specify in writing the materials and information necessary to constitute a properly completed standard prior authorization request. The request may include patient clinical information, including, but not limited to diagnosis, chart notes, lab information, and genetic tests. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 177 }, { "id": "nhgri-2487f877b09ab4024ac0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2013 State Bills Michigan 2013 SB 178", "primary_url": "http://www.legislature.mi.gov/(S(4y1txu3rap3gsnuh3igvodmq))/mileg.aspx?page=getObject&objectName=2013-SB-0178", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "Requires a workgroup to develop a standard prior written authorization methodology for prescribers. If the workgroup develops a paper form, it must allow an insurer to request and require additional information beyond the form. Additional information may include patient clinical information regarding genetic tests. Signed by the Governor May 21, 2013.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 178 }, { "id": "nhgri-5d82430b7392220d6ace", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2013 State Bills Michigan 2013 SB 568", "primary_url": "https://www.legislature.mi.gov/(S(bcjiig55y43jizqtxmcn5o55))/mileg.aspx?page=getObject&objectName=2013-SB-0568", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill requires the Department of Community Health to develop a model written, informed consent form for genetic testing. Health care professionals must have test subjects complete the form prior to ordering genetic testing. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 179 }, { "id": "nhgri-749d54727334373c1f82", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2013 State Bills Minnesota 2013 HF 5", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF0005&ssn=0&y=2013", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Requires the Minnesota Insurance Marketplace to provide any data subject asked to supply private data with a notice of rights related to the handling of genetic information. The Minnesota Insurance Marketplace is a state health benefit exchange as described in section 1311 of the federal Patient Protection and Affordable Care Act (Public Law 111-148), and further defined through amendments to the act and regulations issued under the act. March 21, 2013 Approved by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 180 }, { "id": "nhgri-49d8799c791cd05a9a6b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2013 State Bills Minnesota 2013 HF 589/SF 1017", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF0589&ssn=0&y=2013", "source_topics": [ "Privacy", "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill specifies that newborn screening activities are subject to state law on the collection, storage, use, and dissemination of genetic information. A new statute section also is created on the treatment of biological specimens and health data held by the health department and health boards. The new statute section allows the commissioner to collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the protection. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "newborn-screening", "research" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 181 }, { "id": "nhgri-ba18e2c58c2cb316d2db", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2013 State Bills Minnesota 2013 SF 1234/HF 1359", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=Senate&f=SF1234&ssn=0&y=2013", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Medical data collected, stored, used, or disseminated by or filed with the commissioner in connection with a claim for workers' compensation benefits does not constitute genetic information for the purposes of section 13.386 of the statutes. Signed by the Governor on May 18, 2013.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 182 }, { "id": "nhgri-510c029c8f364fd93b5b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2013 State Bills Minnesota 2013 SF 745/HF 695", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=SF0745&ssn=0&y=2013", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "Amends the statute governing the collection, storage, use and dissemination of genetic information by adding a section to specify that newborn screening activities are subject to the law. Requires the Commissioner of Health to evaluate the scientific and medical validity of a comprehensive and sustainable long-term storage and use plan for newborn screening test results. Approved by the Governor May 23, 2013.", "base_status": "enacted", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 183 }, { "id": "nhgri-b354db5caaa6a4eaf3d8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2013 State Bills Mississippi 2013 HB 1532", "primary_url": "http://billstatus.ls.state.ms.us/2013/pdf/history/HB/HB1532.xml", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits any employer or insurer from using the results of DNA testing against a patient or against the patient's consanguineous family members for any discriminatory purpose. Any employer who violates this section may, upon conviction, be fined up to Five Thousand Dollars ($5,000.00) or imprisoned for not more than one (1) year, or both. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 184 }, { "id": "nhgri-6ba7d4b51702fd18a28f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2013 State Bills Mississippi 2013 HB 233", "primary_url": "http://billstatus.ls.state.ms.us/2014/pdf/history/HB/HB0233.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates a small business health insurance pool. Genetic information may not be excluded as a preexisting condition in the small business health insurance pool in the absence of a diagnosis of the condition related to the genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 185 }, { "id": "nhgri-30919fec110e79ee3ca0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2013 State Bills Mississippi 2013 HB 311", "primary_url": "http://billstatus.ls.state.ms.us/2013/pdf/history/HB/HB0311.xml", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates a small business health insurance pool. WIth regard to the pool, genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 186 }, { "id": "nhgri-71a863f7b8347b5e65f1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2013 State Bills Montana 2013 HB 441", "primary_url": "http://laws.leg.mt.gov/legprd/LAW0203W$BSRV.ActionQuery?P_SESS=20131&P_BLTP_BILL_TYP_CD=HB&P_BILL_NO=441&P_BILL_DFT_NO=&P_CHPT_NO=&Z_ACTION=Find&P_SBJT_SBJ_CD=&P_ENTY_ID_SEQ=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Each group or individual medical expense, cancer, and blanket disability policy, certificate of insurance, and membership contract must provide minimum mammography examination coverage. The definition of minimum mammography examination is amended to include: a) a mammogram each year for a woman who is under 35 years of age if: (i) the woman has two or more first-degree family members diagnosed with breast cancer or ovarian cancer; (ii) genetic tests indicate the woman is at higher risk for breast cancer; or (iii) the woman's physician recommends the test. Died in Standing Committee on April 24, 2013.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 187 }, { "id": "nhgri-e7aff3e65393ed48f66c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2013 State Bills Montana 2013 SB 383", "primary_url": "http://leg.mt.gov/bills/2013/BillHtml/SB0383.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "A health insurance issuer offering individual health_insurance_coverage in this state may not establish rules for eligibility or adjust premiums for any individual or individual's dependent to enroll in individual health_insurance_coverage based on genetic information. Individual health insurance issuers also may not impose any preexisting condition exclusion on the basis of genetic information or request or require an individual or a family member of an individual to undergo a genetic test. Died in Standing Committee.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 188 }, { "id": "nhgri-ef2122c9e530741c7336", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2013 State Bills New Hampshire 2013 HB 312", "primary_url": "http://www.gencourt.state.nh.us/bill_Status/bill_status.aspx?lsr=708&sy=2014&sortoption=billnumber&ddlobody=h&txtbillnumber=hb312", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill restricts the collection of biometric data, including DNA or RNA, by state agencies, municipalities, and political subdivisions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 189 }, { "id": "nhgri-57d44404029617ade8fd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2013 State Bills New Jersey 2013 A 4306", "primary_url": "http://www.njleg.state.nj.us/2012/Bills/A4500/4306_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill sets forth requirements for government collection of biometric identifiers, including DNA. No governmental entity shall obtain a biometric identifier of an individual without authorization of the individual, with some exceptions such as law enforcement. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 190 }, { "id": "nhgri-1bdbd348e3a4d3f1eba2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2013 State Bills New Mexico 2013 HB 168", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=H&LegType=B&LegNo=168&year=13", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits pre-existing condition exclusions in qualified health plans in the New Mexico Health Insurance Exchange Act. Genetic information is not included as a preexisting condition for the purposes of limiting or excluding benefits in the absence of a diagnosis of the condition related to the genetic information. (Provision related to genetic information is in Committee Substitute version) Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 191 }, { "id": "nhgri-0b1725681375fabe7de5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2013 State Bills New Mexico 2013 HB 366", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=H&LegType=B&LegNo=366&year=13", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "An individual or group health insurance policy, health care plan or certificate of health insurance that is delivered or issued for delivery in New Mexico must provide certain benefits that have, in effect, a rating of \"A\" or \"B\" in the current recommendations of the United States preventive services task force, for various services, including genetic counseling and evaluation for breast cancer BRCA-gene testing for women whose family histories are associated with an increased risk for deleterious mutations in BRCA1 or BRCA2 genes. Died in Committee.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 192 }, { "id": "nhgri-4a13b101d14bc1df5fce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2013 State Bills New Mexico 2013 SB 445", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=S&LegType=B&LegNo=445&year=13", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Uniform Protection of Genetic Information in Employment Act. The bill also amends the Genetic Information privacy Act. Died in Consumer and Public Affairs Committee.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 193 }, { "id": "nhgri-2b77e9d86b53395b71a0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A1153", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A01153&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill establishes a genetics advisory council to study various topics, including the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 194 }, { "id": "nhgri-c36042c6eccd5ac57fb3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A2931", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A02931&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. The bill addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex; requires reporting certain information relating to the collection of data, and provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 195 }, { "id": "nhgri-41fe1bb414634f75a011", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A3760", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=A3760&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires policies of hospital, surgical or medical care to provide coverage for ovarian cancer screening. These policies also must provide coverage for specific services if a person is believed to be at increased risk of ovarian cancer to due to family history, personal history or positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 196 }, { "id": "nhgri-a3d15a0dda60e102878e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A3761", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A03761&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers if recommended by a board-certified geneticist or board-certified genetic counselor. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 197 }, { "id": "nhgri-21d54453881d23769370", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A4038", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A04038&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Every policy that provides medical coverage, including coverage for physician services in a physician's office, and every policy that provides major medical or similar comprehensive coverage must cover the cost of genetic testing and any subsequent treatment resulting from the results of the genetic test for people who are, in the opinion of a physician, at significant risk of contracting cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 198 }, { "id": "nhgri-3b3267b263fc5be2ed3a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A506", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A00506&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "This bill requires written parental consent to store a newborn's test, blood spot or other genetic information for any purpose other than newborn screening. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 199 }, { "id": "nhgri-3f4f3d7df0c343f844c2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 A6527", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=A06527&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 200 }, { "id": "nhgri-1504ae15675fb289fd2c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 S2642", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=S02642&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the office of data protection and privacy for intelligence data centers to protect the privacy of personal information and biometric identifiers, including DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 201 }, { "id": "nhgri-7941056d56f2e27d21e7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 S4196", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=S4196&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill establishes the Medicaid identification and anti-fraud biometric technology pilot program. Biometric technologies includes, but is not limited to, DNA and other identifiers. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 202 }, { "id": "nhgri-17a08cc7666e0c8f0546", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 S4284", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=S4284&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the release of personally identifiable student information, including DNA sequence, where parental consent is not provided. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 203 }, { "id": "nhgri-53219f15e8c9454a190c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2013 State Bills New York 2013 S5373", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=%0D%0A&bn=S5373&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires policies that provide coverage for hospital, medical or surgical care to provide coverage for screening for ovarian cancer, upon examination by a physician or other factors, including genetic testing, for an ultrasound at specified periods. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 204 }, { "id": "nhgri-682338127afc3b542848", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2013 State Bills North Carolina 2013 HB 834", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2013&BillID=H834", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Sets forth procedures for State employment appeals of grievances and disciplinary actions related to discrimination claims, including discrimination based on genetic information. Signed by the Governor August 21, 2013.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 205 }, { "id": "nhgri-a34f2a3e27c4e1d390c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "2013 State Bills North Dakota 2013 HB 1314", "primary_url": "http://www.legis.nd.gov/assembly/63-2013/bill-index/bi1314.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts a new chapter of the statutes relating to genetic privacy. A person may not collect a DNA sample from an individual, perform a DNA analysis on a sample, retain a DNA sample or the results of a DNA analysis, or disclose the results of a DNA analysis unless the person has first obtained the informed and written consent of the individual or of the individual's legal guardian or authorized representative, for the collection, analysis, retention, or disclosure. A DNA sample and the results of a DNA analysis performed on the sample are the exclusive property of the individual sampled or analyzed. The bill provides certain exemptions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 206 }, { "id": "nhgri-3afad42172e40e1fb97a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2013 State Bills Ohio 2013 SB 88", "primary_url": "http://archives.legislature.state.oh.us/bills.cfm?ID=130_SB_88", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "This bill creates the Ohio Health Benefit Exchange. The exchange must meet the minimum requirements of the Patient Protection and Affordable Care Act of 2010. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 207 }, { "id": "nhgri-e0a72ce56a9c2fa947c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2013 State Bills Oklahoma 2013 HB 1342", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=hb1342&Session=1400", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Died", "source_summary": "A health carrier offering health benefit plans providing individual market health_insurance_coverage may not (1) impose a pre-existing condition exclusion on the basis of genetic information, (2) establish rules for the eligibility, including continued eligibility, of any individual to enroll for coverage based on genetic information, (3) adjust premium or contribution amounts for an individual on the basis of genetic information concerning the individual or a family member of the individual, (4) request or require an individual or a family member of an individual to undergo a genetic test, or (5) request or require or purchase genetic information for underwriting purposes or to determine eligibility. A health carrier may request, but not require, that an individual or a family member of the individual undergo a genetic test if the request is made pursuant to research that complies with Part 46 of Title 45, Code of Federal Regulations or equivalent federal regulations and any applicable state or local law or regulations for the protection of human subjects in research and other criteria are met. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 208 }, { "id": "nhgri-a1bb82ef9c85452141c8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2013 State Bills Oklahoma 2013 HB 1384", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=hb1384&Session=1400", "source_topics": [ "Privacy", "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "This bill creates the Parents' Bill of Rights. Rights under the bill include the right to consent in writing before any record of a minor childs blood or DNA is created, stored or shared, except as required by Sections 1-516 (pertaining to syphilis) and 1-524.1 (pertaining to testing arrested persons for sexually transmitted infections and HIV) of Title 63 of the Oklahoma Statutes, or unless authorized pursuant to a court order. Signed by the Governor on May 12, 2014.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "newborn-screening" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 209 }, { "id": "nhgri-939ab969a2529830f422", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2013 State Bills Oregon 2013 HB 2240", "primary_url": "https://olis.oregonlegislature.gov/liz/2013R1/Measures/Overview/HB2240", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Aligns Oregon health insurance law with changes in federal law and renumbers sections of Oregon law pertaining pre-existing condition, which are defined not to include genetic information in the absence of a diagnosis of the condition related to such information. 7/29/13 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 210 }, { "id": "nhgri-9b79c864808524490c96", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2013 State Bills Oregon 2013 HB 2922", "primary_url": "https://olis.oregonlegislature.gov/liz/2013R1/Measures/Overview/HB2922", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates new provisions related to statewide coverage of health care. Renumbers sections of existing that which define pre-existing conditions, which does not include genetic information in the absence of a diagnosis of a condition related to the information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 211 }, { "id": "nhgri-127217a980a2de918cff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2013 State Bills South Dakota 2013 HB 1238", "primary_url": "https://sdlegislature.gov/Session/Bill/4040", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Every policy of group or individual health insurance, each service or indemnity-type contract issued by a nonprofit medical or surgical service plan corporation and each health maintenance contract that covers a female, that is delivered, issued for delivery, or renewed in South Dakota, and that provides coverage for occult breast cancer screening must provide additional benefits for (1) comprehensive ultrasound screening if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology or if a woman is believed to be at an increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's physician or advanced practice registered nurse; and (2) magnetic resonance imaging in accordance with guidelines established by the American Cancer Society or the American College of Radiology or if a woman is believed to be at an increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's physician or advanced practice registered nurse. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 212 }, { "id": "nhgri-408545c457916faa20c4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2013 State Bills West Virginia 2013 SB 45", "primary_url": "http://www.legis.state.wv.us/bill_status/Bills_history.cfm?input=45&year=2013&sessiontype=RS&btype=billhttp%3A//www.legis.state.wv.us/Bill_Status/bill_status.cfm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The Division of Motor Vehicles or other state agency or department charged with motor vehicle registration or operation, the issuance or renewal of driver licenses or the issuance or renewal of any identification cards, must modify applications to include an exemption for a biometric and social security number religious exemption. Biometric data is defined to include DNA and RNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 213 }, { "id": "nhgri-4614071873737fdb7f40", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2013 State Bills Wisconsin 2013 AB 269", "primary_url": "https://docs.legis.wisconsin.gov/2013/proposals/ab269", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Permits the Department of Workforce Development (DWD) or a person who has been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court to recover compensatory and punitive damages caused by the act of discrimination or unfair honesty or genetic testing after the completion of all administrative proceedings before DWD and the Labor and Industry Review Commission concerning the violation. Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 214 }, { "id": "nhgri-3fc977517db7c98a17de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2013 State Bills Wisconsin 2013 SB 143", "primary_url": "https://docs.legis.wisconsin.gov/2013/proposals/sb143", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Permits the Department of Workforce Development (DWD) or a person who has been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court to recover compensatory and punitive damages caused by the act of discrimination or unfair honesty or genetic testing after the completion of all administrative proceedings before DWD and the Labor and Industry Review Commission concerning the violation. Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2013, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 215 }, { "id": "nhgri-33977fb0e47e82774508", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2014 State Bills California 2014 SB 1279", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201320140SB1279&search_keywords=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires a health care service plan contract or a health insurance policy that is issued, amended, or renewed on or after January 1, 2015, to provide coverage for genetic testing for Lynch syndrome. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 216 }, { "id": "nhgri-1e8b65c7730be665443c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2014 State Bills California 2014 Senate Bill 1304", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201320140SB1304&search_keywords=", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "A health benefit plan offered to a small employer, as defined in Section 1304(b) of PPACA and in Section 10753, may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the plan based on health status-related factors, including genetic information. Approved by the Governor June 28, 2014.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 217 }, { "id": "nhgri-fdce6ec50ef82c0f0f4b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2014 State Bills Georgia 2014 SB 167", "primary_url": "http://www.legis.ga.gov/Legislation/en-US/display/20132014/SB/167", "source_topics": [ "Privacy", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "Prohibits the collection of student or family information by any state agency, local school system or educational institution, including biometric data (defined to include DNA sequence and newborn screening information), except as may be necessary to facilitate the instruction of special needs students or students participating in school physical education and athletic programs. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "newborn-screening" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 218 }, { "id": "nhgri-9f3062017005c29a04e9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2014 State Bills Hawaii 2014 HB 1944", "primary_url": "http://www.capitol.hawaii.gov/session2014/bills/HB1944_.HTM", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "The bill requires contractors and prospective contractors with the state or counties to comply with the Genetic Information Nondiscrimination Act of 2008. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 219 }, { "id": "nhgri-80e7f0acf37acd309467", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2014 State Bills Hawaii 2014 HB 2532", "primary_url": "http://www.capitol.hawaii.gov/session2014/bills/HB2532_.HTM", "source_topics": [ "Privacy", "Research" ], "source_status": "Died", "source_summary": "The bill establishes requirements for the privacy of protected health information, including genetic information. Entities addressed in the bill include health care providers, health care data organizations, health plans, health oversight agencies, public health authorities, employers, insurers, health researchers, or edu�ational institutions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 220 }, { "id": "nhgri-f45f83282080605d93cc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2014 State Bills Hawaii 2014 SB 2917", "primary_url": "http://www.capitol.hawaii.gov/session2014/bills/SB2917_.HTM", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "The bill requires contractors and prospective contractors with the state or counties to comply with the Genetic Information Nondiscrimination Act of 2008. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 221 }, { "id": "nhgri-81865126739b7fc99675", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2014 State Bills Idaho 2014 HB 511", "primary_url": "https://legislature.idaho.gov/sessioninfo/2014/legislation/H0511/", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Regulates the collection, possession and disclosure of biometric identifiers, defined to include human DNA, by private entities. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 222 }, { "id": "nhgri-3cd3438738b09bbce415", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2014 State Bills Idaho 2014 SB 1273", "primary_url": "https://legislature.idaho.gov/sessioninfo/2014/legislation/S1273/", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "If a firefighter is diagnosed with breast cancer within 5 years of employment if diagnosed before the age of 40 and if the cancer was not revealed during an initial employment medical screening examination or during any subsequent medical review, the disease shall be rebuttably presumed to be proximately caused by the firefighter's employment as a firefighter, regardless of whether or not the firefighter has a genetic predisposition to breast cancer. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 223 }, { "id": "nhgri-b9f3b43085912cf1679b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2014 State Bills Idaho 2014 SB 1385", "primary_url": "https://legislature.idaho.gov/sessioninfo/2014/legislation/S1385/", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Unless explicitly mandated by federal statute, a state agency, district or education institution must obtain written consent from parents or eligible students before collecting biometric records, defined to include a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 224 }, { "id": "nhgri-02735fea3cc8ac129f3e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2014 State Bills Illinois 2014 HB 5925", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=5925&GAID=12&DocTypeID=HB&LegID=81230&SessionID=85&GA=98&SpecSess=0", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Amends the Genetic Information privacy Act to add a provision related to electronic health records. The bill states that the disclosure of genetic information, when allowed, must be performed in accordance with the minimum necessary standard when required under HIPAA. Approved by the Governor August 25, 2014.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 225 }, { "id": "nhgri-c35b5440c88d33f45f1f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2014 State Bills Illinois 2014 HB 5998", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=5998&GAID=12&DocTypeID=HB&LegID=81309&SessionID=85&GA=98&SpecSess=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Genetic Information privacy Act. Makes a technical change in a section concerning the short title. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 226 }, { "id": "nhgri-77f642c4cf7b66e416b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "2014 State Bills Kansas 2014 HB 2621", "primary_url": "http://www.kslegislature.org/li/b2013_14/measures/hb2621/", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The state board, the department of education, a unified school district or local education agency may not provide any personally identifiable information of any student or teacher, including a DNA sequence, to any federal agency, any Kansas state or local agency, state or local agency outside the state of Kansas, or any other organization or entity unless under specified circumstances. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 227 }, { "id": "nhgri-5bc7de3293c27d95f2a0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "2014 State Bills Kansas 2014 SB 367", "primary_url": "http://kslegislature.org/li/b2013_14/measures/sb367/", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Prohibits school districts from collecting biometric data from a student, including a DNA sequence, unless the student, if an adult, or the parent or legal guardian of the student, if a minor, consents in writing. Approved by Governor on Wednesday, May 14, 2014.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 228 }, { "id": "nhgri-4bbf6a808f46569205b9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2014 State Bills Kentucky 2014 HB 190", "primary_url": "https://apps.legislature.ky.gov/record/14rs/hb190.html", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Establishes mandated coverage requirements of genetic testing for mutations of the BRCA1 or BRCA2 genes for insured who are at risk of breast cancer or ovarian cancer or who have been diagnosed with breast or ovarian cancer under the age of forty. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 229 }, { "id": "nhgri-ff8f0f2a2208934a9e4f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2014 State Bills Kentucky 2014 HB 5", "primary_url": "http://www.lrc.ky.gov/record/14RS/HB5.htm", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "The bills governs the use of personal information by state institutions. The definition of personal information includes a biometric or genetic print. Signed by the Governor on April 10, 2014.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 230 }, { "id": "nhgri-08837b56b7dd13f88447", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2014 State Bills Louisiana 2014 HB 744", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?i=224703", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Retains present law and extends the definition of \"discriminatory practice in connection with employment\" to include all of the discrimination statutes in present law, which would add veterans, pregnancy, childbirth, and related medical conditions, sickle cell trait, and genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 231 }, { "id": "nhgri-535ad301928750b5869c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2014 State Bills Louisiana 2014 SB 412", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?i=224903", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Retains present law and extends the definition of \"discriminatory practice in connection with employment\" to include all of the discrimination statutes, which would add veterans, pregnancy, childbirth, and related medical conditions, sickle cell traits, and genetic information. Signed by the Governor on June 19, 2014.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 232 }, { "id": "nhgri-0d448f2a68e40bffd71f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 HB 1120", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=hb1120&tab=subject3&ys=2014RS", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "Requires the Motor Vehicle Administration to offer to an applicant for a driver's license, identification card, or moped operator's permit the opportunity to upgrade to an enhanced identification document. The enhanced ID will be embedded with memory and a microprocessor chip that stores biometric identifiers, which may include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 233 }, { "id": "nhgri-b0b4f485ec6bc5341d63", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 HB 851", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=hb0851&tab=subject3&ys=2014RS", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "Permits a health insurance carrier to make available upon request an upgrade to a biometric health care identification card that can securely validate one's identity and access his or her medical history. Biometric identification is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 234 }, { "id": "nhgri-a79a191a78c4b29b6015", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 HB 906", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=HB0906&stab=01&pid=billpage&tab=subject3&ys=2014RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Authorizes a person to advertise for, solicit business in the State for, offer, or perform direct to consumer genetic testing only if certain conditions are met. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 235 }, { "id": "nhgri-8a6a281fb058aa811aa2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 SB 227", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=sb0227&tab=subject3&ys=2014RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Repeals a prohibition on advertising for or soliciting business related to direct to consumer genetic testing in the State. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 236 }, { "id": "nhgri-939853e6c51993a07e61", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 SB 387", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=sb0387&tab=subject3&ys=2014RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows the Motor Vehicle Administration to offer enhanced identification. An individual who applies for enhanced identification may be asked to provide biometric identification, which is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 237 }, { "id": "nhgri-acfea53a3be28195225e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2014 State Bills Maryland 2014 SB 96", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=sb0096&tab=subject3&ys=2014RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends existing law pertaining to carriers, defined as insurers, nonprofit health service plans and health maintenance organizations, that offer wellness programs. Health factors are defined to include genetic information. Carriers may seek verification from health care providers that a health factor makes it unreasonably difficult or medically inadvisable for an individual to satisfy or attempt to satisfy an otherwise applicable standard to qualify for a reward of the wellness program. Approved by the Governor April 8, 2014.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 238 }, { "id": "nhgri-5b667a6752fe36d17a21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2014 State Bills Massachusetts 2014 S.2294", "primary_url": "https://malegislature.gov/Bills/188/House/S2294", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill states that any public health surveillance activity which is also research is subject to the requirements for research using human subjects. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 239 }, { "id": "nhgri-649ab29ce34548ce1afe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2014 State Bills Minnesota 2014 HF 2402", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF2402&ssn=0&y=2014", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "The original version of this bill amended the newborn screening law pertaining to storage of blood samples. All language was subsequently deleted pertaining to the newborn screening program.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 240 }, { "id": "nhgri-6c3f42149800e384bcbc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2014 State Bills Minnesota 2014 HF 2526/SF 2047", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF2526&ssn=0&y=2014", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "The bill provides options to parents regarding blood samples collected for the purpose of newborn screening, including the right to authorize in writing that the blood sample and test results may be used for public health studies or research. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 241 }, { "id": "nhgri-a8804e2db5f8ad756729", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2014 State Bills Mississippi 2014 HB 172", "primary_url": "http://billstatus.ls.state.ms.us/2014/pdf/history/HB/HB0172.xml", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Makes it unlawful for any employer or insurer to use the results of DNA testing against a patient or against the patient's consanguineous family members for any discriminatory purpose. Any employer who violates this section shall, upon conviction, be fined up to $5,000.00 or imprisoned for not more than one year, or both. Died in Committee on February 4, 2014.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 242 }, { "id": "nhgri-50de0b391e3b033938ca", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2014 State Bills Missouri 2014 HB 1873", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB1873&year=2014&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 243 }, { "id": "nhgri-c32f1962496d2f888576", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2014 State Bills Missouri 2014 SB 819", "primary_url": "http://www.senate.mo.gov/14info/BTS_Web/Bill.aspx?SessionType=R&BillID=29426048", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill requires a state agency or education institution to obtain written consent from parents or eligible students before collecting any certain data points, including a biometric record (defined to include DNA). Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 244 }, { "id": "nhgri-e5ba2e07446b1e8d172a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2014 State Bills New Hampshire 2014 HB 1262", "primary_url": "http://www.gencourt.state.nh.us/bill_Status/bill_docket.aspx?lsr=2312&sy=2014&sortoption=billnumber&txtsessionyear=2014&txtbillnumber=hb1262", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill restricts the collection, storage, and sharing of student assessment data by the United States Department of Education and the New Hampshire department of education. Student assessment data includes biometric information, which is defined to include DNA. As of October 30, 2014, Interim Study Report: Not Recommended for Legislation in 2014 (Vote 15-0).", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 245 }, { "id": "nhgri-8b13a60c3e0992adce81", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2014 State Bills New Hampshire 2014 HB 1484", "primary_url": "http://www.gencourt.state.nh.us/bill_Status/bill_docket.aspx?lsr=2471&sy=2014&sortoption=billnumber&txtsessionyear=2014&txtbillnumber=hb1484", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "No whole-genome DNA sequencing shall be performed pursuant to this chapter unless the general court authorizes such sequencing by statute. Signed by the Governor on 5/27/2014; Chapter 0063; Effective 1/01/2015.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 246 }, { "id": "nhgri-c5d1bcbdfc47ba9fa748", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2014 State Bills New Hampshire 2014 HB 1586", "primary_url": "http://www.gencourt.state.nh.us/bill_Status/bill_docket.aspx?lsr=2230&sy=2014&sortoption=billnumber&txtsessionyear=2014&txtbillnumber=hb1586", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill establishes procedures for protecting the privacy of student and teacher personally-identifiable data, including DNA. As of October 30, 2014, Interim Study Report: Recommended for Legislation in 2014 (Vote 15-0).", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 247 }, { "id": "nhgri-8e618305dc6c40134b34", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2014 State Bills New Jersey 2014 A 191", "primary_url": "http://www.njleg.state.nj.us/bills/BillsByKeyword.asp", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits governmental collection of biometric identifiers without consent, including DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 248 }, { "id": "nhgri-e5e0ae04370e559f7194", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2014 State Bills New York 2014 A8472", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A08472&term=2013&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers, if recommended by a board-certified geneticist or board-certified genetic counselor. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 249 }, { "id": "nhgri-e56eac359b9546a4026b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2014 State Bills Oklahoma 2014 SB 2070", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=SB2070&Session=1400", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill prohibits collection or retention of biometric data in connection with motor vehicle registration or operation, the issuance or renewal of driver licenses or the issuance or renewal of any identification cards by any department or agency of this state charged with those activities. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 250 }, { "id": "nhgri-ead43a14e97fb71c2ac5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2014 State Bills West Virginia 2014 HB 3121", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_history.cfm?INPUT=3121&year=2014&sessiontype=RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Provides that all parental rights are reserved to a parent of a minor child without obstruction or interference from this state, a political subdivision of this state, other governmental entity or other institution including, but not limited to, the right to consent before DNA is created, stored or shared. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 251 }, { "id": "nhgri-850ebafed5824ce43d97", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2014 State Bills West Virginia 2014 SB 420", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_history.cfm?INPUT=420&year=2014&sessiontype=RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates a Longitudinal Data System, which links child care, student and workforce unit record data, and governing board of the system. The governing board must prohibit the collection of confidential information, which includes genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 252 }, { "id": "nhgri-3a1efe7dc04ce16f1540", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2015 State Bills Alabama 2015 HB 564", "primary_url": "http://alisondb.legislature.state.al.us/ALISON/SearchableInstruments/2015RS/PrintFiles/HB564-int.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits state agencies, district boards of education, or pre K-12 educational institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits information about the student or the student's family concerning biometric records, which is defined to include DNA sequences. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 253 }, { "id": "nhgri-6a3d6a0bb9f95ec389fa", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "2015 State Bills Arkansas 2015 HB 1827", "primary_url": "http://www.arkleg.state.ar.us/assembly/2015/2015R/Pages/BillInformation.aspx?measureno=HB1827", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Parents' Bill of Rights. A parent must consent in writing before a biometric scan of a minor child or a record of a minor child's blood or DNA is created, shared, or stored. April 2, 2015 Recommended for study in the Interim by Joint Interim Committee on JUDICIARY COMMITTEE- HOUSE", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 254 }, { "id": "nhgri-af329a1dc08b85fecbbf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2015 State Bills California 2015 AB 170", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201520160AB170", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "States that a newborn sample may not be used for medical research if a parent or guardian of the newborn child objects to the testing program. The bill would require the department to provide information about the testing program, and to obtain a form signed by the parent or guardian acknowledging receiving information regarding the storage, retention, and use of the newborn child�s blood sample for medical research. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 255 }, { "id": "nhgri-247ed12e6c885e8bd029", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2015 State Bills Colorado 2015 HB 1199", "primary_url": "http://www.leg.state.co.us/clics/clics2015a/csl.nsf/fsbillcont2/AB90577EF8BC22FC87257D9000780544?Open=", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill requires a state agency or educational institution to obtain consent from parents or eligible students prior to collecting certain data, including biometric records. Biometric records are defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 256 }, { "id": "nhgri-e858d4aa5668174edfbc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2015 State Bills Colorado 2015 SB 77", "primary_url": "http://www.leg.state.co.us/clics/clics2015a/csl.nsf/fsbillcont2/86585BA73A227AD687257D90007950E6?Open=", "source_topics": [ "Privacy", "Research" ], "source_status": "Died", "source_summary": "Establishes a parental bill of rights. Requirements include parental consent in writing before any record of a minor child's blood or DNA is made, shared, or stored, unless such blood or DNA is otherwise required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 257 }, { "id": "nhgri-31d9c48444a4d5bc9de2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2015 State Bills Connecticut 2015 HB 5832", "primary_url": "http://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=5832&which_year=2015&SUBMIT1_x=11&SUBMIT1_y=12&SUBMIT1=Normal", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Adds tomosynthesis to health_insurance_coverage requirements if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 258 }, { "id": "nhgri-58397883c05c90395cc0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2015 State Bills Delaware 2015 SB 151", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=24698", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "This bill addresses informed consent for disclosing genetic information by adding those individuals authorized to access EMR and DHIN. Signed by the Governor on 7/27/2015.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 259 }, { "id": "nhgri-040c87aed6ce4ea11ed0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2015 State Bills Delaware 2015 SB 58", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=24051", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "Prohibits utilizing newborn screening stored blood specimens or stored data without parental consent, except for population based studies in which all identifying information is removed. Blood spots may be used within the Division of Public Health for quality assurance or performance improvement activities, including pilot studies when a new disorder is being considered for addition to the panel, or may be used by Division of Public Health for any other purpose authorized by law. Jul 15, 2015 - Signed by Governor.", "base_status": "enacted", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 260 }, { "id": "nhgri-810d37fec4819590227a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2015 State Bills Delaware 2015 SB 68", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=24371", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 261 }, { "id": "nhgri-137dd3ce9a70f5ec069b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2015 State Bills Delaware 2015 SB 79", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=24172", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires the Department of Education to promulgate rules and regulations relating to the privacy and protection of student data, including DNA or other genetic material. Senate Substitute Version passed in House and Senate -- DNA or other genetic information is replaced by biometric information. The term biometric information is not defined. Substituted bill was signed by the Governor.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 262 }, { "id": "nhgri-7bf9b82bbe272d6b55af", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2015 State Bills Florida 2015 HB 1277", "primary_url": "http://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=54482", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "The bill establishes the Florida Priority Care Project. The project aims to place a higher public priority on targeting the needs of adults who have a serious mental illness and who have a history that indicates a high probability that they could pose a threat to public safety. Requirements for the project include the use of genetic testing to help establish the correct medication regimes to be used to manage and treat a client's symptoms. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 263 }, { "id": "nhgri-d9c231dcdbb1ed10466e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2015 State Bills Georgia 2015 SB 157", "primary_url": "http://www.legis.ga.gov/Legislation/en-US/display/20152016/SB/157", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Except as required by the federal Individuals with Disabilities Education Act, specified information, including DNA, may not be collected, entered into any student data base, or maintained as education records by a state agency, local board of education, or school. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 264 }, { "id": "nhgri-6d611952c52a5ebcd84c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2015 State Bills Illinois 2015 HB 1536", "primary_url": "http://www.ilga.gov/legislation/99/HB/09900HB1536ham001.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 265 }, { "id": "nhgri-89103a60046ee1b58fec", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2015 State Bills Illinois 2015 HB 810", "primary_url": "http://www.ilga.gov/legislation/fulltext.asp?DocName=&SessionId=88&GA=99&DocTypeId=HB&DocNum=810&GAID=13&LegID=85284&SpecSess=0&Session=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 266 }, { "id": "nhgri-30c0be3705512d776fc2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2015 State Bills Illinois 2015 HB 887", "primary_url": "http://www.ilga.gov/legislation/fulltext.asp?DocName=09900HB0887ham001&GA=99&SessionId=88&DocTypeId=HB&LegID=85361&DocNum=887&GAID=13&Session=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires health insurance providers to protect health information related to sensitive services. A 2016 House Amendment would define sensitive services to include genetic testing. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 267 }, { "id": "nhgri-1f0ea05ff454c0437eed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2015 State Bills Illinois 2015 SB 54", "primary_url": "http://www.ilga.gov/legislation/99/SB/09900SB0054.htm", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Adds tomosynthesis to health_insurance_coverage requirements for women at increased risk of breast cancer because of positive genetic testing. 8/19/2015 Signed By the Governor.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 268 }, { "id": "nhgri-d297f3ec6ac3bbf5fd1b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "2015 State Bills Indiana 2015 SB 323", "primary_url": "https://iga.in.gov/legislative/2015/bills/senate/323/", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "Amends the state's newborn screening statute. The bill requires consent to release newborn's residual blood specimen for epidemiological survey and research. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 269 }, { "id": "nhgri-48020cf9229201ae83aa", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2015 State Bills Maine 2015 LD 1251", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?ld=1251&PID=1456&snum=127", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the collection, entry into an education database or maintenance of DNA by as education records by the department of education or school administrative unit. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 270 }, { "id": "nhgri-bdcf6b3f279540d0eea1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2015 State Bills Maryland 2015 HB 552", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb0552&tab=subject3&ys=2015RS", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 271 }, { "id": "nhgri-f41e9b350ee56f34cd90", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2015 State Bills Maryland 2015 SB 548", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0548&stab=01&pid=billpage&tab=subject3&ys=2015RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill amends the Personal Information Protection Act, which governs the use of personal information contained in the records of certain businesses. The definition of personal information is amended to include an individual's unique biometric or genetic print. In the Senate. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 272 }, { "id": "nhgri-a857d33aaa7b94c23acc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2015 State Bills Maryland 2015 SB 703", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=03&id=sb0703&tab=subject3&ys=2015RS", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "For a stop-loss insurance policy or contract issues to a small employer, a medical stop-loss insurer may not increase cost-sharing or decrease coverage for a specific individual within the plan or exclude any employee or dependent base on an actual or expected health-status related factor, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 273 }, { "id": "nhgri-5df60c9ce1ac29a052de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2015 State Bills Massachusetts 2015 H.1900", "primary_url": "https://malegislature.gov/Bills/189/House/H1900", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Ensures patient privacy and control in health information exchanges by protecting health care information, including genetic information. 5/5/2016 Accompanied a study order, see H4242.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 274 }, { "id": "nhgri-4dae810e729e58dc4cce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2015 State Bills Massachusetts 2015 H.225", "primary_url": "https://malegislature.gov/Bills/189/House/H225", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The bill amends statute sections pertaining to the department of consumer affairs and business regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Changes add biometric information, including genetic information, to the types of personal information protected under the law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 275 }, { "id": "nhgri-4c8cbeb5994c9b13a1bf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2015 State Bills Massachusetts 2015 H.938", "primary_url": "https://malegislature.gov/Bills/189/House/H938", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires insurance coverage for magnetic resonance imaging for certain persons for the detection of breast cancer, including women who have tested positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations or one or more first degree relatives test positive for Breast Cancer Gene 1 or Breast Cancer Gene 2 mutations. 3/28/2016 Accompanied a study order, see H4111.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 276 }, { "id": "nhgri-796495da1f0b0d6bd1d8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2015 State Bills Massachusetts 2015 S.124", "primary_url": "https://malegislature.gov/Bills/189/Senate/S124", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The bill amends statute sections pertaining to the department of consumer affairs and business regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Changes add biometric information, including genetic information, to the types of personal information protected under the law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 277 }, { "id": "nhgri-4a7f6a66dbbcd68fa22a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2015 State Bills Michigan 2015 HB 4935", "primary_url": "http://www.legislature.mi.gov/(S(evlfuwwob5ytlgdgtla2b0ve))/mileg.aspx?page=getobject&objectname=2015-HB-4935&query=on", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends the state law pertaining to genetic_discrimination in health insurance. The bill removes the provision in the statutes that states, \"This section does not prohibit an insurer of expense-incurred hospital, medical, or surgical policy or certificate to answer questions concerning family history.\" 7/13/2016 Approved by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 278 }, { "id": "nhgri-35d7f00ec6e9707c596d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2015 State Bills Missouri 2015 HB 1240", "primary_url": "http://www.house.mo.gov/bill.aspx?bill=HB1240&year=2015&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 279 }, { "id": "nhgri-eadffadc9870659964e2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2015 State Bills Missouri 2015 SB 530", "primary_url": "http://www.senate.mo.gov/15info/BTS_Web/BillText.aspx?SessionType=R&BillID=4627065", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Protects the privacy of student data, which encompasses biometric records. Biometric records is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 280 }, { "id": "nhgri-dee1ad535eb487c2bcc3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2015 State Bills Montana 2015 HB 45", "primary_url": "http://leg.mt.gov/bills/2015/BillHtml/HB0045.htm", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends existing genetic information and insurance law by removing the exclusion of life, disability and long-term care insurance. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 281 }, { "id": "nhgri-d6ca997942fa13ac0abb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2015 State Bills Montana 2015 HB 501", "primary_url": "http://leg.mt.gov/bills/2015/BillHtml/HB0501.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill requires parental consent or consent from a student 18 years or older prior to collecting or recording biometric data, which is defined to include a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 282 }, { "id": "nhgri-3817c45cee3dee096965", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2015 State Bills New Mexico 2015 HB 369", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=H&LegType=B&LegNo=369&year=15", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends the Genetic Information privacy Act by adding an exemption for clinical laboratories with regard to consent requirements. A laboratory conducting an analysis or test of a specific individual per a written order from a health care practitioner or the health care practitioner's agent, including by electronic transmission, may obtain, retain, transmit, or use an individual's DNA, genetic information, or test results without the individual's written and informed consent. Signed by the Governor 4/10/2015.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 283 }, { "id": "nhgri-c5deac9f3c20df03adaf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A1219", "primary_url": "http://assembly.state.ny.us/leg/?bn=A01219&term=2015", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "Establishes a genetics advisory council and requires the council to report to the Governor on several topics, including (1) creating an environment in which there is equitable access to the benefits of genetic tests to all citizens regardless of race, ethnicity or economic status; and (2) the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 284 }, { "id": "nhgri-63c3d47cdaf34623cdd4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A291", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A00291&term=2015%3Fmary%3DY&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "This bill requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 285 }, { "id": "nhgri-47b79647ea665b725b75", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A299", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A00299&term=2015%3Fmary%3DY&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "The bill requires every policy of hospital, surgical or medical care or policies that provide reimbursement for laboratory tests or diagnostic X-rays must provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 286 }, { "id": "nhgri-a81e276e31ecadc6f831", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A312", "primary_url": "http://assembly.state.ny.us/leg/?bn=A00312&term=2015", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "Requires parental consent for newborn DNA storage. The bill states that no test, DNA, blood spot, or other genetic information may be retained with an infant's identifying information other than for the purpose of newborn screening without parental consent. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 287 }, { "id": "nhgri-e690e426e8860a3c5124", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A318", "primary_url": "http://assembly.state.ny.us/leg/?default_fld=&bn=A00318&term=2015%3Fmary%3DY&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a significant risk of cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 288 }, { "id": "nhgri-240a249eddc96969f54c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A323", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A00323&term=2015&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires policies that provide coverage for hospital, surgical or medical to cover screening for ovarian cancer, including genetic testing. Additional coverage is required if genetic testing is positive. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 289 }, { "id": "nhgri-44ca5ec9337f313f8934", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2015 State Bills New York 2015 A3921", "primary_url": "http://nyassembly.gov/leg/?bn=A03921&term=2015", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Provisions include that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 290 }, { "id": "nhgri-73195aa1c17ced59fa30", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "2015 State Bills North Dakota 2015 SB 2334", "primary_url": "http://www.legis.nd.gov/assembly/64-2015/bill-index/bi2334.html", "source_topics": [ "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "This bill amends provisions in the state newborn screening law pertaining to the use of residual dried blood spots for research. The bill states that a person conducting research on blood spots, other specimens, or registry data that is maintained by the health department must follow IRB processes for human research, which must include obtaining parent or guardian authorization. 4/16/2015 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 291 }, { "id": "nhgri-69d150f77255ab57e2e8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2015 State Bills Ohio 2015 HB 64", "primary_url": "https://www.legislature.ohio.gov/legislation/legislation-status?id=GA131-HB-64", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends existing health_insurance_nondiscrimination law. The bill adds that accident and sickness insurers and public employee health benefit plans may not use information from genetic screening or testing to set premiums for, a policy or plan. Effective 6/30/2015.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 292 }, { "id": "nhgri-eecb298bbee31afb3ee7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2015 State Bills Oklahoma 2015 HB 1742", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=hb1742&Session=1500", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "The Office of Management and Enterprise Services must contract with a vendor to conduct a pilot project to determine incentives to both health care providers and patients for each care encounter in which the provider and patient incorporate genetic testing for ability to metabolize prescription drugs, drug testing of persons prescribed narcotics and other proven medical interventions made available and recorded through the program in the rendering and utilization of health care. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 293 }, { "id": "nhgri-112a876db5363365e3b5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2015 State Bills South Dakota 2015 SB 187", "primary_url": "http://legis.sd.gov/Legislative_Session/Bills/Bill.aspx?Bill=187&SearchString=deoxyribonucleic&Session=2015", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill establishes certain rights of parents regarding the upbringing, education, health care, and mental health care of their children and provides certain penalties for the violation of those rights. Rights set forth include the right to consent in writing before any record of a minor child's blood or deoxyribonucleic acid is created, stored, or shared. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 294 }, { "id": "nhgri-affff35de3dd2dd91ebc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2015 State Bills Texas 2015 HB 1220", "primary_url": "http://www.capitol.state.tx.us/BillLookup/history.aspx?LegSess=84R&Bill=HB1220", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill establishes a personal property right to DNA samples. A person may not, without the informed, written consent of the individual or the individual's legal guardian or authorized representative: (1) collect a DNA sample from an individual; (2) perform a genetic test on an individual's DNA sample; or (3) retain an individual's DNA sample, with certain exceptions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 295 }, { "id": "nhgri-acd7ce2f977244b74cca", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2015 State Bills Texas 2015 HB 1983", "primary_url": "http://www.capitol.state.tx.us/BillLookup/Text.aspx?LegSess=84R&Bill=HB1983", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a governmental body from capturing or possessing a biometric identified, defined to include DNA, unless it has specific, explicit statutory or has the written consent of the individual or the individual's legal guardian. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 296 }, { "id": "nhgri-89ce2cf213e4551612b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2015 State Bills Texas 2015 HB 3582", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=84R&Bill=HB3582", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates a personal property right in a sample of genetic material and in the genetic information obtained as a result of a genetic test performed on an individual's sample. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 297 }, { "id": "nhgri-fa75579a2aaf0a29a0a6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2015 State Bills Texas 2015 SB 475", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=84R&Bill=SB475", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes a personal property right to DNA samples. A person may not, without the informed, written consent of the individual or the individual's legal guardian or authorized representative: (1) collect a DNA sample from an individual; (2) perform a genetic test on an individual's DNA sample; or (3) retain an individual's DNA sample, with certain exceptions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 298 }, { "id": "nhgri-c15c8f03f1690f875b91", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2015 State Bills Texas 2015 SB 628", "primary_url": "http://www.capitol.state.tx.us/BillLookup/actions.aspx?LegSess=84R&Bill=SB628", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a governmental body from capturing or possessing a biometric identified, defined to include DNA, unless it has specific, explicit statutory or has the written consent of the individual or the individual's legal guardian. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 299 }, { "id": "nhgri-e5f2018b5defc6e1263d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2015 State Bills Virginia 2015 HB 1669", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=151&typ=bil&val=hb1669", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill regulates the collection and maintenance of personally identifiable information, including DNA, by education agencies. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 300 }, { "id": "nhgri-28aea3ee5e928c60eab3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2015 State Bills Washington 2015 HB 1094", "primary_url": "http://app.leg.wa.gov/billinfo/summary.aspx?bill=1094&year=2015", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes protections for the use of biometric identifiers of an individual for commercial purposes. Biometric identifier is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 301 }, { "id": "nhgri-cea5b62a60686d0ab391", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2015 State Bills Washington 2015 SB 5316", "primary_url": "http://app.leg.wa.gov/billinfo/summary.aspx?bill=5316&year=2015", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes protections for student biometric information, including a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 302 }, { "id": "nhgri-a6f16034959136f3d447", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2015 State Bills West Virginia 2015 HB 2258", "primary_url": "http://www.legis.state.wv.us/Bill_Text_HTML/2015_SESSIONS/RS/Bills/hb2258%20intr.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes a parental bill of rights. Requirements include parental consent in writing before any record of a minor child's blood or DNA is made, shared, or stored, unless such blood or DNA is otherwise required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 303 }, { "id": "nhgri-55e6c5ed74dd94193ce3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2015 State Bills Wisconsin 2015 SB 145", "primary_url": "http://docs.legis.wisconsin.gov/2015/proposals/sb145", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Authorizes the circuit court to order a person who engages in discrimination in employment, unfair honesty testing, or unfair genetic testing to pay compensatory and punitive damages. 4/13/2016 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2015, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 304 }, { "id": "nhgri-9edb030d1c89bd750ca9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2016 State Bills Alabama 2016 HB 267", "primary_url": "http://alisondb.legislature.state.al.us/ALISON/SearchableInstruments/2016RS/PrintFiles/HB267-int.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 305 }, { "id": "nhgri-81a5d558e4470df24958", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2016 State Bills Alabama 2016 SB 318", "primary_url": "http://alisondb.legislature.state.al.us/ALISON/SearchableInstruments/2016RS/PrintFiles/SB318-int.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits state agencies, local education agencies, or local education institutions from administering any student survey, assessment, analysis, evaluation, or similar instrument that solicits certain information about the student or the family of the student, including biometric records. Biometric records are defined to include a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 306 }, { "id": "nhgri-078de6f30ffa87fa2867", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "2016 State Bills Alaska 2016 HB 369", "primary_url": "http://www.legis.state.ak.us/basis/get_bill.asp?session=29&bill=HB369&submit=Display%20Bill", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 307 }, { "id": "nhgri-cee62f7f5dc8d556541b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "2016 State Bills Alaska 2016 SB 182", "primary_url": "http://www.legis.state.ak.us/basis/get_bill.asp?session=29&bill=sb%20182&submit=Display%20Bill", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Excludes DNA samples collected in the course of the person's business of determining genetic genealogy from the state genetic privacy law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 308 }, { "id": "nhgri-ae53e1041eaf90f14b18", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2016 State Bills Arizona 2016 HB 2144", "primary_url": "http://www.azleg.gov/DocumentsForBill.asp?Bill_Number=HB2144&Session_ID=115", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "This bill amends state law pertaining to genetic testing. New provisions include that a person may not order a genetic test without the informed consent of the person being tested. Signed by the Governor on 3/17/2016. Effective August 6, 2016.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 309 }, { "id": "nhgri-1f93d0a73ee42e3e5973", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2016 State Bills Arizona 2016 SB 1366", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/?BillNumber=SB1366&SessionID=115", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Amends statute pertaining to laboratory testing without a healthcare provider's order. Defines laboratory testing to include pharmacogenetic testing. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 310 }, { "id": "nhgri-6731fbe299b37d43da58", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2016 State Bills California 2016 SB 1442", "primary_url": "http://www.leginfo.ca.gov/pub/15-16/bill/sen/sb_1401-1450/sb_1442_bill_20160930_chaptered.html", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends state law prohibiting denial of full and equal access to benefits or discrimination in any program or activity that is conducted, operated, or administered by the state or by any state agency, is funded directly by the state, or receives any financial assistance from the state based on genetic information and other characteristics. The bill would remove the authority of those state agencies to promulgate regulations to prohibit discrimination and would require the investigation and enforcement of anti-discrimination provisions to be performed by to the Department of Fair Employment and Housing. Chaptered on 9/30/2016. However, the bill is effective on January 1, 2017 only if AB 2707, which pertains to racial profiling, is enacted. On 9/27/2016 the Governor vetoed AB 2707.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 311 }, { "id": "nhgri-59093a06560dedff1260", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2016 State Bills Colorado 2016 HB 1381", "primary_url": "http://www.leg.state.co.us/clics/clics2016a/csl.nsf/fsbillcont2/9C83235959221BB687257F24006596C5?Open=", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Amends the health care coverage law for breast cancer screening by requiring coverage for a person with an increased lifetime risk of breast cancer determined by a risk factor model such as Tyrer-Cuzick, BRCAPro, or Gail. 05/02/2016 In Senate Committee on State, Veterans, & Military Affairs. Postponed Indefinitely.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 312 }, { "id": "nhgri-09aec19d1c92cb3ede88", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2016 State Bills Connecticut 2016 HB 5233", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=HB05233&which_year=2016", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Adds tomosynthesis to health_insurance_coverage requirements if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. June 2, 2016 Approved. Effective January 1, 2017.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 313 }, { "id": "nhgri-6559f20ed5de4ec41629", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "2016 State Bills Idaho 2016 HB 554", "primary_url": "https://www.legislature.idaho.gov/legislation/2016/H0554.htm", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "If a firefighter is diagnosed with breast cancer after a five years of employment, and the disease was not revealed during an initial employment medical screening examination, then the disease is presumed to be proximately caused by the firefighter's employment as a firefighter. The presumption applies to breast cancer diagnosed before the age of forty (40) years and when a breast cancer 1 or breast cancer 2 genetic predisposition is not present. Signed by Governor on March 30, 2016. Effective: 07/01/2016.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 314 }, { "id": "nhgri-57d55dbf40fd82ecea8b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2016 State Bills Louisiana 2016 HB 613", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?i=229528", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends the genetic nondiscrimination in health insurance statute by establishing exemptions to the law. The bill provides that the requirements under existing law do not apply to genetic information obtained: (1) For treatment, payment, and healthcare operations by an insurer consistent with the federal Health Insurance Portability and Accountability Act (HIPAA) and its related regulations. (2) For maintenance of information by an insurer in accordance with record retention requirements. 5/10/2016 Signed by the Governor. Becomes Act No. 58. Effective 8/1/2016.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 315 }, { "id": "nhgri-26f49b8db076d61ef1d8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2016 State Bills Maryland 2016 HB 1392", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb1392&tab=subject3&ys=2016RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Authorizes a person to advertise for, solicit business in the State for, offer, or perform direct to consumer genetic testing, if certain conditions are met. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 316 }, { "id": "nhgri-201ce5ac1c92d32ee997", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2016 State Bills Maryland 2016 SB 153", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&tab=subject3&id=sb0153&stab=01&ys=2016RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires the Motor Vehicle Administration to make available to an applicant for a driver's license, an identification card, or a moped operator's permit the opportunity to upgrade to an enhanced identification document. A person who applies for enhanced identification must provide a biometric identifier, which may include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 317 }, { "id": "nhgri-47c4d882dfc07580359f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2016 State Bills Michigan 2016 HB 5769", "primary_url": "http://www.legislature.mi.gov/documents/2015-2016/billintroduced/House/htm/2016-HIB-5769.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the state genetic privacy law. Changes in introduced version of bill only involve unsubstantial changes in wording of text. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 318 }, { "id": "nhgri-3011e04b31fac287c71a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2016 State Bills Mississippi 2016 HB 449", "primary_url": "http://billstatus.ls.state.ms.us/2016/pdf/history/HB/HB0449.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the small business health insurance pool. Health benefit plans covering small employers may not use genetic information to establish a pre-existing condition exclusion in the absence of a diagnosis of a condition related to the genetic information. 2/23/2016 (H) Died In Committee.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 319 }, { "id": "nhgri-d78c9a875470d5e2a1b0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2016 State Bills Mississippi 2016 HB 985", "primary_url": "http://billstatus.ls.state.ms.us/2016/pdf/history/HB/HB0985.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the parental authority act. Parental rights include the he right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or deoxyribonucleic acid (DNA) is created, stored or shared, with some exceptions. 2/23/2016 (H) Died In Committee.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 320 }, { "id": "nhgri-c491d3eeb07bf8d003cb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2016 State Bills Mississippi 2016 SB 2775", "primary_url": "http://billstatus.ls.state.ms.us/2016/pdf/history/SB/SB2775.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Parents Matter Act. Parental rights include the right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or deoxyribonucleic acid (DNA) is created, stored or shared, with some exceptions. 2/23/2016 (S) Died In Committee.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 321 }, { "id": "nhgri-542ccd4fe715fc04a22d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2016 State Bills Mississippi 2016 Senate Bill 2547", "primary_url": "http://billstatus.ls.state.ms.us/2016/pdf/history/SB/SB2547.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows parents to opt out of certain activities conducted by the public school districts, including the collection of biometric information. Biometric information is defined to include DNA. 2/23/2016 (S) Died In Committee.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 322 }, { "id": "nhgri-005d50618efdf5e63912", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2016 State Bills Missouri 2016 HB 1849", "primary_url": "http://www.house.mo.gov/Bill.aspx?bill=HB1849&year=2016&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits school districts from collecting biometric information, including DNA sequences, on students without the express written consent of parents or legal guardians. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 323 }, { "id": "nhgri-f0602bdc75531baa62ae", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2016 State Bills Missouri 2016 SB 989", "primary_url": "http://www.senate.mo.gov/16info/BTS_Web/Bill.aspx?SessionType=R&BillID=25766616", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires state education agencies to obtain parental consent to collect biometric records from parents, K-12 students or through data sharing agreements with any other entity. Biometric records are defined to include DNA sequences. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 324 }, { "id": "nhgri-cb3a1cf270fdc0faf455", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2016 State Bills New Hampshire 2016 HB 1493", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_docket.aspx?lsr=2609&sy=2016&sortoption=&txtsessionyear=2016&txtbillnumber=HB1493&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Declares that an individual's genetic information and DNA sample are the property of the individual. Committee Report: Referred to Interim Study, 05/05/2016.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 325 }, { "id": "nhgri-4a63736cadc76f6aea8d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2016 State Bills New Hampshire 2016 HB 1494", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_docket.aspx?lsr=2612&sy=2016&sortoption=&txtsessionyear=2016&txtbillnumber=HB1494&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Provides that an individual has an expectation of privacy in personal information, including DNA/RNA and other identifying information unique to the individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 326 }, { "id": "nhgri-29abd4d1ee9254997e38", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2016 State Bills Utah 2016 HB 358", "primary_url": "http://le.utah.gov/~2016/bills/static/HB0358.html", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities. Signed by the Governor on 3/23/2016.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 327 }, { "id": "nhgri-a49df01c1a5dcef22820", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2016 State Bills West Virginia 2016 HB 4261", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_history.cfm?INPUT=4261&year=2016&sessiontype=RS", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Prohibits the West Virginia Department of Education from transferring confidential student information, including genetic information, to any federal, state or local agency or other person or entity with some specified exceptions. Signed by the Governor 3/25/2016. Effective 90 days from passage.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 328 }, { "id": "nhgri-89994deb66af10202e2f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2016 State Bills Wisconsin 2016 AB 570", "primary_url": "http://docs.legis.wisconsin.gov/2015/proposals/ab570", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Authorizes the circuit court to order a person who engages in discrimination in employment, unfair honesty testing, or unfair genetic testing to pay compensatory and punitive damage. 4/13/2016 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2016, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 329 }, { "id": "nhgri-c5483488a462ec561fad", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2017 State Bills Arizona 2017 SB 1373", "primary_url": "http://www.azleg.gov/legtext/53leg/1R/bills/sb1373p.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits schools and school service providers from collecting or possessing biometric information of elementary or secondary school students unless the school service provider: (1) develops a written policy for the collection, retention, disclosure and destruction of biometric information; and (2) obtains a written release to collect biometric information. Sets forth protections for biometric information, if collected. Biometric information is defined as information derived from any biometric identifier used to identify an individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 330 }, { "id": "nhgri-b1441a48913e29df1da2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "2017 State Bills Arkansas 2017 HB 2022", "primary_url": "http://www.arkleg.state.ar.us/assembly/2017/2017R/Pages/BillInformation.aspx?measureno=HB2022", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Accident and health insurance companies, hospital service corporations, health maintenance organizations, or other accident and health insurance providers must offer coverage, as an essential health benefit, for mammogram screening, mammography and breast ultrasound for the diagnosis of breast disease. Coverage is required upon the recommendation of a physician without regard to age when a woman has (1) a prior history of breast cancer, (2) her mother or sister has a history of breast cancer, (3) positive genetic testing, or (4) other risk factors. 3/29/2017 Enacted.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 331 }, { "id": "nhgri-90c87aeaa2d943d42a55", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2017 State Bills California 2017 AB 1386", "primary_url": "http://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=201720180AB1386", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Requires the State Department of Health Care Services to provide individuals diagnosed with breast cancer information relating to breast cancer susceptibility gene (BRCA) mutations. The goal is to help achieve increased genetic counseling and screening rates of individuals for whom BRCA test results can inform treatment decisions. 10/12/2017 Chaptered by Secretary of State - Chapter 693, Statutes of 2017.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 332 }, { "id": "nhgri-77d48bf23620b2669f21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2017 State Bills California 2017 AB 375", "primary_url": "http://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=201720180AB375", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Grants consumers the right to request a business to disclose the categories and specific pieces of personal information that it collects about the consumer; the categories of sources from which that information is collected; the business purposes for collecting or selling the information; and the categories of 3rd parties with which the information is shared. Biometric information, which is defined to include DNA, is considered personal information. Note: AB 375 was amended in June of 2018. Earlier versions of the bill do not address biometric information, including DNA. June 28, 2018 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 333 }, { "id": "nhgri-5d7040334b2d11c20ede", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2017 State Bills California 2017 AB 728", "primary_url": "http://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201720180AB728", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Prohibits a health care service plan contract or a health insurance policy that covers prescription drug benefits from denying or otherwise limiting coverage of a genetically targeted drug for the treatment of Duchenne muscular dystrophy under specified circumstances. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 334 }, { "id": "nhgri-116818800ce75a4a32c2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2017 State Bills California 2017 SB 562", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201720180SB562", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Healthy California Board, which is responsible for the establishment of the Healthy California program to provide comprehensive universal single-payer health care coverage and a health care cost control system for the benefit of all residents of the state. Consistent with the Unruh Civil Rights Act, the Board must promote nondiscrimination with respect to members and health care providers on the basis of genetic information and other characteristics. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 335 }, { "id": "nhgri-718fc835e9bd68ece7ff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2017 State Bills Colorado 2017 HB 1115", "primary_url": "http://leg.colorado.gov/bills/hb17-1115", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits direct primary health care providers from discriminating in the selection of patients on the basis of genetic information and other protected classes. 4/24/2017 Signed Act.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 336 }, { "id": "nhgri-d5ba2fd07276ca1316f9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2017 State Bills Connecticut 2017 HB 7222", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=HB07222&which_year=2017", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "Requires that all research proposed to be conducted using personally identifiable information in the newborn screening system or requiring contact with affected individuals shall be reviewed and approved in advance by the health commissioner. 6/23/2017 Signed by the Governor. Effective 10/1/2017.", "base_status": "enacted", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 337 }, { "id": "nhgri-caf46fd7ddb4cc86b3de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2017 State Bills Connecticut 2017 SB 381", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00381&which_year=2017", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of disease. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 338 }, { "id": "nhgri-d2dfe49bf820c24836a7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2017 State Bills Connecticut 2017 SB 586", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00586&which_year=2017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires individual and group health insurers to provide coverage for breast cancer chemoprevention counseling, risk assessment, genetic testing and counseling for any woman who is at increased risk for breast cancer due to family history, prior personal history of breast cancer, positive genetic testing or other indications as determined by a health care provider. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 339 }, { "id": "nhgri-7b768b4ce167bddfc1c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2017 State Bills Connecticut 2017 SB 968", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00968&which_year=2017", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Creates a health data collaborative working group to examine and make recommendations regarding (1) precision medicine and personalized health; (2) economic growth initiatives for businesses working in certain scientific areas; (3) health data access, privacy and security initiatives; and (4) platforms for collecting health data in order to understand the interplay between genetic, behavioral and environmental factors in the incidence of disease or illness. 6/30/2017 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 340 }, { "id": "nhgri-0d3b18488cb103ecf4f5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2017 State Bills Delaware 2017 HS 1 for HB 180", "primary_url": "http://legis.delaware.gov/BillDetail?LegislationId=26009", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Establishes protections for personal information, including a deoxyribonucleic profiles, owned, maintained, or licensed by businesses in the state. Businesses must implement and maintain reasonable procedures and practices to prevent the unauthorized access to or acquisition, use, modification, disclosure, or destruction of personal information collected or maintained in the regular course of business. 8/17/2017 Signed by the Governor. Effective 4/14/2018.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 341 }, { "id": "nhgri-b6dffed901c30ef4423e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2017 State Bills Hawaii 2017 HB 1573", "primary_url": "http://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=1573&year=2017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires all individual accident and health or sickness insurance policies, all individual and group hospital and medical service corporation contracts, and all group or blanket disability policies that provide coverage for reproductive health to include certain services in reproductive health service coverage. The services listed include genetic screening and counseling related to BRCA1 and BRCA2 genetic mutations. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 342 }, { "id": "nhgri-b15bf948f31a9ff23202", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2017 State Bills Illinois 2017 SB 318", "primary_url": "http://www.ilga.gov/legislation/BillStatus.asp?DocNum=318&GAID=14&DocTypeID=SB&LegID=100258&SessionID=91&GA=100&SpecSess=0", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "Amends the state genetic nondiscrimination law for employment. An employer may not penalize an employee who does not disclose his or her genetic information or does not choose to participate in a program requiring disclosure of the employee's genetic information. 8/25/2017 Approved by the Governor. Effective 1/1/2018.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 343 }, { "id": "nhgri-45ccfc8053b075b06be0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2017 State Bills Iowa 2017 HF 31", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=87&ba=HF31", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "Requires the Center for Congenital and Inherited Disorders to adopt rules to prohibit the retention and ensure proper disposal of residual newborn screening specimens. The Center must incinerate any residual specimens being stored before the effective date of the bill. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 344 }, { "id": "nhgri-04cac18786781bf53524", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2017 State Bills Kentucky 2017 HB 483", "primary_url": "http://www.lrc.ky.gov/record/17RS/HB483.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Makes technical changes to state statutes that prohibit the use of pre-existing condition exclusions based on genetic information. Clarifies that the prohibition applies to all insurers that offer any health benefit plan coverage. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 345 }, { "id": "nhgri-b60389bf4fcc522a37c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2017 State Bills Kentucky 2017 SB 59", "primary_url": "http://www.lrc.ky.gov/record/17RS/SB59.htm", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Any agency that collects, maintains, or stores personal information that determines or is notified of a security breach relating to personal information collected, maintained, or stored by the agency or by a nonaffiliated third party on behalf of the agency must take specified actions. Personal information includes a genetic print or image. Agencies covered under the law include the executive branch of state government, local government and public educational institutions. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 346 }, { "id": "nhgri-8f6d5e6c52eacb06eaa4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2017 State Bills Maine 2017 LD 1279", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?ID=280064492", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "In amended version, prohibits pre-existing condition exclusions in individual health plans but removes text referring to genetic information. Allows restricted enrollment in individual health plans during open enrollment periods and special enrollment periods in a manner consistent with federal law. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 347 }, { "id": "nhgri-e762a4bcfda6794b3a84", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2017 State Bills Maine 2017 LD 1340", "primary_url": "http://www.mainelegislature.org/legis/bills/getPDF.asp?paper=SP0454&item=4&snum=128", "source_topics": [ "Employment Nondiscrimination", "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "No member, officer, employee or agent of a municipal housing authority may knowingly divulge or disclose personnel information declared confidential with some specified exceptions. Personal information, including genetic information, is considered confidential. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 348 }, { "id": "nhgri-8b26addb790a2db3bc21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2017 State Bills Maine 2017 LD 1452", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?ID=280064843", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The department of education, a school administrative unit or a state agency may not collect, store, transmit or process the certain information, including DNA, from a student without the written consent of a parent or guardian of a student or an eligible student unless otherwise required or authorized by statute or rule. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 349 }, { "id": "nhgri-9ac4de017f1c9a4e2274", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2017 State Bills Maine 2017 LD 146", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?ld=146&PID=1456&snum=128", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Clarifies that certain personal information of municipal employees is confidential and a record or portion of a record containing that information in the possession of a municipal government is not a public record. Personal information includes genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 350 }, { "id": "nhgri-fdadc26836e6e23746e3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2017 State Bills Maine 2017 LD 1476", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?ld=1476&PID=1456&snum=128", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "As introduced, a health plan must provide coverage for risk assessment for a BRCA gene mutation and genetic counseling or testing, if necessary. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 351 }, { "id": "nhgri-0dc86a9ddaaf89ad269b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 HB 1489", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb1489&tab=subject3&ys=2017RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Removes the ban on directly or indirectly advertising for or soliciting business for any medical laboratory, regardless of location, from anyone except a physician, hospital, medical laboratory, clinic, clinical installation, or other medical care facility. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 352 }, { "id": "nhgri-0eb6eadee087823af4e8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 HB 435", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb0435&stab=01&pid=billpage&tab=subject3&ys=2017RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain state and local governmental units to secure by encryption personal information of an individual that the unit has collected as computerized data. Personal information includes a genetic print or image. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 353 }, { "id": "nhgri-fe65e32fbbf92237a824", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 HB 808", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb0808&tab=subject3&ys=2017RS", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 354 }, { "id": "nhgri-978f0785d8e541bc5eff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 HB 974", "primary_url": "http://mgaleg.maryland.gov/2017RS/Chapters_noln/CH_518_hb0974e.pdf", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Amends the Maryland Personal Information Protection Act. Requires a business to inform an employee or a former employee in the event of a breach of a security system that contains personal information, including a genetic print. A business subject to HIPAA is considered to be in compliance with the law. 5/4/2017 Approved by the Governor. Chapter 518. Effective January 1, 2018.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 355 }, { "id": "nhgri-c42413447cabee1840a4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 SB 525", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0525&stab=01&pid=billpage&tab=subject3&ys=2017RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a business, when destroying an employee's or a former employee's records that contain personal information, including a genetic print, to take steps to protect against unauthorized access to or use of the information. States when a business that owns, licenses, or maintains computerized data containing personal information must investigate a security breach. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 356 }, { "id": "nhgri-9b7d02cbbea55e7702b9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2017 State Bills Maryland 2017 SB 660", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0660&stab=01&pid=billpage&tab=subject3&ys=2017RS", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "Requiring hospital administrators to provide patients with a specified patient's bill of rights. The bill of rights addresses patient participation in research. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 357 }, { "id": "nhgri-39257c493ab414b2fdc5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.1985", "primary_url": "https://malegislature.gov/Bills/190/H1985", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Adds biometric indicators to the state data security protection law. Biometric indicator is defined as any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including but not limited to fingerprints, genetic information, iris or retina patterns, facial characteristics, or hand geometry. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 358 }, { "id": "nhgri-58410b2c2d349b971452", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.2176", "primary_url": "https://malegislature.gov/Bills/190/H2176", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 7/18/2018 Accompanied a study order, see H4778.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 359 }, { "id": "nhgri-bb5738b1af6d13607b0f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.2814", "primary_url": "https://malegislature.gov/Bills/190/H2814", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires the department of consumer affairs and business to adopt regulations relative to any person that owns or licenses personal information about a resident of the commonwealth. Personal information includes biometric indicators (or any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including but not limited to fingerprints, genetic information, iris or retina patterns, facial characteristics, or hand geometry). 6/27/2018 Accompanied a study order, see H4648.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 360 }, { "id": "nhgri-5e60f13371fa6b42d18d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.3575", "primary_url": "https://malegislature.gov/Bills/190/H3575", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "The public employee retirement commission, individual and group accident and sickness insurers, individual or group hospital service plans, individual or group medical service agreements, and individual or group health maintenance contracts must cover colorectal cancer screening as determined medically necessary by a physician. Coverage requirements include KRAS, BRAF, and PIK3CA arrays. 7/18/2018 Accompanied a study order, see H4778.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 361 }, { "id": "nhgri-bc6633e223e7708f6434", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.3644", "primary_url": "https://malegislature.gov/Bills/190/H3644", "source_topics": [ "Health Insurance Coverage", "Other Topics" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage for certain genetically targeted drugs for Duchenne muscular dystrophy. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 362 }, { "id": "nhgri-d8e2bcd72349c3d62f7a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 H.3969", "primary_url": "https://malegislature.gov/Bills/190/H3969", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires coverage for the diagnosis of Alfi's Syndrome, including genetic testing. 7/18/2018 Accompanied a study order, see H4778.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 363 }, { "id": "nhgri-3ca58c3e80fc6ae317cb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 S.1120", "primary_url": "https://malegislature.gov/Bills/190/S1120", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 364 }, { "id": "nhgri-7894b3f1d8b14e33426f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 S.554", "primary_url": "https://malegislature.gov/Bills/190/S554", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage of screening breast ultrasounds and breast MRI, in addition to mammograms, if the patient is at increased risk of cancer based on certain factors such as positive genetic testing. 4/30/2018 In Senate. Accompanied a study order, see S2496.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 365 }, { "id": "nhgri-e17e40a27c724be81a5f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 S.81", "primary_url": "https://malegislature.gov/Bills/190/S81", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits local or state administrative, legislative or regulatory body or instrumentality from engaging in discriminatory land use practices based on a variety of factors, including genetic information. 4/11/2018 Accompanied a new draft, see H4397.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 366 }, { "id": "nhgri-918cba8363619cc48c4d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2017 State Bills Massachusetts 2017 S.95", "primary_url": "https://malegislature.gov/Bills/190/S95", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Protects biometric information under the security breach law. Biometric information includes genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 367 }, { "id": "nhgri-c1942d84a963b1f14aba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2017 State Bills Michigan 2017 HB 4514", "primary_url": "https://www.legislature.mi.gov/(S(s2pjcnjtssimxebie0q1bbp0))/mileg.aspx?page=getobject&objectname=2017-HB-4514&query=on", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 368 }, { "id": "nhgri-83b23cc25a378fe3665e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2017 State Bills Michigan 2017 SB 322", "primary_url": "https://www.legislature.mi.gov/(S(s2pjcnjtssimxebie0q1bbp0))/mileg.aspx?page=getobject&objectname=2017-SB-0322&query=on", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires employers of 50 people or more to post a notice that it is illegal under federal law to pay employees different wages for the same work based on certain criteria, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 369 }, { "id": "nhgri-0ecbc1b68d29a5c4ab66", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2017 State Bills Minnesota 2017 HF 402/SF 613", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=HF402&version=0&session=ls90&session_year=2017&session_number=0", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes a genetic marker testing pilot program. The program is intended to refine the understanding of disease onset and progression, treatment response, and health outcomes through more precise measurement of genetic factors that contribute to health and disease. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 370 }, { "id": "nhgri-8f7c9f100196233b234d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2017 State Bills Minnesota 2017 HF 887", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=house&f=HF887&ssn=0&y=2017", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "A managed care organization that contracts with the health commissioner cannot discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 371 }, { "id": "nhgri-2784b5a76dea14f10c06", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2017 State Bills Minnesota 2017 SF 781", "primary_url": "https://www.revisor.mn.gov/bills/text.php?version=latest&session=ls90&number=SF0781&session_year=2017&session_number=0", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the MinnesotaCare program. A managed care organization that contracts with the Commissioner as part of the program may not discriminate or use any policy that has the effect of discriminating against people on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 372 }, { "id": "nhgri-0fc09a3f86bd6d056a70", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2017 State Bills Mississippi 2017 HB 175", "primary_url": "http://billstatus.ls.state.ms.us/2017/pdf/history/HB/HB0175.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the small business health insurance pool. Health benefit plans covering small employers may not exclude genetic information as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/31/2017 Died in Committee.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 373 }, { "id": "nhgri-e30602184cc393168a1d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2017 State Bills Mississippi 2017 SB 2581", "primary_url": "http://billstatus.ls.state.ms.us/2017/pdf/history/SB/SB2581.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows parents or legal guardians of students enrolled in public schools to opt-out of sharing their child's personal information with the federal government and other agencies and private contractors. Personal information includes a DNA sequence. 1/31/2017 Died in Committee.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 374 }, { "id": "nhgri-bd9acbf577dcb1af4875", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2017 State Bills Missouri 2017 HB 201", "primary_url": "http://www.house.mo.gov/billtracking/bills171/hlrbillspdf/0287H.01I.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits school districts from collecting biometric information on any student without the express written consent of the student�s parent or legal guardian. Biometric information is defined to include a DNA sequence and newborn screening information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 375 }, { "id": "nhgri-62eb0d33400fdf3d3a2f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2017 State Bills Montana 2017 HB 356", "primary_url": "http://laws.leg.mt.gov/legprd/LAW0203W$BSRV.ActionQuery?P_SESS=20171&P_BLTP_BILL_TYP_CD=&P_BILL_NO=&P_BILL_DFT_NO=2034&P_CHPT_NO=&Z_ACTION=Find&P_ENTY_ID_SEQ2=&P_SBJT_SBJ_CD=&P_ENTY_ID_SEQ=", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Health insurance issuers offering individual health_insurance_coverage may not establish rules for eligibility, including continued eligibility, of any individual based on a health status-related factor, including genetic information, of the individual or a dependent of the individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 376 }, { "id": "nhgri-0a9881557f5785c14ef5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2017 State Bills Montana 2017 HB 392", "primary_url": "http://laws.leg.mt.gov/legprd/LAW0203W$BSRV.ActionQuery?P_SESS=20171&P_BLTP_BILL_TYP_CD=&P_BILL_NO=&P_BILL_DFT_NO=LC350&P_CHPT_NO=&Z_ACTION=Find&P_ENTY_ID_SEQ2=&P_SBJT_SBJ_CD=&P_ENTY_ID_SEQ=", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Montana family and medical leave insurance fund. Applicants for coverage must provide eligibility documentation. The department may not require documentation that exceeds the right to privacy allowed under HIPAA, the ADA and GINA. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 377 }, { "id": "nhgri-d9d451a6d36abcce27e0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2017 State Bills New Hampshire 2017 HB 396", "primary_url": "http://www.gencourt.state.nh.us/bill_status/billText.aspx?sy=2017&id=677&txtFormat=html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the collection, tracking, housing, storage, reporting or sharing of personally identifiable information with the federal government or for-profit corporations. The findings and purpose section of the bill lists a DNA sequence as private student data. Died on the Table.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 378 }, { "id": "nhgri-de8a3db977631dd01c75", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2017 State Bills New Hampshire 2017 HB 523", "primary_url": "http://www.gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=720&sy=2018&sortoption=&txtsessionyear=2018&txtbillnumber=hb523", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "The introduced version of the bill sought to protect confidential and sensitive information such as genetic testing information. The bill has been amended to establish a committee to study the use and regulation of biometric information. Signed by the Governor on 5/15/2018. Effective 5/15/ 2018.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 379 }, { "id": "nhgri-8c8bb5b9978e65ef660b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2017 State Bills New Jersey 2017 A2073", "primary_url": "http://www.njleg.state.nj.us/2016/Bills/A2500/2073_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Makes confidential any part of a 9-1-1 audio recording or transcript that discloses a person's health status, medical conditions, health care services or treatments, medical history, genetic information, or current health insurance plan information by excluding it from the definition of a government record. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 380 }, { "id": "nhgri-24ce76b93d7bab6dac94", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2017 State Bills New Jersey 2017 A4945", "primary_url": "http://www.njleg.state.nj.us/2016/Bills/A5000/4945_I1.HTM", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the Healthy New Jersey Program. Prohibits discrimination with respect to members and health care providers based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 381 }, { "id": "nhgri-76acf3f32adbf45dbd6c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2017 State Bills New Jersey 2017 S2909", "primary_url": "http://www.njleg.state.nj.us/2016/Bills/S3000/2909_I1.HTM", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "A person may not refuse to refer a job seeker for employment or to discriminate against a job seeker in compensation or in terms, conditions or privileges of employment to which the job seeker is referred because of certain characteristics, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 382 }, { "id": "nhgri-6efe659c68fa5913f7a2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2017 State Bills New Jersey 2017 S3606", "primary_url": "http://www.njleg.state.nj.us/2016/Bills/S4000/3606_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Makes confidential any part of a 9-1-1 audio recording or transcript that discloses a person's health status, medical conditions, health care services or treatments, medical history, genetic information, or current health insurance plan information by excluding it from the definition of a government record. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 383 }, { "id": "nhgri-05f8fec52e03a5cb6ce1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A1220", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A01220&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires written notification to parents of infant's whose DNA or blood spots are retained. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 384 }, { "id": "nhgri-ce98901fe43f89e2cbb9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A1463", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A1463&term=2017&Summary=Y&Actions=Y", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes a genetics advisory council. Topics to be examined by the council include (1) creating an environment in which there is equitable access to the benefits of genetic tests to all citizens regardless of race, ethnicity or economic status; and (2) the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 385 }, { "id": "nhgri-c3db5c65bbdf184f0938", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A1803", "primary_url": "http://nyassembly.gov/leg/?bn=A01803&term=2017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Coverage must include testing and any subsequent treatment based on the results of the test for people with a significant risk of contracting cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 386 }, { "id": "nhgri-0647db8d9ace754d1751", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A1807", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A01807&term=2017&Summary=Y&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 387 }, { "id": "nhgri-8ad999e1dc8888aff6b7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A1882", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A01882&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive screening for ovarian cancer. Additional coverage for computed tomography, barium enema X-rays, magnetic resonance imaging (MRI), positron emission tomography, laparoscopy, colonoscopy and biopsy if a person is at increased risk for ovarian cancer due to specified factors, including positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 388 }, { "id": "nhgri-853aae37fa2b4455bdb1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A2461", "primary_url": "http://nyassembly.gov/leg/?bn=A02461&term=2017", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling. Participation in the program is voluntary, and all information is confidential. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 389 }, { "id": "nhgri-2b4d9533381351996fa9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A3005", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A03005&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Establishes a Hate Crime Task Force. The task force will issue reports and publications in conjunction with the Division on Human Rights to combat discrimination based on a variety of factors, including genetic predisposition status. 04/20/2017 Signed by the Governor Chapter 55.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 390 }, { "id": "nhgri-498f84e29c9b1d51c68f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A3008", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A3008&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "In introduced version of the bill, a Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. 4/20/2017 Signed by the Governor Chapter 58. However, final version of the bill does not include provision related to genetic information.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 391 }, { "id": "nhgri-5920693ce420cd8a5aa5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A6661", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A06661&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 392 }, { "id": "nhgri-e598e45f58b064f78409", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A6878", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A06878&term=2017&Summary=Y&Actions=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 393 }, { "id": "nhgri-a23f88293c97a192a129", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 A8752", "primary_url": "http://nyassembly.gov/leg/?bn=A08752&term=2017", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits clients and modeling agencies from subjecting a model to harassment based on various characteristics, including predisposing genetic characteristics, where such harassment has the purpose or effect of unreasonably interfering with an individual's provision of modeling services by creating an intimidating, hostile, or offensive environment. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 394 }, { "id": "nhgri-3cf0b08fceb1b4bf8ab8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 S1264", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S1264&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 395 }, { "id": "nhgri-5766e1c58ce10d14df1d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 S2005", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S2005&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Establishes a Hate Crime Task Force. The task force will issue reports and publications in conjunction with the Division on Human Rights to combat discrimination based on a variety of factors, including genetic information. 4/20/2017 Signed by the Governor Chapter 55.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 396 }, { "id": "nhgri-e8a7fc664b2a338be0f7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 S2008", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S2008&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. 4/20/2017 Signed by the Governor Chapter 58.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 397 }, { "id": "nhgri-a0b2298e5c89a6dfa54e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2017 State Bills New York 2017 S4159", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S4159&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "A Transportation Network Company (TNC) may not discriminate against passengers or potential passengers on the basis of a genetic predisposition. TNC drivers must comply with the anti-discrimination law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 398 }, { "id": "nhgri-b2f019896d28f4f857bf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 HB 186", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=H186&submitButton=Go", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Died", "source_summary": "Creates the Equal Employment and Equal Access to Public Accommodations Act. Declares that it is the public policy of the State to protect and safeguard the right and opportunity to all individuals to seek, obtain and hold employment without discrimination or abridgment and to enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination because of race, sex, national origin, citizenship, religion, age, veteran status, genetic information, pregnancy, handicap, or disability. Declares that it is the policy of the State Board of Community Colleges, local boards of trustees of the State of North Carolina, and the Board of Governors of the University of North Carolina not to discriminate among students. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 399 }, { "id": "nhgri-cb8d8d068d287ed134dd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 HB 78", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=hb78&submitButton=Go", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 400 }, { "id": "nhgri-6a4801ca9166bd6ad774", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 HB 82", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=H82&submitButton=Go", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 401 }, { "id": "nhgri-9804e76574bc7d4b7829", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 HB 906", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=H906", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discriminatory housing practices based on protected status, which includes genetic information. Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 402 }, { "id": "nhgri-5578b748050616651d40", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 SB 474", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=S474&submitButton=Go", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Died", "source_summary": "Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to (1) enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination; and 2) seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Prohibits discrimination in housing practices based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 403 }, { "id": "nhgri-a9ffa73596a0b34ce1f0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2017 State Bills North Carolina 2017 SB 84", "primary_url": "http://www.ncleg.net/gascripts/BillLookUp/BillLookUp.pl?Session=2017&BillID=H82&submitButton=Go", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Declares that it is the public policy of the State to protect and safeguard the right and opportunity of all individuals to (1) enjoy fully and equally the goods, services, facilities, privileges, advantages, and accommodations of places of public accommodations free of discrimination; and 2) seek, obtain and hold employment without discrimination or abridgement on account of certain characteristics, including genetic information. Also prohibits insurers from refusing to insure or refusing to continue to insure an individual, limit the amount, extent, or kind of coverage available to an individual, or charge an individual a different rate for the same coverage, based on genetic information. School boards also must adopt a policy to establish that the local board of education and school personnel employed by the local board may not discriminate based on genetic information. Charter and nonpublic schools may not discriminate based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 404 }, { "id": "nhgri-3c6460ea122003c7687f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2017 State Bills Oklahoma 2017 HB 1716", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB1716&Session=1700", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires certain residents of long-term care facilities to have a pharmacogenomics profile conducted. The profile must include the results of at least eighteen genes tested and be accompanied by treatment guidance for each disease state-tested. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 405 }, { "id": "nhgri-6e06decc31b6853db204", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2017 State Bills Oklahoma 2017 HB 1816", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB1816&Session=1700", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits discrimination based on genetic information in housing and the full and equal enjoyment of the goods, services, facilities, privileges, advantages, and accommodations of a place of public accommodation. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 406 }, { "id": "nhgri-c2461e386030ae0ff433", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2017 State Bills Oregon 2017 HB 2232", "primary_url": "https://olis.leg.state.or.us/liz/2017R1/Measures/Overview/HB2232", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "A health benefit plan offered in Oregon must provide coverage for BRCA testing, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 407 }, { "id": "nhgri-63e9707c7b638f16e48a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oregon", "source_record_label": "2017 State Bills Oregon 2017 HB 3391", "primary_url": "https://olis.leg.state.or.us/liz/2017R1/Measures/Overview/HB3391", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "A health benefit plan offered in Oregon must provide coverage for screening to determine whether counseling about BRCA testing is indicated. Governor signed. Effective 8/15/2017.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 408 }, { "id": "nhgri-aaaba35dff86979aaf2c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2017 State Bills Texas 2017 HB 2891", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=85R&Bill=HB2891", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Pertains to medical authorization required to release protected health information in a health care liability claim. Allows the patient or patient's personal or legal representative to exclude genetic information from the authorization. 6/9/2017 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 409 }, { "id": "nhgri-4e55eed48c9fcbad3462", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2017 State Bills Texas 2017 HB 3491", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=85R&Bill=HB3491", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 410 }, { "id": "nhgri-6ae1ab6ab61fa5cd2a92", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2017 State Bills Texas 2017 SB 1872", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=85R&Bill=SB1872", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Pertains to medical authorization required to release protected health information in a health care liability claim. Allows the patient or patient's personal or legal representative to exclude genetic information from the authorization. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 411 }, { "id": "nhgri-2e3a9245d3ca3e38e523", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2017 State Bills Texas 2017 SB 281", "primary_url": "http://www.capitol.state.tx.us/BillLookup/History.aspx?LegSess=85R&Bill=SB281", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Limits the use of biometric identifiers by governmental bodies. Biometric identifiers are defined to include a DNA sample. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 412 }, { "id": "nhgri-54d369ab52a90930189e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2017 State Bills Texas 2017 SJR 44", "primary_url": "http://www.capitol.state.tx.us/BillLookup/Actions.aspx?LegSess=85R&Bill=SJR44", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Proposes a Constitutional Amendment providing for the recognition of equal rights of all people. States that equality under the law may not be denied or abridged based on numerous factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 413 }, { "id": "nhgri-8613fb88f35ac03e3ec4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2017 State Bills Washington 2017 HB 2213", "primary_url": "http://app.leg.wa.gov/billsummary?BillNumber=2213&Year=2017", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Modifies the state privacy law pertaining to biometric information by adding DNA to the definition of biometric identifiers. Provides an exception for law enforcement agencies. 6/27/2017 Signed by the Governor. Effective 7/23/2017.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 414 }, { "id": "nhgri-f954672c9a8af5610c88", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2017 State Bills West Virginia 2017 HB 2471", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_history.cfm?INPUT=2471&year=2017&sessiontype=RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Insurers that provide reimbursement or indemnity for laboratory or X-ray services must cover a comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for cancer due to positive genetic testing or other indications as determined by a woman's physician or advanced practice nurse. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 415 }, { "id": "nhgri-9e8b939ad4d26f753afc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2017 State Bills West Virginia 2017 HB 3021", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_history.cfm?INPUT=3021&year=2017&sessiontype=RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Insurers that provide reimbursement or indemnity for laboratory or X-ray services must cover a comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for cancer due to positive genetic testing or other indications as determined by a woman's physician or advanced practice nurse. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 416 }, { "id": "nhgri-b5b12d70076a68d51fa4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2017 State Bills Wisconsin 2017 AB 212", "primary_url": "http://docs.legis.wisconsin.gov/2017/proposals/reg/asm/bill/ab212", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Addresses actions in circuit court alleging discrimination in employment, unfair honesty testing, or unfair genetic testing. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 417 }, { "id": "nhgri-5a957aa0cd20fde0485e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2017 State Bills Wisconsin 2017 AB 363", "primary_url": "http://docs.legis.wisconsin.gov/2017/proposals/reg/asm/bill/ab363", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating \"without a diagnosis of a condition related to the information\" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 418 }, { "id": "nhgri-e12c69808c4b0b63e4ae", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2017 State Bills Wisconsin 2017 SB 140", "primary_url": "http://docs.legis.wisconsin.gov/2017/proposals/reg/sen/bill/sb140", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Addresses actions in circuit court alleging discrimination in employment, unfair honesty testing, or unfair genetic testing. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 419 }, { "id": "nhgri-ba7f0c3619039aefec81", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2017 State Bills Wisconsin 2017 SB 265", "primary_url": "http://docs.legis.wisconsin.gov/2017/related/proposals/sb265", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends health insurance law pertaining to pre-existing conditions. Insurers may not treat genetic information as a pre-existing condition. Provision stating \"without a diagnosis of a condition related to the information\" is stricken. 3/28/2018 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 420 }, { "id": "nhgri-c542a1128150d7d8c811", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wyoming", "source_record_label": "2017 State Bills Wyoming 2017 SF 34", "primary_url": "http://legisweb.state.wy.us/2017/Engross/SF0034.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Student Personal Digital Information Protection Act. The Act establishes protections to safeguard the privacy of student data, including biometric information. It is unclear whether biometric information includes genetic information or a DNA sequence. The term is not defined. Failed 2/13/2017", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2017, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 421 }, { "id": "nhgri-a2f01b462c015b96db4c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2018 State Bills Arizona 2018 HB 2450", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/70351?SessionId=119", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows the release of genetic testing and information derived from genetic testing to the following, if the necessary requirements are met: an individual or entity that provides services to a health care provider or clinical laboratory, a statewide health information exchange, the health insurance carrier of the person tested, a nationally recognized accreditation organization, a health professional licensing board in the state, and an entity that is responsible for the payment of a health care provider charges. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 422 }, { "id": "nhgri-81bd12fcf703360b5daf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2018 State Bills California 2018 AB 2358", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201720180AB2358", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits discrimination against apprentices or applicants for apprenticeships in the building and construction trade based on genetic information. 9/22/2018 Chaptered by Secretary of State - Chapter 675, Statutes of 2018.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 423 }, { "id": "nhgri-cb79c321b961be782cd0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2018 State Bills California 2018 AB 2765", "primary_url": "http://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201720180AB2765", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination in a digital marketplace or otherwise acting upon applications to participate with a digital marketplace as a marketplace contractor based on an individual's genetic characteristics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 424 }, { "id": "nhgri-d068f00e37b3e1e50ec7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2018 State Bills Connecticut 2018 SB 440", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2018&bill_num=440", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "The Commissioner of Social Services must provide Medicaid coverage to the extent permissible under federal law for pharmacogenomics tests determined to be medically necessary. The commissioner may not require prior authorization for medically necessary pharmacogenomics tests for persons being treated for (1) behavioral disorders, (2) psychiatry disorders, (3) cardiovascular disorders, and (4) chronic pain. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 425 }, { "id": "nhgri-cfa40e93a09a737cd71c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2018 State Bills Florida 2018 HB 1385", "primary_url": "https://www.flsenate.gov/Session/Bill/2018/01385", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Healthy Florida program to be administered by the Healthy Florida Board. Every resident of Florida is eligible and entitled to enroll under the Healthy Florida program. The program may not discriminate based on genetic information. 3/10/2018 Died in Health Innovation Subcommittee.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 426 }, { "id": "nhgri-caf3ae4edca0c39e2b88", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2018 State Bills Florida 2018 HB 855", "primary_url": "http://www.flsenate.gov/Session/Bill/2018/00855/?Tab=BillText", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits life insurers and long-term care insurers, except under certain circumstances, from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information. 3/10/2018 Died in Banking and Insurance.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 427 }, { "id": "nhgri-3dd1f1a6d87a1eefdec9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2018 State Bills Florida 2018 SB 1106", "primary_url": "http://www.flsenate.gov/Session/Bill/2018/01106/?Tab=BillText", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits life insurers and long-term care insurers from canceling, limiting, or denying coverage, or establishing differentials in premium rates, based on genetic information, if there is no diagnosis of a condition related to the genetic information. The bill also prohibits these insurers from requiring or soliciting genetic information, using genetic test results, or considering a person�s decisions or actions relating to genetic testing for any insurance purpose. 3/10/2018 Died in Rules.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 428 }, { "id": "nhgri-e3dc5143c9e9fceffe03", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2018 State Bills Florida 2018 SB 1872", "primary_url": "https://www.flsenate.gov/Session/Bill/2018/01872", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Healthy Florida program to be administered by the Healthy Florida Board. Every resident of Florida is eligible and entitled to enroll under the Healthy Florida program. The program may not discriminate based on genetic information. 3/10/2018 Died in Banking and Insurance.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 429 }, { "id": "nhgri-5ddb59edab3ab32cf7c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2018 State Bills Hawaii 2018 HB 2127", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=2127&year=2018", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurers, mutual benefit societies, and health maintenance organizations to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 430 }, { "id": "nhgri-ff9851eb63e22ff1ecde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2018 State Bills Hawaii 2018 SB 2341", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=SB&billnumber=2341&year=2018", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires accident and health or sickness insurers to provide coverage for genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 431 }, { "id": "nhgri-942c21d1e3f38d273ffd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2018 State Bills Illinois 2018 SB 2924", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=2924&GAID=14&GA=100&DocTypeID=SB&LegID=110202&SessionID=91", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Genetic Information privacy Act provisions concerning uses and disclosures. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 432 }, { "id": "nhgri-168e29a6f7349f4f0714", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "2018 State Bills Indiana 2018 SB 352", "primary_url": "https://iga.in.gov/legislative/2018/bills/senate/352", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes requirements regarding student education records, personally identifiable information of a student, and certain other information concerning a student. Personally identifiable information includes a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 433 }, { "id": "nhgri-8b929d6dfa838d166d78", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2018 State Bills Iowa 2018 HF 2352", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=87&ba=hf2352", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the Healthy Iowa program. Residents of the state are entitled to enroll. Discrimination is prohibited with respect to members and providers based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 434 }, { "id": "nhgri-99324c1dc55f22ab072a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2018 State Bills Kentucky 2018 HB 188", "primary_url": "https://apps.legislature.ky.gov/record/18rs/hb188.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 435 }, { "id": "nhgri-0f09eee94c6708f50f2a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2018 State Bills Kentucky 2018 SB 33", "primary_url": "https://apps.legislature.ky.gov/record/18rs/sb33.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain information holders to encrypt personally identifiable data, which is defined to include a genetic print. Information holders must report a breach of personally identifiable information to consumers. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 436 }, { "id": "nhgri-7862a3ee45c110159b0c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2018 State Bills Louisiana 2018 SB 442", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?s=18RS&b=SB442&sbi=y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Requires companies who sell DNA testing kits to inform a purchaser of certain information. This includes a written statement to inform the consumer that, by submitting DNA for testing, one loses the exclusive right to one's DNA. 5/30/2018 Signed by the Governor. Becomes Act No. 571. Effective 8/1/2018.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 437 }, { "id": "nhgri-30febc3483ee59d25651", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2018 State Bills Maryland 2018 HB 1516", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb1516&stab=01&pid=billpage&tab=subject3&ys=2018RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishing Healthy Maryland as a public corporation and a unit of State government to provide comprehensive universal health coverage for every Maryland resident. The Health Maryland Board must develop rules to promote nondiscrimination with respect to genetic information among members and providers. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 438 }, { "id": "nhgri-1e37fe86af8fabb9692c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2018 State Bills Maryland 2018 SB 1002", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb1002&stab=01&pid=billpage&tab=subject3&ys=2018RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishing Healthy Maryland as a public corporation and a unit of State government to provide comprehensive universal health coverage for every Maryland resident. The Health Maryland Board must develop rules to promote nondiscrimination with respect to genetic information among members and providers. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 439 }, { "id": "nhgri-c4e112da28d6b8accad1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2018 State Bills Massachusetts 2018 H.2420", "primary_url": "https://malegislature.gov/Bills/190/H2420", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits a local or state administrative, legislative or regulatory body or instrumentality from engaging in a discriminatory land use practice based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 440 }, { "id": "nhgri-9a56a50da21308878270", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2018 State Bills Massachusetts 2018 H.3024", "primary_url": "https://malegislature.gov/Bills/190/H3024", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits a local or state administrative, legislative or regulatory body or instrumentality to engage in a discriminatory land use practice, including discrimination based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 441 }, { "id": "nhgri-78f5248fdb278586293d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2018 State Bills Massachusetts 2018 H.4639", "primary_url": "https://malegislature.gov/Bills/190/H4639", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Measure to enhance high quality, affordable health care. The bill includes a provision requiring coverage for genetically targeted drugs for Duchenne muscular dystrophy, if offered to active or retired employees of the commonwealth insured under the group insurance commission. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 442 }, { "id": "nhgri-918ad7c0cdf7ed1b284a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2018 State Bills Massachusetts 2018 H.4865", "primary_url": "https://malegislature.gov/Bills/190/H4865", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage for certain genetically targeted drugs for Duchenne muscular dystrophy. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 443 }, { "id": "nhgri-cc873b78dfe34521abf2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2018 State Bills Mississippi 2018 HB 522", "primary_url": "http://billstatus.ls.state.ms.us/2018/pdf/history/HB/HB0522.xml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits health plans from denying coverage for a preexisting condition unless certain conditions are met. Genetic information may not be excluded as a preexisting condition in the absence of a diagnosis of the condition related to the genetic information. 1/30/2018 Died in Committee.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 444 }, { "id": "nhgri-a878e009592536cb78c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2018 State Bills Mississippi 2018 SB 2146", "primary_url": "http://billstatus.ls.state.ms.us/2018/pdf/history/SB/SB2146.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows parents to opt out of the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on a child or his or her family, including a DNA sequence. 1/30/2018 Died in Committee.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 445 }, { "id": "nhgri-6622bb40470e3baa9367", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2018 State Bills Mississippi 2018 SB 2406", "primary_url": "http://billstatus.ls.state.ms.us/2018/pdf/history/SB/SB2406.xml", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires group or individual policies, contracts or certificates of health insurance issued or renewed to cover comprehensive ultrasound screening of an entire breast or breasts if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as determined by a woman's physician or advanced practice registered nurse. 1/30/2018 Died in committee.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 446 }, { "id": "nhgri-84f1e7ae3c896c0a2e15", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2018 State Bills Missouri 2018 HB 1761", "primary_url": "http://www.house.mo.gov/bill.aspx?bill=HB1761&year=2018&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits school district from collecting biometric information on any student without express written consent of the student�s parent or legal guardian. Biometric information includes a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 447 }, { "id": "nhgri-a7302757018b0c9965f9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2018 State Bills New Hampshire 2018 HB 1373", "primary_url": "http://www.gencourt.state.nh.us/bill_status/bill_docket.aspx?lsr=2553&sy=2018&sortoption=billnumber&txtsessionyear=2018&txtbillnumber=HB1373", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes and individual's property right to his or her genetic information and DNA sample, except as expressly otherwise provided in statute. Requires consent to acquire, retain, or disclose a person's genetic information or DNA sample. 5/2/2018 Refer to Interim Study, MA, VV.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 448 }, { "id": "nhgri-ddd3dc7908e95ee135b7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2018 State Bills New Hampshire 2018 HB 1750", "primary_url": "http://www.gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=2556&sy=2018&sortoption=&txtsessionyear=2018&txtbillnumber=HB1750", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the government from acquiring, retaining, collecting, or using personal information without express written consent with some exceptions such as if a warrant has been issued. Personal information includes DNA/RNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 449 }, { "id": "nhgri-bd40d805403180e08cd6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 A2145", "primary_url": "http://www.njleg.state.nj.us/2018/Bills/A2500/2145_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires testing of infants for genetic mutations associated with the development of hereditary hemochromatosis. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 450 }, { "id": "nhgri-230110148c9ec6648eb0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 A4640", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/A5000/4640_I1.PDF", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 451 }, { "id": "nhgri-32a39292d39e5f6ee9b7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 AJR181", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/AJR/181_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes New Jersey Pharmacogenomics Commission. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 452 }, { "id": "nhgri-aef27f499605a4b63eb3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 S104", "primary_url": "http://www.njleg.state.nj.us/2018/Bills/S0500/104_I1.HTM", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends employment discrimination law. Prohibits employers from paying any of its employees who are a members of a protected class at a rate of compensation, including benefits, which is less than the rate paid by the employer to employees who are not members of the protected class for substantially similar work, when viewed as a composite of skill, effort and responsibility. Member of a protected class is defined an employee who has one or more characteristics, including genetic information, for which the law prohibits discrimination in employment. 4/24/2018 Approved P.L.2018, c.9.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 453 }, { "id": "nhgri-fdcab83f291834d929ac", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 S3153", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/S3500/3153_I1.PDF", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill sets forth privacy protections for personally identifiable information collected by businesses. Personally identifiable information includes biometric data such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 454 }, { "id": "nhgri-efeca6b1ee6e7c5415df", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2018 State Bills New Jersey 2018 SJR115", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/SJR/115_R1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes the New Jersey Pharmacogenomics Commission. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 455 }, { "id": "nhgri-82d153d244c4f9f6654e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 A10229", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A10229&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination based on the results of a genetic test or the provision of genetic information. Insurers may not require and applicant to undergo a genetic test or answer questions about genetic testing. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 456 }, { "id": "nhgri-048626440eca91ce68ab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 A10246", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A010246&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "Prohibits discrimination based on genetic information in multiple sections of the statutes, including those pertaining to employment, housing, credit, education and other areas. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 457 }, { "id": "nhgri-c321fc64725aa59f94bb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 A8847", "primary_url": "http://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A08847&term=2017&Summary=Y&Actions=Y", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits the distribution of consumers' DNA profiles submitted to direct-to-consumer genetic testing companies. Requires companies to provide a copy of their privacy policy to any consumer that submits a DNA sample and provides for civil penalties for violations of these provisions. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 458 }, { "id": "nhgri-32baee20d62dfc5804b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 A9780", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A9780&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 459 }, { "id": "nhgri-4d566b39b000cefc160f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 A9780", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A09780&term=2017&Summary=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes a personal information bill of rights. Declares the right of all New Yorkers to have their personal information, including DNA, protected. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 460 }, { "id": "nhgri-07af0056a1c253f490c0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2018 State Bills New York 2018 S7555", "primary_url": "http://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S7555&term=2017&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Personal Information Protection Act. Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security of this information. Personal information includes DNA samples. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 461 }, { "id": "nhgri-bea634d2a8e3bc2577e8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2018 State Bills Oklahoma 2018 HB 3233", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=hb3233&Session=1800", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires certain residents of long-term care facilities to have a pharmacogenomics profile conducted. The profile must include the results of at least eighteen genes tested and be accompanied by treatment guidance for each disease state-tested. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 462 }, { "id": "nhgri-95a9953e22b54cee306c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2018 State Bills Tennessee 2018 HB 2508", "primary_url": "https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=HB2508&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Following discovery or notification of a breach of system security by an information holder, the information holder must disclose the breach of system security to any resident of the state whose personal information was, or is reasonably believed to have been, acquired by an unauthorized person. Personal information includes a DNA profile. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 463 }, { "id": "nhgri-7ee6719e632d50edef45", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2018 State Bills Tennessee 2018 HB 2690", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=HB2690&GA=110", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Requires a parent, legal guardian, or student, if the student is 18 years of age or older, to provide informed written consent before the collection of individual student biometric data, including DNA. Establishes additional protections for personally identifiable information, which includes biometric data, maintained by schools. Effective 7/1/2018.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 464 }, { "id": "nhgri-fb9453b36be2aba4c222", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2018 State Bills Tennessee 2018 SB 2029", "primary_url": "https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SB2029&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a parent, legal guardian, or student, if the student is 18 years of age or older, to provide informed written consent before the collection of individual student biometric data, including DNA. Establishes additional protections for personally identifiable information, which includes biometric data, maintained by schools. 4/18/2018 Companion House bill substituted.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 465 }, { "id": "nhgri-b86905ec0dd7ea8a870c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2018 State Bills Tennessee 2018 SB 2536", "primary_url": "https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SB2536&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Following discovery or notification of a breach of system security by an information holder, the information holder must disclose the breach of system security to any resident of the state whose personal information was, or is reasonably believed to have been, acquired by an unauthorized person. Personal information includes a DNA profile. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 466 }, { "id": "nhgri-c7632f8ae18b2111a2c0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2018 State Bills Virginia 2018 HB 1053", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=181&typ=bil&val=hb1053&submit=GO", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes policies to prevent workplace harassment in the legislative branch. Workplace harassment is defined as unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of certain characteristics, including genetics, that (i) has the purpose or effect of creating an environment that a reasonable person would consider intimidating, hostile, or abusive; (ii) has the purpose or effect of unreasonably interfering with an employee's work performance; or (iii) affects an employee's employment opportunities or compensation. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 467 }, { "id": "nhgri-c1fe7cc30983150117eb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2018 State Bills Washington 2018 HB 2565", "primary_url": "http://app.leg.wa.gov/billsummary?BillNumber=2565&Year=2017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Substitute bill version: Requires the drug utilization review board to consider the safety, efficacy, and cost-effectiveness of drugs and gene therapies in its recommendations to the director of the authority regarding coverage for medical assistance programs. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 468 }, { "id": "nhgri-b41295241f99c8d0c866", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2018 State Bills Washington 2018 SB 5957", "primary_url": "http://app.leg.wa.gov/billsummary?BillNumber=5957&Year=2017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Establishes the Healthy Washington program to provide comprehensive universal single-payer health care coverage for all residents of the state. The board of Healthy Washington must create requirements and standards for the program and for health care organizations, care coordinators, and health care providers pertaining to nondiscrimination with respect to members and health care providers on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 469 }, { "id": "nhgri-58d91e5603be5b41b273", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wyoming", "source_record_label": "2018 State Bills Wyoming 2018 HB 119", "primary_url": "http://lso.wyoleg.gov/Legislation/2018/HB0119", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Prohibits the collection, retention and disclosure of genetic information without informed consent. Establishes requirements for the retention and destruction of genetic information. 3/16/2018 Governor Signed HEA No. 0060.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2018, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 470 }, { "id": "nhgri-79d44ea84ce157a1b6bf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2019 State Bills Arizona 2019 SB 1297", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/71907", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Requires that genetic testing information be released only as authorized by state or federal law, including the Health Insurance Portability and Accountability Act privacy standards. Permits the release of genetic testing information to a health care provider who is providing care to the person tested and the health care provider's agent or employee. Allows a legal representative of a clinical laboratory that is in possession of the medical record to receive the genetic test and information derived from the genetic test when the laboratory is obtaining legal advice. Allows a licensed pathologist to order and perform genetic testing for a patient and receive the results. Signed by the Governor on May 22, 2019.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 471 }, { "id": "nhgri-775652cea896c2c13fc6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "2019 State Bills Arkansas 2019 HB 1943", "primary_url": "http://www.arkleg.state.ar.us/assembly/2019/2019R/Pages/BillInformation.aspx?measureno=HB1943", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Amends the definition of personal information under Personal Information privacy Act. Protected personal information is defined to include biometric information such as DNA. 4/15/2019 HB 1943 is now Act 1030.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 472 }, { "id": "nhgri-4372ce7041d2ac3ce138", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2019 State Bills California 2019 AB 1020", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200AB1020", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits licensing boards from requiring an examination or establishing any qualification for licensing that has an adverse impact on any class because of various attributes, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 473 }, { "id": "nhgri-71741529bf943e3ee344", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2019 State Bills California 2019 SB 180", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200SB180", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits a person from selling a gene therapy kit unless the seller includes a notice on the seller�s internet website that is displayed to the consumer prior to the point of sale, and on a label on the package, stating that the kit is not for self-administration. Chaptered by Secretary of State. Chapter 140, Statutes of 2019. Effective January 1, 2020.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 474 }, { "id": "nhgri-0afd9df284473f41fe0e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2019 State Bills California 2019 SB 731", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200SB731", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Language in introduced version, which pertained to genetic characteristics and workers compensation, was stricken. Amended version of bill states that peace officer and custodial officer personnel records maintained by a state or local agency are not confidential and are available for public inspection. Records available for inspection include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct such as verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the basis of various factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 475 }, { "id": "nhgri-7116421195ed19a02fb6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2019 State Bills Colorado 2019 HB 1301", "primary_url": "https://leg.colorado.gov/bills/hb19-1301", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Amends the provision requiring health_insurance_coverage for mammography for an individual with a genetic predisposition. The amended version of the statute refers to guidelines of professional associations to determine coverage requirements. May 16, 2019 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 476 }, { "id": "nhgri-9c5e5a5d8c75a67eb0c7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2019 State Bills Connecticut 2019 HB 6544", "primary_url": "https://www.cga.ct.gov/2019/TOB/h/pdf/2019HB-06544-R00-HB.PDF", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a consumer genetic-testing company from sharing any genetic data or other personally identifiable information about a consumer with any health or life insurance company. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 477 }, { "id": "nhgri-f816cbbc2610c05e4c29", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2019 State Bills Connecticut 2019 HB 7262", "primary_url": "https://cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2019&bill_num=7262", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits life insurance companies from requiring genetic testing or using genetic information in connection with life insurance policies and annuity contracts. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 478 }, { "id": "nhgri-1e7754c2793f19db599e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2019 State Bills Connecticut 2019 SB 1108", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2019&bill_num=1108", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Creates a task for concerning consumer privacy. The introduced version of the bill was amended to create a task force rather than set forth certain requirements pertaining to the privacy of personal information such as DNA. Signed by the Governor 7/9/2019.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 479 }, { "id": "nhgri-8856eaeed00f1b89b8a7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2019 State Bills Connecticut 2019 SB 369", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=SB00369&which_year=2019", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes a task force to require a study of the link between the abnormal genes associated with breast and ovarian cancers and the nerve death associated with Alzheimer's disease to improve diagnosis, risk assessment and treatment of such disease. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 480 }, { "id": "nhgri-c9725fe74ab9cc2436d9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2019 State Bills Delaware 2019 SB 144", "primary_url": "http://legis.delaware.gov/BillDetail?legislationId=47643", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination based upon genetic information in the issuance or renewal of disability, long-term care, and life insurance. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 481 }, { "id": "nhgri-e045eee8ab238a923d6e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2019 State Bills Delaware 2019 SB 17", "primary_url": "http://legis.delaware.gov/BillDetail?LegislationId=37119", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination based upon genetic characteristics and information in the issuance or renewal of disability and long term care insurance. Insurers also must provide notice if a genetic test is required. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 482 }, { "id": "nhgri-e8b495d948266d5b7a4c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 HB 1171", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=65928&SessionId=87", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Parents Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child�s blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 483 }, { "id": "nhgri-f4f427c71051fb4958de", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 HB 697", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=64216", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 484 }, { "id": "nhgri-359456ffae6ed4829d2b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 HB 879", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=65191&SessionId=87", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits life insurers and long-term care insurers from basing decisions on genetic information. Prohibits these insurers from taking certain actions related to genetic information for any insurance purpose. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 485 }, { "id": "nhgri-a13546c7f01bf759e258", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 SB 1486", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=65858", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates Healthy Florida Program for purpose of comprehensive universal single-payer health care coverage. The Board of the program must establish requirements and standards to promote nondiscrimination, including based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 486 }, { "id": "nhgri-f1a0fa6da5b09f939a60", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 SB 1726", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=66054&SessionId=87", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Parents Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child�s blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 487 }, { "id": "nhgri-66ea5e3eeb671eee9ddb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2019 State Bills Florida 2019 SB 258", "primary_url": "https://www.flsenate.gov/Session/Bill/2019/00258", "source_topics": [ "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits life insurers, long-term care insurers, and disability income insurers from certain actions relating to genetic information or genetic testing of applicants. Prohibits these insurers from taking certain actions relating to coverage or rates unless certain conditions are met. Requires entities providing direct-to-consumer genetic testing to obtain prior written authorization to disclose identifying health information to life or health insurers. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 488 }, { "id": "nhgri-f37b1b5bb3e699b922c1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2019 State Bills Hawaii 2019 HB 1087", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=1087&year=2019", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurers, mutual benefit societies and health maintenance organizations to provide coverage for: (1) screening to determine whether counseling and testing related to the BRCA1 or BRCA2 genetic mutation is indicated; and (2) genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 489 }, { "id": "nhgri-f670367df4a838f825c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2019 State Bills Hawaii 2019 SB 1043", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=SB&billnumber=1043&year=2020", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurers, mutual benefit societies and health maintenance organizations to provide coverage for: (1) screening to determine whether counseling and testing related to the BRCA1 or BRCA2 genetic mutation is indicated; and (2) genetic counseling and testing related to the BRCA1 or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 490 }, { "id": "nhgri-5c15465cc50055caa733", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2019 State Bills Illinois 2019 HB 2189", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=2189&GAID=15&GA=101&DocTypeID=HB&LegID=117925&SessionID=108", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "A company providing direct-to-consumer commercial genetic testing is prohibited from sharing genetic test information or other personally identifiable information about a consumer with any health or life insurance company without written consent from the consumer. Direct-to-consumer genetic tests are added to the definition of genetic test under the Genetic Information privacy Act. 7/26/2019 Public Act. Effective January 1, 2020.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 491 }, { "id": "nhgri-13d254e9c27091d38903", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2019 State Bills Illinois 2019 SB 1307", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=1307&GAID=15&GA=101&DocTypeID=SB&LegID=117930&SessionID=108", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Genetic Information privacy Act provisions concerning uses and disclosures for treatment, payment, health care operations, health oversight activities, and public health activities; uses and disclosures of information to a health information exchange; business associates; and establishment and disclosure of limited data sets and de-identified information. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 492 }, { "id": "nhgri-e1171cc9f0d197bf2259", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2019 State Bills Illinois 2019 SB 2263", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=2263&GAID=15&GA=101&DocTypeID=SB&LegID=121653&SessionID=108", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes consumer rights to copies of information held by persons who control and process data. Provides for the correction of inaccurate data. Provides for restrictions on the use of personal data. Defines health care information to include a patient's deoxyribonucleic acid. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 493 }, { "id": "nhgri-f4c719665db9b47bd17a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "2019 State Bills Indiana 2019 HB 1494", "primary_url": "http://iga.in.gov/legislative/2019/bills/house/1494", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "An insurer that issues an individual or group policy of accident and sickness insurance, small employer group health insurance plans, and health maintenance organization contracts may not establish rules for eligibility of an individual to enroll or continued enrollment based on any of the following health status related factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 494 }, { "id": "nhgri-2ba5170947c90586de4d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "2019 State Bills Indiana 2019 HB 1631", "primary_url": "http://iga.in.gov/legislative/2019/bills/house/1631", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "The provision pertaining to the use of genetic information in short term insurance plans was removed from the final version of this bill. 5/6/2019 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 495 }, { "id": "nhgri-4242c960328c8b9770b5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "2019 State Bills Indiana 2019 SB 204", "primary_url": "http://iga.in.gov/legislative/2019/bills/senate/204", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Specifies that a state employee health plan, a policy of accident and sickness insurance, and a health maintenance organization contract must provide for availability, renewability, premium rating, and coverage without regard to health status, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 496 }, { "id": "nhgri-ff4afd5f25702860f1cd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2019 State Bills Iowa 2019 HF 96", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=88&ba=hf96", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Iowa residents are eligible and entitled to enroll as a member in and receive benefits for health care services covered by the healthy Iowa program. A participating health care provider or participating care coordinator may not refuse to provide health care services to a member on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 497 }, { "id": "nhgri-5933caf2f5967897d05c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2019 State Bills Iowa 2019 HSB 14", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=88&ba=HSB%2014", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill modifies a provision related to personal information in the event of a security breach of computerized data. The definition of personal information is amended to include a deoxyribonucleic acid profile. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 498 }, { "id": "nhgri-9e97100aee0cea14c575", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2019 State Bills Iowa 2019 SSB 1071", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=88&ba=SSB%201071", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "This bill modifies a provision related to personal information in the event of a security breach of computerized data. The definition of personal information is amended to include a deoxyribonucleic acid profile. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 499 }, { "id": "nhgri-c80acf83b263598ce85d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2019 State Bills Kentucky 2019 SB 152", "primary_url": "https://apps.legislature.ky.gov/record/19rs/sb152.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates a parent's right to consent in writing before any record of the minor child�s blood or deoxyribonucleic acid is created, stored, or shared, unless authorized pursuant to a court order or an ongoing criminal investigation. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 500 }, { "id": "nhgri-3180fcecd304fb8163b4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2019 State Bills Kentucky 2019 SB 30", "primary_url": "https://apps.legislature.ky.gov/record/19rs/sb30.html", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires health benefit plans to cover any genetic test for cancer risk recommended by a physician, physician's assistant, genetic counselor or nurse if the recommendation is consistent with genetic testing guidelines of the National Comprehensive Cancer Network. Signed by the Governor on May 19, 2019. Effective January 1, 2020.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 501 }, { "id": "nhgri-4ee3dca5323343f88595", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2019 State Bills Louisiana 2019 HB 345", "primary_url": "http://www.legis.la.gov/legis/BillInfo.aspx?s=19RS&b=HB345&sbi=y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires health plans to cover the cost of the genetic testing of the BRCA1 and BRCA2 genes to detect an increased risk for breast and ovarian cancer when recommended by a healthcare provider in accordance with the United States Preventive Services Task Force recommendations. Signed by the Governor June 5, 2019. Effective January 1, 2020.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 502 }, { "id": "nhgri-d2b56a9d379781c6123d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2019 State Bills Maine 2019 LD 1", "primary_url": "http://www.mainelegislature.org/legis/bills/getPDF.asp?paper=SP0010&item=1&snum=129", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "This bill amends current health_insurance_nondiscrimination law by deleting provisions pertaining to pre-existing condition exclusions, including those pertaining to genetic information. The amendments prohibit pre-existing condition exclusions entirely to ensure that consumer protections provided under the Affordable Care Act are codified in state law. 3/19/2019 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 503 }, { "id": "nhgri-8aa218fbda31fbfe0008", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2019 State Bills Maine 2019 LD 1314", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?ID=280072577", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits insurers from requesting, requiring, purchasing or using information obtained from a direct-to-consumer genetic test without consent of the individual tested. Types of insurance covered under the law would include life, credit life, disability, long-term care, accidental injury, specified disease, hospital indemnity or credit accident insurance or an annuity. June 5, 2019 Signed by the Governor. Effective 90 days after adjournment on 6/19/19.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 504 }, { "id": "nhgri-1e374e3c9986cf4a1b4e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2019 State Bills Maine 2019 LD 1790", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?ID=280074286", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Protects the personal information, including genetic information, pertaining to state employees. Signed by the Governor on June 20, 2019.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 505 }, { "id": "nhgri-0e46dd43ba5a45851b9e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 1087", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb1087&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. 3/28/2019 Unfavorable Report by Health and Government Operations. Withdrawn.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 506 }, { "id": "nhgri-d4ef045f8f09b1041afe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 1127", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=01&id=hb1127&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 507 }, { "id": "nhgri-a74f2d8fd45fd9d92b66", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 526", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb0526&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Amends the state law pertaining to direct and indirect advertisement of or solicitation of business for medical laboratory tests. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 508 }, { "id": "nhgri-9398b2d7cd65e6bdced5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 57", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=HB0057&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/5/2019 Unfavorable Report by House Rules and Executive Nominations; Withdrawn.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 509 }, { "id": "nhgri-13bd8727aa6dad4a0fa5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 697", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb0697&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 418. Effective June 1, 2019.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 510 }, { "id": "nhgri-7320e046ccc9f6780bb3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 716", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=hb0716&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 511 }, { "id": "nhgri-069798a2feb53d9931ed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 856", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=hb0856&tab=subject3&ys=2019RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 512 }, { "id": "nhgri-4d8aeefe9513ff58d40b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 HB 901", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=HB0901&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 513 }, { "id": "nhgri-67828cc28c377c0f0a5e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 495", "primary_url": "http://mgaleg.maryland.gov/2019RS/chapters_noln/Ch_413_sb0495E.pdf", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease. May 13, 2019 Approved by the Governor - Chapter 413. Effective October 1, 2019.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 514 }, { "id": "nhgri-4382e107f21f67822d80", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 556", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0556&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 515 }, { "id": "nhgri-e0b1bbcada7e277816f3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 613", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0613&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 516 }, { "id": "nhgri-2c68299163caaa60eca1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 786", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?pid=billpage&stab=02&id=sb0786&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. April 3, 2019 Unfavorable Report by Finance.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 517 }, { "id": "nhgri-05a85a8367b9e6ac4b64", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 868", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0868&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 417. Effective October 1, 2019.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 518 }, { "id": "nhgri-1931d050cb3462f22352", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 871", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0871&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 519 }, { "id": "nhgri-4a39684ee9cc576ef38b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2019 State Bills Maryland 2019 SB 953", "primary_url": "http://mgaleg.maryland.gov/webmga/frmMain.aspx?id=sb0953&stab=01&pid=billpage&tab=subject3&ys=2019RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 520 }, { "id": "nhgri-6131b8c31bc6b81e43e2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 H.1025", "primary_url": "https://malegislature.gov/Bills/191/H1025", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires insurance coverage for mammograms and breast cancer screening if the patient has additional risk factors for breast cancer such as family history and positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 521 }, { "id": "nhgri-ccdd9f4b99bd2a098bab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 H.1344", "primary_url": "https://malegislature.gov/Bills/191/H1344", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits local or state administrative, legislative or regulatory body or instrumentality to from engaging in a discriminatory land use practice, including practices based on genetic information. Accompanied a study order, see H5081. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 522 }, { "id": "nhgri-ff50ee928db11e085fd0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 H.180", "primary_url": "https://malegislature.gov/Bills/191/H180", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Pertains to municipal master plans. Master plans developed should take into account to the extent feasible ways in which future policies and programs can advance equity based on various factors such as genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 523 }, { "id": "nhgri-27ec165b8d5555241073", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 H.287", "primary_url": "https://malegislature.gov/Bills/191/H287", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends data security protections to include biometric information, which is defined to include genetic information. 10/26/2020 Accompanied a study order, see H5043. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 524 }, { "id": "nhgri-00971f9bf041674345b3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 Order H.2019", "primary_url": "https://malegislature.gov/Bills/191/H2019", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Establishes that it is House policy and practice to assign, promote and compensate employees on the basis of qualifications, merit, and competence. Prohibits employment practices that are influenced or affected by virtue of an applicant's or employee's genetic information. 1/30/2019 Order adopted and published as amended.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 525 }, { "id": "nhgri-a5c4520dc140ebcb12a4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 S.120", "primary_url": "https://malegislature.gov/Bills/191/S120", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establish protections for the privacy of personal information pertaining to consumers, including biometric information such as DNA. 2/13/2020 In Senate. Accompanied a study order see S2534. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 526 }, { "id": "nhgri-9d41802ae04a248cc5a5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 S.616", "primary_url": "https://malegislature.gov/Bills/191/S616", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires insurance coverage for mammograms and breast cancer screening if the patient has additional risk factors for breast cancer such as family history and positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 527 }, { "id": "nhgri-930b574213d81f808a6b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 S.781", "primary_url": "https://malegislature.gov/Bills/191/S781", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits local or state administrative, legislative or regulatory body or instrumentality to from engaging in a discriminatory land use practice, including practices based on genetic information. 2/13/2020 In Senate. Accompanied a study order, see S2528. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 528 }, { "id": "nhgri-130700006cb27785c75f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 S.939", "primary_url": "https://malegislature.gov/Bills/191/S939", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Adds new section to unlawful employment practices statute. Prohibits any person whose business includes sponsoring, guaranteeing or granting funds or engaging in investment transactions from discriminating against any person in the sponsoring, guaranteeing or granting of funds or making available such funds, because of genetic information and other factors. 11/16/2020 Accompanied a study order, see S2953. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 529 }, { "id": "nhgri-cb6452cf2de2f7f9a292", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2019 State Bills Massachusetts 2019 S.98", "primary_url": "https://malegislature.gov/Bills/191/S98", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends data security protections to include biometric information, which is defined to include genetic information. 2/13/2020 In senate. Accompanied a study order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 530 }, { "id": "nhgri-74f38cb11e2c03dc5ba4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2019 State Bills Michigan 2019 HB 4634", "primary_url": "http://legislature.mi.gov/doc.aspx?2019-HB-4634=", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 531 }, { "id": "nhgri-84d4dfe9cc14c714fd93", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2019 State Bills Michigan 2019 SB 333", "primary_url": "http://legislature.mi.gov/doc.aspx?2019-SB-0333=", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires employers of 50 or more individuals to post a notice that wage discrimination based on genetic information is prohibited under federal law. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 532 }, { "id": "nhgri-5265de766691bfe183d2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2019 State Bills Minnesota 2019 HF 1048", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF1048&ssn=0&y=2019&keyword_type=all&keyword=genetic", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes a pharmacogenetics task force. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 533 }, { "id": "nhgri-5032b2f9412b54b86e21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2019 State Bills Minnesota 2019 HF 112", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF0112&ssn=0&y=2019&keyword_type=all&keyword=genetic", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Modifies existing law pertaining to the use of genetic information by government entities and enacts a new consumer protection law regarding the use of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 534 }, { "id": "nhgri-0bcba2033cff56686fb5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2019 State Bills Minnesota 2019 HF 2917", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF2917&b=house&y=2020&ssn=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Businesses must conduct risk assessments of processing activities that involve sensitive consumer data, including genetic data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 535 }, { "id": "nhgri-37a486883416f97a871d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2019 State Bills Minnesota 2019 SF 1883", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF1883&b=senate&y=2020&ssn=0", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes a pharmacogenetics task force. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 536 }, { "id": "nhgri-e633789cb4abe0df1a5b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2019 State Bills Minnesota 2019 SF 2912", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF2912&b=senate&y=2019&ssn=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Businesses must conduct risk assessments of processing activities that involve sensitive consumer data, including genetic data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 537 }, { "id": "nhgri-bc29a9773373670c4705", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2019 State Bills Mississippi 2019 HB 1253", "primary_url": "http://billstatus.ls.state.ms.us/2019/pdf/history/HB/HB1253.xml", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Consumer privacy Act. Provides certain rights to consumers such as the right to know the categories and specific pieces of personal information collected and the right to require a business to delete personal information. Personal information is defined to include biometric information such as DNA sequences. 02/05 (H) Died In Committee", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 538 }, { "id": "nhgri-d70554f8fb515d6c371d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Mississippi", "source_record_label": "2019 State Bills Mississippi 2019 SB 2098", "primary_url": "http://billstatus.ls.state.ms.us/2019/pdf/history/SB/SB2098.xml", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Allows parents to request exemption of their children from certain activities during a school year, including the collection, tracking, housing, reporting, selling, or sharing with any party outside of the local school district, of noneducational-related information on my child or my family, including, but not limited to DNA sequences. 02/05 (S) Died In Committee.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 539 }, { "id": "nhgri-815fedd0216ad026230f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2019 State Bills Missouri 2019 HB 783", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB783&year=2019&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits school districts from collecting biometric information on students without the express written consent of parents or legal guardians. Biometric information is defined to include a DNA sequence. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 540 }, { "id": "nhgri-dfb8dc6b2dfebcf67c7c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2019 State Bills Montana 2019 HB 609", "primary_url": "https://leg.mt.gov/bills/2019/billhtml/HB0609.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends state health insurance law by deleting provision related to restrictions on pre-existing condition exclusions, including those based on genetic information. The new law would prohibit any pre-existing condition exclusions. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 541 }, { "id": "nhgri-8f8359844a67407884f6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "2019 State Bills Montana 2019 SB 105", "primary_url": "https://leg.mt.gov/bills/2019/billpdf/SB0105.pdf", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires lobbyists to complete harassment prevention training. Harassment is defined to include unwelcome verbal or physical conduct that denigrates or shows hostility or aversion toward an individual on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 542 }, { "id": "nhgri-d308e59a3155f9060b28", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2019 State Bills Nevada 2019 AB 68", "primary_url": "https://www.leg.state.nv.us/Session/80th2019/Reports/history.cfm?DocumentType=1&BillNo=68", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Adds genetic information to the list of categories included in an apprenticeship agreement for which discrimination is prohibited. Requires the Office of Workforce Innovation to suspend for one year the right of any employer, association of employers or organization of employees acting as agent for an employer to participate in a program under the provisions of apprenticeship program after notice and hearing, finds that the employer, association or organization has discriminated against an individual based on genetic information. June 5, 2019 Approved by the Governor. Chapter 377.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 543 }, { "id": "nhgri-643daf9eb49bcf161a7c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2019 State Bills New Hampshire 2019 HB 536", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=2762&sy=2020&txtsessionyear=2020&txtbillnumber=sb536&sortoption=&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Adds biometric information to the Consumer Protection Act. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 544 }, { "id": "nhgri-e57079e210a316f14102", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2019 State Bills New Hampshire 2019 SB 262", "primary_url": "http://www.gencourt.state.nh.us/bill_Status/bill_status.aspx?lsr=0875&sy=2019&txtsessionyear=2019&txtbillnumber=sb262&sortoption=billnumber", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "The informational content, including DNA/RNA and genetic sequences, contained in or on abandoned personal material is the property of the individual to whom it pertains regardless of its abandonment. No government or person may acquire, collect, retain or use of such informational content, with some exceptions such as for use by a law enforcement agency. Died on the table.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 545 }, { "id": "nhgri-981dcbdac97a1e41102a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2019 State Bills New Hampshire 2019 SB 316", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=1066&sy=2020&txtsessionyear=2020&txtbillnumber=sb316&sortoption=&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits information or service providers from directly or indirectly transferring, disclosing or otherwise making available to any person or government any personal information, including genetic profiles and DNA/RNA, related to individuals without written consent. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 546 }, { "id": "nhgri-b40a1ac7ca0c742f2350", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2019 State Bills New Jersey 2019 A5510", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/A9999/5510_I1.PDF", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Expands the state law on discrimination by prohibiting any entity that operates a health program or activity from: 1. Excluding participation in, deny the benefits of, or otherwise discriminate under any health program or activity on the basis of an individual�s genetic information or 2. Aiding or perpetuating discrimination against any person by providing significant assistance to any entity or person that discriminates on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 547 }, { "id": "nhgri-322f87b130ec9f38b7a4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2019 State Bills New Jersey 2019 A5804", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/A9999/5804_I1.PDF", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes personal property rights to DNA samples and genetic information resulting from DNA analysis. Requires consent for use of samples and information from person sampled or analyzed. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 548 }, { "id": "nhgri-d3338118367361df33c0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2019 State Bills New Jersey 2019 S3813", "primary_url": "https://www.njleg.state.nj.us/2018/Bills/S4000/3813_I1.PDF", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Expands the state law on discrimination by prohibiting any entity that operates a health program or activity from: 1. Excluding participation in, deny the benefits of, or otherwise discriminate under any health program or activity on the basis of an individual�s genetic information or 2. Aiding or perpetuating discrimination against any person by providing significant assistance to any entity or person that discriminates on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 549 }, { "id": "nhgri-4a624e513b67cf115b01", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2019 State Bills New Mexico 2019 HB 141", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=H&LegType=B&LegNo=141&year=19", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the disclosure of sensitive personal information by a state agency employee acquired by virtue of the employee's position with a state agency to anyone outside the state agency except under specified circumstances. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 550 }, { "id": "nhgri-a02d84c69f5a4e6c9c75", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2019 State Bills New Mexico 2019 HB 436", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=H&LegType=B&LegNo=436&year=19", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Aligns health insurance law with federal law. Prohibits a group health benefits plan or a health insurance issuer that offers group health_insurance_coverage in connection with a group health benefits plan from adjusting premiums or contribution amounts for the group covered under the plan on the basis of genetic information. April 4, 2019 Signed by Governor - Chapter 259. Effective June 5, 2019.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 551 }, { "id": "nhgri-f3f8ce137a3ab349444b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2019 State Bills New Mexico 2019 SB 24", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=S&LegType=B&LegNo=24&year=19", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Workplace Harassment Prevention and Education Section of the Human Rights Bureau. The section is responsible for enforcing unlawful workplace harassment policies, including those that pertain to harassment based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 552 }, { "id": "nhgri-0d034d7126c97c917149", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A1221", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A1221&term=2019&Summary=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates a company climate report system to assess the workplace environment of companies doing business in New York. Requires companies to submit biennial climate reports based on an anonymous survey of employees to assess the workplace environment including, but not limited to, pay equity, sexual harassment and discrimination based on various factors, an individual's predisposing genetic characteristics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 553 }, { "id": "nhgri-b277cc589b183bc1c578", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A1890", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A1890&term=2019&Summary=Y&Actions=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 554 }, { "id": "nhgri-287b3b39459b13421ec5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A1911", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A1911&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 555 }, { "id": "nhgri-987091ccef39c8639cfc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A239", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A239&term=2019&Summary=Y&Actions=Y", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes an eleven member genetics advisory council. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 556 }, { "id": "nhgri-1f6a954b25de4ece002d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A2409", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A2409&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Died.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 557 }, { "id": "nhgri-6b0eb1dee4592d147596", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A313", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A313&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes unlawful discriminatory practices relating to models, including discrimination based on predisposing genetic characteristics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 558 }, { "id": "nhgri-019074580377ff1cfff8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A4173", "primary_url": "https://nyassembly.gov/leg/?bn=A04173&term=2019", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 559 }, { "id": "nhgri-c59c8974861f45f9c9f8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A465", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A465&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes a personal information bill of rights requiring parties having custody of residents' personal identifying information to ensure the security the information. Personal information is defined to include biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 560 }, { "id": "nhgri-4055ecb3f6d47eb2c03a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A5651", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A5651&term=2019&Summary=Y&Actions=Y&Memo=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive screening for ovarian cancer for persons at high risk, including genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 561 }, { "id": "nhgri-33e6aa6a13f4feb7be0e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A5727", "primary_url": "https://nyassembly.gov/leg/?bn=A05727&term=2019", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 562 }, { "id": "nhgri-9383035740d3050bb7bc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A5976", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A5976&term=2019&Summary=Y&Actions=Y&Memo=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 563 }, { "id": "nhgri-64ceb8230a87fa2ba3cb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A6787", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A6787&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Directs the commissioner of education to conduct a study on the use of biometric identifying technology; prohibits the use of biometric identifying technology in schools until July 1, 2022, or until the commissioner authorizes such purchase or utilization. Biometric information is defined to include a DNA sequence. 12/22/2020 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 564 }, { "id": "nhgri-bcab82a7f62342d4e78c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A7736", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A07736&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the \"It's Your Data Act\" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Personal information includes biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 565 }, { "id": "nhgri-c2c8df95d076b0c05a05", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A8125", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A8125&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Died", "source_summary": "Authorizes human research in compliance with federal law. Substituted by S6488. Senate substitute signed by the Governor on 9/13/19.", "base_status": "died", "mapped_topics": [ "research" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 566 }, { "id": "nhgri-c06be7930aff2f726b6c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 A8169", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0At&leg_video=&bn=A8169&term=2019&Summary=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires every personal information recipient to protect the security and integrity of all personal information in their custody from unauthorized access or unauthorized use. Places strict liability on companies where breaches of security allow for personal information to be compromised. Personal information is defined to include biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 567 }, { "id": "nhgri-7dcf3e179d752f3974b0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S1203", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S1203&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires biometric identifies and information to be treated in a manner similar to confidential and sensitive information such as a genetic marker or genetic testing information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 568 }, { "id": "nhgri-7d6569865827de48be28", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S1915", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S1915&term=2019&Summary=Y&Actions=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 569 }, { "id": "nhgri-b9a0dfd676692af4d88a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S217", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S00217&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Provides insurance coverage for colonoscopies for individuals 45 or older based on risk factors, including genetic history. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 570 }, { "id": "nhgri-dbf8a45d2608c1b71172", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S3817", "primary_url": "https://nyassembly.gov/leg/?bn=S03817&term=2019", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits an employer, licensing agency, employment agency, or labor organization from subjecting an individual to discriminatory harassment based on various factors, including predisposing genetic characteristics. Prohibits subjecting domestic workers to unwelcome harassment based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 571 }, { "id": "nhgri-6ea26b7e40f821a9f3a2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S4144", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S4144&term=2019&Summary=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits hiring parties from subjecting a model to harassment based on various factors, including predisposing genetic characteristics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 572 }, { "id": "nhgri-906b33057ce3a7f54688", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S456", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S456&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work. Protected class includes predisposing genetic characteristic. Signed by the Governor 12/26/2019.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 573 }, { "id": "nhgri-c379378a60c68c7825bd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S4768", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S04768&term=2019&Summary=Y&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 574 }, { "id": "nhgri-fb452708fb04d0ae6e0c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S5140", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S05140&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Directs the commissioner of education to conduct a study on the use of biometric identifying technology; prohibits the use of biometric identifying technology in schools until July 1, 2022, or until the commissioner authorizes such purchase or utilization. Biometric information is defined to include a DNA sequence. 12/22/2020 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 575 }, { "id": "nhgri-27c187bc468e0901e712", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S6448", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S06448&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Enacted", "source_summary": "Amends the public health law, in relation to authorizing human research in compliance with federal law. 9/13/2019 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "research" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 576 }, { "id": "nhgri-5d880d5ac1760c09ae32", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2019 State Bills New York 2019 S7083-A", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A07083&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits an employer, licensing agency, employment agency, or labor organization from subjecting an individual to discriminatory harassment based on various factors, including predisposing genetic characteristics. Prohibits subjecting domestic workers to unwelcome harassment based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 577 }, { "id": "nhgri-4a2601f6b4bbd87f3518", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2019 State Bills North Carolina 2019 HB 464", "primary_url": "https://www.ncleg.gov/BillLookup/2019/H464", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits an association health plan or sponsoring association from conditioning eligibility for coverage, including continuing eligibility for coverage, on health-status factors such as genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 578 }, { "id": "nhgri-894777bee196ddb3c47d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2019 State Bills North Carolina 2019 HB 514", "primary_url": "https://www.ncleg.gov/BillLookUp/2019/H514", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 579 }, { "id": "nhgri-c652b92affad7c412ccb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2019 State Bills North Carolina 2019 SB 455", "primary_url": "https://www.ncleg.gov/BillLookup/2019/S455", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits unlawful discriminatory practice based on protected status, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 580 }, { "id": "nhgri-978212113298b2378c1b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2019 State Bills North Carolina 2019 SB 86", "primary_url": "https://www.ncleg.gov/BillLookUp/2019/SB%2086", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "A sponsoring association of an employee welfare benefit program may not condition eligibility for coverage, including continuing eligibility for coverage, on health status related factors such as genetic information. 8/26/2019 Became law without signature.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 581 }, { "id": "nhgri-7d0d3f648e4975e95840", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2019 State Bills Oklahoma 2019 HB 2455", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=hb2455&Session=1900", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits unlawful housing discriminatory practices based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 582 }, { "id": "nhgri-6c0d6ab6aaa76a67f391", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "2019 State Bills Rhode Island 2019 S234", "primary_url": "http://webserver.rilin.state.ri.us/BillText/BillText19/SenateText19/S0234.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts the Consumer Protection privacy Act. Establishes consumer protections pertaining to the collection and use of personal information, including an individual's DNA, by businesses. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 583 }, { "id": "nhgri-a0dfe2efcfcf6e9284a4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "2019 State Bills Rhode Island 2019 S929", "primary_url": "http://webserver.rilin.state.ri.us/BillText/BillText19/SenateText19/S0929.pdf", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires nonprofit hospital service contract, plan, or insurance policy delivered, issued for delivery, or renewed in this state must provide coverage of all blood testing services, including specified genetic tests. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 584 }, { "id": "nhgri-ad948812cf6c4ee4e6ff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2019 State Bills Tennessee 2019 HB 459", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=HB0459&GA=111", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Creates a genetic advisory committee. Substituted by 2019 SB 127, which became Pub. Ch. 43 April 3, 2019.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 585 }, { "id": "nhgri-ea3d953787bc4e81e374", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2019 State Bills Tennessee 2019 SB 127", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SB0127", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Extends the sunset date of the genetic advisory committee to June 30, 2025. Signed by the Governor 3/22/2019. Pub. Ch. 43.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 586 }, { "id": "nhgri-5e2aa99026c2309b52c2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2019 State Bills Texas 2019 HB 4127", "primary_url": "https://capitol.texas.gov/BillLookup/History.aspx?LegSess=86R&Bill=HB4127", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the Healthy Texas Program. The board for the program must create policies that promote nondiscrimination with respect to members and providers with regard to genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 587 }, { "id": "nhgri-4dcd753fc89aa93a882c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2019 State Bills Texas 2019 HB 4518", "primary_url": "https://capitol.texas.gov/BillLookup/History.aspx?LegSess=86R&Bill=HB4518", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes protections for the privacy of a consumer's personal information collected by certain businesses, including biometric information. Biometric information includes DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 588 }, { "id": "nhgri-b7aaa635fd3aae0ca155", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2019 State Bills Utah 2019 HB 435", "primary_url": "https://le.utah.gov/~2019/bills/static/HB0435.html", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21. March 26, 2019 Governor Signed. Effective 60 days after adjournment on March 14, 2019.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 589 }, { "id": "nhgri-b029558e07e6d69069c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2019 State Bills Utah 2019 SB 147", "primary_url": "https://le.utah.gov/~2019/bills/static/SB0147.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Introduced version prohibited a lobbyist from engaging in unlawful harassment, including based on genetic information. The language pertaining to genetic information was not included in the final version signed by the Governor on 3/26/2019.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 590 }, { "id": "nhgri-1624fc4e8019ba02f2df", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2019 State Bills Vermont 2019 H370", "primary_url": "https://legislature.vermont.gov/bill/status/2020/H.370", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Proposes to identify a DNA sample and the results of a DNA analysis performed on the sample as the exclusive property of the person sampled or analyzed and to provide criminal and civil penalties for unlawful DNA collection, analysis, retention, or disclosure. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 591 }, { "id": "nhgri-2f2fb16b899b70a46cce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2019 State Bills Vermont 2019 S110", "primary_url": "https://legislature.vermont.gov/bill/status/2020/S.110", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Requires (1) the State Court Administrator for the Judicial Branch; (2)the Director of Information Technology for the Legislative Branch; and (3) the Chief Data Officer within the Agency of Digital Services and the Chief Records Officer within the Office of the Secretary of State for the Executive Branch to conduct a data privacy inventory for their respective branches of government. The inventory must address the collection and management of personally identifiable information, including genetic information. Requires a report to the legislature on or before January 15, 2021. Signed by the Governor on March 5, 2020.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 592 }, { "id": "nhgri-74bc816738c9ff8ea8ca", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2019 State Bills Virginia 2019 HB 2083", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=191&typ=bil&val=hb2083", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires each legislative branch agency to adopt and implement the Commonwealth Workplace Harassment Policy established by the Department of Human Resource Management. Workplace harassment is defined to include harassment based on genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 593 }, { "id": "nhgri-8bf5e1525a9bcb406ca4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2019 State Bills Virginia 2019 HB 2603", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=191&typ=bil&val=HB2603", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination in apprenticeships based on various factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 594 }, { "id": "nhgri-1263dbf8228f73db3f96", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 HB 1854", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=1854&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Protects consumer data. Original version of bill included genetic data in the definition of sensitive information, but it was removed from the substitute bill version. 1/13/2020 By resolution, reintroduced and retained in present status. Rules Committee relieved of further consideration. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 595 }, { "id": "nhgri-29bef1f36b8b783bc75d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 HB 1870", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=1870&Initiative=false&Year=2019", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Making state law consistent with selected federal consumer protections in the patient protection and affordable care act. Prohibits a health carrier or health plan from establishing rules for eligibility based on health-status related factors such as genetic information. April 17, 2019 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 596 }, { "id": "nhgri-4345f88066d628a2982b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 HB 1990", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=1990&Year=2019&Initiative=False", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Restricts genome editing of human embryos. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 597 }, { "id": "nhgri-3aa019783e6c06ddf2c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 HB 2018", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2018&Initiative=false&Year=2019", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Concerns harassment and discrimination by legislators and legislative branch employees, including discrimination based on genetic status. Substitute bill, which did not include genetic discirmination provision, was enacted.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 598 }, { "id": "nhgri-f7163a31db53aee4116b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 HB 2046", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2046&Year=2019&Initiative=false", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Seeks to increase consumer data transparency. The bill address consumer biometric information, which is defined to include DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 599 }, { "id": "nhgri-81ecd21b91fcf5c438f2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 SB 5376", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=5376&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Protects sensitive data of consumers, including genetic data. 1/13/2020 By resolution, reintroduced and retained in present status. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 600 }, { "id": "nhgri-a7f80f6fb0e38333d7a1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2019 State Bills Washington 2019 SB 5805", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=5805&Initiative=false&Year=2019", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Making state law consistent with selected federal consumer protections in the patient protection and affordable care act. Prohibits a health carrier or health plan from establishing rules for eligibility based on health-status related factors such as genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 601 }, { "id": "nhgri-7207bf9bbf85d85a0c94", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2019 State Bills West Virginia 2019 HB 2224", "primary_url": "http://www.wvlegislature.gov/Bill_Status/bills_history.cfm?INPUT=2224&year=2019&sessiontype=RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 602 }, { "id": "nhgri-3b3815228bf3801bbbcd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2019 State Bills Wisconsin 2019 AB 396", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/asm/bill/ab396", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 603 }, { "id": "nhgri-c8f2816a285e67d14dde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2019 State Bills Wisconsin 2019 SB 28", "primary_url": "http://docs.legis.wisconsin.gov/2019/proposals/sb28", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "In selecting patients with whom to enter into a direct primary care agreement, a health care provider may not discriminate on the basis of genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 604 }, { "id": "nhgri-ac7f88acc9b222035313", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2019 State Bills Wisconsin 2019 SB 366", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/sen/bill/sb366", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Allows the Department of Workforce Development or an individual who is alleged or was found to have been discriminated against or subjected to unfair honesty or genetic testing to bring an action in circuit court in addition to or in lieu of filing an administrative complaint, with some exceptions. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2019, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 605 }, { "id": "nhgri-cb9096dc31e72436102c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2020 State Bills Alabama 2020 HB 266", "primary_url": "http://alisondb.legislature.state.al.us/alison/SESSBillStatusResult.ASPX?BILL=HB266&WIN_TYPE=BillResult", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits health benefit plans, life insurers, and long term care insurers from (1) using an individual's genetic information to deny him or her insurance or to establish differentials in premium rates, or (2) requiring or soliciting genetic information, using genetic test results, or considering an individual's decisions or actions relating to genetic testing in any manner for insurance purposes. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 606 }, { "id": "nhgri-9d45014f13f8e907756d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2020 State Bills Arizona 2020 HB 2691", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/73445?SessionId=122", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 607 }, { "id": "nhgri-7660cd637d6f2ee4aef6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2020 State Bills Arizona 2020 HB 2729", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/73672?SessionId=122", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes requirements for controllers upon the receipt of a verified request from consumers to exercise their rights with respect to the processing of personal data, including genetic data for the purpose of uniquely identifying a person. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 608 }, { "id": "nhgri-556ee3c30be340dca2a1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2020 State Bills Arizona 2020 HB 2881", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/74176?SessionId=122", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the state genetic privacy law. Declares genetic testing and the information derived from it, whether in the possession of a public or private entity, to be the exclusive private property of the person tested. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 609 }, { "id": "nhgri-7590a68adb0a42318b11", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "2020 State Bills Arizona 2020 SB 1617", "primary_url": "https://apps.azleg.gov/BillStatus/BillOverview/73990?SessionId=122", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits placing an inmate in isolated confinement based on certain factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 610 }, { "id": "nhgri-aa4defd7435bddd656cf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2020 State Bills California 2020 AB 2222", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200AB2222", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a genealogy company, defined as a person that is not subject to HIPAA and obtains the DNA of a person through submission of a saliva sample or other methods, to display a notice in all advertising, it�s privacy policies, at the point of sale of the product, and on product packaging. The notice must contain information about the company's privacy policy. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 611 }, { "id": "nhgri-a6c00f670cc07abd5b90", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2020 State Bills California 2020 AB 2301", "primary_url": "http://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=201920200AB2301", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends statute pertaining to security requirements for business that own, license, or maintain personal information about a California resident. This bill would add genetic information to the definition of personal information under the law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 612 }, { "id": "nhgri-5f99465252f7a3d002f7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2020 State Bills California 2020 AB 2640", "primary_url": "http://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=201920200AB2640", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Prohibits an individual or group health care service plan contract or health insurance policy issued, amended, delivered, or renewed on or after January 1, 2021, from requiring prior authorization for genetic biomarker testing for an enrollee or insured with metastatic or advanced stage 3 or 4 cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 613 }, { "id": "nhgri-4473eb1277fa2476b4da", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2020 State Bills California 2020 AB 3215", "primary_url": "http://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=201920200AB3215", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes the Commission on the State of Hate. Requires the commission to advise the Legislature, the Governor, and state agencies on, among other things, policy recommendations to promote intersocial education designed to foster mutual respect and understanding among California�s diverse population. Appointees to the commission are comprised of experts in combating hate, intolerance, and discrimination on the basis of various factors such as genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 614 }, { "id": "nhgri-e356e7fc7caf6d1035dd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2020 State Bills California 2020 SB 1423", "primary_url": "http://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=201920200SB1423", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires any contracting entity that contracts with independent contractors to provide services to, on behalf of, or through the contracting entity on a freelance or per-gig basis, or virtual platform that enables third parties, including independent contractors, to transact with one another for services, or through which independent contractors can market, promote, or advertise their services to third parties, to maintain a written policy against the discrimination of an independent contractor on the basis of genetic information and other factors. Summary based on version of bill as amended on 5/6/2020 when all language from prior introduced version of bill was stricken. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 615 }, { "id": "nhgri-b01046a900dfd9a53b9e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2020 State Bills Colorado 2020 HB 1144", "primary_url": "https://leg.colorado.gov/bills/hb20-1144", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 02/13/2020 House Committee on State, Veterans, & Military Affairs Postpone Indefinitely.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 616 }, { "id": "nhgri-736f78cd87b70b55618b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2020 State Bills Connecticut 2020 SB 134", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2020&bill_num=134", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires businesses to disclose the proposed use of any personal information and to give consumers the right to discover what personal information the business possesses. Consumers may opt out of the sale of such information. Personal information is defined to include biometric information such as DNA which can be used to identify an individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 617 }, { "id": "nhgri-067f64ede6dd3fb17af5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2020 State Bills Connecticut 2020 SB 208", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2020&bill_num=208", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits insurers, health care centers or fraternal benefit societies from purchasing information from direct-to-consumer genetic testing; requesting or requiring that a person disclose this information; or using such information in connection with the issuance, extension, renewal or withholding of an annuity, life insurance or health insurance. Insurers may not make provision of any insurance coverage, benefit, rate or term based on a requirement to undergo genetic testing or the results of a genetic test of an individual's family unless the results are in the individual's medical record. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 618 }, { "id": "nhgri-5ef19eb0f9e8c03a2b44", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2020 State Bills Florida 2020 HB 1059", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=69227&SessionId=89", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 3/14/2020 Died in Judiciary.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 619 }, { "id": "nhgri-ace2c4f4069eb68228cf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2020 State Bills Florida 2020 HB 1189", "primary_url": "https://www.myfloridahouse.gov/Sections/Bills/billsdetail.aspx?BillId=69459&SessionId=89", "source_topics": [ "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "Amends the state insurance law pertaining to the use of genetic information. Prohibits life, long-term care, or disability income insurers from: (1) canceling, limiting or denying coverage, or establishing differentials in premium rates, based on genetic information in the absence of a diagnosis; (2) requiring or soliciting genetic information, using genetic test results, or considering a person's actions related to genetic testing for any insurance purpose. 6/30/2020 Approved by the Governor. Effective 7/1/2020.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 620 }, { "id": "nhgri-17b0797a96f5d8db50c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2020 State Bills Florida 2020 SB 1564", "primary_url": "http://www.flsenate.gov/Session/Bill/2020/1564", "source_topics": [ "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Died", "source_summary": "Specifies criteria that must be met before a life insurer, long-term care insurer, or disability income insurer may use genetic information for underwriting purposes. Prohibits a life, long-term care, or disability income insurer from canceling coverage based solely on genetic information; requiring an applicant to take a genetic test as a condition of insurability; or obtaining, requesting, or otherwise requiring the complete genome sequence of an applicant�s DNA. Requires written consent for companies providing direct-to-consumer commercial genetic testing to share information about a consumer with a life insurer or health insurer. HB 1189 Substituted. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 621 }, { "id": "nhgri-e33114233b710a456832", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2020 State Bills Florida 2020 SB 1634", "primary_url": "http://www.flsenate.gov/Session/Bill/2020/1634", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. 3/14/20/20 Died in Rules.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 622 }, { "id": "nhgri-045998d349f48598930b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2020 State Bills Georgia 2020 HB 1125", "primary_url": "http://www.legis.ga.gov/legislation/en-US/Display/20192020/HB/1125", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires the state employees' health insurance and benefit plan to cover mammograms and breast imaging for individuals at high risk for breast cancer. Individuals at high risk include those with a known BRCA 1 or 2 mutation based on genetic testing or with a first degree relative with known mutation. Act 587 Effective 1/1/2021.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 623 }, { "id": "nhgri-3d61b2adde461d0a7a45", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2020 State Bills Hawaii 2020 HB 2572", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=2572&year=2020", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Modernizes \"personal information\" for the purposes of security breach of personal information law. Personal information is defined to include a deoxyribonucleic acid profile. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 624 }, { "id": "nhgri-0e6b5087f9c5d3206bbd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2020 State Bills Hawaii 2020 HB 2676", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=2676&year=2020", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 625 }, { "id": "nhgri-7ff29bcfce0e57e88d52", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2020 State Bills Hawaii 2020 SB 2539", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=SB&billnumber=2539&year=2020", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires individual policies of accident and health or sickness insurance to provide coverage for genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 626 }, { "id": "nhgri-c722688cbb8a7ffdd418", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2020 State Bills Illinois 2020 HB 4656", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=4656&GAID=15&GA=101&DocTypeID=HB&LegID=124423&SessionID=108", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Amends the Medical Patient Rights Act. Provides that all persons have a right to request an annual breast cancer screening mammogram under the age of 40 if such person has a family history of breast cancer or genetic testing has confirmed likelihood that such person has otherwise tested positive for BRCA1 or BRCA2 mutations. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 627 }, { "id": "nhgri-5d9c09010e499b379673", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2020 State Bills Illinois 2020 HB 5288", "primary_url": "http://www.ilga.gov/legislation/fulltext.asp?DocName=&SessionId=108&GA=101&DocTypeId=HB&DocNum=5288&GAID=15&LegID=125793&SpecSess=&Session=", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes consumer rights to copies of information held by persons who control and process data. Provides for the correction of inaccurate data. Provides for restrictions on the use of personal data. Defines health care information to include a patient's deoxyribonucleic acid. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 628 }, { "id": "nhgri-63d28a18e3462aef1ad8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2020 State Bills Illinois 2020 HB 5603", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=5603&GAID=15&GA=101&DocTypeID=HB&LegID=126284&SessionID=108", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Consumer privacy Act. Personal information is defined to include biometric information such as deoxyribonucleic acid. Provides consumers rights with regard to the collection and use of personal information businesses. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 629 }, { "id": "nhgri-58c23313e0a1aa81d82c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2020 State Bills Illinois 2020 SB 3092", "primary_url": "http://www.ilga.gov/legislation/billstatus.asp?DocNum=3092&GAID=15&GA=101&DocTypeID=SB&LegID=124405&SessionID=108", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Genetic Information privacy Act. Requires informed consent for a person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 630 }, { "id": "nhgri-5aa351454b3747016253", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2020 State Bills Kentucky 2020 HB 138", "primary_url": "https://apps.legislature.ky.gov/record/20rs/hb138.html", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires a health facility that provides perinatal care inform each patient, upon admission regarding the patient's right to to be free of discrimination on the basis of various factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 631 }, { "id": "nhgri-4de4fa173dc8af68ef66", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2020 State Bills Kentucky 2020 HB 21", "primary_url": "https://apps.legislature.ky.gov/record/20rs/hb21.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends language pertaining to pre-existing condition exclusions in group health insurance. Prohibits group health benefit plan coverage from adjusting premium or contribution amounts for a group covered under the plan on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 632 }, { "id": "nhgri-f7f8798b9e542e708e36", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2020 State Bills Kentucky 2020 HB 496", "primary_url": "https://apps.legislature.ky.gov/record/20rs/hb496.html", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Permits a patient to request and receive results of his or her genetic or genetic-related tests. Requires results of genetic or genetic-related tests to be reported and transmitted to a patient who requested the test. Permits a medical laboratory to collect a specimen from a patient for a genetic or genetic-related test requested by the patient. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 633 }, { "id": "nhgri-0c8ac39ed8e19c479d24", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2020 State Bills Kentucky 2020 SB 116", "primary_url": "https://apps.legislature.ky.gov/record/20rs/sb116.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 634 }, { "id": "nhgri-8f424ec05b21729d7090", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2020 State Bills Louisiana 2020 HB 408", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=20RS&b=HB408&sbi=y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for a medically necessary drug on the basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 635 }, { "id": "nhgri-fb267b9730bb4510a956", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2020 State Bills Louisiana 2020 SB 204", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=20RS&b=SB204&sbi=y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for the treatment of a metastatic or unresectable tumor with a medically necessary drug on the sole basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. 6/11/2020 Signed by the Governor. Becomes Act No. 222. Effective 1/1/2021.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 636 }, { "id": "nhgri-8b26b6bbcc1125083568", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1120", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb1120/?ys=2020rs", "source_topics": [ "Health Insurance Nondiscrimination", "Other Topics" ], "source_status": "Enacted", "source_summary": "Introduced version: Declares that it is the policy of the state to provide affordable health care to all regardless of various factors, including genetic information. Prohibits discrimination based on genetic information by a hospital; a person licensed or otherwise regulated by the Maryland Department of Health; and a person, including a health maintenance organization, that provides health benefits and has a certificate of authority from issued by the Maryland Department of Insurance. Genetic information removed from protected classes of information upon amendment. Provisions related to genetic information not present in final version of bill. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 637 }, { "id": "nhgri-22e9d9f39ddbadf4862f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1122", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB1122?ys=2020RS&search=True", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Requires the University of Maryland to develop and adopt an information security and risk management program for the protection of personally identifiable information. Personally identifiable information is defined to include biometric information such as an individual's DNA. Enacted without Governor's signature 5/8/2020. Effective 10/1/2024.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 638 }, { "id": "nhgri-6f9d4156842108b3cabf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1420", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB1420/?ys=2020rs", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 639 }, { "id": "nhgri-33be140a0db30315dd23", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1560", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB1560/?ys=2020rs", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a provision stating that contractors will not to discriminate in any manner against an employee or an applicant for employment based on a variety of factors, including genetic information. Enacted without Governor's signature 5/8/2020. Effective 10/1/2020.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 640 }, { "id": "nhgri-41504b94a47cca1236e3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1648", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB1648?ys=2020RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 641 }, { "id": "nhgri-b96e5e8f79e108817775", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 1656", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb1656", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 642 }, { "id": "nhgri-e3d47310488b825d1f30", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 237", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0237?ys=2020RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Personal Information Protection Act by adding activity tracking data to the scope of protected information. Activity tracking data is defined to include genetic information; genetic samples; genetic tests of an individual or family member; and requests for or receipt of a genetic test, genetic counseling or genetic education. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 643 }, { "id": "nhgri-6b25b689349604eaa4c9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 255", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0255", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 644 }, { "id": "nhgri-cbfc9ccb474c98f78b5f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 307", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0307?ys=2020RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes consumer protections pertaining to the collection, possession, use, disclosure and retention of biometric identifiers. Biometric information is defined to include genetic markers and genetic testing information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 645 }, { "id": "nhgri-d39b9c8dc6223c1ff3ac", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 340", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0340", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the definition of biometric information under the Maryland Data privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of biometric information includes physiological, biological, or behavioral characteristics, including an individual's DNA, that can be used singly, in combination with each other, or with other identifying data to establish individual identity. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 646 }, { "id": "nhgri-6b1567c90a7881cd29d4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 784", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0784", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 647 }, { "id": "nhgri-0c1b5b88807ae8d3a88d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 HB 959", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0959/?ys=2020rs", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits health insurers, health maintenance organizations, nonprofit health insurance plan or any person or organization that provides health benefits plans from excluding or limiting certain benefits or denying certain coverage based on a health-status related factor, including genetic information. Enacted without Governor's signature 5/8/2020. Effective upon enactment.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 648 }, { "id": "nhgri-947372ec1a8765f7ec52", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 1064", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/sb1064", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes the Healthy Maryland Program. Requires the Board to establish requirements and standards to consistent with state nondiscrimination laws, including those pertaining to genetic information. Participating providers may not refuse to provide health care services on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 649 }, { "id": "nhgri-c22d671aba60c3eaa91a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 201", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0201", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Personal Information Protection Act by adding activity tracking data to the scope of protected information. Activity tracking data is defined to include genetic information; genetic samples; genetic tests of an individual or family member; and requests for or receipt of a genetic test, genetic counseling or genetic education. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 650 }, { "id": "nhgri-a2343c9e90f38f5d41b3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 274", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0274?ys=2020RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the definition of biometric information under the Maryland Data privacy act. The definition of biometric information referring to a genetic print is stricken. The revised definition of biometric information includes physiological, biological, or behavioral characteristics, including an individual's DNA, that can be used singly, in combination with each other, or with other identifying data to establish individual identity. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 651 }, { "id": "nhgri-8764a2d0aac9f7b0af1c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 547", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0547?ys=2020RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits a hospital or related institution from discriminating in admitting or providing care for an individual based on various factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 652 }, { "id": "nhgri-3894941d7cbbe83b6c59", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 588", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0588", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires the University of Maryland to develop and adopt an information security and risk management program for the protection of personally identifiable information, including biometric information. Biometric information is defined as physiological, biological, or behavioral characteristics, including an individual's DNA, that can be used singly, in combination with each other, or with other identifying data to establish individual identity. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 653 }, { "id": "nhgri-aa495522ca7fe9e51850", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 738", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0738?ys=2020RS", "source_topics": [ "Health Insurance Nondiscrimination", "Other Topics" ], "source_status": "Died", "source_summary": "Declares that it is the policy of the state to provide affordable health care to all regardless of various factors, including genetic information. Prohibits discrimination based on genetic information by a hospital; a person licensed or otherwise regulated by the Maryland Department of Health; and a person, including a health maintenance organization, that provides health benefits and has a certificate of authority from issued by the Maryland Department of Insurance. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 654 }, { "id": "nhgri-3a19de01c7c02cf62f3d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 872", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0872?ys=2020RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits health insurers, health maintenance organizations, nonprofit health insurance plan or any person or organization that provides health benefits plans from excluding or limiting certain benefits or denying certain coverage based on a health-status related factor, including genetic information. Enacted without Governor's signature 5/8/2020. Effective upon enactment.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 655 }, { "id": "nhgri-faa52be75380c14784e7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 875", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0875?ys=2020RS", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 656 }, { "id": "nhgri-07fbb3ea111fea87cd12", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2020 State Bills Maryland 2020 SB 957", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0957?ys=2020RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses that collect a consumer's personal information, including biometric information such as an individual's DNA, to provide certain clear and conspicuous notices to the consumer at or before the point of collection. Authorizes a consumer to submit a certain request for information to a business that collects the consumer's personal information. Requires a business to comply with a request for information within 45 days after receiving a request. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 657 }, { "id": "nhgri-c936eda9676c4eadf9bb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 H.4860", "primary_url": "https://malegislature.gov/Bills/191/H4860/BillHistory?pageNumber=3", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a public agency or public official from: (1) acquiring, possessing, accessing, using, or assisting with the use of or provide resources for the development or use of any biometric surveillance system, or (2) entering into a contract with or making a request to any third party for the purpose of acquiring, possessing, accessing or using information derived from a biometric surveillance system, unless expressly authorized by law. Biometric data is defined to include deoxyribonucleic acid. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 658 }, { "id": "nhgri-126964172d62235718b8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 H.4886", "primary_url": "https://malegislature.gov/Bills/191/H4886", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a public agency or public official from: (1) acquiring, possessing, accessing, using, or assisting with the use of or provide resources for the development or use of any biometric surveillance system, or (2) entering into a contract with or making a request to any third party for the purpose of acquiring, possessing, accessing or using information derived from a biometric surveillance system, unless expressly authorized by law. Biometric data is defined to include deoxyribonucleic acid. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 659 }, { "id": "nhgri-384bd27adbcc4fb87fde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 S.1898", "primary_url": "https://malegislature.gov/Bills/191/S1898", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits any person whose business includes sponsoring, guaranteeing or granting funds or engaging in investment transactions from discriminating against any person in the sponsoring, guaranteeing or granting of funds or making available such funds, because of various factors, including genetic information. 2/27/2020 Accompanied study order. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 660 }, { "id": "nhgri-4dbc00f9069d81b3dbfa", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 S.2564", "primary_url": "https://malegislature.gov/Bills/191/S2564", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires that certain state entities make a dedicated effort to encourage diversity and advance equity based on race, color, religious creed, national origin, sex, gender identity, sexual orientation, genetic information, ancestry, disability, and language in any recommendations, policies, programs and initiatives developed. 1/5/2021 In Senate. No further action taken. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 661 }, { "id": "nhgri-69dd8a9a7939bf378541", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 S.2800", "primary_url": "https://malegislature.gov/Bills/191/S2800", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 7/14/20 Passed to be engrossed. Reprinted as amended, see S2820. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 662 }, { "id": "nhgri-1e02257f3b57d22692cd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2020 State Bills Massachusetts 2020 S.2820", "primary_url": "https://malegislature.gov/Bills/191/S2820", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits an agency, executive office, department, board, commission, bureau, division or authority of the commonwealth or a political subdivision thereof, or any agent, contractor or subcontractor thereof, from acquiring, possessing, accessing or using any biometric surveillance system or any information derived from a biometric surveillance system operated by another entity. Allows certain exceptions such as the use of facial recognition technology by the registrar or motor vehicles. Biometric data is defined to include deoxyribonucleic acid. 11/30/2020 Reported out of Senate Conference Committee. See S2963 for report. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 663 }, { "id": "nhgri-325fcf3f2dbfd654466e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2020 State Bills Minnesota 2020 HF 3096", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF3096&b=house&y=2020&ssn=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes requirements with regard to collection, sale of, and access to personal information by businesses. Personal information is defined to include genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 664 }, { "id": "nhgri-7cf90c9f644a9c18829c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2020 State Bills Minnesota 2020 HF 3645", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=HF3645&type=bill&version=0&session=ls91&session_year=2020&session_number=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 665 }, { "id": "nhgri-f704c1f520eecc49354c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2020 State Bills Minnesota 2020 HF 3936", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF3936&ssn=0&y=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "The controller of a legal entity that conducts business in the state may not process sensitive data concerning a consumer without obtaining the consumer's consent, or, in the case of the processing of personal data concerning a known child, without obtaining consent from the child's parent or lawful guardian, in accordance with the children's online privacy protection act requirements. Sensitive data is defined to include genetic or biometric data for the purpose of uniquely identifying a person. The law does not apply to various types of information and entities such as protected health information under HIPAA and identifiable private information according to federal policy for the protection of human subjects. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 666 }, { "id": "nhgri-6636f8e640cece4380a7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2020 State Bills Minnesota 2020 SF 3513", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF3513&b=senate&y=2020&ssn=0", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 667 }, { "id": "nhgri-d0201e22d653453fe33f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2020 State Bills Minnesota 2020 SF 4247", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=senate&f=SF4247&ssn=0&y=2020", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the Minnesota Consumer Data privacy Act. Gives various rights to consumers regarding personal data. Personal data includes the processing of genetic or biometric data for the purpose of uniquely identifying a person. Places obligations on businesses regarding consumer data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 668 }, { "id": "nhgri-73d3e0e7ca92d800c414", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2020 State Bills Missouri 2020 HB 1616", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB1616&year=2020&code=R", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits a health carrier offering group health_insurance_coverage in connection with a group health plan from adjusting premium or contribution amounts for the group covered under such plan on the basis of genetic information. Such health carriers may request, but shall not require, that a participant or beneficiary undergo a genetic test if certain conditions are met. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 669 }, { "id": "nhgri-a37eeec5c50227fc8964", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2020 State Bills Missouri 2020 HB 2375", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB2375&year=2020&code=R", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a person or entity from disclosing, obtaining, retaining, or using any biometric data about an individual, including DNA, with whom the person or entity is engaged in trade or commerce for any purpose other than that which the individual reasonably expects. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 670 }, { "id": "nhgri-447b9d4b907f729c96c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "2020 State Bills Nebraska 2020 LB 948", "primary_url": "https://nebraskalegislature.gov/bills/view_bill.php?DocumentID=40906", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires individual or group sickness and accident insurance policies or subscriber contracts; hospital, medical, or surgical expense-incurred policies; and any self-funded employee benefit plan to the extent not preempted by federal law shall to provide coverage for screening digital breast tomosynthesis and digital magnetic resonance imaging if a woman 40 or older has positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 671 }, { "id": "nhgri-b4f726ce51ba4b41a792", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2020 State Bills New Hampshire 2020 HB 1417", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=2255&sy=2020&txtsessionyear=2020&txtbillnumber=hb1417&sortoption=&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits private entities from requiring an individual to disclose or provide biometric data, including DNA, as a condition of doing business with, engaging in any business activity or relationship with, or obtaining services from that private entity, unless the good, service, or activity provided by the private entity cannot be provided without the collection of biometric information from an individual. A private entity may not collect, use, or retain the biometric information of an individual without the individual's consent and shall not condition access to its good, service, or activity on the provision of biometric data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 672 }, { "id": "nhgri-fe4c26d2d2a5accecd21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2020 State Bills New Hampshire 2020 HB 1680", "primary_url": "http://gencourt.state.nh.us/bill_status/bill_status.aspx?lsr=2535&sy=2020&txtsessionyear=2020&txtbillnumber=HB1680&sortoption=&q=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Grants consumers the right to request that a business disclose the type of personal information it collects, the purpose for which it is collected, and the categories of third parties with which it is shared. Authorizes consumers to opt out of the sale of their personal information. Personal information is defined to include biometric information such as an individual's DNA. 10/29/2020 Interim Study Report: Recommended for Future Legislation (Vote 10-5). Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 673 }, { "id": "nhgri-1702a4a98db67360a5e5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 A1170", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A1500/1170_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Makes DNA samples and genetic information resulting from DNA analysis property of the person sampled or analyzed. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 674 }, { "id": "nhgri-544f061a2778fcb4892b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 A2216", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A2500/2216_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 675 }, { "id": "nhgri-e0274c787860b7efe47c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 A4462", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A4500/4462_I1.HTM", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Declares that it is an unlawful employment practice for an employer based on certain factors to require an employee who is the parent or legal guardian of a school aged child to be physically present for work, when that work can be performed remotely, during the public health emergency and state of emergency declared by the Governor. Specified factors include genetic information or the refusal to submit to a genetic test or make available the results of a genetic test. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 676 }, { "id": "nhgri-83514c4f1cf39108f0b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 A4697", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A5000/4697_I1.HTM", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires a hospital service corporation that provides hospital or medical expense benefits to provide coverage for screening to determine whether genetic counseling related to the BRCA1 or BRCA2 genetic mutations is indicated; genetic counseling; and if indicated, BRCA testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 677 }, { "id": "nhgri-62d78024e5fb12db4fcc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 A4892", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A5000/4892_I1.PDF", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the State Anti-Harassment and Workplace Discrimination Act. Declares that it is an unlawful employment practice and unlawful discrimination, for any person, whether an employee or applicant for employment, or intern or volunteer, in any State agency or Gubernatorial Transition Office, or person doing business with the State to discriminate against or harass an employee or applicant for employment, or intern or volunteer, based upon certain protected categories, genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 678 }, { "id": "nhgri-b001961fde520c6dab9c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 AJR 155", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/AJR/155_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes New Jersey Pharmacogenomics Commission. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 679 }, { "id": "nhgri-2e44be3094fedf19660d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 S 3078", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/S3500/3078_I1.PDF", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the State Anti-Harassment and Workplace Discrimination Act. Declares that it is an unlawful employment practice and unlawful discrimination, for any person, whether an employee or applicant for employment, or intern or volunteer, in any State agency or Gubernatorial Transition Office, or person doing business with the State to discriminate against or harass an employee or applicant for employment, or intern or volunteer, based upon certain protected categories, genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 680 }, { "id": "nhgri-751bb6030aecfa72526a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 S1136", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/S1500/1136_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Prohibits discrimination in health programs or activities based on certain factors, including genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 681 }, { "id": "nhgri-d0002cebfc275cdba287", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 S2069", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/S2500/2069_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Exempts certain health information, including genetic information, contained in 9-1-1 calls from definition of government record. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 682 }, { "id": "nhgri-d3f56410d6b82af8140a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 S269", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/S0500/269_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses to notify data subjects of collection of personally identifiable information and establishes certain security standards. Personally identifiable information is defined to include biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 683 }, { "id": "nhgri-e2dec28a72eb27178af4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2020 State Bills New Jersey 2020 SJR 25", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/SJR/25_I1.HTM", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Establishes New Jersey Pharmacogenomics Commission. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 684 }, { "id": "nhgri-08056833906909d16492", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 A10583", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A10583&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 685 }, { "id": "nhgri-25bed7b99cd1b7b00965", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 A9505", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A9505&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work. Protected class includes predisposing genetic characteristic. 4/3/2020 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 686 }, { "id": "nhgri-0783651e8b7a53eb23ce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 A9506", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A09506&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Requires the state university of New York to issue a request for proposals to partner with hospitals both within the state university of New York and other not-for-profit hospitals and non-profit higher education research institutions to map the genomes of individuals suffering from or at risk of Alzheimer's. 4/3/2020 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 687 }, { "id": "nhgri-4e0a30722669d7d13fd9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S4109", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S4109&term=2019&Summary=Y&Actions=Y&Memo=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination or harassment based predisposing genetic characteristics of non-employees in the workplace. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 688 }, { "id": "nhgri-92b9bd8d4f74f54082e9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S7505", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S07505&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work. Protected class includes predisposing genetic characteristic. 4/3/2020 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 689 }, { "id": "nhgri-3ecfef81fec03aa91e44", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S7506", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S7506&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Requires the state university of New York to issue a request for proposals to partner with hospitals both within the state university of New York and other not-for-profit hospitals and non-profit higher education research institutions to map the genomes of individuals suffering from or at risk of Alzheimer's. 4/3/2020 Signed by the Governor.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 690 }, { "id": "nhgri-caf82d4a90486a64aa3f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S8448", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S8448&term=2019&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 691 }, { "id": "nhgri-63d0ef53c222671b3820", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S9073", "primary_url": "https://www.nysenate.gov/legislation/bills/2019/S9073", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the It's Your Data Act for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information. Biometric information, which is defined to include DNA, is considered protected information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 692 }, { "id": "nhgri-29e6b8ea56a7540be369", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2020 State Bills New York 2020 S9073", "primary_url": "https://nyassembly.gov/leg/?bn=S09073&term=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the It's Your Data Act to provide protections and transparency in the collection use retention and sharing of personal information. Personal information is defined to include biometric information such as a DNA sequence. Referred to Rules 10/28/2020. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 693 }, { "id": "nhgri-a36d25e858d49c363318", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2020 State Bills North Carolina 2020 S786", "primary_url": "https://www.ncleg.gov/BillLookUp/2019/S786", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Amends genetic nondiscrimination in employment statute. Deletes existing provision related to genetic information and adds protected classes or protected categories, which is defined to include predisposing genetic characteristics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 694 }, { "id": "nhgri-81312cd89f275128ca2a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2020 State Bills Ohio 2020 HB 649", "primary_url": "https://www.legislature.ohio.gov/legislation/legislation-summary?id=GA133-HB-649", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a health care provider to obtain an individual's informed consent prior to testing for the presence or absence of a communicable life-threatening disease or infection or immune response to disease or infection that is the subject of an epidemic or pandemic. The results of an individual's test, including any partial or complete biometric record of an individual's DNA sequence is the property of the individual and may only be transmitted to the individual tested. 5/27/20 Referred to Committee on State and Local Government. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 695 }, { "id": "nhgri-663c1bd81fa3a1011c24", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2020 State Bills Oklahoma 2020 HB 2867", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB2867&Session=2000", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination in the selection of job applications, interviewing of job applicants, hiring of job applicants, firing of employees, treatment of employees, or payment of wages on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 696 }, { "id": "nhgri-04e8d6a71930e9ceaec7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "2020 State Bills Rhode Island 2020 S2430", "primary_url": "http://webserver.rilin.state.ri.us/BillText/BillText20/SenateText20/S2430.pdf", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Consumer privacy Protection Act. Establishes requirements for the collection, use, sale, retention and disclosure of personal information by businesses. Personal information is defined to include biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 697 }, { "id": "nhgri-652c2c39eb815de1216f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2020 State Bills South Carolina 2020 SB 4812", "primary_url": "https://www.scstatehouse.gov/billsearch.php?billnumbers=4812&session=123&summary=B&PRINT=1", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Sets forth requirements for the collection and use of consumer biometric information by businesses. Biometric information is defined to include an individual's DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 698 }, { "id": "nhgri-44ee886923897e62708a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2020 State Bills Tennessee 2020 HB 2567", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/default.aspx?BillNumber=HB2567&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 699 }, { "id": "nhgri-bbcc3c1c5facd2b244e2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2020 State Bills Tennessee 2020 HB 752", "primary_url": "https://wapp.capitol.tn.gov/apps/Billinfo/default.aspx?BillNumber=HB0752&ga=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows the recipient of an organ transplant and referral hospital to examine all genetic records of the donor or prospective donor unless prohibited by any other law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 700 }, { "id": "nhgri-444031ca421830b39ec4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2020 State Bills Tennessee 2020 SB 1081", "primary_url": "https://wapp.capitol.tn.gov/apps/Billinfo/default.aspx?BillNumber=SB1081&ga=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Allows the recipient of an organ transplant and referral hospital to examine all genetic records of the donor or prospective donor unless prohibited by any other law. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 701 }, { "id": "nhgri-61a6b68c46fff9c0127c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2020 State Bills Tennessee 2020 SB 1841", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/default.aspx?BillNumber=SB1841&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a direct-to-consumer genetic testing business entity from sharing personally identifiable genetic test data or other personally identifiable information about a consumer with a third party without the express written consent of the consumer or a subpoena or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 702 }, { "id": "nhgri-b2a47ac85ef8a90c7d78", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2020 State Bills Tennessee 2020 SB 2726", "primary_url": "http://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SB2726&GA=111", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 703 }, { "id": "nhgri-9fe98812a0306c86ea66", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2020 State Bills Utah 2020 HB 231", "primary_url": "https://le.utah.gov/~2020/bills/static/HB0231.html", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Removes provisions regulating an employer's and a health insurer's use of personal genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 704 }, { "id": "nhgri-3683eca7f074729ecb37", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2020 State Bills Utah 2020 HB 265", "primary_url": "https://le.utah.gov/~2020/bills/static/HB0265.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires government agencies to provide an annual report to the state auditor detailing the collection, use, and disclosure of personally identifying information, including DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 705 }, { "id": "nhgri-69d2e0bf773d756c8f21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2020 State Bills Vermont 2020 H625", "primary_url": "https://legislature.vermont.gov/bill/status/2020/H.625", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health insurance and Medicaid coverage for chromosomal microarray analysis. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 706 }, { "id": "nhgri-3056275af7eb8e499c0c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2020 State Bills Vermont 2020 H894", "primary_url": "https://legislature.vermont.gov/bill/status/2020/H.894", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits the state sale of personally identifiable information, including genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 707 }, { "id": "nhgri-95a0ec9fa1b803152e07", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2020 State Bills Vermont 2020 S197", "primary_url": "https://legislature.vermont.gov/bill/status/2020/S.197", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination based on an individual�s genetic information in relation to employment, labor relations, insurance coverage, and the provision of social and medical services. In some areas such as employment and insurance existing genetic nondiscrimination law are amended. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 708 }, { "id": "nhgri-882f1beb9352f6daa895", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2020 State Bills Virginia 2020 HB 1252", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=201&typ=bil&val=hb1252&submit=GO", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits a sponsor of a registered apprenticeship program from discriminating against an apprentice or applicant for apprenticeship on the basis of various factors, including genetic information. 4/22/20 House: Enacted, Chapter 1228. Effective 7/1/20.", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 709 }, { "id": "nhgri-e38436500f479710cf7c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2020 State Bills Virginia 2020 HB 473", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=211&typ=bil&val=HB473", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Gives consumers the right to access their data and determine if it has been sold to a data broker. Requires a controller, defined in the bill as a person that, alone or jointly with others, determines the purposes and means of the processing of personal data, to facilitate requests to exercise consumer rights regarding access, correction, deletion, restriction of processing, data portability, objection, and profiling. The measure also (i) requires transparent processing of personal data through a privacy notice, (ii) requires controllers to disclose if they process personal data for direct marketing or sell it to data brokers, and (iii) requires controllers to conduct a risk assessment of each of their processing activities involving personal data and an additional risk assessment any time there is a change in processing that materially increases the risk to consumers. The measure applies to any legal entity that conducts business in the Commonwealth or produces products or services that are intentionally targeted to residents of the Commonwealth and that (a) controls or processes personal data of not fewer than 100,000 consumers or (b) derives over 50 percent of gross revenue from the sale of personal data and processes or controls personal data of not fewer than 25,000 customers. Sensitive data includes genetic or biometric data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 710 }, { "id": "nhgri-ff76de1a262ff0d52a23", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2020 State Bills Virginia 2020 HB 553", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?201_sum_HB553=", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires the legislative branch of the Commonwealth to develop a policy on workplace harassment. Workplace harassment is defined as any unwelcome verbal, written, or physical conduct that either denigrates or shows hostility or aversion toward a person on the basis of various factors, including genetics. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 711 }, { "id": "nhgri-8814ccaf14a48a42faa5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 HB 2273", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2273&Initiative=false&Year=2019", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Creates a study committee on human genome editing. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 712 }, { "id": "nhgri-0975629e16af53369186", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 HB 2485", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2485&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Enacts measures to safeguard the privacy, confidentiality, security, and integrity of a consumer's genetic data resulting from direct-to-consumer genetic testing. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 713 }, { "id": "nhgri-beb2a8dd6938266e54d4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 HB 2742", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2742&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 714 }, { "id": "nhgri-ff2b523def69327be71b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 HB 2928", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=2928&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 715 }, { "id": "nhgri-5cc510cd26f141675971", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 SB 6281", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=6281&Year=2019&Initiative=false", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires controller who determines the purposes and means of the processing of personal data to obtain consent prior to processing sensitive data, including genetic data. Controllers must conduct an assessment of activities pertaining to the processing of sensitive data. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 716 }, { "id": "nhgri-7003a2502d8f1b0f076b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2020 State Bills Washington 2020 SB 6664", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=6664&Initiative=false&Year=2019", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the parent's bill of rights. Requirements set forth in the bill include parental written consent before any record of a minor child's blood or DNA is made, shared or stored unless required by law or court order. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 717 }, { "id": "nhgri-0faa8b6a4c0c5719a3d0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2020 State Bills West Virginia 2020 HB 2224", "primary_url": "https://www.wvlegislature.gov/Bill_Status/bills_history.cfm?INPUT=2224&year=2020&sessiontype=RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires insurance coverage of a comprehensive ultrasound screening of breast if a woman is believed to be at increased risk of cancer based on several factors, including positive genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 718 }, { "id": "nhgri-29c5d20ce2a941249401", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2020 State Bills Wisconsin 2020 AB 870", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/asm/bill/ab870", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires controllers of consumers' personal data to provide a consumer with copies of the consumer's personal data processed by the controller. Personal data includes genetic information. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 719 }, { "id": "nhgri-03bb665706a9831e6bd3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2020 State Bills Wisconsin 2020 AB 871", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/asm/bill/ab871", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Sets forth requirements regarding the deletion of consumer personal data, including genetic data, by controllers. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 720 }, { "id": "nhgri-a67e2167702f960992dd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2020 State Bills Wisconsin 2020 AB 872", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/asm/bill/ab872", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes requirements on controllers that process consumers' personal data, including genetic data. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 721 }, { "id": "nhgri-6c182f40377e677335bb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "2020 State Bills Wisconsin 2020 SB 851", "primary_url": "https://docs.legis.wisconsin.gov/2019/proposals/reg/sen/bill/sb851", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes requirements for businesses related to personal information such as biometric information collected about consumers. Biometric information is defined to include DNA. 4/1/2020 Failed to pass pursuant to Senate Joint Resolution 1.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2020, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 722 }, { "id": "nhgri-b259ac8ba2c4479253b2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 HF 82", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF0082&ssn=0&y=2021", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes a grant program within the health department to award grants to persons, organizations, and entities to fund research studies on the evidence needed to: (1) support payer reimbursement and funding of pharmacogenomics (PGx) testing; (2) determine and validate new PGx variants in diverse populations such as Native Americans and Somali groups; (3) determine ethical, legal, and social implications of PGx; (4) determine the technical aspects needed to protect data and privacy as it relates to PGx; and (5) determine the education needed for successful PGx implementation. Carries over to 2022 session. .", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 723 }, { "id": "nhgri-2623a95f43174c5d499e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "2021 State Bills Alabama 2021 HB 216", "primary_url": "http://alisondb.legislature.state.al.us/alison/SESSBillStatusResult.ASPX?BILL=HB216&WIN_TYPE=BillResult", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Alabama Consumer privacy Act. Allows a consumer to request that a business: (1) disclose personal information that it collects; (2) delete certain personal information; (3) disclose the sale of certain personal information to third parties; and (4) allow a consumer to opt out of the sale of personal information. Prohibits a business from retaliating against a consumer for making a request for disclosure or for opting out and from selling the personal information of a consumer under 18 years of age. Personal information is defined to include biometric information such as DNA. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 724 }, { "id": "nhgri-f19b7a0df2f99769190f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "2021 State Bills Alaska 2021 HB 159", "primary_url": "http://www.akleg.gov/basis/Bill/Detail/32?Root=HB159", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 725 }, { "id": "nhgri-1a5afc5e51010896b92e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "2021 State Bills Alaska 2021 SB 116", "primary_url": "http://www.akleg.gov/basis/Bill/Detail/32?Root=SB%20116", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes the Consumer Data privacy Act. Requires businesses to notify consumers before the collection of personal information. Consumers may opt out of the sale of personal information. Businesses must maintain privacy policies available online describing consumer's privacy rights such as the designated methods in which the consumer can request access or deletion of personal information. Biometric information, including deoxyribonucleic acid, is considered personal information. Carries over to 2022 session.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 726 }, { "id": "nhgri-6d0aec190e34ac891cde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 114", "primary_url": "https://leginfo.legislature.ca.gov/faces/billCompareClient.xhtml?bill_id=202120220AB114&showamends=false", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Rapid Whole Genome Sequencing, including individual sequencing, trio sequencing for a parent or parents and their baby, and ultra-rapid sequencing, is a covered benefit for any Medi-Cal beneficiary who is one year of age or younger and is receiving inpatient hospital services in an intensive care unit. Carries over to 2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 727 }, { "id": "nhgri-64c514fd89412c2679ba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 1400", "primary_url": "https://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=202120220AB1400", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Creates the California Guaranteed Health Care for All program, or CalCare, to provide comprehensive universal single-payer health care coverage and a health care cost control system for the benefit of all residents of the state. Declares that all California residents regardless of various characteristics, including genetic information, are entitled to full and equal accommodations, advantages, facilities, privileges, or services in all health care providers participating in CalCare. Carries over to 2022.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 728 }, { "id": "nhgri-6aeddc1a85c660b24ac4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 1520", "primary_url": "https://leginfo.legislature.ca.gov/faces/billCompareClient.xhtml?bill_id=202120220AB1520&showamends=false", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "A health insurance policy that is issued, amended, or renewed on or after January 1, 2022, may not apply a deductible, copayment, or coinsurance to coverage for screening services for prostate cancer for an insured who meets certain criteria. A person is 40 years of age or older and who is high risk, as determined by the attending or treating health care provider meets the criteria. High risk includes, but is not limited to, a person with a prostate who is Black, has a family history of prostate cancer, has a genetic predisposition to prostate cancer, or is a veteran. Carries over to 2022.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 729 }, { "id": "nhgri-7ba7e82803e551357de3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 17", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220AB17", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A certified peace officer must have their certificate suspended or revoked, and an applicant must have their application for a certificate denied, upon a determination that the peace officer or applicant meets certain conditions. Requires the development of a definition of �serious misconduct,\" which will serve as the criteria to be considered for suspension or revocation of a certificate. This definition must include certain examples of serious misconduct such as bias in the performance of a peace officer or custodial officer�s duties, including, but not limited to, verbal statements, writings, online posts, recordings, and gestures involving prejudice or discrimination against a person on the basis of genetic information. Carries over to 2022.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 730 }, { "id": "nhgri-db648763722cfdac3bcc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 172", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220AB172", "source_topics": [ "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "Abolishes the Office of Health Information Integrity and the Office of Patient Advocate. Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfers the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements. 10/8/21 Approved by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 731 }, { "id": "nhgri-318fc3e55dabbca5bbe4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 60", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220AB60", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "A certified peace officer must have their certificate suspended or revoked, and an applicant must have their application for a certificate denied, upon a determination that the peace officer or applicant meets certain conditions. Requires the development of a definition of �serious misconduct,\" which will serve as the criteria to be considered for suspension or revocation of a certificate. This definition must include certain examples of serious misconduct such as bias in the performance of a peace officer or custodial officer�s duties, including, but not limited to, verbal statements, writings, online posts, recordings, and gestures involving prejudice or discrimination against a person on the basis of genetic information. Carries over to 2022.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 732 }, { "id": "nhgri-f154c57cccbcfe1ec01b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 825", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220AB825", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Amends existing law to protect the privacy and security of computerized data, including personal information, owned or licensed by an agency. This bill adds genetic data to the scope of personal information under the law. Genetic data is defined as any data that results from the analysis of a biological sample of an individual, or from another source enabling equivalent information to be obtained, and concerns genetic material. Genetic material includes, but is not limited to, deoxyribonucleic acids (DNA), ribonucleic acids (RNA), genes, chromosomes, alleles, genomes, alterations or modifications to DNA or RNA, single nucleotide polymorphisms (SNPs), uninterpreted data that results from analysis of the biological sample or other source, and any information extrapolated, derived, or inferred therefrom. 10/5/21 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 733 }, { "id": "nhgri-f22cafd8e6ab41c28a05", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 AB 948", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220AB948", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits any person or other entity whose business includes performing appraisals of residential real property from discriminating against any person in making available those services, or in the performance of those services, because of various characteristics, including genetic information. Requires every contract for the sale of real property to contain a notice regarding improper or illegal considerations such as genetic information in appraisal of property. 10/5/21 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 734 }, { "id": "nhgri-bd8964290e9bf5b4c5b7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills California 2021 HB 5017", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=5017", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage for genetic cystic fibrosis screenings for women. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 735 }, { "id": "nhgri-8c8fd7fd46a3fa1292c1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 16", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB16", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "States that certain peace officer or custodial officer personnel records and records maintained by a state or local agency are not confidential and are should be made available for public inspection. Such records include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct including, but not limited to, verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the based on various characteristics, including genetic information. 10/5/21 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 736 }, { "id": "nhgri-0bd1ef9a2c156ae26a8d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 172", "primary_url": "https://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=202120220SB172", "source_topics": [ "Privacy", "Research" ], "source_status": "Pending", "source_summary": "Abolishes the Office of Health Information Integrity and the Office of Patient Advocate. Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfer the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 737 }, { "id": "nhgri-2de38e55066b87edee90", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 2", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB2", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "States that certain peace officer or custodial officer personnel records and records maintained by a state or local agency are not confidential and are should be made available for public inspection. Such records include those relating to an incident in which a sustained finding was made by any law enforcement agency or oversight agency that a peace officer or custodial officer engaged in conduct including, but not limited to, verbal statements, writings, online posts, recordings, and gestures, involving prejudice or discrimination against a person on the based on various characteristics, including genetic information. 9/30/2021 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 738 }, { "id": "nhgri-6c229f3aa05288f203b0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 255", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB255", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Authorizes an association of employers to offer a large group health care service plan contract or large group health insurance policy to small group employer members of the association consistent with federal Employee Retirement Income Security Act of 1974, if certain requirements are met. A policy or contract that is offered to or covers a small employer may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the policy or contract based on various health status-related factors such as genetic information. 10/8/2021 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 739 }, { "id": "nhgri-72c986d2359402e8130d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 326", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB326", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Authorizes an association of employers to offer a large group health care service plan contract or large group health insurance policy to small group employer members of the association consistent with federal Employee Retirement Income Security Act of 1974, if certain requirements are met. A policy or contract that is offered to or covers a small employer may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the policy or contract based on various health status-related factors such as genetic information. 10/9/2021 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 740 }, { "id": "nhgri-748e928fad685024aaa7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 41", "primary_url": "https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB41", "source_topics": [ "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "Creates the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to do the following: (1) provide clear and complete information regarding the company�s policies and procedures for the collection, use, maintenance, and disclosure of genetic data; and (2) obtain a consumer�s express consent for collection, use, and disclosure of the consumer�s genetic data including, at a minimum, separate and express consent for each circumstance specified. Genetic data is defined as any data, regardless of its format, that results from the analysis of a biological sample from a consumer, or from another element enabling equivalent information to be obtained, and concerns genetic material. Genetic material includes, but is not limited to, deoxyribonucleic acids (DNA), ribonucleic acids (RNA), genes, chromosomes, alleles, genomes, alterations or modifications to DNA or RNA, single nucleotide polymorphisms (SNPs), uninterpreted data that results from the analysis of the biological sample, and any information extrapolated, derived, or inferred therefrom. Genetic data does not include deidentified data or data or a biological sample that is collected, used, maintained, and disclosed exclusively for scientific research conducted by an investigator with an institution that holds an assurance with the United States Department of Health and Human Services pursuant to Part 46 (commencing with Section 46.101) of Title 45 of the Code of Federal Regulations, in compliance with all applicable federal and state laws and regulations for the protection of human subjects in research. 10/6/2021 Approved by the Governor. Chaptered by Secretary of State. Chapter 596, Statutes of 2021. Effective January 1, 2022.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 741 }, { "id": "nhgri-0fcdbcc0aaf267b5a74b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 480", "primary_url": "https://leginfo.legislature.ca.gov/faces/billHistoryClient.xhtml?bill_id=202120220SB480", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "require the Metropolitan Water District of Southern California to adopt rules relating to inappropriate conduct, as defined, by board members, officers, and employees. Inappropriate conduct is defined as any conduct toward others that is physical, verbal, or visual based on or because of various characteristics, including genetic information. Carries over to 2022.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 742 }, { "id": "nhgri-de053a3522c1ea36580d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills California 2021 SB 6626", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=6626", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires individual health insurance policies to provide coverage for diagnostic and screening mammograms under certain circumstances. Positive genetic testing for the harmful variant of breast cancer gene one, breast cancer gene two or any other gene variant that materially increases the insured's risk for breast cancer fulfills the criteria for required coverage. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 743 }, { "id": "nhgri-37aa240d473ce5b2aa1d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "2021 State Bills California 2021 SB 718", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB718", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Authorizes an association of employers to offer a large group health care service plan contract or large group health insurance policy to small group employer members of the association consistent with federal Employee Retirement Income Security Act of 1974, if certain requirements are met. A policy or contract that is offered to or covers a small employer may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the policy or contract based on various health status-related factors such as genetic information. 10/8/21 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 744 }, { "id": "nhgri-9c676bf5ad7f2b8722f0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2021 State Bills Colorado 2021 SB 132", "primary_url": "https://leg.colorado.gov/bills/sb21-132", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Concerns a study of consumer protection regulation of digital communications platforms. Introduced version included a provision related to sensitive data such as genetic data. However, this provision was deleted from the engrossed version of the bill. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 745 }, { "id": "nhgri-a5f08350a4f1f3a3d55a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "2021 State Bills Colorado 2021 SB 190", "primary_url": "https://leg.colorado.gov/bills/sb21-190", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Creates the Colorado privacy Act. Prohibits the processing of a consumer's sensitive data without first obtaining the consumer's consent. Sensitive data includes genetic or biometric that may be processed for the purpose of uniquely identifying an individual. 7/7/2021 Governor signed. Effective July 1, 2024.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 746 }, { "id": "nhgri-efc8c705add23951460e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills Connecticut 2021 HB 5364", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=5364", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Creates a penalty for the unauthorized public photography of an individual with a genetic or medical condition. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 747 }, { "id": "nhgri-298ab5933c6df0e9fd7e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills Connecticut 2021 HB 5687", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=5687", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage, without any out-of-pocket expense, for: (1) diagnostic and screening mammograms, breast ultrasounds and magnetic resonance imaging of breasts for all insureds; (2) breast biopsies for all insureds, and (3) prophylactic mastectomies and breast reconstruction surgery for all insureds who have the harmful variant of breast cancer gene one (BRCA1), breast cancer gene two (BRCA2) or any similar gene variant that materially increases breast cancer risk. 1/27/2021 Referred to Joint Committee on Insurance and Real Estate.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 748 }, { "id": "nhgri-f1e5fc3c73c8b50e1e2f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills Connecticut 2021 SB 841", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=841", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Prohibits insurers, health care centers and fraternal benefit societies from, in connection with the issuance, withholding, extension or renewal of an annuity or an insurance policy for life, credit life, disability, long-term care, accidental injury, specified disease, hospital indemnity or credit accident insurance: (1) requesting, requiring, purchasing or using information obtained from an entity providing direct-to-consumer genetic testing without the informed written consent of the individual who has been tested; (2) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on a requirement or agreement that the individual undergo genetic testing; and (3) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on the results of any genetic testing of a member of the individual's family unless the results are contained in the individual's medical record. 7/7/2021 Signed by the Governor. Effective October 1, 2021.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 749 }, { "id": "nhgri-707f2bc396111358fac6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "2021 State Bills Connecticut 2021 SB 893", "primary_url": "https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2021&bill_num=893", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes a framework for controlling and processing personal data. Establishes responsibilities and privacy protection standards for data controllers and processors. Grants consumers the right to access, correct, delete and obtain a copy of personal data and to opt out of the processing of personal data for the purposes of targeted advertising. Sensitive data is defined as personal data that includes the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 750 }, { "id": "nhgri-ca6d5d0e8965dd627e66", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2021 State Bills Delaware 2021 HB 184", "primary_url": "https://legis.delaware.gov/Search/Global?searchTerm=HB%20184", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Enacted", "source_summary": "Amends the provision pertaining to use of stored blood specimens. Removes language permitting the Division of Public Health use of specimens for (1) quality assurance or performance improvement activities, including pilot studies, when a new disorder is being considered for addition to the panel; or (2) any other purpose authorized by law. research use in population based studies of de-identified specimens is permitted with parental consent. However, an amendment to the existing statute requires the destruction of blood specimens after screening and testing are complete. Signed by the Governor on 9/15/2021. Effective upon Governor's signature.", "base_status": "enacted", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 751 }, { "id": "nhgri-dd8f0a47203c302fc766", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "2021 State Bills Delaware 2021 HB 262", "primary_url": "https://legis.delaware.gov/BillDetail?LegislationId=79022", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Seeks to provide consumers with critical information about how their personal information is being used by data brokers. Data brokers must register with the Consumer Protection Unit of the Department of Justice and answer questions regarding their use of personal information that would be published online to inform consumers. Data brokers are required annually to complete an electronic form designated by the Director of Consumer Protection. Data brokers must report on the form the types of consumer data, including genetic data, collected directly from consumers and from consumers� devices. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 752 }, { "id": "nhgri-613f5bd01bcd7c73cdc3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 HB 241", "primary_url": "https://flsenate.gov/Session/Bill/2021/241", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Creates the Parents' Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. 6/29/21 Approved by the Governor. Effective 7/1/2021.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 753 }, { "id": "nhgri-96266a04e4eaa577c0ce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 HB 833", "primary_url": "https://flsenate.gov/Session/Bill/2021/833/", "source_topics": [ "Privacy", "Research" ], "source_status": "Enacted", "source_summary": "Prohibits a person to from willfully, and without express consent: (1) collecting or retaining another person's DNA sample with the intent to perform DNA analysis; (2) submitting another person's DNA sample for analysis or conducting or procuring the conduct of another person's DNA analysis; (3) disclosing another person's DNA analysis result to a third party; and (4) selling or otherwise transferring another person's DNA sample or the results of another person's DNA analysis to third party, regardless of whether the DNA sample was originally collected, retained, or analyzed with express consent. The bill provides exemptions for certain activities such as research subject to, and conducted in compliance with, 45 C.F.R. part 46, 21 C.F.R. parts 50 and 56, or 45 C.F.R. parts 160 and 164. 6/19/2021 Approved by the Governor. Effective 10/1/2021.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 754 }, { "id": "nhgri-c5462646eda8660a7336", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 HB 969", "primary_url": "https://flsenate.gov/Session/Bill/2021/969", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Florida privacy Protection Act. Requires collectors to provide notice to consumers about data collection and selling practices. Provides consumers right to request data be disclosed, deleted, or corrected and to opt-in or opt-out of sale or sharing of such data. Provides nondiscrimination measures, methods for requesting data and opting-in or opting-out of sale or sharing of such data, private cause of action, enforcement, and jurisdiction. Personal information is defined to include biometric information such as DNA. 4/30/21 Died in returning messages.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 755 }, { "id": "nhgri-3890e777fb016444adfd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 SB 1140", "primary_url": "https://flsenate.gov/Session/Bill/2021/1140", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "This bill prohibits DNA analysis and disclosure of DNA analysis results without authorization; prohibits the collection or retention of a DNA sample of another person without authorization for specified purposes; prohibits specified DNA analysis and disclosure of DNA analysis results without authorization, etc.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 756 }, { "id": "nhgri-2e1b647f13130c3ff231", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 SB 1734", "primary_url": "https://flsenate.gov/Session/Bill/2021/1734", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Florida privacy Protection Act. Requires certain businesses that collect consumer personal information to provide certain information to the consumer. Provides that consumers have the right to direct certain businesses not to sell their personal information. Prohibits businesses from selling the personal information of consumers younger than a specified age without express authorization from the consumer or the consumer�s parent or guardian under certain circumstances. Authorizes consumers to initiate civil actions for violations. Personal information is defined to include biometric information such as DNA. 4/28/21 Read 2nd time. Substituted CS/CS/CS/HB 969 (Died in returning Messages). Laid on Table - SJ 753.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 757 }, { "id": "nhgri-f8c38d78e54b9980fd85", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "2021 State Bills Florida 2021 SB 582", "primary_url": "https://flsenate.gov/Session/Bill/2021/582", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Creates the Parents' Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. 4/21/2021 Senate Laid on Table, companion bill passed, see HB 241 (Ch. 2021-199) SJ 547.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 758 }, { "id": "nhgri-6152c77189426ebee81b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "2021 State Bills Georgia 2021 HB 115", "primary_url": "https://www.legis.ga.gov/legislation/58962", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Pending", "source_summary": "Prohibits life and long-term care insurers that receive information from genetic testing from using the information for any non-therapeutic purpose, including, but not limited to, canceling, limiting, or denying coverage or establishing differentials in premium rates. These insurers also may not require or solicit genetic information, use genetic testing results, or consider a person's decisions or actions related to genetic testing in any manner for any insurance purpose. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 759 }, { "id": "nhgri-c4c290b7b849b7c2f043", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2021 State Bills Hawaii 2021 HB 241", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=241&year=2021", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Pending", "source_summary": "Prohibits discrimination in employment and public accomodation based on an individual's invasive medical test status. Invasive medical test status is defined to include a medical test or screening that requires a sample of an individual's genetic material. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 760 }, { "id": "nhgri-a33d2ca46942d6c1c565", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2021 State Bills Hawaii 2021 HB 249", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=HB&billnumber=249&year=2021", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 761 }, { "id": "nhgri-a7627631818ce5454661", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2021 State Bills Hawaii 2021 SB 1009", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=SB&billnumber=1009&year=2021", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Amends the definition of personal information for the purpose of applying modern security breach of personal information law. Personal information is defined as an identifier in combination with one or more specified data elements. Specified data elements include a deoxyribonucleic profile. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 762 }, { "id": "nhgri-11495dac7d9153d84dbf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "2021 State Bills Hawaii 2021 SB 623", "primary_url": "https://www.capitol.hawaii.gov/measure_indiv.aspx?billtype=SB&billnumber=623&year=2021", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires every group policy of accident and health or sickness insurance and every individual or group hospital or medical service plan contract to provide coverage for screening to determine whether counseling and testing related to the BRCAl or BRCA2 genetic mutation is indicated and genetic counseling and testing related to the BRCAl or BRCA2 genetic mutation, if indicated. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 763 }, { "id": "nhgri-c9cd89c590db2741b725", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2021 State Bills Illinois 2021 HB 1779", "primary_url": "https://www.ilga.gov/legislation/billstatus.asp?DocNum=1779&GAID=16&GA=102&DocTypeID=HB&LegID=130484&SessionID=110", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "An individual or group health care service plan contract that is issued, amended, delivered, or renewed on or after January 1, 2022 may not require prior authorization for biomarker testing for an insured with advanced or metastatic stage 3 or 4 cancer, nor shall prior authorization be required for biomarker testing of cancer progression or recurrence in the insured with advanced or metastatic stage 3 or 4 cancer. Biomarker testing is defined as analysis of tissue blood or fluid specimen for the presence of a biomarker. Biomarker testing includes, but not limited to, single-analyte tests, multiplex tests, and partial or whole genome sequencing. 7/30/21 Governor approved. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 764 }, { "id": "nhgri-71f6785faf6cc4c47d2c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2021 State Bills Illinois 2021 HB 2109", "primary_url": "https://www.ilga.gov/legislation/billstatus.asp?DocNum=2109&GAID=16&GA=102&DocTypeID=HB&LegID=130858&SessionID=110", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Provides that an individual or group policy of accident and health insurance or managed care plan that is amended, delivered, issued, or renewed on or after the effective date of the amendatory Act must provide coverage for medically necessary comprehensive cancer testing and testing of blood or constitutional tissue for cancer predisposition testing as determined by a physician. Comprehensive cancer testing includes, but is not limited to, the following forms of testing: (1) targeted cancer gene panels; (2) whole-exome genome testing; (3) whole genome testing; (4) RNA sequencing; and (5) tumor mutation burden. 8/27/21 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 765 }, { "id": "nhgri-5bef16634de69972a152", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "2021 State Bills Illinois 2021 HB 2880", "primary_url": "https://www.ilga.gov/legislation/billstatus.asp?DocNum=2880&GAID=16&GA=102&DocTypeID=HB&LegID=131769&SessionID=110", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the Personal Information Protection Act. Provides that individuals and entities have intellectual property rights in their digital identity assets. Provides for the payment of royalties to individuals and entities for access, for the purpose of commercial advertising, to their digital assets. Digital assets include, but are not limited to, information accumulated regarding an individual's or entity's personal information. Personal information includes medical history such as RNA and DNA profiles and genetic history. Carries over to 2022 session.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 766 }, { "id": "nhgri-d6fef21561d90f871450", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "2021 State Bills Iowa 2021 HF 55", "primary_url": "https://www.legis.iowa.gov/legislation/BillBook?ga=89&ba=HF55", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Pending", "source_summary": "A participating healthcare provider or participating care coordinators may not refuse to provide health care services to a member of the Health Iowa Program on the basis of various characteristics, including genetic information. The board for the Health Iowa Program must adopt rules to promote nondiscrimination with respect to members and health care providers on the basis of various factors, including genetic information. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 767 }, { "id": "nhgri-8e8453f1080be488b4e6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2021 State Bills Kentucky 2021 HB 11", "primary_url": "https://apps.legislature.ky.gov/record/21rs/hb11.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Establishes health-status eligibility rules for health benefit plans in any market. Prohibits requiring a greater premium or contribution, or different benefits coverage, on the basis of any health status-related factor, including genetic information. Prohibits pre-existing condition exclusions. Prohibits adjustment of premium or contribution amounts for group health plans on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 768 }, { "id": "nhgri-9d8fbc473362baecb82a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "2021 State Bills Kentucky 2021 HB 27", "primary_url": "https://apps.legislature.ky.gov/record/21rs/hb27.html", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires a health facility that provides perinatal care to provide each patient, upon admission or as soon thereafter as reasonably practical, written information regarding the patient's rights, including the right to be free from discrimination on the basis of genetic information. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 769 }, { "id": "nhgri-c1df8fa9daf5ffd2cac7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2021 State Bills Louisiana 2021 HB 455", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=21RS&b=HB455&sbi=y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Applies provisions that prohibit the use of genetic testing for health insurance and underwriting purposes to life and long-term care insurance policies. Applies prohibitions for unfair or deceptive acts or practices on the basis of genetic information to life and long-term care insurance policies. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 770 }, { "id": "nhgri-f6adb8bc2198c5ad19d4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2021 State Bills Louisiana 2021 HB 703", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=21RS&b=HB703&sbi=y", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Applies provisions that prohibit the use of genetic testing for health insurance and underwriting purposes to life and long-term care insurance policies. Applies prohibitions for unfair or deceptive acts or practices on the basis of genetic information to life and long-term care insurance policies. 6/11/21 Signed by the Governor. Becomes Act No. 242. Effective August 1, 2021.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 771 }, { "id": "nhgri-7f0d4de3113f0084376a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2021 State Bills Louisiana 2021 SB 119", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=21RS&b=SB119&sbi=y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires health_insurance_coverage for annual MRI at age 25 and annual mammography at age 30 for women with a hereditary susceptibility to breast cancer based on pathogenic mutation carrier status. 6/1/21 Signed by the Governor. Becomes Act No. 45. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 772 }, { "id": "nhgri-94eaccb36b5db6be1c86", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "2021 State Bills Louisiana 2021 SB 84", "primary_url": "https://legis.la.gov/legis/BillInfo.aspx?s=21RS&b=SB84&sbi=y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires any health coverage plan renewed, delivered or issued for delivery in Louisiana to provide coverage for genetic or molecular testing for cancer including but not limited to tumor mutation testing, next generation sequencing, hereditary germline mutation testing, pharmacogenomic testing, whole exome and genome sequencing, and biomarker testing. 6/1/21 Signed by the Governor. Becomes Act No. 43. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 773 }, { "id": "nhgri-8e12112be532f2bb29f9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2021 State Bills Maine 2021 LD 1085", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?paper=HP0800&SessionID=14", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "In the absence of a medical diagnosis of a disease, disorder or syndrome related to genetic information, a health insurer, life insurer or long-term care insurer may not cancel, limit or deny coverage or establish differentials in premium rates based on such genetic information. A health insurer, life insurer or long-term care insurer may not request, require, purchase or otherwise solicit genetic information; use genetic test results; or consider an individual's decisions or actions relating to genetic testing in any manner for any insurance purpose. 6/10/2021 Reports Read. On motion by Senator Sanborn of Cumberland the Majority Ought Not to Pass. Report accepted. In concurrence. Placed in Legislative Files. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 774 }, { "id": "nhgri-65b1295aa72ed7432db5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2021 State Bills Maine 2021 LD 1655", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?PID=1456&snum=130&paper=&paperld=l&ld=1655", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes annual registration of data brokers. Requires data brokers to develop, implement and maintain a comprehensive information security program to protect personally identifiable information. Personally identifiable information includes genetic identifiers. Ought Not to Pass Pursuant To Joint Rule 310, Jun 2, 2021.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 775 }, { "id": "nhgri-d93aa8d430aab6528e87", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2021 State Bills Maine 2021 LD 1714", "primary_url": "http://www.mainelegislature.org/legis/bills/display_ps.asp?PID=1456&snum=130&paper=&paperld=l&ld=1714", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Establishes consumer rights with respect to personal information collected by a business. Personal information includes biometric information. Biometric information is defined to include deoxyribonucleic acid. Died Between Houses, Jun 2, 2021.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 776 }, { "id": "nhgri-6ca3b55fa1d6a63b5da0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "2021 State Bills Maine 2021 LD 29", "primary_url": "http://legislature.maine.gov/LawMakerWeb/summary.asp?ID=280077952", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Conforms the Maine Apprenticeship Program to the Federal Equal Employment Opportunity Act of 1972. Requires a posting of statement that the apprentice will be accorded equal opportunity in all phases of apprenticeship employment and training, without discrimination because of various factors, including genetic information. 6/8/21 Signed by the Governor. Effective 90 days after adjournment (March 30, 2021).", "base_status": "enacted", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 777 }, { "id": "nhgri-c91b7625e7a04c502fd7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 HB 1256", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB1256", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Requires the Maryland Department of Health to do the following: (1) by January 1, 2023, develop gene sequence and customer screening guidelines for gene synthesis providers and manufacturers of gene synthesis equipment that include certain requirements; (2) develop a process to certify that gene synthesis providers and manufacturers of gene synthesis equipment are in compliance with the guidelines requiring, on or after January 1, 2024, the Department to certify certain gene synthesis providers and equipment manufacturers. Gene synthesis provider does not include a research scientist making gene synthesis products for the research scientist's own use or for use by another research scientist. In the House - Withdrawn by Sponsor. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 778 }, { "id": "nhgri-aa8db50f2a05aa70729b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 HB 148", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0148", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends statute requiring a business that maintains personal information of an individual residing in the State to implement and maintain certain security procedures and practices. The bill adds the following to the definition of personal information: genetic information with respect to an individual, including the genetic sample of an individual; the genetic test of an individual; the genetic test of an individual's family member; the manifestation of a disease or disorder in a family member of an individual; any request for and receipt of genetic counseling, or genetic education; and any information derived from genetic information with respect to an individual. In the Senate - First Reading Finance. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 779 }, { "id": "nhgri-4cd67e1af6c0d1af71f0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 HB 218", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0218", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the House - Withdrawn by Sponsor. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 780 }, { "id": "nhgri-bf415fee0f8d4249d778", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 HB 240", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb0240/?ys=2021rs", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Enacted", "source_summary": "This bill establishes that a certain forensic genetic genealogical DNA analysis and search may not be initiated without certifying certain information before a court and obtaining a certain authorization from the court; prohibits certain biological samples subjected to certain forensic genetic genealogical profile analysis to be used to determine certain information about a certain donor; requires the Department of Public Safety and Correctional Services to produce a certain annual report; etc.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 781 }, { "id": "nhgri-090e344949416fcc2471", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 HB 810", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0810", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Alters the definition of \"practice pharmacy\" to include the ordering and administering of certain laboratory tests. Requires the State Board of Pharmacy, on or before January 1, 2022, to adopt regulations authorizing a pharmacist to order and administer laboratory tests, without a written, oral or electronically transmitted prescription from an authorized prescriber that measure biomarkers, including deoxyribonucleic acid.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 782 }, { "id": "nhgri-5a3bf75258ad4686a2d1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 SB 112", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/sb0112", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends statute requiring a business that maintains personal information of an individual residing in the State to implement and maintain certain security procedures and practices. The bill adds the following to the definition of personal information: genetic information with respect to an individual, including the genetic sample of an individual; the genetic test of an individual; the genetic test of an individual's family member; the manifestation of a disease or disorder in a family member of an individual; any request for and receipt of genetic counseling, or genetic education; and any information derived from genetic information with respect to an individual. In the Senate - Hearing 2/10 at 1:00 p.m. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 783 }, { "id": "nhgri-d0157df31c86dd1c5e4a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 SB 16", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/sb0016", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain private entities in possession of biometric identifiers or biometric information to develop a written policy, made available to the public, establishing a certain retention schedule and guidelines for permanently destroying biometric identifiers and biometric information. Biometric identifier is defined to includes a genetic print. The bill defines confidential and sensitive to include a genetic marker and genetic testing information. In the Senate - Hearing 1/27 at 1:00 p.m. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 784 }, { "id": "nhgri-5eb0068e3e226d008a42", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 SB 351", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/sb0351", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Amends the statute requiring certain units of State government to employ reasonable security procedures and practices. Proposed changes to the law include altering the definition of biometric information by removing the term genetic print and adding an individual's DNA to the definition. In the House - Hearing 3/31 at 1:30 p.m. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 785 }, { "id": "nhgri-38a628f0d6c570fc19da", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 SB 706", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0706", "source_topics": [ "Other Topics" ], "source_status": "Died", "source_summary": "Alters the definition of \"practice pharmacy\" to include the ordering and administering of certain laboratory tests. Requires the State Board of Pharmacy, on or before January 1, 2022, to adopt regulations authorizing a pharmacist to order and administer laboratory tests, without a written, oral or electronically transmitted prescription from an authorized prescriber that measure biomarkers, including deoxyribonucleic acid. In the Senate - Hearing 3/02 at 1:00 p.m. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 786 }, { "id": "nhgri-9b79cbabac313f93664a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "2021 State Bills Maryland 2021 SB 930", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0930", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires certain businesses that collect a consumer's personal information to provide certain clear and conspicuous notices to the consumer at or before the point of collection. The bill defines biometric information to include an individual's DNA. In the Senate - First Reading Senate Rules. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 787 }, { "id": "nhgri-eaea086185a563c3b0dd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H. 1792", "primary_url": "https://malegislature.gov/Bills/192/H1792", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Prohibits any unit government from directly or indirectly: (1) excluding or partially excluding from participation, disadvantaging, harming, denying one or more benefits to, or otherwise subjecting a person to discrimination based on or because of one or more of the person�s protected characteristics; or (2) adopting, implementing or without limitation otherwise approving or utilizing any program, policy or practice that has a discriminatory effect. Protected characteristics includes genetic information. Carries over 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 788 }, { "id": "nhgri-760427e7b58a0344b523", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H. 4152", "primary_url": "https://malegislature.gov/Bills/192/H4152", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes protections relative to the processing of personal data and the free movement of personal data. Prohibits the processing of genetic data or biometric data for the purpose of uniquely identifying a natural person with certain exceptions. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 789 }, { "id": "nhgri-466112fefa01868d6df2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.1113", "primary_url": "https://malegislature.gov/Bills/192/H1113", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires certain insurers to provide benefits on a nondiscriminatory basis for the diagnosis and treatment of Alfi�s syndrome in individuals. Diagnosis of Alfi's Syndrome includes genetic testing. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 790 }, { "id": "nhgri-97aaee8d7919dc6f963d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.1175", "primary_url": "https://malegislature.gov/Bills/192/H1175", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 791 }, { "id": "nhgri-36480b6ca505a574178b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.1373", "primary_url": "https://malegislature.gov/Bills/192/H1373", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 792 }, { "id": "nhgri-ed36d1de8b1982cfaf93", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.142", "primary_url": "https://malegislature.gov/Bills/192/H142", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes privacy protections for the collection, use, retention and disclosure of biometric information by businesses in the state of Massachusetts. Biometric information is defined to include a DNA sequence. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 793 }, { "id": "nhgri-d76e68d1710d0d672a03", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.2304", "primary_url": "https://malegislature.gov/Bills/192/H2304", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Creates a pancreatic cancer advisory council within the health department. Requires the commissioner of insurance to survey health insurers in the commonwealth to ascertain coverage benefits of genetic testing for pancreatic cancer across health insurance plans, and present findings to the committee on health care financing and the committee on financial services no later than June 30, 2022. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 794 }, { "id": "nhgri-104319fc5607cce6db6c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 H.4029", "primary_url": "https://malegislature.gov/Bills/192/H4029", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes requirements for specified persons, partnerships or corporations that maintain high-risk information systems. A high-risk information system involves the personal information of a significant numbers of consumers regarding various characteristics, including genetic data. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 795 }, { "id": "nhgri-02c704889f1ef5aac296", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S. 2102", "primary_url": "https://malegislature.gov/Bills/192/S2102", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Pending", "source_summary": "Requires the commission on workplace harassment and sexual assault in the legislature to research and develop model workplace harassment policies for consideration and use by the Senate and House of Representatives. The model policies must address identity-based harassment, including harassment based on genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 796 }, { "id": "nhgri-aea4ef918ca34966ca38", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S. 46", "primary_url": "https://malegislature.gov/Bills/192/S46", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes privacy protections for the collection, use, retention and disclosure of biometric information by businesses in the state of Massachusetts. Biometric information is defined to include. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 797 }, { "id": "nhgri-47659adde5d06a1d1271", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S. 50", "primary_url": "https://malegislature.gov/Bills/192/S50", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Amends statute to protect personal information under the security breach law. Adds genetic information to the scope of information covered under the law. Referred to the Senate committee on Advanced Information Technology, the Internet and Cybersecurity. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 798 }, { "id": "nhgri-b6f9ee6530f34de97117", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S. 867", "primary_url": "https://malegislature.gov/Bills/192/S867", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Promotes fair housing by preventing discrimination against affordable housing based on various factors, including genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 799 }, { "id": "nhgri-c9bf41b61d4ad37e3ab4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S.1385", "primary_url": "https://malegislature.gov/Bills/192/S1385", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Creates a pancreatic cancer advisory council within the health department. Requires the commissioner of insurance to survey health insurers in the commonwealth to ascertain coverage benefits of genetic testing for pancreatic cancer across health insurance plans, and present findings to the committee on health care financing and the committee on financial services no later than June 30, 2022. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 800 }, { "id": "nhgri-9c799400d82d09c50109", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S.161", "primary_url": "https://malegislature.gov/Bills/192/S161", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Amends statute to protect biometric information under the security breach law. Adds biometric indicator or any unique biological attribute or measurement that can be used to authenticate the identity of an individual, including genetic information, to the scope of information covered under the law. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 801 }, { "id": "nhgri-594fdabafff4f7303cd2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S.697", "primary_url": "https://malegislature.gov/Bills/192/S697", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires certain insurers to provide coverage for screening breast ultrasound or screening breast magnetic resonance imaging examination if the patient has additional risk factors for breast cancer including, but not limited to, family history and positive genetic testing. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 802 }, { "id": "nhgri-4a6630602c9f8feb1215", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "2021 State Bills Massachusetts 2021 S.996", "primary_url": "https://malegislature.gov/Bills/192/S996", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Prohibits any unit government from directly or indirectly: (1) excluding or partially excluding from participation, disadvantaging, harming, denying one or more benefits to, or otherwise subjecting a person to discrimination based on or because of one or more of the person�s protected characteristics; or (2) adopting, implementing or without limitation otherwise approving or utilizing any program, policy or practice that has a discriminatory effect. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 803 }, { "id": "nhgri-1d4e3d235f0c0fe0c75d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2021 State Bills Michigan 2021 HB 4581", "primary_url": "https://www.legislature.mi.gov/(S(zpjkw4ne1hsajejgy2jzbm5i))/mileg.aspx?page=getObject&objectName=2021-HB-4581", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Pending", "source_summary": "Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 804 }, { "id": "nhgri-6cddf36aae5aec831fe4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "2021 State Bills Michigan 2021 SB 327", "primary_url": "https://www.legislature.mi.gov/(S(zpjkw4ne1hsajejgy2jzbm5i))/mileg.aspx?page=getObject&objectName=2021-SB-0327", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Pending", "source_summary": "Requires an employer that employs 50 or more individuals at any time during the calendar year at a single work site in the state to inform employees of, and keep posted at the work site in a conspicuous place where employees may conveniently read it, a notice that includes specified information. Required notification includes a statement that it is illegal under federal law to pay employees different wages for the same work based solely on various characteristics, including genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 805 }, { "id": "nhgri-3423b797137ab3fcd755", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 HF 1492", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF1492&ssn=0&y=2021", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Provides various rights to consumers regarding personal data. Requires certain businesses to conduct and document a data protection assessment of processing activities involving personal data, including sensitive data. Requires data controllers to obtain consent from consumers before processing sensitive data. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 806 }, { "id": "nhgri-206b19a5e48042e6003c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 HF 2414", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=HF2414&b=house&y=2021&ssn=0", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires every policy, plan, certificate, or contract referred to in subdivision that provides coverage to a Minnesota resident to provide coverage for all diagnostic and preventive screenings and tests related to breast cancer, including but not limited to genetic testing, breast examination, mammography, magnetic resonance imaging, digital breast tomosynthesis, ultrasound, thermography, biopsy, and other breast cancer screening tests currently being evaluated by the federal Food and Drug Breast Cancer research Foundation. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 807 }, { "id": "nhgri-47e512fa28d8b71c0aa0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 HF 36", "primary_url": "http://www.house.leg.state.mn.us/bills/Info/hf36", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Relates to consumer data privacy. Establishes business obligations regarding: (1) collection and disclosure of personal information; and (2) sale of personal information to third parties. Gives various rights to consumers regarding personal data. Personal information includes biometric information such as genetic information. Carries over to 2022 session.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 808 }, { "id": "nhgri-8452ac10c1593b1e5909", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 HF 81", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF0081&ssn=0&y=2021", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Requires the Minnesota Board of Pharmacy to establish a pharmacogenomics task force to evaluate and assess the current availability of pharmacogenomics statewide and to develop recommendations for making pharmacogenomics available statewide. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 809 }, { "id": "nhgri-b85673fd0fee07db829e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 SF 1408", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF1408&y=2021&ssn=0&b=senate", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Provides various rights to consumers regarding personal data. Requires certain businesses to conduct and document a data protection assessment of processing activities involving personal data, including sensitive data. Requires data controllers to obtain consent from consumers before processing sensitive data. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 810 }, { "id": "nhgri-aea679c89c79c2fc07ae", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 SF 215", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF215&y=2021&ssn=0&b=senate", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes a grant program within the health department to award grants to persons, organizations, and entities to fund research studies on the evidence needed to: (1) support payer reimbursement and funding of pharmacogenomics (PGx) testing; (2) determine and validate new PGx variants in diverse populations such as Native Americans and Somali groups; (3) determine ethical, legal, and social implications of PGx; (4) determine the technical aspects needed to protect data and privacy as it relates to PGx; and (5) determine the education needed for successful PGx implementation. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 811 }, { "id": "nhgri-2f709a482e22b7a6cc0b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021 SF 2320", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?b=Senate&f=SF2320&ssn=0&y=2021", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires every policy, plan, certificate, or contract referred to in subdivision that provides coverage to a Minnesota resident to provide coverage for all diagnostic and preventive screenings and tests related to breast cancer, including but not limited to genetic testing, breast examination, mammography, magnetic resonance imaging, digital breast tomosynthesis, ultrasound, thermography, biopsy, and other breast cancer screening tests currently being evaluated by the federal Food and Drug Breast Cancer research Foundation. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 812 }, { "id": "nhgri-46d684b7407c44d47e83", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "2021 State Bills Minnesota 2021SF 248", "primary_url": "https://www.revisor.mn.gov/bills/bill.php?f=SF248&y=2021&ssn=0&b=senate", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Requires the Minnesota Board of Pharmacy to establish a pharmacogenomics task force to evaluate and assess the current availability of pharmacogenomics statewide and to develop recommendations for making pharmacogenomics available statewide. Carries over to 2022 session.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 813 }, { "id": "nhgri-e4cb4812af1738b4a5be", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2021 State Bills Missouri 2021 HB 995", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HB995&year=2021&code=R", "source_topics": [ "Research", "Use of Residual Newborn Screening Specimens" ], "source_status": "Died", "source_summary": "Amends statute section pertaining to the release of residual newborn screening specimens for anonymous scientific study. Requires consent of parent or legal guardian be obtained for such release at the time of specimen collection. 2/23/2021 - House public hearing completed. Died.", "base_status": "died", "mapped_topics": [ "newborn-screening", "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 814 }, { "id": "nhgri-acb6a51a47b4065c9eb6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2021 State Bills Missouri 2021 HJR 51", "primary_url": "https://house.mo.gov/Bill.aspx?bill=HJR51&year=2021&code=R", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/13/2021 Reported Do Pass House Rules Committee. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 815 }, { "id": "nhgri-4438e4fd9bba80e8c6d4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "2021 State Bills Missouri 2021 SJR 26", "primary_url": "https://www.senate.mo.gov/21info/BTS_Web/Bill.aspx?SessionType=R&BillID=57170701", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Proposes a Constitutional amendment, if approved by the voters, to provide that prohibits health plans from limiting or excluding benefits relating to any condition based on the fact that the condition is a preexisting condition or charging a different premium rate or imposing different out-of-pocket costs for the same coverage based on the fact that a person covered under the plan has a preexisting condition. Genetic information should not be treated as a preexisting condition in the absence of a diagnosis of the condition related to such information. 4/22/2021 Voted Do Pass Senate Insurance and Banking Committee. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 816 }, { "id": "nhgri-67ffaf2db63fd2c492f2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2021 State Bills Nevada 2021 AB 198", "primary_url": "https://www.leg.state.nv.us/Session/81st2021/Reports/history.cfm?DocumentType=1&BillNo=198", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires the State Plan for Medicaid to pay the nonfederal share of expenditures incurred to perform genetic testing to detect birth defects in the fetus of a pregnant woman who is 40 years of age or older. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 817 }, { "id": "nhgri-067d64abd89dd194c4ad", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "2021 State Bills Nevada 2021 SB 251", "primary_url": "https://www.leg.state.nv.us/Session/81st2021/Reports/history.cfm?DocumentType=2&BillNo=251", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires a primary care provider to administer a genetic test for harmful mutations in the BRCA gene if clinically indicated as a result of genetic counseling. The State Plan for Medicaid must pay the nonfederal share of expenditures incurred for screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required. Insurers must cover the cost of screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required. 5/27/2021 Approved by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 818 }, { "id": "nhgri-061f7ef64aaa8e1d6eae", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2021 State Bills New Hampshire 2021 HB 597", "primary_url": "http://gencourt.state.nh.us/bill_status/Results.aspx?q=1&txtbillnumber=hb597&txtsessionyear=2021", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Provides that an individual has an expectation of privacy in personal information, including content and usage, given or available to third-party providers of information and services, including cellular and land-line telephone, electric, water, and other utility services; Internet service providers; cable television providers; streaming services; social media providers; email service providers; banks and financial institutions; insurance companies; and credit card companies. Prohibits municipal, county, state, or federal department, agency, employee, elected official, or contractors from acquiring, collecting, retaining, or using personal information, directly or indirectly, related to customers of third-party providers of information and services located in New Hampshire except under certain circumstances. Personal information is defined to include genetic profiles and DNA/RNA data. Hearing on 3/05/2021. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 819 }, { "id": "nhgri-92c7481ea9130e681e3e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "2021 State Bills New Hampshire 2021 HB 601", "primary_url": "http://gencourt.state.nh.us/bill_status/Results.aspx?q=1&txtbillnumber=HB601&txtsessionyear=2021", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "When an individual consents to receive assistance from a health or social service agency in the state, the consent given to the initial health or social service agency to use the individual's personal information may not be transferred to or retained by any other health or social service agency, network, or entity. No health or social service agency in the state may require a individual's consent to share personal information with another health or social service agency in the state or another state as a prerequisite for such individual to receive services from such health or social service agency, including consent to share details regarding which health or social service agency the individual has received help from in the past and associated information related to that interaction. A health or social service agency must explicitly and in writing inform any individual seeking such assistance that lack of consent will not affect the individual's ability to receive health or social services from the agency and that the individual will not be otherwise penalized. Personal information is defined to include DNA. Hearing on 2/08/2021. Carries over to 2022.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 820 }, { "id": "nhgri-15f5910a983c182910a0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2021 State Bills New Jersey 2021 A5354", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A9999/5354_I1.HTM", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Died", "source_summary": "Requires adoption of and training on anti-discrimination and anti-harassment policy by certain campaign committees. Protected category includes genetic information. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 821 }, { "id": "nhgri-c24bed7d2fee6554e868", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2021 State Bills New Jersey 2021 A6080", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/A9999/6080_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a teaching staff member employed by a board of education from inputting the individually identifiable health information of a student or members of a student�s family, or conversations concerning such information, into a third party software application managed by an entity that engages in partisan political activity. The bill defines individually identifiable health information as any information, including genetic or vaccination information, relating to the past, present, or future physical or mental health or condition of an individual that either identifies the individual or could reasonably be used to identify the individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 822 }, { "id": "nhgri-c33464bddde22b4bdbc6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "2021 State Bills New Jersey 2021 S4199", "primary_url": "https://www.njleg.state.nj.us/2020/Bills/S4500/4199_I1.HTM", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a teaching staff member employed by a board of education from inputting the individually identifiable health information of a student or members of a student�s family, or conversations concerning such information, into a third party software application managed by an entity that engages in partisan political activity. The bill defines individually identifiable health information as any information, including genetic or vaccination information, relating to the past, present, or future physical or mental health or condition of an individual that either identifies the individual or could reasonably be used to identify the individual. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 823 }, { "id": "nhgri-492eca8a572224a1e8f2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "2021 State Bills New Mexico 2021 SB 408", "primary_url": "https://www.nmlegis.gov/Legislation/Legislation?Chamber=S&LegType=B&LegNo=408&year=21", "source_topics": [ "Employment Nondiscrimination", "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "Establishes that every person, whether a minor or an adult, has the right of bodily integrity and the freedom to assert that right. A person may not be discriminated agains or denied public accommodation, housing accommodation, employment, government services or any other services offered to the general public or otherwise penalized for the assertion of the right of bodily integrity, including the right not to provide samples of bodily fluids, bodily tissue or genetic material. Died.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 824 }, { "id": "nhgri-1e84930717a055ce7055", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A1758", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A01758&term=&Summary=Y&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk thereof. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 825 }, { "id": "nhgri-d47e7afb22eb95f1c324", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A3586", "primary_url": "https://nyassembly.gov/leg/?term=2021&bn=A03586", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes the \"It's Your Data Act\" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Biometric information is defined to include DNA. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 826 }, { "id": "nhgri-f235f9c0faa09541bd69", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A3709", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A3709&term=2021&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 827 }, { "id": "nhgri-d33b51c76240e388c1ad", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A3802", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=A03802&term=2021&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Research" ], "source_status": "Pending", "source_summary": "Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex. Requires reporting certain information relating to the collection of data. Provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "research" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 828 }, { "id": "nhgri-d49c459c50b36b7b694b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A404", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A404&term=&Summary=Y&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires health insurance policies to cover comprehensive screening for ovarian cancer, including genetic testing. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 829 }, { "id": "nhgri-7901709222aa71ec510d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A460", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A460&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Pending", "source_summary": "Declares that it is an unlawful discriminatory practice for a hiring party to subject a model to harassment based on various characteristics, including predisposing genetic characteristics. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 830 }, { "id": "nhgri-6f8a9df98b4e2d21987b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A592", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A592&term=&Summary=Y&Actions=Y", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes a genetics advisory council. Requires a preliminary report to the governor and legislature before March 1, 2023 and a final report by December 1, 2023 on issues relating to genetic counseling, genetic testing and public education. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 831 }, { "id": "nhgri-b112be63012679c10208", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A6042", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A6042&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Pending", "source_summary": "Prohibits businesses from processing personal information for the purpose of advertising, marketing, soliciting, offering, selling, leasing, licensing, renting, or otherwise commercially contracting for employment, finance, health care, credit, insurance, housing, or education opportunities, in a manner that discriminates against or otherwise makes the opportunity unavailable on the basis of an individual's or class of individuals' actual or perceived predisposing genetic characteristics. Requires businesses to obtain freely given, specific, informed, and unambiguous opt-in consent from an individual to: (a) Process such individual's personal information; and (b) Make any changes in the processing of such individual's information that necessitate a change to the entity's required short-form privacy notice. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 832 }, { "id": "nhgri-75c37f589cf0aa3360ed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A680", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A680&term=2021&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Enacts the NY privacy act to require companies to disclose their methods of de-identifying personal information such as biometric information, to place special safeguards around data sharing and to allow consumers to obtain the names of all entities with whom their information is shared. Biometric information is defined to include DNA. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 833 }, { "id": "nhgri-1ba4b11e2fe4857e1999", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A687", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A687&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 834 }, { "id": "nhgri-f7c568cfaab638b44c21", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A700", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A700&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Pending", "source_summary": "Requires companies to file a biennial climate report. The requirements for the form and content of the climate report at a minimum must include: (i) Company climate surveys to be filled out anonymously by employees, which are designed to assess such company's workplace environment including, but not limited to, pay equity, sexual harassment and discrimination based on an individual's age, race, creed, color, national origin, sexual orientation, military status, sex, disability, predisposing genetic characteristics, familial status, marital status or domestic violence victim status. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 835 }, { "id": "nhgri-ba513d75693dc8a0a96a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 A954", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=A954&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Directs the director of the office of information technology services to conduct a study on the use of biometric identifying technology. Prohibits the use of biometric identifying technology in schools until July 1, 2022 or until the commissioner of education authorizes such purchase or utilization, whichever occurs later. Biometric identifier is defined to include a DNA sequence. 1/28/2021 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 836 }, { "id": "nhgri-44f7f3d5cbbe83d39845", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S105", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S00105&term=&Summary=Y&Actions=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 837 }, { "id": "nhgri-97d1a5daefcfc8ca9400", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S4021", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S04021&term=2021&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Establishes the \"It's Your Data Act\" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 838 }, { "id": "nhgri-e8a53c0a3c588f3bedfb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S567", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S567&term=2021&Summary=Y&Actions=Y", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 839 }, { "id": "nhgri-4209b568d9012fc1c393", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S605", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S00605&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires health insurers to provide coverage for expenses incurred in obtaining a colonoscopy when a subscriber has a high-risk predisposition to colon cancer based on genetic or family history. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 840 }, { "id": "nhgri-e273dd98af15c67333fb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S6681", "primary_url": "https://nyassembly.gov/leg/?default_fld=%0D%0A&leg_video=&bn=S6681&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Employment Nondiscrimination", "Other Topics" ], "source_status": "Pending", "source_summary": "Declares that it is an unlawful discriminatory practice for a hiring party to subject a model to harassment based on various characteristics, including predisposing genetic characteristics. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 841 }, { "id": "nhgri-ea8eeb7da1c6abc27911", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S6701", "primary_url": "https://nyassembly.gov/leg/?term=2021&bn=S06701", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Enacts the NY privacy act to require companies to disclose their methods of de-identifying personal information such as biometric information, to place special safeguards around data sharing and to allow consumers to obtain the names of all entities with whom their information is shared. Biometric information is defined to include DNA. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 842 }, { "id": "nhgri-0f0292787ce9aef69a92", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S7430", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S07430&term=&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits the state, or any agency or bureau, or any other entity from denying a refugee resettlement anywhere within the state based on any criterion, method of administration, or practice that has the purpose or effect of discriminating on the basis of various factors, including predisposing genetic characteristics. Carries over to 2022.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 843 }, { "id": "nhgri-e10016a960ff56713a13", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "2021 State Bills New York 2021 S893", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S00893&term=2021&Summary=Y&Actions=Y", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Directs the director of the office of information technology services to conduct a study on the use of biometric identifying technology. Prohibits the use of biometric identifying technology in schools until July 1, 2022 or until the commissioner of education authorizes such purchase or utilization, whichever occurs later. Biometric identifier is defined to include a DNA sequence. 1/25/2021 Substituted by A954. 1/28/2021 Signed by the Governor. Effective immediately.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 844 }, { "id": "nhgri-ac2bf11bb005845dad50", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2021 State Bills North Carolina 2021 HB 450", "primary_url": "https://www.ncleg.gov/Sessions/2021/Bills/House/PDF/H450v1.pdf", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Pending", "source_summary": "Prohibits discrimination based on various characteristics such as genetic information in the following areas: housing; employment; lending; education; public accommodation; insurance; and jury service. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 845 }, { "id": "nhgri-b25419cc32a81fb16bef", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2021 State Bills North Carolina 2021 HB 507", "primary_url": "https://www.ncleg.gov/BillLookUp/2021/H507", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes certain rights of perinatal care patients, including the right to receive care and treatment free from discrimination based on characteristics such as genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 846 }, { "id": "nhgri-43891ce3a481c89edf48", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2021 State Bills North Carolina 2021 SB 396", "primary_url": "https://www.ncleg.gov/BillLookUp/2021/sb396", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Pending", "source_summary": "Prohibits discrimination based on various characteristics such as genetic information in the following areas: housing; employment; lending; education; public accommodation; insurance; and jury service. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 847 }, { "id": "nhgri-6bf4d4e2fc023b7401cf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2021 State Bills North Carolina 2021 SB 632", "primary_url": "https://www.ncleg.gov/BillLookUp/2021/SB632", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes certain rights of perinatal care patients, including the right to receive care and treatment free from discrimination based on characteristics such as genetic information. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 848 }, { "id": "nhgri-7ea1c65e6a6ae28df589", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "2021 State Bills North Carolina 221 SB 569", "primary_url": "https://www.ncleg.gov/BillLookUp/2021/SB%20569", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Creates the Consumer Data privacy Act of North Carolina. Prohibits data controllers from processing sensitive data concerning a consumer without obtaining the consumer's consent, or, in the case of sensitive data concerning a known child, without processing such data in accordance with the federal Children's Online privacy Protection Act. Sensitive data is defined to include the processing of genetic or biometric data for the purpose of uniquely identifying a natural person. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 849 }, { "id": "nhgri-21d6a752092b2335c62f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "2021 State Bills North Dakota 2021 HB 1147", "primary_url": "https://www.legis.nd.gov/assembly/67-2021/bill-index/bi1147.html", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires the public employees retirement board to provide coverage for the expenses of the diagnosis of infertility, fertility treatment, and standard fertility preservation services if recommended and medically necessary. Fertility treatment includes genetic testing. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 850 }, { "id": "nhgri-e08eb6fb3a810e117629", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2021 State Bills Ohio 2021 HB 281", "primary_url": "https://www.legislature.ohio.gov/legislation/legislation-summary?id=GA134-HB-281", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Enacted", "source_summary": "Amends the definition of \"genetic screening or testing\" used in the state health_insurance_nondiscrimination statute. Replaces \"abnormalities, defects, or deficiencies,\" in the definition with \"genotypes, mutations, or chromosomal changes.\" Carries over to 2022.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 851 }, { "id": "nhgri-e613f2683d5aa4cb7e53", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "2021 State Bills Ohio 2021 HB 371", "primary_url": "https://www.legislature.ohio.gov/legislation/legislation-summary?id=GA134-HB-371", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Enacted", "source_summary": "Requires the state Medicaid program, individual health insurers and group health insurers to cover breast cancer screening for women meeting certain conditions, including those who have a genetic predisposition to breast cancer. Carries over to 2022.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 852 }, { "id": "nhgri-0c66b5b017171c2273a9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2021 State Bills Oklahoma 2021 HB 1602", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=HB1602&Session=2100", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Creates the Oklahoma Computer Data privacy Act, which applies to certain businesses that collect consumers' personal information, including biometric information. Provides guidelines for the use of personal information in research. Provides consumers the right to request disclosure of certain information; the right to request the deletion of their information; the right to request and receive a disclosure of personal information sold or disclosed; and the right to opt in and out of the sale of their personal information. Biometric information is defined to include DNA. 3/22/2021 Second Reading in Senate Judiciary. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 853 }, { "id": "nhgri-28ae01ecbd32e0ee2fd1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "2021 State Bills Oklahoma 2021 SB 351", "primary_url": "http://www.oklegislature.gov/BillInfo.aspx?Bill=SB351&Session=2100", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Pending", "source_summary": "Requires a practitioner to offer to administer a pharmacogenomic test to a patient prior to the prescription of any psychotropic drug. The practitioner is required by the measure to inform the patient that pharmacogenomic tests have not been approved by the Food and Drug Administration. The practitioner must obtain the patient�s informed consent prior to ordering a pharmacogenomic test and must provide an estimate to the patient if the practitioner is aware of the cost. 2/2/2021 Second Reading. Referred to Senate Health and Human Services. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 854 }, { "id": "nhgri-e2fdb47f4cf4865b9312", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "2021 State Bills Rhode Island 2021 H5081", "primary_url": "http://webserver.rilegislature.gov/billtext21/housetext21/h5081.pdf", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 2/23/2021 Committee recommended measure be held for further study. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 855 }, { "id": "nhgri-a2c8cdc45a33d0e368a3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "2021 State Bills Rhode Island 2021 S171", "primary_url": "http://webserver.rilin.state.ri.us/BillText/BillText21/SenateText21/S0171.pdf", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 4/1/2021 Committee recommended measure be held for further study. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 856 }, { "id": "nhgri-ae44e8544468b5df6357", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2021 State Bills South Carolina 2021 HB 3063", "primary_url": "https://www.scstatehouse.gov/billsearch.php?billnumbers=3063", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Enacts the South Carolina Biometric Data privacy Act. Provides certain requirements for a business that collets a consumer's biometric information. Allows consumers to: (1) request the deletion of collected biometric information; and (2) prohibit the sale of biometric information. Prohibits a business from discriminating against a consumer who opts out of the the sale of biometric information. Biometric information includes DNA. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 857 }, { "id": "nhgri-cd97887ac9a78e976aab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2021 State Bills South Carolina 2021 HB 4555", "primary_url": "https://www.scstatehouse.gov/sess124_2021-2022/bills/4555.htm", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Enacts the Parental Bill of Rights. Establishes certain rights of parents, including the right to consent in writing before any record of a child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 858 }, { "id": "nhgri-3192b4425b5107b996a7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "2021 State Bills South Carolina 2021 SB 900", "primary_url": "https://www.scstatehouse.gov/billsearch.php?billnumbers=900&session=124&summary=B&PRINT=1", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Enacts the Parental Bill of Rights. Establishes certain rights of parents, including the right to consent in writing before any record of a child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 859 }, { "id": "nhgri-ed5e5048ee5c0d872090", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "2021 State Bills South Dakota 2021 SB 178", "primary_url": "https://sdlegislature.gov/Session/Bill/22286", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Enacted", "source_summary": "Existing law prohibits health carriers, in determining eligibility for coverage, establishing premiums, limiting coverage, renewing coverage, or any other underwriting decision from, in connection with the offer, sale, or renewal of insurance: (1) requiring or requesting an individual or a blood relative of the individual to take a genetic test; or (2) taking into consideration the fact that a genetic test was refused by an individual or a blood relative of the individual. Amends existing law by adding life insurers and long-term care insurers to covered entities. Prohibits any company providing genetic testing directly to a consumer from sharing any genetic test, genetic information, or other personally identifiable information of a consumer with any health carrier, life insurer, or long-term care insurer without written consent from the consumer. A company that provides genetic testing may communicate with a health carrier for the purposes of payment, coordination of medical treatment, or patient care so long as such communication is compliant with the Health Insurance Portability and Accountability Act and only used for the purposes permitted. 3/29/2021 Signed by the Governor. Effective 1/1/2022.", "base_status": "enacted", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 860 }, { "id": "nhgri-1552f47a6997bbd0105b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2021 State Bills Tennessee 2021 HB 642", "primary_url": "https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=HB0642", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes rights of perinatal care patients, including the right to be free from discriminating based on genetic information. 3/30/2021 Deferred for summer study in Health Subcommittee.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 861 }, { "id": "nhgri-846bafe06c80f9351f3a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "2021 State Bills Tennessee 2021 SB 956", "primary_url": "https://wapp.capitol.tn.gov/apps/BillInfo/Default.aspx?BillNumber=SB0956&GA=112", "source_topics": [ "Other Topics" ], "source_status": "Pending", "source_summary": "Establishes rights of perinatal care patients, including the right to be free from discriminating based on genetic information. 3/31/2021 Assigned to General Subcommittee of Senate Health and Welfare Committee. Carries over to 2022.", "base_status": "pending", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 862 }, { "id": "nhgri-73b08248ec3d6a30d070", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2021 State Bills Texas 2021 HB 3742", "primary_url": "https://capitol.texas.gov/BillLookup/history.aspx?LegSess=87R&Bill=HB3742", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Relates to a prohibition on the use of genetic information gathered from direct-to-consumer genetic tests by a long-term care benefit plan issuer or a life insurance company. 5/17/2021 Received from the House. Died.", "base_status": "died", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 863 }, { "id": "nhgri-8a95da499ecfff67be57", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2021 State Bills Texas 2021 HB 4441", "primary_url": "https://capitol.texas.gov/BillLookup/History.aspx?LegSess=87R&Bill=HB4441", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. 3/29/2021 Referred to House Public Health Committee. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 864 }, { "id": "nhgri-f8f70b6027701d66e872", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2021 State Bills Texas 2021 SB 16", "primary_url": "https://capitol.texas.gov/BillLookup/history.aspx?LegSess=87R&Bill=SB16", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Prohibits a state agency from disseminating to any person any personal data of an individual without the individual �s written consent. A state agency must retain the written consent of an individual obtained per certain requirements. A state agency may not require an individual to consent to dissemination of the individual�s personal data in exchange for access to the services provided by the agency or to the agency�s Internet website. 3/3/2021 Referred to Finance. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 865 }, { "id": "nhgri-0d46155c0de5c091036d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2021 State Bills Texas 2021 SB 1952", "primary_url": "https://capitol.texas.gov/BillLookup/History.aspx?LegSess=87R&Bill=SB1952", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Relates to the capture and use of an individual's biometric identifiers, specimen, or genetic information by a governmental body or peace officer or by a person for commercial purposes. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 866 }, { "id": "nhgri-bf6f535178d2e9be319a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "2021 State Bills Texas 2021 SB 962", "primary_url": "https://capitol.texas.gov/BillLookup/History.aspx?LegSess=87R&Bill=SB962", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires an individual or the individual�s authorized representative provide express consent for a person to: (1) obtain the individual �s genetic material or genetic information; (2) perform a genetic analysis of the individual or any other analysis or test of the individual that requires the individual �s genetic material; (3) retain the individual �s genetic material or genetic information; or (4) disclose, including through sale or donation, the individual �s genetic material or genetic information. passed_senate. 5/17/2021 Referred to House Public Health Committee. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 867 }, { "id": "nhgri-48b9230f84359584fc76", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2021 State Bills Utah 2021 HB 274", "primary_url": "https://le.utah.gov/~2021/bills/static/HB0274.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a government agency to make an annual report to the state auditor regarding: the government agency's collection, use, and disclosure of personal identifying information; any misuse or improper disclosure of personal identifying information; and measures taken to notify individuals of any misuse or improper disclosure. Personal identifying information includes DNA. 3/5/2021 House filed.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 868 }, { "id": "nhgri-908f3920f9a6f340ee70", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2021 State Bills Utah 2021 SB 200", "primary_url": "https://le.utah.gov/~2021/bills/static/SB0200.html", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with exceptions, and direct a business that sells personal information to stop selling the consumer's personal information. 3/5/2021 Senate Filed. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 869 }, { "id": "nhgri-cb549cb5f4fd9551a0b9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "2021 State Bills Utah 2021 SB 227", "primary_url": "https://le.utah.gov/~2021/bills/static/SB0227.html", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: (1) provide a consumer clear information regarding the company's collection, use, and disclosure of genetic data; (2) provide a consumer a publicly available privacy notice; (3) obtain a consumer's consent for certain collection, use, or disclosure of the consumer's genetic data; (4) protect a consumer's genetic data; (5) allow a consumer to access and delete the consumer's genetic data; and (6) upon request, destroy a consumer's biological sample. Prohibits a direct-to-consumer genetic testing company from disclosing a consumer's genetic data to certain persons. 3/17/2021 Signed by the Governor. Effective 5/5/2021.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 870 }, { "id": "nhgri-799a541a5a01801d71d6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2021 State Bills Vermont 2021 H233", "primary_url": "https://legislature.vermont.gov/bill/status/2022/H.233", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Died", "source_summary": "Protects consumer privacy by requiring that a business that collects genetic data from a Vermont consumer to provide ancestry or similar information protects the data and keeps it confidential. Carries over to 2022.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 871 }, { "id": "nhgri-da241a7b9bae7b99dbf1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2021 State Bills Vermont 2021 H287", "primary_url": "https://legislature.vermont.gov/bill/status/2022/H.287", "source_topics": [ "Other Topics" ], "source_status": "Enacted", "source_summary": "Prohibits a large health care facility shall not discriminate on the basis of genetic information in its provision of financial assistance or in the implementation of its financial assistance policy. Carries over to 2022.", "base_status": "enacted", "mapped_topics": [], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 872 }, { "id": "nhgri-561f8106d55ee6b71e3f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "2021 State Bills Vermont 2021 S21", "primary_url": "https://legislature.vermont.gov/bill/status/2022/S.21", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Topics", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Prohibits discrimination based on an individual�s genetic information in relation to employment, labor relations, insurance coverage, and the provision of social and medical services. 1/13/2021 Read 1st time & referred to Committee on Economic Development, Housing and General Affairs. Carries over to 2022.", "base_status": "died", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 873 }, { "id": "nhgri-c38dfa5ea4f357919ea8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2021 State Bills Virginia 2021 HB 2307", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=211&typ=bil&val=HB2307", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Establishes a framework for controlling and processing personal data in the Commonwealth. Applies to all persons that conduct business in the Commonwealth and either (i) control or process personal data of at least 100,000 consumers or (ii) derive over 50 percent of gross revenue from the sale of personal data and control or process personal data of at least 25,000 consumers. Outlines responsibilities and privacy protection standards for data controllers and processors. Grants consumer rights to access, correct, delete, obtain a copy of personal data, and to opt out of the processing of personal data for the purposes of targeted advertising. Sensitive data, a form of personal data, is defined to include the processing of genetic or biometric data. The bill has a delayed effective date of January 1, 2023. Carried over to 2021 Special Session 1. Governor approved 3/2/21.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 874 }, { "id": "nhgri-d71490256f6345a87164", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "2021 State Bills Virginia 2021 SB 1392", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?ses=211&typ=bil&val=SB1392", "source_topics": [ "Privacy" ], "source_status": "Enacted", "source_summary": "Establishes a framework for controlling and processing personal data in the Commonwealth. Applies to all persons that conduct business in the Commonwealth and either (i) control or process personal data of at least 100,000 consumers or (ii) derive over 50 percent of gross revenue from the sale of personal data and control or process personal data of at least 25,000 consumers. Outlines responsibilities and privacy protection standards for data controllers and processors. Grants consumer rights to access, correct, delete, obtain a copy of personal data, and to opt out of the processing of personal data for the purposes of targeted advertising. Sensitive data, a form of personal data, is defined to include the processing of genetic or biometric data. The bill has a delayed effective date of January 1, 2023. Carried over to 2021 Special Session 1. Governor approved 3/2/21.", "base_status": "enacted", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 875 }, { "id": "nhgri-86a069dc4db588543cb6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2021 State Bills Washington 2021 HB 1346", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=1346&Initiative=false&Year=2021", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Pending", "source_summary": "Requires an osteopathic physician and, physician, physician's assistant and advanced registered nurse practitioner to refer a person who is 18 years of age or younger to a children's specialty health care facility that can provide specialized diagnostic services, including genetic testing, unless the person is currently receiving care in such a facility, if the person has experienced any neurological or physical symptoms, including but not limited to seizures or missing developmental milestones. Requires a health carrier must provide coverage for genetic testing including up to a full genome panel as determined by the ordering practitioner to identify potential causes of seizures, neurological symptoms, or other physical symptoms as determined by the health care provider in persons who are 18 years of age or younger. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 876 }, { "id": "nhgri-f27be5a8973053bf02f8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2021 State Bills Washington 2021 HB1433", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=1433&Year=2021&Initiative=false", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Creates a charter of people's personal data rights. Establishes the rights of an individual with regard to personal information. Prohibits a person or legal entity processing captured personal information in a manner that discriminates against consumer on the basis of various characteristics, including predisposing genetic characteristics. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 877 }, { "id": "nhgri-142975383da5bb2e28ec", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "2021 State Bills Washington 2021 SB 5062", "primary_url": "https://app.leg.wa.gov/billsummary?BillNumber=5062&Initiative=false&Year=2021", "source_topics": [ "Privacy" ], "source_status": "Pending", "source_summary": "Prohibits a data controller from processing sensitive data concerning a consumer without obtaining the consumer's consent or, in the case of the processing of sensitive data of a known child, without obtaining consent from the child's parent or lawful guardian, in accordance with the children's online privacy protection act requirements. Data controllers must conduct and document a data protection assessment of processing activities involving personal data, including sensitive data such as genetic data. Carries over to 2022.", "base_status": "pending", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 878 }, { "id": "nhgri-4d51105b622cf7509340", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2021 State Bills West Virginia 2021 HB 2663", "primary_url": "https://www.wvlegislature.gov/Bill_Status/bills_history.cfm?INPUT=2663&year=2021&sessiontype=RS", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Died", "source_summary": "Requires health_insurance_coverage of a comprehensive ultrasound screening if a mammogram demonstrates heterogeneous or dense breast tissue if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman�s physician or advanced practice nurse. To House Banking and Insurance 02/23/21. Died.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 879 }, { "id": "nhgri-addef5dba0135dd3611c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2021 State Bills West Virginia 2021 HB 3159", "primary_url": "https://www.wvlegislature.gov/Bill_Status/bills_history.cfm?INPUT=3159&year=2021&sessiontype=RS", "source_topics": [ "Privacy" ], "source_status": "Died", "source_summary": "Requires a business that collects personal information about consumers to maintain an online privacy policy, make such policy available on its Internet website, and update the information at least once every 12 months. Personal information includes biometric information such as an individual's DNA. 3/15/2021 To House Judiciary. Died.", "base_status": "died", "mapped_topics": [ "genetic-privacy" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 880 }, { "id": "nhgri-3aae8547669a5df6edde", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "2021 State Bills West Virginia 2021 SB 567", "primary_url": "https://www.wvlegislature.gov/Bill_Status/bills_history.cfm?INPUT=567&year=2021&sessiontype=RS", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Died", "source_summary": "Requires health benefit plans to provide insurance to persons without regard to their health status. Prohibits insurers from using genetic information in decisions regarding premium, deductible, copay or coinsurance. 3/5/2021 To Senate Banking and Insurance Committee. Died.", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": 2021, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 881 }, { "id": "nhgri-26131b64c5aac46ea328", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB4142lv&SessionID=1…", "primary_url": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB4142lv&SessionID=112&GA=103&DocTypeID=HB&DocNum=4142&print=true", "source_topics": [ "Genetic discrimination" ], "source_status": "Introduced", "source_summary": "As Introduced: Amends the Genetic Information Privacy Act. Provides that an insurer may not seek information derived from genetic testing for use in connection with a policy of life insurance. Provides that an insurer may consider the results of genetic testing in connection with a policy of life insurance if the individual voluntarily submits the results and the results are favorable to the individual. Amends the Illinois Insurance Code. Provides that an insurer must comply with the provisions of the Genetic Information Privacy Act in connection with the amendment, delivery, issuance, or renewal of a life insurance policy; claims for or denial of coverage under a life insurance policy; or the determination of premiums or rates under a life insurance policy.", "base_status": "introduced", "mapped_topics": [ "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 882 }, { "id": "nhgri-0cce957cff8d2fc83479", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "https://www.nebraskalegislature.gov/FloorDocs/108/PDF/Slip/LB308.pdf", "primary_url": "https://www.nebraskalegislature.gov/FloorDocs/108/PDF/Slip/LB308.pdf", "source_topics": [ "Genetic discrimination" ], "source_status": "Approved", "source_summary": "Adopt the Genetic Information Privacy Act.", "base_status": "approved", "mapped_topics": [ "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 883 }, { "id": "nhgri-56b3b80cc205d092087b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "Arizona HB 2783", "primary_url": "https://www.azleg.gov/legtext/56leg/1R/bills/HB2783P.htm", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "Cancer screening; coverage; gene mutation.", "base_status": "introduced", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 884 }, { "id": "nhgri-8acc2dba285a82390829", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "California SB 625", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240SB625", "source_topics": [ "Neonatal sequencing" ], "source_status": "Pending", "source_summary": "Newborn screening: genetic diseases: blood samples collected.", "base_status": "pending", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 885 }, { "id": "nhgri-ec6246533fc9a291580b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240…", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240SB625", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "SB 625 would make changes to the California Newborn Screening Program.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 886 }, { "id": "nhgri-50f18562db2098c0a1b5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "Florida SB 1548", "primary_url": "http://www.flsenate.gov/Session/Bill/2023/1548/BillText/e1/HTML", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "Children?s Medical Services Program; Deleting a requirement that the Department of Health consult with the Department of Education before prescribing certain newborn testing and screening requirement...", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 887 }, { "id": "nhgri-1303f0deda9e19937725", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "Georgia SB 135", "primary_url": "https://www.legis.ga.gov/api/legislation/document/20232024/219042", "source_topics": [ "Genetic Data & Law Enforcement" ], "source_status": "Enacted", "source_summary": "Relating to determination of paternity, so as to align evidentiary medical and genetic testing with the Uniform Parentage Act of 2017.", "base_status": "enacted", "mapped_topics": [ "law-enforcement" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 888 }, { "id": "nhgri-8c72bd2100236b380cd3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "Hawaii HB 384", "primary_url": "https://www.capitol.hawaii.gov/sessions/session2023/bills/HB384_SD1_.htm", "source_topics": [ "Parentage law" ], "source_status": "Passed Senate", "source_summary": "Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. effective 3/22/2075.", "base_status": "passed-senate", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 889 }, { "id": "nhgri-ec0ab2de2436c63d20be", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "Hawaii SB 484", "primary_url": "https://www.capitol.hawaii.gov/sessions/session2023/bills/SB484_.htm", "source_topics": [ "Parentage law" ], "source_status": "Introduced", "source_summary": "Relating to parentage. Enacts portions of the uniform parentage act of 2017 to replace the uniform parentage act of 1973. takes effect 1/1/2024.", "base_status": "introduced", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 890 }, { "id": "nhgri-d4c2295397c7070cbd17", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "http://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1024lv&SessionID=11…", "primary_url": "http://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1024lv&SessionID=112&GA=103&DocTypeID=HB&DocNum=1024&print=true", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "As Introduced: Creates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Public Health to establish a grant program for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; and (2) make available grants to groups and organizations that meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be given to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas with a higher population of sickle cell disease patients. Requires the Department to determine the maximum amount available for each grant; determine policies for the expiration and renewal of grants; require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease; and develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to specified persons and institutions. Permits the Department to contract with an entity to implement the outreach program. Requires the Department to adopt rules. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Provides that implementation of the Act is subject to appropriation. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 891 }, { "id": "nhgri-c27b8f6c8748a82fed73", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1436lv&SessionID=1…", "primary_url": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1436lv&SessionID=112&GA=103&DocTypeID=HB&DocNum=1436&print=true", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "As Introduced: Amends Cannabis Regulation and Tax Act. Creates the Cannabis Equity and Oversight Commission. Provides that the Commission shall administer and enforce the provisions of the Act relating to the oversight, licensing, registration, and certification of dispensing organizations, cultivation centers, craft growers, infuser organizations, transporting organizations, laboratories, and agents, including, but not limited to, the issuance of identification cards and establishing limits on the potency or serving size of cannabis or cannabis products. Provides that the Commission may suspend or revoke the license of, or impose other penalties upon, dispensing organizations, cultivation centers, craft growers, infuser organizations, transporting organizations, laboratories, and their principal officers, agents-in-charge, and agents for violations of the Act or any rules adopted under the Act. Makes conforming changes throughout various Acts. Contains other provisions. Effective July 1, 2023.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 892 }, { "id": "nhgri-48523399280034c46e1a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "https://www.revisor.mn.gov/bills/text.php?number=HF1520&type=bill&version=2&ses…", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=HF1520&type=bill&version=2&session=ls93&session_year=2023&session_number=0", "source_topics": [ "Lab Developed Tests" ], "source_status": "Died", "source_summary": "Direct-to-consumer genetic testing companies required to provide disclosure notices and obtain consent.", "base_status": "died", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 893 }, { "id": "nhgri-755fcf323a02ccf8951a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2178lv&SessionID=1…", "primary_url": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2178lv&SessionID=112&GA=103&DocTypeID=HB&DocNum=2178&print=true", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "As Introduced: Restores the statutes to the form in which they existed before their amendment by Public Act 102-662. Repeals the Energy Transition Act, the Energy Community Reinvestment Act, the Community Energy, Climate, and Jobs Planning Act, and the Illinois Clean Energy Jobs and Justice Fund Act. Effective immediately.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 894 }, { "id": "nhgri-17f1cb07e8797ae4890f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2605lv&SessionID=1…", "primary_url": "https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2605lv&SessionID=112&GA=103&DocTypeID=HB&DocNum=2605&print=true", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "As Introduced: Repeals the Firearm Owners Identification Card Act. Amends various Acts to make conforming changes. Effective immediately.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 895 }, { "id": "nhgri-60b317c8f3343fb65154", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "https://www.revisor.mn.gov/bills/text.php?number=HF4571&type=bill&version=1&ses…", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=HF4571&type=bill&version=1&session=ls93&session_year=2024&session_number=0", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Died", "source_summary": "Health and human services supplemental budget bill.", "base_status": "died", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 896 }, { "id": "nhgri-7c21c5e5ad1466077f2e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "https://www.legis.ga.gov/api/legislation/document/20232024/215369", "primary_url": "https://www.legis.ga.gov/api/legislation/document/20232024/215369", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "Relating to medical assistance generally, so as to provide for Medicaid coverage of rapid whole genome sequencing; to define a term; to provide for eligibility criteria; to provide for coverage criteria; to provide for necessary approvals and administrative actions.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 897 }, { "id": "nhgri-7c21c5e5ad1466077f2e-2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "https://www.legis.ga.gov/api/legislation/document/20232024/215369", "primary_url": "https://www.legis.ga.gov/api/legislation/document/20232024/215369", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "Relating to medical assistance generally, so as to provide for Medicaid coverage of rapid whole genome sequencing; to define a term; to provide for eligibility criteria; to provide for coverage criteria; to provide for necessary approvals and administrative actions.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 898 }, { "id": "nhgri-67ac82b5ac7e7a5686cb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "Kansas HB 2409", "primary_url": "http://www.kslegislature.org/li/b2023_24/measures/documents/hb2409_00_0000.pdf", "source_topics": [ "Genetic Data & Law Enforcement", "Parentage law" ], "source_status": "Introduced", "source_summary": "Enacting the Kansas uniform parentage act (2017).", "base_status": "introduced", "mapped_topics": [ "law-enforcement" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 899 }, { "id": "nhgri-903cbf844c3e4c78e278", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "Kansas SB 139", "primary_url": "http://www.kslegislature.org/li/b2023_24/measures/documents/sb139_00_0000.pdf", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "Expanding newborn screening services and increasing transfer from the medical assistance fee fund to the Kansas newborn screening fund.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 900 }, { "id": "nhgri-dd3ffd36db27f73e3a9d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "Louisiana SB 104", "primary_url": "http://www.legis.la.gov/legis/ViewDocument.aspx?d=1332542", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Enacted", "source_summary": "Provides for health_insurance_coverage of genetic testing for diseases and other medical conditions.", "base_status": "enacted", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 901 }, { "id": "nhgri-e765d156c4bd20dc2972", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "Maryland SB 212", "primary_url": "https://mgaleg.maryland.gov/2023RS/bills/sb/sb0212F.pdf", "source_topics": [ "Coverage and reimbursement", "Genetic discrimination" ], "source_status": "Died", "source_summary": "Prohibiting carriers that offer life insurance, long-term care insurance, and disability insurance policies or contracts from taking certain action regarding coverage based on whether an applicant or...", "base_status": "died", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 902 }, { "id": "nhgri-d6a9906eee5e823202f3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "Massachusetts HB 181", "primary_url": "https://malegislature.gov/Bills/193/H181/House/Bill/Text", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "An Act relative to early intervention services for children with prenatal exposure to opioids.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 903 }, { "id": "nhgri-117ce42acccbc8cfbf80", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "Massachusetts HD 1", "primary_url": "https://malegislature.gov/Bills/193/H1.pdf", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund...", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 904 }, { "id": "nhgri-260cfe755ee1f49b20d5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "Massachusetts HD 777", "primary_url": "https://malegislature.gov/Bills/193/H181/House/Bill/Text", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "An Act relative to early intervention services for children with prenatal exposure to opioids.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 905 }, { "id": "nhgri-ddb7eb42a4fbb1b0b395", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "Massachusetts SB 2400", "primary_url": "https://malegislature.gov/Bills/193/S2400/Senate/Bill/Text", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "An Act making appropriations for the fiscal year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund...", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 906 }, { "id": "nhgri-35a76cc9f89bc08f2c04", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "Minnesota HB 1520", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=HF1520&type=bill&version=2&session=ls93&session_year=2023&session_number=0", "source_topics": [ "Lab Developed Tests" ], "source_status": "Pending", "source_summary": "Direct-to-consumer genetic testing companies required to provide disclosure notices and obtain consent.", "base_status": "pending", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 907 }, { "id": "nhgri-72ec5d04f60494cac2c8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "Minnesota SB 1138", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=SF1138&version=latest&session=ls93&session_year=2023&session_number=0", "source_topics": [ "Genetic data storage/privacy/sharing (industry)", "Lab Developed Tests" ], "source_status": "Introduced", "source_summary": "Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent.", "base_status": "introduced", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 908 }, { "id": "nhgri-04bfd52a5f667a78e572", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "Montana HB 682", "primary_url": "http://leg.mt.gov/bills/2023/sesslaws/ch0287.pdf", "source_topics": [ "Neonatal sequencing" ], "source_status": "Approved", "source_summary": "Revise laws related to collection of genetic material for newborn screenings.", "base_status": "approved", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 909 }, { "id": "nhgri-660fb253be9e7fa69d7b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "New Hampshire SB 240", "primary_url": "http://gencourt.state.nh.us/bill_status/legacy/bs2016/billText.aspx?sy=2023&id=1000&txtFormat=html", "source_topics": [ "Genetic data storage/privacy/sharing (medicine)" ], "source_status": "Approved", "source_summary": "Relative to conditions for genetic testing.", "base_status": "approved", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 910 }, { "id": "nhgri-f48ca05a7208a8611dee", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "New Jersey AB 4206", "primary_url": "https://www.njleg.state.nj.us/Bills/2022/A4500/4206_I1.HTM", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy.", "base_status": "introduced", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 911 }, { "id": "nhgri-abc3efb97d10158956c8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "New Jersey AB 5473", "primary_url": "https://www.njleg.state.nj.us/Bills/2022/A5500/5473_I1.HTM", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "Requires health insurers to cover additional mammogram examinations and genetic testing and counseling under certain circumstances.", "base_status": "introduced", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 912 }, { "id": "nhgri-07cbb7a007b9642f1bfe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "New Jersey SB 2542", "primary_url": "https://www.njleg.state.nj.us/Bills/2022/S3000/2542_I1.HTM", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "Requires health_insurance_coverage of preimplantation genetic testing with in vitro fertilization under certain conditions.", "base_status": "introduced", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 913 }, { "id": "nhgri-0aa016d7b42725f1a8d3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "New Jersey SB 2987", "primary_url": "https://www.njleg.state.nj.us/Bills/2022/S3000/2987_I1.HTM", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "Requires health_insurance_coverage of prenatal genetic test during first trimester of pregnancy.", "base_status": "introduced", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 914 }, { "id": "nhgri-d2ce39f9110c3812ff03", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Pennsylvania", "source_record_label": "Pennsylvania HB 350", "primary_url": "http://www.legis.state.pa.us/cfdocs/legis/PN/Public/btCheck.cfm?txtType=PDF&sessYr=2023&sessInd=0&billBody=H&billTyp=B&billNbr=0350&pn=0313", "source_topics": [ "Genetic Data & Law Enforcement" ], "source_status": "Introduced", "source_summary": "An Act amending Title 23 (Domestic Relations) of the Pennsylvania Consolidated Statutes, adding provisions relating to establishment of parent-child relationship for certain individuals; providing fo...", "base_status": "introduced", "mapped_topics": [ "law-enforcement" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 915 }, { "id": "nhgri-f558b2caca69130888c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Pennsylvania", "source_record_label": "Pennsylvania SB 8", "primary_url": "https://www.legis.state.pa.us/WU01/LI/LI/US/HTM/2023/0/0001..HTM?6=", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Approved", "source_summary": "An Act amending the act of May 17, 1921 (P.L.682, No.284), known as The Insurance Company Law of 1921, in casualty insurance, further providing for coverage for mammographic examinations and diagnost...", "base_status": "approved", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 916 }, { "id": "nhgri-63a54e75f2d8249eec1c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "Rhode Island HB 5351", "primary_url": "http://webserver.rilin.state.ri.us/BillText23/HouseText23/H5351.htm", "source_topics": [ "Consumer Personal Data Privacy", "Coverage and reimbursement" ], "source_status": "Introduced", "source_summary": "An act relating to insurance -- accident and sickness insurance policies (mandates insurance policies, provides coverage to diagnose & treat infertility for women between 25 & 42 years, including pre...", "base_status": "introduced", "mapped_topics": [ "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 917 }, { "id": "nhgri-bcb2a9b36351121702db", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "Rhode Island SB 107", "primary_url": "http://webserver.rilin.state.ri.us/BillText23/SenateText23/S0107.htm", "source_topics": [ "Coverage and reimbursement" ], "source_status": "Passed Senate", "source_summary": "An act relating to insurance -- accident and sickness insurance policies (mandates all insurance contracts/plans/policies provide coverage for the expense of diagnosing/treating infertility for women...", "base_status": "passed-senate", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 918 }, { "id": "nhgri-346cec99aec8ebf45439", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "https://www.revisor.mn.gov/bills/text.php?number=SF1138&version=latest&session=…", "primary_url": "https://www.revisor.mn.gov/bills/text.php?number=SF1138&version=latest&session=ls93&session_year=2023&session_number=0", "source_topics": [ "Genetic data storage/privacy/sharing (industry)", "Lab Developed Tests" ], "source_status": "Died", "source_summary": "Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent.", "base_status": "died", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 919 }, { "id": "nhgri-368bdbc0ae49e1b427ee", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "http://data.capitol.hawaii.gov/sessions/session2024/bills/SB1471_.htm", "primary_url": "http://data.capitol.hawaii.gov/sessions/session2024/bills/SB1471_.htm", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 920 }, { "id": "nhgri-754b81128b4c24c3e3fe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "A BILL FOR AN ACT", "primary_url": "https://data.capitol.hawaii.gov/sessions/session2024/bills/SB1471_.htm", "source_topics": [ "Genetic data storage/privacy/sharing (medicine)", "Neonatal sequencing" ], "source_status": "Died", "source_summary": "Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means.", "base_status": "died", "mapped_topics": [ "data-sharing", "genetic-privacy", "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 921 }, { "id": "nhgri-ec6246533fc9a291580b-2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240…", "primary_url": "https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240SB625", "source_topics": [ "Neonatal sequencing" ], "source_status": "Died", "source_summary": "SB 625 would make changes to the California Newborn Screening Program.", "base_status": "died", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 922 }, { "id": "nhgri-2a0524013b1941105328", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "State StatuteAlabama: Code of Ala. 27-5-13", "primary_url": "http://alisondb.legislature.state.al.us/alison/codeofalabama/1975/coatoc.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health and disability insurers may not deny applicants insurance coverage because of a diagnosis of sickle cell anemia.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 923 }, { "id": "nhgri-7c2d18827cc5507af324", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alabama", "source_record_label": "State StatuteAlabama: Code of Ala. 27-53-1 et seq.", "primary_url": "http://alisondb.legislature.state.al.us/alison/codeofalabama/1975/coatoc.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health benefit plans, including the Alabama Medicaid Agency, may not require a genetic test to determine if a person has a predisposition to cancer as a condition of insurability or use the results of such a test to determine insurability or discriminate with respect to rates or benefits. The statutes set forth penalties for insurance companies or health maintenance organizations that violate the law.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 924 }, { "id": "nhgri-97fc348a2d0177fd12c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "State StatuteAlaska: AS 18.13.010 et seq.", "primary_url": "http://www.legis.state.ak.us/basis/folio.asp", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "This statute provides protections for the privacy of DNA samples and the results of DNA analysis. DNA samples and the results of DNA analysis are the exclusive property of the person sampled or analyzed. Samples collected and analyses conducted for the DNA registry, law enforcement purposes, paternity testing, newborn screening, and emergency medical treatment are exempt. The statute sets forth civi and criminal penalties for violations of the law.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 925 }, { "id": "nhgri-6ebd398f84f863950405", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "State StatuteAlaska: AS 21.36.480", "primary_url": "http://www.legis.state.ak.us/basis/folio.asp", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health care insurers offering individual or group plans must comply with the genetic information nondiscrimination requirements established under 42 USC 300gg-53, or 42 U.S.C. 300gg-1(b)(3), 42 U.S.C. 300gg-1(c) - (f), and 42 U.S.C. 300gg-91, respectively.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 926 }, { "id": "nhgri-d537ce45ca35f6f580f6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Alaska", "source_record_label": "State StatuteAlaska: AS 21.54.100 et seq.", "primary_url": "http://www.legis.state.ak.us/basis/folio.asp", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health care insurers in the group market may not establish rules for eligibility or continued eligibility based on genetic information or impose preexisting condition exclusions based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 927 }, { "id": "nhgri-232b250131cc178d791b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 1-602", "primary_url": "http://www.azleg.gov/viewdocument/?docName=http%3A//www.azleg.gov/ars/1/00601.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Parents must consent in writing before any record of the minor child's blood or deoxyribonucleic acid is created, stored or shared, with some exceptions such as newborn screening.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 928 }, { "id": "nhgri-87f16d3fd789f7716ee7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 12-2801 et seq.", "primary_url": "http://www.azleg.gov/viewdocument/?docName=http%3A//www.azleg.gov/ars/12/02801.htm", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Information derived from genetic testing my only be released to the person tested or others with written authorization from the person tested with some exceptions, including but not limited to (1) a researcher for medical research and public health purposes, only if the research is conducted pursuant to applicable federal or state laws and regulations, (2) if the identity of the individual providing the sample is not disclosed to the person collecting and conducting research; or (3) a third person if approved by a human subjects review committee or human ethics committee, with respect to persons who are subject to a state cancer registry. The law also places restrictions on disclosure or compelling disclosure, requires consent from a parent or legal guardian of a minor to conduct genetic testing other than newborn screening, and requires written informed consent for genetic testing by health care providers with some exceptions.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 929 }, { "id": "nhgri-e3c75cc2016b6da09f4f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 20-1051 et seq.", "primary_url": "http://www.azleg.gov/viewdocument/?docName=http%3A//www.azleg.gov/ars/20/01051.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health care services organization may not cancel an enrollee's evidence of coverage issued on a group basis because of criteria specified in the statutes, including such health status-related factors. Genetic information is a health status-related factor.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 930 }, { "id": "nhgri-fb11baadcf747adc6b7d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 20-1379", "primary_url": "http://www.azleg.gov/viewDocument/?docName=http%3A//www.azleg.gov/ars/20/01379.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Genetic information is a health status-related factor that may not be used as the basis for denial of coverage or as the basis for a pre-existing condition exclusion in the absence of a diagnosis in the individual health insurance market.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 931 }, { "id": "nhgri-49fb79ef20d45136b88a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 20-2301 et seq.", "primary_url": "http://www.azleg.gov/viewDocument/?docName=http%3A//www.azleg.gov/ars/20/02301.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Accountable health plans may not (1) deny, limit or condition coverage or benefits based on health status-related factors, including genetic information or (2) impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 932 }, { "id": "nhgri-780649f6df08da87591b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 20-448", "primary_url": "http://www.azleg.gov/viewDocument/?docName=http%3A//www.azleg.gov/ars/20/00448.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Life and disability insurers (disability insurance is defined in the statutes to include health insurers) may not refuse to consider an application on the basis of a genetic condition. Information about a genetic condition may not be used for underwriting or ratemaking of life and disability insurance policies unless supported by the applicant\u0019s medical condition, medical history and either claims experience or actuarial projections. In the case of disability insurance the use of information about a genetic condition for underwriting or ratemaking purposes constitutes unfair discrimination in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 933 }, { "id": "nhgri-c303a199029fc85a8d6d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 20-448.02", "primary_url": "http://www.azleg.gov/viewDocument/?docName=http%3A//www.azleg.gov/ars/20/00448-02.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "A person may not order or require the performance of a genetic test without written informed consent. Genetic test results may not be disclosed without the express consent of the subject of the test or the person authorized to consent for that person.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 934 }, { "id": "nhgri-830957389369a24c3cc7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arizona", "source_record_label": "State StatuteArizona: ARS 41-1463", "primary_url": "http://www.azleg.gov/viewdocument/?docName=http%3A//www.azleg.gov/ars/41/01463.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers may not discriminate against an individual based on genetic test results, notwithstanding professionally developed ability tests that are not designed to discriminate because of race, color, religion, sex or national origin.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 935 }, { "id": "nhgri-4fdecabb3de7d0870386", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 4-110-100 et seq.", "primary_url": "http://www.arkleg.state.ar.us/assembly/2019/2019R/Acts/Act1030.pdf", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Provides for the protection of personal information maintained by businesses, including biometric information. Biometric information is defined to include DNA.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 936 }, { "id": "nhgri-12100f1b1e1426abd4c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 11-5-401 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/arcode/Default.asp", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers may not seek to obtain, use or require a genetic test or genetic information to distinguish between or discriminate against persons applicants or employees. Criminal and civil penalties are set forth for violations.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 937 }, { "id": "nhgri-1c0ddd800fb4d2de568b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 20-35-101 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/arcode/Default.asp", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "No individual records of subjects in genetic research studies approved by an institutional review board or conducted subject to the requirements of the federal common rule may be subpoenaed or subject to discovery in civil suits except in cases where the information in the records is the basis of the suit. These records may not be disclosed to an insurer or employer without the informed written consent of the subject. Stored tissues, including blood, that arise from surgery or other diagnostic and therapeutic steps may be disclosed for genetic or other research studies if the patient\u0019s name or social security number is not attached to or included with the specimen. Identifying information may be disclosed with the informed written consent of the individual. Published results may not identify a subject unless the individual has provided specific informed consent.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 938 }, { "id": "nhgri-71eeeeb277427412b9f8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 23-66-320", "primary_url": "http://www.lexisnexis.com/hottopics/arcode/Default.asp", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Insurers except those offering life, disability income and long-term care plans may not request or require an individual or family member to obtain a genetic test for the purpose of determining eligibility, establishing premiums, limiting, renewing or terminating coverage, or another other underwriting activity or condition a policy on an individual taking a genetic test.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 939 }, { "id": "nhgri-e0ca70d0f41d37da13a3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 23-79-140", "primary_url": "http://www.arkleg.state.ar.us/assembly/2017/2017R/Acts/Act708.pdf", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Accident and health insurance companies, hospital service corporations, health maintenance organizations, or other accident and health insurance providers must offer coverage, as an essential health benefit, for mammogram screening, mammography and breast ultrasound for the diagnosis of breast disease. Coverage is required upon the recommendation of a physician without regard to age when a woman has (1) a prior history of breast cancer, (2) her mother or sister has a history of breast cancer, (3) positive genetic testing, or (4) other risk factors.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 940 }, { "id": "nhgri-de583800fa73d36e0424", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Arkansas", "source_record_label": "State StatuteArkansas: Ark. Code 23-86-304 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/arcode/Default.asp", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Preexisting condition exclusions may not be based on genetic information in the absence of a diagnosis. Insurers issuing group health plans may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 941 }, { "id": "nhgri-db5c0c1ed0bb129d7402", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Business and Professions Code 22949.50 et seq.", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=BPC&division=8.&title=&part=&chapter=37.&article=", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Prohibits the sale of a gene therapy kit unless the seller includes a notice on the seller�s internet website to the consumer prior to the point of sale and on a label on the package stating that the kit is not for self-administration.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 942 }, { "id": "nhgri-10fde58802fa8a225c63", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 1102.6g", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displaySection.xhtml?lawCode=CIV§ionNum=1102.6g.", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Prohibits any person or other entity whose business includes performing appraisals of residential real property from discriminating against any person in making available those services, or in the performance of those services, because of various characteristics, including genetic information. Requires every contract for the sale of real property to contain a notice regarding improper or illegal considerations such as genetic information in appraisal of property.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 943 }, { "id": "nhgri-0efaa7560d01630600ca", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 1798.100 et seq.", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=CIV&division=3.&title=1.81.5.&part=4.&chapter=&article=", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Grants consumers the right to request a business to disclose the categories and specific pieces of personal information that it collects about the consumer; the categories of sources from which that information is collected; the business purposes for collecting or selling the information; and the categories of 3rd parties with which the information is shared. Biometric information, which is defined to include DNA, is considered personal information. On or before January 1, 2020, the Attorney General must solicit broad public participation to adopt regulations to further the requirements set forth in the law.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 944 }, { "id": "nhgri-bb4676ca18995fa649c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 1798.29, 1798.81.5 and 1798.82", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displayexpandedbranch.xhtml?tocCode=CIV&division=3.&title=&part=&chapter=&article=&nodetreepath=8", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Protects the privacy and security of computerized data, including personal information, owned or licensed by an agency. Genetic data is defined as any data that results from the analysis of a biological sample of an individual, or from another source enabling equivalent information to be obtained, and concerns genetic material. Genetic material includes, but is not limited to, deoxyribonucleic acids (DNA), ribonucleic acids (RNA), genes, chromosomes, alleles, genomes, alterations or modifications to DNA or RNA, single nucleotide polymorphisms (SNPs), uninterpreted data that results from analysis of the biological sample or other source, and any information extrapolated, derived, or inferred therefrom.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 945 }, { "id": "nhgri-17b1ba42540db2283899", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 51", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displaySection.xhtml?lawCode=CIV§ionNum=51", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "This statute was amended as part of 2011 CA SB 559, referred to as CalGINA, by adding genetic information to the list of characteristics addressed in the Unruh Civil Rights Act. All people in California are considered free and equal, and no matter what their sex, race, color, religion, ancestry, national origin, disability, medical condition, genetic information, marital status, sexual orientation, citizenship, primary language, or immigration status are entitled to the full and equal accommodations, advantages, facilities, privileges, or services in all business establishments of every kind whatsoever.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 946 }, { "id": "nhgri-381f25b12f5d67e554c0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 56.17", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displaySection.xhtml?lawCode=CIV§ionNum=56.17.", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "A person who negligently or willfully discloses genetic test results in an individual\u0019s medical records who is applying for or enrolled in a health care service plan, except with written authorization in the format specified, is subject to fines as set forth in the statutes.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 947 }, { "id": "nhgri-1462fa5eee583c737014", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 56.18 et seq.", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=CIV&division=1.&title=&part=2.6.&chapter=2.6.&article=", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Creates the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to do the following: (1) provide clear and complete information regarding the company�s policies and procedures for the collection, use, maintenance, and disclosure of genetic data; and (2) obtain a consumer�s express consent for collection, use, and disclosure of the consumer�s genetic data including, at a minimum, separate and express consent for each circumstance specified. Genetic data is defined as any data, regardless of its format, that results from the analysis of a biological sample from a consumer, or from another element enabling equivalent information to be obtained, and concerns genetic material. Genetic material includes, but is not limited to, deoxyribonucleic acids (DNA), ribonucleic acids (RNA), genes, chromosomes, alleles, genomes, alterations or modifications to DNA or RNA, single nucleotide polymorphisms (SNPs), uninterpreted data that results from the analysis of the biological sample, and any information extrapolated, derived, or inferred therefrom. Genetic data does not include deidentified data or data or a biological sample that is collected, used, maintained, and disclosed exclusively for scientific research conducted by an investigator with an institution that holds an assurance with the United States Department of Health and Human Services pursuant to Part 46 (commencing with Section 46.101) of Title 45 of the Code of Federal Regulations, in compliance with all applicable federal and state laws and regulations for the protection of human subjects in research.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 948 }, { "id": "nhgri-fc44a47e570b32e56284", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Civil Code 56.265", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displaySection.xhtml?lawCode=CIV§ionNum=56.265.", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A person who underwrites or sells an annuity contract or contracts insuring, guaranteeing, or indemnifying against loss, harm, damage, illness, disability, or death, and any affiliate of that person or entity, shall not disclose individually identifiable information concerning the medical or genetic history of a customer for use with regard to granting credit.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 949 }, { "id": "nhgri-f11bca8602a5d0fb6c89", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Government Code 12920 et seq.and 11135", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "These statute sections contain provisions from 2011 CA SB 559, referred to as CalGINA. The opportunity to seek, obtain, and hold employment without discrimination because of genetic information, is recognized as a civil right. It is an unlawful employment practice, unless based on a bonafide occupational qualification, to subject any employee, applicant or other person to a test for the presence of a genetic characteristic. In addition, a person in the State of California may not, on the basis of genetic information, be unlawfully denied full and equal access to the benefits of, or be unlawfully subjected to discrimination under, any program or activity that is conducted, operated, or administered by the state or by any state agency, is funded directly by the state, or receives any financial assistance from the state.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 950 }, { "id": "nhgri-b5fb0c10514d175276ad", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 124975 et seq.", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=HSC&division=106.&title=&part=5.&chapter=1.&article=1.", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "All testing results and personal information from hereditary disorders programs obtained from any individual, or from specimens from any individual, is confidential and is considered a confidential medical record except for information that the individual, parent, or guardian consents to be released, provided after being fully informed of the scope of the information requested to be released, of all of the risks, benefits, and purposes for the release, and of the identity of those to whom the information will be released or made available, except for data compiled without reference to the identity of any individual, and except for research purposes, provided that pursuant to the Common Rule The research must first be reviewed and approved by an IRB. The health department, any entities approved by the department, and researchers must maintain the confidentiality of patient information and blood samples in the same manner as other medical record information with patient identification and may use it only for approved research to (1) identify risk factors for children's and women's diseases;(2) research to develop and evaluate screening tests;(3) research to develop and evaluate prevention strategies; and (4) research to develop and evaluate treatments. The State Committee for the Protection of Human Subjects (CPHS) must determine if all of the if specified criteria are met for purposes of ensuring the security of a donor's personal information, before any blood samples are released pursuant for research purposes.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 951 }, { "id": "nhgri-980ad99ffc63d664ad43", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 24170 et seq.", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=HSC&division=20.&title=&part=&chapter=1.3.&article=", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "Provides for the protection of human subjects participating in medical experiments. Enacts the Experimental Subject's Bill of Rights, which details informed consent requirements.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 952 }, { "id": "nhgri-af56803ec519a7008d02", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 130200 et seq.", "primary_url": "https://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=HSC&division=109.&title=&part=&chapter=&article=", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Establishes the Center for Data Insights and Innovation within the California Health and Human Services Agency, and transfer the duties of the Office of Health Information Integrity and the Office of Patient Advocate to the center. Requires the center to: (1) assume responsibility for administering the State Committee for the Protection of Human Subjects; (2) keep all personal information obtained by the center confidential, as specified; and (3) meet various requirements with regard to the disclosure of information, including the development of a comprehensive program regarding the disclosure of information to qualified researchers according to specified data use agreements.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 953 }, { "id": "nhgri-05087de06753091b6297", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 1357.503 et seq., Insuranc…", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Authorizes an association of employers to offer a large group health care service plan contract or large group health insurance policy to small group employer members of the association consistent with federal Employee Retirement Income Security Act of 1974, if certain requirements are met. A policy or contract that covers a small employer, as defined in subsection (b) of Section 1304 of PPACA and in Section 1357.500 of the California Health and Safety Code, may not establish rules for eligibility, including continued eligibility, of an individual, or dependent of an individual, to enroll under the terms of the policy or contract based on any of the following health status-related factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 954 }, { "id": "nhgri-13060d7af12dba857113", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 1358.24, and Insurance Cod…", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An issuer of a Medicare supplement contract must adhere to the requirements imposed by the federal Genetic Information Nondiscrimination Act of 2008 (Public Law 110-233).", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 955 }, { "id": "nhgri-d3ed112a36d8c1458ce0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 1374.7, Insurance Code 101…", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health care service plans, self-insured employee welfare benefit plans, and multiple employer welfare arrangements may not refuse to enroll any person, refuse to accept or renew a subscriber, charge a higher rate, or offer different terms, conditions or benefits on the basis of genetic characteristics that may be associated with disability in that person or that person\u0019s offspring. A plan may not seek information about genetic characteristics for non-therapeutic purposes. Specific penalties are set forth for violations by self-insured employee welfare benefit plans and multiple employer welfare arrangements.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 956 }, { "id": "nhgri-94b76d706a68e8b49d4e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Health and Safety Code 1399.804, and Insurance Co…", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health care service plans and carriers, agents or brokers offering health benefit plans to individuals or solicitors may not encourage or direct federally eligible defined individuals to refrain from an application for coverage because of genetic information. Plans, agents or brokers may not enter into any contract, agreement or arrangement with a solicitor that provides for or results in the compensation paid to a solicitor for the sale of a health care service plan contract or health benefit plan design to be varied because of genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 957 }, { "id": "nhgri-d017152d1f3c0d1c0a71", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Ins. Code 10950 et seq. and Health and Safety Co…", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes.xhtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "The statutes require carriers and health care service plans offering plan contracts in the individual market, other than individual grandfathered plan coverage, to offer to the responsible party for a child coverage for the child that does not exclude or limit coverage due to any preexisting condition of the child. A health care service plan may not condition the issuance or offering of individual coverage on certain factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 958 }, { "id": "nhgri-dfb8cefb78ebe29af414", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Insurance Code 10140 et seq.", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=INS&division=2.&title=&part=2.&chapter=1.&article=2.5.", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Disability insurers covering hospital, medical and surgical expenses may not fail or refuse to accept an application, fail or refuse to issue insurance, cancel or refuse to renew insurance, charge a higher rate or premium, offer or provide different terms, conditions or benefits, or place a limitation on coverage based on genetic characteristics that may be associated with disability in a person of that person\u0019s offspring. These insurers also may not seek information about a person\u0019s genetic characteristics for non-therapeutic purposes. Specific penalties are set forth for violations. Life and disability insurers may not discriminate based solely on the fact that the person to be insured carries a gene that may be associated with disability in that person or the person\u0019s offspring, but which causes no adverse effects in the carrier, including but not limited to Tay-Sachs trait, sickle cell trait, thalassemia trait, and X-linked hemophilia trait.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 959 }, { "id": "nhgri-a48d9f1411a5d9e242d8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "California", "source_record_label": "State StatuteCalifornia: Cal. Insurance Code 10146 et seq.", "primary_url": "http://leginfo.legislature.ca.gov/faces/codes_displayText.xhtml?lawCode=INS&division=2.&title=&part=2.&chapter=1.&article=2.6.", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Tests for genetic characteristics may not be required to determine insurability for life and disability income insurance except for policies contingent on review or testing for other diseases and conditions and only with informed consent. Policies may only limit benefits otherwise payable if loss is caused or contributed to by the presence or absence of genetic characteristics if the insurer imposes limitations for other medical conditions that present an increased risk. A life or disability income insurer may not request a genetic test to determine eligibility for hospital, medical or surgical insurance coverage or coverage under a nonprofit hospital service or health care service plan. The statutes set forth civil and criminal penalties for violations.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 960 }, { "id": "nhgri-8814945ea51767cdb6c2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "State StatuteColorado: CRS 10-16-02", "primary_url": "http://www.lexisnexis.com/hottopics/Colorado/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health-status related factor is defined to include genetic information in Title 10 Article 16, which pertains to health care coverage.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 961 }, { "id": "nhgri-83161f0bfc4e7c1b7a3c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "State StatuteColorado: CRS 10-16-102 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/Colorado/", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "The law requires breast cancer screening with mammography annually for persons with a predisposition to breast cancer.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 962 }, { "id": "nhgri-7a44a77bb29a28f0d132", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "State StatuteColorado: CRS 10-3-1104.6", "primary_url": "http://www.lexisnexis.com/hottopics/Colorado/", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Genetic information the property of the individual, and written consent is required for its disclosure other than for diagnosis, treatment or therapy. Health care entities may not retain or use genetic information for non-therapeutic purposes or request or require a genetic test; however, test results may be used on a limited basis to make payment decisions. Exceptions under the law include the use of genetic information for scientific research if the identity of the individual to whom the genetic information pertains is not disclosed to a third party other than the individual\u0019s physician with written consent. The law provides remedies for individuals whose rights are violated.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 963 }, { "id": "nhgri-2b8d9da72985fd5fb048", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "State StatuteColorado: CRS 10-3-1104.7", "primary_url": "http://www.lexisnexis.com/hottopics/Colorado/", "source_topics": [ "Other Lines of Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Genetic information is the property of the individual to whom it pertains. Release of genetic information that identifies the person tested for purposes other than diagnosis, treatment and therapy requires specific written consent. Exemptions under the law include some uses by research facilities. researchers may use genetic testing information for scientific research as long as the identity of any individual to whom the information pertains is not disclosed to any third party except that the individual\u0019s identity may be disclosed to the individual\u0019s physician with written consent. Group disability or long-term care insurers that receive genetic information may not seek, use or keep the information for any non-therapeutic or underwriting purpose. Life insurers and individual disability insurers may not perform a genetic test without informed consent. Penalties are set forth for unfair trade practices with respect to group disability and long-term care insurance.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 964 }, { "id": "nhgri-f4033a39ff1fb7dfee44", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Colorado", "source_record_label": "State StatuteColorado: CRS 6-23-101 et seq.", "primary_url": "http://leg.colorado.gov/sites/default/files/documents/2017A/bills/sl/2017a_sl_151.pdf", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Prohibits direct primary health care providers from discriminating in the selection of patients on the basis of genetic information and other protected classes.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 965 }, { "id": "nhgri-996b27aa4968018fe0ed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut CGA 19a 53", "primary_url": "https://www.cga.ct.gov/2017/ACT/pa/pdf/2017PA-00146-R00HB-07222-PA.pdf", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "The Health Commissioner must review and approve research proposals to be conducted using personally identifiable information in the newborn screening system or requiring contact with affected individuals.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 966 }, { "id": "nhgri-ef6fa36e19e57c1a2926", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut CGA 38a 503 et seq.", "primary_url": "https://www.cga.ct.gov/current/pub/chap_700c.htm", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "The statute provides coverage of specified services for women who meet the age requirements set forth in the statute. If a woman is believed to be at increased risk for breast cancer due to 1) family history or prior personal history of breast cancer or 2) positive genetic testing or other indications as determined by a woman's physician advanced practice registered nurse, individual and group health insurers must provide a mammogram, which may be provided by breast tomosynthesis at the option of the woman covered under the policy, and comprehensive ultrasound screening of an entire breast or breasts. Ultrasound screening is provided only if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 967 }, { "id": "nhgri-851d5223b2b175904099", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut: CGA 38 1 et seq.", "primary_url": "https://www.cga.ct.gov/2021/act/pa/pdf/2021PA-00137-R00SB-00841-PA.pdf", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits insurers, health care centers and fraternal benefit societies from, in connection with the issuance, withholding, extension or renewal of an annuity or an insurance policy for life, credit life, disability, long-term care, accidental injury, specified disease, hospital indemnity or credit accident insurance: (1) requesting, requiring, purchasing or using information obtained from an entity providing direct-to-consumer genetic testing without the informed written consent of the individual who has been tested; (2) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on a requirement or agreement that the individual undergo genetic testing; and (3) conditioning insurance rates, the provision or renewal of insurance coverage or benefit or other conditions of insurance for an individual on the results of any genetic testing of a member of the individual's family unless the results are contained in the individual's medical record.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 968 }, { "id": "nhgri-82c0d2eada94a95eff93", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut: CGA 38a 476 and 816", "primary_url": "https://www.cga.ct.gov/current/pub/title_38a.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Any hospital and medical expense incurred policy, hospital or medical service plan contract and health care center subscriber contract providing individual or group health_insurance_coverage may not refuse to insure, continue to insure, limit coverage, or charge an individual a different rate because of genetic information. In this type of coverage and all health insurance plans pre-existing condition exclusions may not be based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 969 }, { "id": "nhgri-c7598698ddb15d547ac2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut: CGA 38a 999", "primary_url": "http://www.cga.ct.gov/current/pub/chap_705.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "An insurance institution, agent or insurance support organization that collects, uses or discloses medical record information must have written policies, standards and procedures for the management, transfer and security of medical record information, including additional protection against unauthorized disclosure of sensitive health information such as information regarding genetic testing and the fact that an individual has undergone a genetic test.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 970 }, { "id": "nhgri-011aad4236a720ab9a91", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Connecticut", "source_record_label": "State StatuteConnecticut: CGA 46a 60", "primary_url": "http://www.cga.ct.gov/current/pub/chap_814c.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is a discriminatory practice for an employer, an employment agency, or for any labor organization to request or require genetic information from an employee, a person seeking employment or a member. These entities may not discharge, expel or otherwise discriminate against any person on the basis of genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 971 }, { "id": "nhgri-e5d60d09f7ee8a35f7eb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "District of Columbia", "source_record_label": "State StatuteDC Official Code 2-1401.01 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/dccode/", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers, employment agencies and labor organizations may not discriminate based on genetic information with some exceptions such as to investigate a workers' compensation claim. A health benefit plan or health insurer may not establish rules for the eligibility or adjust premium or contribution amounts for an individual on the basis of genetic information concerning the individual or his/her family member, including information about a request for or receipt of genetic services by an individual or the individual's family member. Health insurers also may not require or request a genetic test.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 972 }, { "id": "nhgri-462e2431ccfcbc284281", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "State StatuteDelaware: Del. Code 16 1201 et seq.", "primary_url": "http://delcode.delaware.gov/title16/c012/sc01/index.shtml", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Informed consent is required to obtain or retain genetic information about an individual. Exemptions include anonymous research where the identity of the subject will not be released. A sample from which genetic information has been obtained must be promptly destroyed with certain exceptions, including retention for anonymous research. An individual may inspect, request correction of and obtain genetic information from the records of that individual. The law sets forth civil penalties for violations.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 973 }, { "id": "nhgri-c3deb54040a18608e2e3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "State StatuteDelaware: Del. Code 18 2317", "primary_url": "http://delcode.delaware.gov/title18/c023/index.shtml", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Discrimination is prohibited in the issuance, denial or renewal of or in the fixing of the rates, terms or conditions for health insurance, excluding disability or long-term care insurance. The law provides for a cause of action in the nature of defamation, invasion of privacy or negligence with some exceptions.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 974 }, { "id": "nhgri-e9e94ba73f7f216ece86", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "State StatuteDelaware: Del. Code 18 3571M, 3572, 3602, 3611, and 7202", "primary_url": "http://delcode.delaware.gov/title18/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health status-related factor is defined to include genetic information with respect to large group health plans, individual health plans and small employer health insurance. Group health insurers may not establish rules for eligibility of an individual to enroll based on a health status related factor. Individual health insurers may not establish rules for eligibility of an individual to enroll under the terms of the coverage based on a health status-related factor.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 975 }, { "id": "nhgri-8eb934a91c1d4ec82be7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "State StatuteDelaware: Del. Code 19 710 et seq.", "primary_url": "http://delcode.delaware.gov/title19/c007/sc02/index.shtml", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers, employment agencies, labor organization or joint labor-management committee controlling apprenticeships or other training may not discriminate based on genetic information. These entities may admit or employ any individual on the basis of genetic information in those certain instances where genetic information is a bona fide occupational qualification reasonably necessary to the normal operation of that particular business or enterprise. Enforcement provisions, processes for civil action by the Attorney General or charging party, judicial remedies and civil penalties are established.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 976 }, { "id": "nhgri-b4d8b4d49b30b2855713", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Delaware", "source_record_label": "State StatuteDelaware: Del. Code 801C", "primary_url": "http://delcode.delaware.gov/title16/c008c/index.shtml", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Prohibits research utilizing stored blood specimens or the stored data without parental consent, except for population-based studies in which all identifying information is removed. Parents may elect not to participate in blood spot storage.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 977 }, { "id": "nhgri-667f76c6e22f18848638", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida FS 1014.01 et seq.", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&URL=1000-1099/1014/1014ContentsIndex.html&StatuteYear=2021&Title=-%3E2021-%3EChapter%201014", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Creates the Parents' Bill of Rights. Parental rights include the right to consent in writing before any record of his or her minor child's blood or deoxyribonucleic acid (DNA) is created, stored, or shared, except as required by general law or authorized pursuant to a court order.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 978 }, { "id": "nhgri-8054bfaf0e4b507500c3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida FS 627.4301 et seq.", "primary_url": "https://www.myfloridahouse.gov/Sections/Documents/loaddoc.aspx?FileName=_h1189er.docx&DocumentType=Bill&BillNumber=1189&Session=2020", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits life, long-term care, or disability income insurers from: (1) canceling, limiting or denying coverage, or establishing differentials in premium rates, based on genetic information in the absence of a diagnosis; (2) requiring or soliciting genetic information, using genetic test results, or considering a person's actions related to genetic testing for any insurance purpose.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 979 }, { "id": "nhgri-dfdb63b3c4685de6464d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida FS 817.5655", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0800-0899/0817/Sections/0817.5655.html", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Prohibits a person to from willfully, and without express consent: (1) collecting or retaining another person's DNA sample with the intent to perform DNA analysis; (2) submitting another person's DNA sample for analysis or conducting or procuring the conduct of another person's DNA analysis; (3) disclosing another person's DNA analysis result to a third party; and (4) selling or otherwise transferring another person's DNA sample or the results of another person's DNA analysis to third party, regardless of whether the DNA sample was originally collected, retained, or analyzed with express consent. The bill provides exemptions for certain activities such as research subject to, and conducted in compliance with, 45 C.F.R. part 46, 21 C.F.R. parts 50 and 56, or 45 C.F.R. parts 160 and 164.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 980 }, { "id": "nhgri-124ea5211c220dd9b886", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 448.075 et seq.", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0400-0499/0448/Sections/0448.075.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "No person, firm, corporation, unincorporated association, state agency, unit of local government, or any public or private entity shall deny or refuse employment to any person or discharge any person from employment solely because such person has the sickle-cell trait. These entities also may not require screening or testing for the sickle-cell trait as a condition for employment.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 981 }, { "id": "nhgri-f90a84b18776a03067d7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 626.9706 et seq.", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0600-0699/0626/Sections/0626.9706.html", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Insurers may not refuse to issue or deliver any policy of life insurance or disability insurance that affords certain services and benefits or impose a higher premium rate or charge for those policies solely because the person to be insured has the sickle-cell trait.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 982 }, { "id": "nhgri-2874d5c1cc1626574b36", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 627.4301, 636.0201, and 641.438", "primary_url": "http://www.leg.state.fl.us/STATUTES/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Insurers offering health insurance, a self-insured plan, a multiple employer welfare arrangement, a prepaid limited health service organization, a health maintenance organization, a prepaid health clinic, a fraternal benefit society or any health care arrangement where risk is assumed may not cancel, limit, or deny coverage or establish differentials in premium rates based on genetic information in the absence of a diagnosis. Health insurers may not require or solicit genetic information, use genetic test results, or consider a person's decisions or actions relating to genetic testing for any insurance purpose.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 983 }, { "id": "nhgri-66692e450d4b22069515", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 627.6561 et seq.", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0600-0699/0627/Sections/0627.6561.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer that offers a group health insurance policy may not establish rules for eligibility or continued eligibility based on certain health status-related factors, including genetic information or use genetic information in the absence of a diagnosis as the basis for a pre-existing condition exclusion.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 984 }, { "id": "nhgri-296171f9401f30d51a89", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 641.31071 et seq.", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0600-0699/0641/Sections/0641.31071.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health care service programs may not treat genetic information as a preexisting condition in the absence of a diagnosis. A health maintenance organization that offers group health_insurance_coverage may not establish rules for eligibility or continued eligibility of an individual to enroll under the terms of the contract based on certain health status-related factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 985 }, { "id": "nhgri-1908b48752439a7c50af", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Florida", "source_record_label": "State StatuteFlorida: FS 760.40", "primary_url": "http://www.leg.state.fl.us/statutes/index.cfm?App_mode=Display_Statute&Search_String=&URL=0700-0799/0760/Sections/0760.40.html", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Informed consent is required to perform DNA analysis. The results of DNA analysis, whether held by a public or private entity, are the exclusive property of the person tested, are confidential, and may not be disclosed without express consent. A person who performs DNA analysis or receives records, results, or findings of DNA analysis must provide the person tested with notice that the analysis was performed or that the information was received.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 986 }, { "id": "nhgri-0258031355c2b1564d12", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "State StatuteGeorgia: OCGA 33-54-1 et seq.", "primary_url": "http://www.legis.ga.gov/en-US/default.aspx", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Genetic information is the property of the individual tested. Prior written authorization is required for genetic testing and release of results to anyone other than the person tested. A fraternal benefit society, a nonprofit medical service corporation, a health care corporation, a health maintenance corporation, or a self-insured health plan not subject to the exclusive jurisdiction of ERISA may not seek information derived from genetic testing, and if it is received, the information may not be used for any nontherapeutic purpose or be released without explicit written consent. Exceptions include scientific research facilities, which may conduct genetic testing and use information derived from testing for scientific research if the identity of any individual tested is not disclosed to any third party, except to an individual's physician with consent.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 987 }, { "id": "nhgri-6ea6fa99e6e4d5a446a2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Georgia", "source_record_label": "State StatuteGeorgia: OCGA 45-18-4.1", "primary_url": "https://www.legis.ga.gov/legislation/58146", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires the state employees' health insurance and benefit plan to cover mammograms and breast imaging for individuals at high risk for breast cancer. Individuals at high risk include those with a known BRCA 1 or 2 mutation based on genetic testing or with a first degree relative with known mutation.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 988 }, { "id": "nhgri-3d1083deb7099f901db5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "State StatuteHawaii: HRS 378-1 et seq.", "primary_url": "http://www.capitol.hawaii.gov/hrscurrent/Vol07_Ch0346-0398/HRS0378/HRS_0378-0001.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers may not discriminate against any individual because of being regarded as having an impairment, which includes employer consideration of (1) an individual's genetic information, (2) genetic information of any family member of an individual, or (3) the individual's refusal to submit to a genetic test as a condition of initial or continued employment. The statutes also contain provisions pertaining to employment agencies and labor organizations.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 989 }, { "id": "nhgri-5d42cc3f57fdea642ad9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Hawaii", "source_record_label": "State StatuteHawaii: HRS 431:10A-118, 431:10A-404.5, 432:1-607, 432:2-404.5, an…", "primary_url": "http://www.capitol.hawaii.gov/", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "No insurer providing accident and health or sickness insurance coverage or extended health_insurance_coverage, mutual benefit society, fraternal benefit society, or health maintenance organization may use an individual's or a family member's genetic information or a request for genetic services to (1) deny or limit any coverage or (2) establish eligibility, continuation, enrollment, or premium payment. These entities may not request or require collection or disclosure of genetic information of an individual or family member or disclose genetic information without written consent.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 990 }, { "id": "nhgri-6d6733d12e5040da0ed1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "State StatuteIdaho: IC 39-8301 et seq.", "primary_url": "https://legislature.idaho.gov/statutesrules/idstat/Title39/T39CH83/", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "An employer may not (1) access or otherwise take into account private genetic information, (2) request or require consent to a release of private genetic information, (3) request or require a genetic test, or (4) inquire about taking or refusal to take a genetic test in connection with a hiring, promotion, retention or other related decision. An exception is made under certain circumstances for an order compelling disclosure of private genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 991 }, { "id": "nhgri-7979f2304a12713f1017", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "State StatuteIdaho: IC 41-1313", "primary_url": "https://legislature.idaho.gov/statutesrules/idstat/Title41/T41CH13/SECT41-1313/", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "With respect to disability insurance or any health benefit plan, no person may discriminate on the basis of a genetic test or private genetic information in the issuance of coverage or the fixing of rates, terms or conditions.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 992 }, { "id": "nhgri-beefcde73b7657e2b566", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "State StatuteIdaho: IC 41-2221, 41-3940, and 41-4708", "primary_url": "https://legislature.idaho.gov/statutesrules/idstat/title41/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "General managed care plans and health benefit plans covering large and small employers may not treat genetic information in the absence of a diagnosis as a pre-existing condition.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 993 }, { "id": "nhgri-5effbd966eaea02ab4b8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Idaho", "source_record_label": "State StatuteIdaho: IC 72-438", "primary_url": "https://legislature.idaho.gov/statutesrules/idstat/Title72/T72CH4/SECT72-438/", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "If a firefighter is diagnosed with breast cancer after five years of employment, and the disease was not revealed during an initial employment medical screening examination, then the disease is presumed to be proximately caused by the firefighter's employment as a firefighter. The presumption applies to breast cancer diagnosed before the age of forty (40) years and when a breast cancer 1 or breast cancer 2 genetic predisposition is not present.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 994 }, { "id": "nhgri-012c3c54d8d51bd9ed5b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "State StatuteIllinois: 215 ILCS 5/356g, 215 ILCS 125/4-6, 305 ILCS 5/5-5", "primary_url": "http://www.ilga.gov/legislation/ilcs/ilcs.asp", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Individual and group health insurers, health maintenance organizations and the Illinois Department of Healthcare and Family Services (for eligible individuals) must provide coverage for a mammogram and a screening MRI at the age and intervals considered medically necessary by the woman's health care provider for women under 40 years of age and having a family history of breast cancer, prior personal history of breast cancer, positive genetic testing, or other risk factors. Coverage for a comprehensive ultrasound screening of an entire breast or breasts also is required if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data System established by the American College of Radiology or if the woman is at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing, or other indications as determined by a woman's health care provider.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 995 }, { "id": "nhgri-bf3451de9a9353ab99f3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "State StatuteIllinois: 215 ILCS 5/356v", "primary_url": "http://www.ilga.gov/legislation/ilcs/ilcs4.asp?DocName=021500050HArt.%20XX&ActID=1249&ChapterID=22&SeqStart=94000000&SeqEnd=106400000", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer must comply with the provisions of the Genetic Information privacy Act in connection with the amendment, delivery, issuance, or renewal of, or claims for or denial of coverage under, an individual or group policy of accident and health insurance. Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis of the condition under the Illinois Health Insurance Portability and Accountability Act.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 996 }, { "id": "nhgri-81069cc236f443fc97fc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "State StatuteIllinois: 215 ILCS 5/356z.43", "primary_url": "https://www.ilga.gov/legislation/publicacts/fulltext.asp?Name=102-0589", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Provides that an individual or group policy of accident and health insurance or managed care plan that is amended, delivered, issued, or renewed on or after the effective date of the amendatory Act must provide coverage for medically necessary comprehensive cancer testing and testing of blood or constitutional tissue for cancer predisposition testing as determined by a physician. Comprehensive cancer testing includes, but is not limited to, the following forms of testing: (1) targeted cancer gene panels; (2) whole-exome genome testing; (3) whole genome testing; (4) RNA sequencing; and (5) tumor mutation burden.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 997 }, { "id": "nhgri-37afe6834411da1a1e72", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "State StatuteIllinois: 215 ILCS 97/20 and 97/25", "primary_url": "http://www.ilga.gov/legislation/ilcs/ilcs3.asp?ActID=1252&ChapterID=22", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A group health plan and a health insurance issuer offering group health_insurance_coverage may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis or establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 998 }, { "id": "nhgri-8b6855559350e28f803e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Illinois", "source_record_label": "State StatuteIllinois: 410 ILCS 513/1 et seq.", "primary_url": "http://www.ilga.gov/legislation/ilcs/ilcs3.asp?ActID=1567&ChapterID=35", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "Genetic information may only be released to the individual tested and to other authorized persons with a few exceptions. An insurer may not seek information derived from genetic testing for use in connection with a policy of accident and health insurance, and an insurer that receives this information may not use it for non-therapeutic purposes unless the favorable results of a genetic test are voluntarily submitted. An employer, employment agency, labor organization, and licensing agency must treat genetic testing and genetic information in a manner that is consistent with federal law, including but not limited to the Genetic Information Nondiscrimination Act of 2008. Prohibited actions by employers, employment agencies and labor organizations are specified. No person may disclose the identity of any person upon whom a genetic test is performed or the results of a genetic test in a manner that permits identification of the subject of the test with some exceptions. A company providing direct-to-consumer genetic testing must obtain consent from the individual tested to share genetic information with any health or life insurance company.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 999 }, { "id": "nhgri-dc5a39e8913a34fdb423", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "State StatuteIndiana: IC 16-41-17-10", "primary_url": "http://iga.in.gov/legislative/laws/2016/ic/titles/016/articles/041/chapters/017/", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "The state health department must develop a system for using, for epidemiological survey and research purposes, any waste blood specimen left over after newborn screening. Waste blood specimens used for the purpose of epidemiological survey may not include the name or other identifying characteristics that would identify the individual submitting the specimen.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1000 }, { "id": "nhgri-3f04a5824d7c6696f65b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "State StatuteIndiana: IC 16-39-5-2", "primary_url": "http://iga.in.gov/legislative/laws/2016/ic/titles/016/articles/039/chapters/005/", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer (except a life insurance company) may not obtain genetic screening or testing results without a separate written consent from an individual, but these entities are not liable for inadvertent receipt of results without consent.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1001 }, { "id": "nhgri-cc434cbd7a4598d982ee", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Indiana", "source_record_label": "State StatuteIndiana: IC 27-4-1-4 and 27-8-26-1 et seq.", "primary_url": "http://iga.in.gov/legislative/laws/2016/ic/titles/027/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Every accident and sickness policy, contract through which an HMO furnishes health care, government self-insured health care plan, and employee welfare benefit plan may not (1) require a genetic screening or testing; (2) consider screening or testing information in a manner adverse to member, applicant or their family members; (3) inquire about genetic screening or test results, use or base a decision on such information to cancel, refuse to issue, renew or enter into a contract, limit benefits, or charge higher premiums under health care services coverage; or (4) make an adverse decision about applicants or their family based genetic testing or screening results in medical records or other reports. An insurer may consider voluntarily submitted genetic test results if they are favorable. A violation of the law is an unfair method of competition deceptive act and practice in the business of insurance.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1002 }, { "id": "nhgri-c48808eddfdaf115c4b6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "State StatuteIowa: IC 507B.4, 513B.9A and 513B.10", "primary_url": "https://www.legis.iowa.gov/law/iowaCode", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Health insurers may not discriminate based on genetic information or tests. Authorization is required to obtain genetic information or samples. Consent requirements are established to collect, retain, transmit or use genetic information. Exceptions under consent requirements include medical or scientific research and eduction and for use in medical repositories and registries if it does not contain personally identifiable information. Health insurers may not release genetic information without prior written authorization. Exceptions for release requirements include (1) if an individual is participating in research settings, including those governed by the federal policy for the protection of human subjects, and (2) tests conducted purely for research. A carrier or organized delivery system offering group health_insurance_coverage may not establish rules for eligibility or continued eligibility based on a health status-related factors, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1003 }, { "id": "nhgri-bfa3ea072674f880183b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "State StatuteIowa: IC 514J.101 et seq.", "primary_url": "https://www.legis.iowa.gov/docs/code/514J.pdf", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health carrier to notify a covered person of the right to request an external review and include appropriate statements and information in the written notice of a final adverse decision. Health carriers also must include with the notice an authorization form or other document developed by the state that complies with the federal Genetic Information Nondiscrimination Act.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1004 }, { "id": "nhgri-5f681a0ed641bd90f6bc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Iowa", "source_record_label": "State StatuteIowa: IC 729.6", "primary_url": "https://www.legis.iowa.gov/docs/code/729.pdf", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer, employment agency, labor organization, licensing agency, or its employees, agents, or members may not solicit, require or administer a genetic test as a condition of employment, application, membership or licensure or affect the terms, conditions, or privileges of employment, application, membership, or licensure, of a person who obtains a genetic test. A person may not sell or interpret genetic tests for the above entities except with informed written consent for the purpose of worker\u0019s compensation or biomonitoring of workplace toxins. Agreements between parties regarding pay or benefit for taking a genetic test are prohibited. The law may be enforced through civil action.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1005 }, { "id": "nhgri-24332bd480302ef768dd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "State StatuteKansas: KSA 40-2209, 40-2209p, 40-2257, and 40-2259", "primary_url": "http://www.kslegislature.org/li/b2013_14/statute/040_000_0000_chapter/040_022_0000_article/", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "The statutes restrict the use of genetic tests, information about whether an individual or family member has obtained a genetic test, and test results by a health insurance company, health maintenance organization, nonprofit medical and hospital, dental, optometric or pharmacy corporation, or a group subject to K.S.A. 12-2616 et seq. offering group policies and certificates of coverage or individual policies providing hospital, medical or surgical expense benefits. These entities may not require any individual, as a condition of enrollment or continued enrollment, higher premiums or contributions or than a similarly situated individual based on a genetic test or adjust premium or contribution amounts based on a genetic test. An accident or sickness insurer may not deny coverage based on a health status-related factors, including genetic information, and group policies providing hospital, medical or surgical expense benefits may not impose pre-existing condition exclusions based on genetic information in the absence of a diagnosis. The use of such information by an insurer writing life insurance, disability income insurance or long-term care insurance coverage also is restricted unless it is for the purpose of writing life insurance coverage. Life, disability income or long-term care insurers also may not provide for rates or any other aspect of coverage that is not reasonably related to the risk involved.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1006 }, { "id": "nhgri-0fb51caa428ebc895b87", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "State StatuteKansas: KSA 44-1002 and 44-1009", "primary_url": "http://www.kslegislature.org/li/b2013_14/statute/044_000_0000_chapter/044_011_0000_article/", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not (1) seek to obtain, obtain or use genetic screening or testing information of an employee or a prospective employee to discriminate against an employee or a prospective employee or (2) subject any employee or prospective employee to any genetic screening or test.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1007 }, { "id": "nhgri-8d3aae19f99174d57ec3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kansas", "source_record_label": "State StatuteKansas: KSA 72-6214", "primary_url": "http://www.kslegislature.org/li/b2013_14/statute/072_000_0000_chapter/072_062_0000_article/072_062_0014_section/072_062_0014_k/", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Prohibits school districts from collecting biometric data from a student, including a DNA sequence, unless the student, if an adult, or the parent or legal guardian of the student, if a minor, consents in writing.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1008 }, { "id": "nhgri-d339ab26e90c310e0ca1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "State StatuteKentucky: KRS 304.12-085", "primary_url": "https://apps.legislature.ky.gov/law/statutes/statute.aspx?id=17019", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "Individual or group health benefit plan or insurers may not (1) deny, cancel, or refuse to renew the benefits or coverage, or vary the premiums, terms, or conditions for the benefits or coverage, for any participant or beneficiary based on a genetic test for which symptoms have not manifested or a request or receipt of genetic services or (2) disclose any genetic test without prior authorization for each disclosure. A group or individual health benefit plan or insurer or a disability income insurer may not request or require the disclosure of any genetic test about a participant or beneficiary without prior written authorization for each disclosure.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1009 }, { "id": "nhgri-bd6bc60675bdb2be40cd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "State StatuteKentucky: KRS 304.17A-200 et seq.", "primary_url": "https://apps.legislature.ky.gov/law/statutes/statute.aspx?id=17393", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer that offers health benefit plan coverage in the small group, large group, or association market may not establish rules for eligibility based on health status-related factors, including genetic information. Health insurers offering individual health benefit plan coverage may not impose a pre-existing conditions exclusion based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1010 }, { "id": "nhgri-e1c5215af03f3eca0c0a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "State StatuteKentucky: KRS 304.17A-259", "primary_url": "https://apps.legislature.ky.gov/law/statutes/statute.aspx?id=49487", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires health benefit plans to cover any genetic test for cancer risk recommended by a physician, physician's assistant, genetic counselor or nurse if the recommendation is consistent with genetic testing guidelines of the National Comprehensive Cancer Network.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1011 }, { "id": "nhgri-8b8511819fb827dadd2a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Kentucky", "source_record_label": "State StatuteKentucky: KRS 61.931 et seq.", "primary_url": "https://apps.legislature.ky.gov/law/statutes/statute.aspx?id=49487", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Public agencies and nonaffiliated third parties must implement, maintain, and update security procedures and practices to safeguard personal information, including a biometric or genetic print.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1012 }, { "id": "nhgri-bed338dbb69c21be2925", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:1023, 40:2210, and 22: 1097", "primary_url": "http://www.legis.la.gov/legis/Laws_Toc.aspx?folder=75&level=Parent", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "The statutes prohibit discrimination based on genetic information of an individual or family member or the request or receipt of genetic services by a hospital, health, or medical expense insurance policy, hospital or medical service contract, employee welfare benefit plan, health and accident insurance policy, preferred provide organization or any other insurance contract of this type. Other restrictions also are placed on these entities with respect to genetic information and testing. An insurer offering individual or group health_insurance_coverage may request a genetic test if the request is made in compliance with the Common Rule and other specified criteria are met. Exceptions under the law include anonymous research where the identity of the subjects will not be released. An insured or enrollee\u0019s genetic information is the property of the individual to whom it pertains and may not be retained without authorization with some exceptions. Civil penalties for violations are set forth.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1013 }, { "id": "nhgri-12a4798e70793712a5e8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:1028.1", "primary_url": "https://legis.la.gov/Legis/Law.aspx?d=1148103", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires health plans to cover the cost of the genetic testing of the BRCA1 and BRCA2 genes to detect an increased risk for breast and ovarian cancer when recommended by a healthcare provider in accordance with the United States Preventive Services Task Force recommendations.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1014 }, { "id": "nhgri-ca59bee32c3fc7c9ef8e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:1054.1", "primary_url": "https://legis.la.gov/legis/ViewDocument.aspx?d=1182000", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires coverage of cancer treatment targeting a specific genetic mutation. Prohibits a health coverage plan from denying coverage for the treatment of a metastatic or unresectable tumor with a medically necessary drug on the sole basis that the drug is not indicated for the location in the body of the patient's cancer, if the drug is FDA approved for the treatment of the specific mutation of the patient's cancer. Requires health_insurance_coverage for annual MRI at age 25 and annual mammography at age 30 for women with a hereditary susceptibility to breast cancer based on pathogenic mutation carrier status.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1015 }, { "id": "nhgri-0208ef0c128e47b9afba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:1061 and1063", "primary_url": "https://www.legis.la.gov/Legis/Law.aspx?d=507892", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A group health plan, and a health insurance issuer offering group health_insurance_coverage may not use genetic information in the absence of a diagnosis as the basis for a pre-existing condition exclusion or establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1016 }, { "id": "nhgri-e4b28ad06ac25c8c87cf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:1964", "primary_url": "http://legis.la.gov/Legis/Law.aspx?d=509078", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unfair method of competition and deceptive act and practice in the business of insurance to discriminate against an insured, enrollee, or beneficiary in the issuance, payment of benefits, withholding of coverage, cancellation or nonrenewal of a policy, contract, plan, or program based upon the results of a genetic test or receipt of genetic information. Actions of an insurer or third parties dealing with an insurer taken in the ordinary course of business in connection with the sale, issuance or administration of a life, disability income, or long-term care insurance policy are exempt from the law.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1017 }, { "id": "nhgri-e3e49d5599397d4a7f97", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 22:918", "primary_url": "https://legis.la.gov/legis/ViewDocument.aspx?d=1235323", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits life and long-term care insurers, in determining eligibility for coverage, establishing premiums, limiting coverage, or making any other underwriting decisions from doing the following: (1) taking into consideration the fact that an individual or a family member of the individual participated in genetic research, including any request for or receipt of genetic services or participation by an individual or family member in clinical research that includes genetic services, unless the results of that genetic research are included in the individual's medical record or provided by the individual for consideration by the insurer; or (2) requiring or requesting an individual or a family member of the individual to take a genetic test. Additionally prohibits life and long-term care insurers from canceling or refusing to renew an existing policy based on (1) the fact that an individual or a family member of the individual requested or received genetic services; (2) the fact that an individual or a family member of the individual participated in genetic research, including clinical research that includes genetic services; or (3) purchasing genetic information about an individual without the individual's written consent. Insures may consider genetic information contained in an applicant's medical record if the information is relevant to a potential medical condition that impacts mortality or morbidity, and consideration of the genetic information is based on sound actuarial principles or reasonably expected experience.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1018 }, { "id": "nhgri-72eb85789f51e0fa3f8e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Louisiana", "source_record_label": "State StatuteLouisiana: LRS 23:302, 23:352 and 23:368; LRS 51:2231 et seq.", "primary_url": "https://www.legis.la.gov/legis/lawsearch.aspx", "source_topics": [ "Employment Nondiscrimination", "Research" ], "source_status": "Statute", "source_summary": "An employer, labor organization, or employment agency may not (1) discriminate against any employee based on genetic information, (2) require, collect, purchase, or disclose genetic information or information about a request or receipt of genetic services with respect to an employee, or (3) maintain genetic information or information about a request for or the receipt of genetic services in general personnel files. Exceptions regarding disclosure include disclosure to an occupational or other health researcher if the research complies with Part 46 of Title 45 of the Code of Federal Regulations. Additional prohibitions apply to labor organizations with respect to membership and to employers, labor organizations and employment agencies with respect to training. Employers, employment agencies and labor organizations also may not discriminate because an individual has sickle cell trait.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1019 }, { "id": "nhgri-c77cfc8bc130397712c6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: 5 MRSA 7070", "primary_url": "http://legislature.maine.gov/statutes/5/title5sec7070.html", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Personal information, including genetic information, pertaining to state employees is confidential and not open to public inspection. An employee may examine records containing personal information when permitted or required by law.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1020 }, { "id": "nhgri-c712b7a6a09f71f70736", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 22 1711C", "primary_url": "http://www.mainelegislature.org/legis/statutes/22/title22sec1711-C.html", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "An individual's health care information, including information about individual cells or their components or genetic information, is confidential. Authorization is required to disclose this information other than to the individual by the health care practitioner or facility with some exceptions. The definition of health care information excludes information that protects the anonymity of the individual by means of encryption or encoding of individual identifiers or information pertaining to or derived from federally sponsored, authorized or regulated research governed by 21 Code of Federal Regulations, Parts 50 and 56 and 45 Code of Federal Regulations, Part 46, to the extent that such information is used in a manner that protects the identification of individuals.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1021 }, { "id": "nhgri-f51f7e5d197e865893cc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 24A 2159-C and 24A 6981", "primary_url": "http://www.mainelegislature.org/legis/statutes/24-A/title24-Ach0sec0.html", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Research" ], "source_status": "Statute", "source_summary": "A carrier that issues individual or group hospital, health or dental insurance and the Dirigo Health Self-administered Plan may not discriminate against an individual or eligible dependent on the basis of genetic information, the refusal to submit to a genetic test, refusal to make available the results of a genetic test, or based on the receipt of a genetic test or genetic counseling. A carrier may request, but not require, that an individual undergo a genetic test if the request is made pursuant to research that complies with the Common Rule and other specified criteria are met. Life, credit life, disability, long-term care, accidental injury, specified disease, hospital indemnity or credit accident insurers or an annuity may not (1) discriminate unfairly, which includes the use of genetic test results in a manner that is not reasonably related to anticipated claims experience, or (2) request, require, purchase or use information obtained from a direct-to-consumer genetic test without consent of the individual tested.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1022 }, { "id": "nhgri-72e665aa708202b13a02", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 24A 2204", "primary_url": "http://www.mainelegislature.org/legis/statutes/24-A/title24-Asec2204.html", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "The Insurance Information and privacy Protection Act defines health care information to include information about individual cells or their components or genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1023 }, { "id": "nhgri-13ccf99307e0a648a5cc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 24A 2850 and 24A 2850-C", "primary_url": "http://www.mainelegislature.org/legis/statutes/24-A/title24-Ach36sec0.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An individual, group and blanket medical insurance contract subject to chapters 33 and 35 of Title 24A (with some exceptions) may not impose pre-existing condition exclusions based on genetic information in the absence of a diagnosis. Group medical insurance contracts subject to chapter 35 of Title 24A (with some exceptions) may not establish rules for eligibility of an individual to enroll or require an individual to pay a premium or contribution that is greater than that for a similarly situated individual, based on genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1024 }, { "id": "nhgri-b581f982f022430f71b3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 26 3205", "primary_url": "http://www.mainelegislature.org/legis/bills/getPDF.asp?paper=SP0037&item=1&snum=130", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Conforms the Maine Apprenticeship Program to the Federal Equal Employment Opportunity Act of 1972. Requires a posting of statement that the apprentice will be accorded equal opportunity in all phases of apprenticeship employment and training, without discrimination because of various factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1025 }, { "id": "nhgri-7fe99b008748f2abcf25", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maine", "source_record_label": "State StatuteMaine: MRS 5 19301 and 19302", "primary_url": "http://www.mainelegislature.org/legis/statutes/5/title5ch503sec0.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not fail or refuse to hire, discharge or otherwise discriminate against an employee or applicant for employment because of the individual's refusal to submit to a genetic test or refusal to provide the results of a genetic test, or based on the receipt of a genetic test or genetic counseling, except when based on a bona fide occupational qualification. The Maine Human Rights Commission has authority to enforce this provision.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1026 }, { "id": "nhgri-e4a4927787c7c4bded6f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Commercial Code 14-3501 et seq.", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gcl§ion=14-3501&enactments=false", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "The law requires businesses to establish certain protections when using personal information. Personal information is defined to include an individual's genetic print.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1027 }, { "id": "nhgri-f741d32440e282e3b7ef", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Criminal Procedure 17-101 et seq.", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/Laws/Statutes", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Establishes requirements for the use of genetic genealogical DNA analysis for criminal justice purposes.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1028 }, { "id": "nhgri-3c09146bbdad6c1ecf0d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Health 17�215", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/laws/StatuteText?article=ghg§ion=17-215&enactments=False&archived=False", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1029 }, { "id": "nhgri-bcc9a6088e082770de0b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Health 19-214.1", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/laws/StatuteText?article=ghg§ion=19-214.1&enactments=true", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Prohibits a hospital from withholding financial assistance or from denying a patient's application for financial assistance based on genetic information.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1030 }, { "id": "nhgri-fceb4041f2f40230f141", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Health Code 13-2001 et seq.", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=ghg§ion=13-2001&enactments=false", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "The law prohibits research using a human subject unless the person conducts the research in accordance with the federal regulations on the protection of human subjects.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1031 }, { "id": "nhgri-1e552210e83dd1ceae35", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Insurance Code 15-1A-06 ,15-1201, 15-1301 and 15-1401", "primary_url": "http://mgaleg.maryland.gov/webmga/frmStatutes.aspx?pid=statpage&tab=subject5", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits health insurers, health maintenance organizations, nonprofit health insurance plan or any person or organization that provides health benefits plans from excluding or limiting certain benefits or denying certain coverage based on a health-status related factor, including genetic information. Health status-related factors also may not be used to (1) cancel or refuse to renew a small employer group plan or individual health plans; (2) establish rules for eligibility; or (3) charge higher premiums than similarly situated individuals in a group health plan.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1032 }, { "id": "nhgri-65df1f6dccc81115212b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Insurance Code 15-509", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gin§ion=15-509&enactments=false", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Insurers, nonprofit health service plans and health maintenance organizations, may seek verification from health care providers that offer wellness programs about health factors that make it unreasonably difficult or medically inadvisable for an individual to satisfy or attempt to satisfy an otherwise applicable standard to qualify for a reward of the wellness program. Health factors are defined to include genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1033 }, { "id": "nhgri-5e7c2f2054581eb238f5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Insurance Code 18-120", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gin§ion=18-120&enactments=false", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Long-term care insurers may not request or require a genetic test to deny or limit the amount, extent, or kind of coverage available; charge a different rate for the same coverage; or use a genetic test, the results of a genetic test, genetic information or a request for genetic services to deny or limit the amount, extent, or kind of coverage available or charge a different rate for the same insurance except that the results of a genetic test may be used for these purposes based on sound actuarial principles.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1034 }, { "id": "nhgri-c4d5fe167df49cfd7374", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Insurance Code 27-208", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gin§ion=27-208&enactments=false", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Unless there is actuarial justification, an insurer may not refuse to insure or make or allow a differential in ratings, premium payments, or dividends in connection with life insurance and annuity contracts because the applicant or policyholder has the sickle-cell trait, thalassemia-minor trait, hemoglobin C trait, Tay-Sachs trait, or a genetic trait that is harmless in itself.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1035 }, { "id": "nhgri-addd6d5aabaea204d7d9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. Insurance Code 27-909, and Md. Health-General Code 1…", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gin§ion=27-909&enactments=false", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "An insurer, nonprofit health service plan, or health maintenance organization, which does not include life insurance policies, annuity contracts, long-term care insurance policies, or disability insurance policies, may not (1) use a genetic test, the results of a genetic test, genetic information, or a request for genetic services to affect a health insurance policy or contract, (2) request or require a genetic test, the results of a genetic test, or genetic information for certain purposes, or (3) release identifiable genetic information or the results of a genetic test except for internal business and to a participating health care provider without prior written authorization. Disclosure of identifiable genetic information to an employee or authorized health care provider may only be for the purpose of providing medical care to patients or conducting research approved by an institutional review board established in accordance with federal law. The insurance commissioner has the authority to issue orders where a violation is found.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1036 }, { "id": "nhgri-022b412f6d82fb7d6d1a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. State Government Code 10-13A-01 et seq.", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/laws/StatuteText?article=gsg§ion=10-13A-01&enactments=true", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Requires the University of Maryland to develop and adopt an information security and risk management program for the protection of personally identifiable information. Personally identifiable information is defined to include biometric information such as an individual's DNA. Not effective until 10/1/2024.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1037 }, { "id": "nhgri-d50041edef6226a85c72", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Md. State Government Code 20-601 et seq.", "primary_url": "http://mgaleg.maryland.gov/mgawebsite/Laws/StatuteText?article=gsg§ion=20-601&enactments=false", "source_topics": [ "Employment Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "An employer may not (1) discriminate against any individual because of genetic information or because of an individuals refusal to submit to a genetic test or provide the results of a genetic test, (2) limit, segregate, or classify its employees or applicants because of genetic information or the individual's refusal to submit to a genetic test or provide the results of a genetic test, or (3) request or require a genetic test as a condition of hiring or determining benefits.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1038 }, { "id": "nhgri-56c6e0b986d20ae51dc7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Maryland", "source_record_label": "State StatuteMaryland: Public Utilities 17-401 et seq.", "primary_url": "https://mgaleg.maryland.gov/mgawebsite/laws/StatuteText?article=gpu§ion=17-402&enactments=true", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits the Washington Suburban Sanitary Commission from discriminating against a person on the basis of genetic information. Requires that contracts entered into by the Commission include a provision stating that contractors will not to discriminate in any manner against an employee or an applicant for employment based on a variety of factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1039 }, { "id": "nhgri-fcc8610d0c4024082de7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: Chapter 405 of the Acts of 2014", "primary_url": "https://malegislature.gov/Laws/SessionLaws/Acts/2014/Chapter405", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "Any public health surveillance activity which is also research is subject to the requirements for research using human subjects.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": 2014, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1040 }, { "id": "nhgri-00bff819bf5ba7b4980a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL 151B 1 et seq.", "primary_url": "https://malegislature.gov/Laws/GeneralLaws/PartI/TitleXXI/Chapter151B", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not discriminate against an individual in compensation or in terms, conditions or privileges of employment, unless based upon a bona fide occupational qualification, because of genetic information. The statutes include nondiscrimination provisions that apply to other entities, including but not limited to labor organizations and employment agencies. The Massachusetts Commission against discrimination investigates complaints of unfair discrimination based on genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1041 }, { "id": "nhgri-446507ce650103817844", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL 175 108H, 176A 3B, 176B 5B, 176G 24, 176I 4A", "primary_url": "http://www.malegislature.gov/Laws/GeneralLaws/Search", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health maintenance organization, company, insurance broker, medical service corporation, non-profit hospital service corporation or preferred provider organization may not cancel, refuse to issue or renew, or make any distinction or discrimination in the amount of payment of premium or rates charged, in the length of coverage or in any of the terms and conditions based on genetic information. These entities may not require genetic tests or private genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1042 }, { "id": "nhgri-ac23616f2c9cc20f6a60", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL 175 108I and 120 E", "primary_url": "https://malegislature.gov/Laws/GeneralLaws/PartI/TitleXXII/Chapter175", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer, agent or broker authorized to issue life insurance policies, policies against disability from injury or disease or policies for long-term care may not practice unfair discrimination because of the results of a genetic test or the provision of genetic information or require an applicant to undergo a genetic test as a condition of issuance or renewal of a policy. Unfair discrimination involves discriminatory practices against persons unless such action is based on reliable information relating to the insured\u0019s mortality or morbidity and based on sound actuarial principles or actual or reasonably anticipated claim experience. These insurers may ask if an applicant has taken a genetic test.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1043 }, { "id": "nhgri-03e4ed73f7f299dd2934", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL 176M 1 and 176J 1", "primary_url": "https://malegislature.gov/Laws/GeneralLaws/PartI", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis under the definitions for chapter 176M on nongroup health plans and 176J on small group health insurance.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1044 }, { "id": "nhgri-17f37d7199fda3f1ff24", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL 32A 25, 175 47AA, 176A 8DD, 176B 4DD, 176G 4V", "primary_url": "http://www.malegislature.gov/Laws/GeneralLaws/Search", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Individual accident and sickness policies, individual and group hospital service plans, the group insurance commissionplan for active and retired employees, and individual or group medical service agreement and health maintenance contract must provide benefits on a nondiscriminatory basis for diagnosis and treatment of autism. Diagnosis of autism spectrum disorders is defined to include genetic testing.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1045 }, { "id": "nhgri-1a147cdb842706be0055", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Massachusetts", "source_record_label": "State StatuteMassachusetts: MGL Public Health 111 70G", "primary_url": "https://malegislature.gov/Laws/GeneralLaws/PartI/TitleXVI/Chapter111/Section70G", "source_topics": [ "Other Lines of Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Genetic information contained in reports or records held by hospitals, laboratories, physicians, insurance institutions and others named in the statute may not be divulged without informed written consent with some exceptions, which include in connection with life, disability, and long term care insurance, as allowable, or as confidential research information for use in epidemiological or clinical research conducted for the purpose of generating scientific knowledge about genes or learning about the genetic basis of disease or for developing pharmaceutical and other treatments of disease. Additional provisions concerning the performance of genetic tests apply to laboratories and other facilities. Organizations conducting pharmoco-economic studies in systematic research to determine the cost benefits of specific treatment for genetic based disease are exempt from the need to re-obtain informed consent. A person whose rights have been violated may bring a civil action.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1046 }, { "id": "nhgri-6797421f17a8c04333ba", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 333.5431", "primary_url": "http://www.legislature.mi.gov/(S(jfrrgv45d0u1sq55vc2scd45))/mileg.aspx?page=getObject&objectName=mcl-333-5431", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "The statute requires the health department to develop a schedule for the retention and disposal of blood specimens. The schedule must allow for the blood specimens to be used for medical research during the established retention period, as long as the medical research is conducted in a manner that preserves the confidentiality of the test subjects and is consistent to protect human subjects from research risks under subpart A of part 46 of subchapter A of title 45 of the code of federal regulations.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1047 }, { "id": "nhgri-08e9ab0c261383ea942b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 500.2212c", "primary_url": "http://legislature.mi.gov/doc.aspx?mcl-500-2212c=", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "The law requires a workgroup to develop a standard prior written authorization methodology for prescribers. If the workgroup develops a paper form, it must allow an insurer to request and require additional information beyond the form. Additional information may include patient clinical information regarding genetic tests.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1048 }, { "id": "nhgri-ec9e73b5000ca9b210ff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 333.16221, 333.17020, and 333.17520", "primary_url": "http://www.legislature.mi.gov/(S(g5st2y55pdznpradnr10yc45))/mileg.aspx?page=home", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "A physician or individual to whom a physician has delegated authority must obtain informed written consent to order a pre-symptomatic or predictive genetic test. Required contents of the informed consent form are specified, and the department of community health with others must develop a model consent form, which, if used, bars the test subject from bringing any civil action for damages based on failure to obtain consent. The public health department may investigate activities thought to be in violation of the law and report its findings by to the appropriate disciplinary subcommittee.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1049 }, { "id": "nhgri-b5224564f2b006bd4e9b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 37.1201 et seq.", "primary_url": "http://www.legislature.mi.gov/(S(jfrrgv45d0u1sq55vc2scd45))/mileg.aspx?page=getObject&objectName=mcl-37-1201", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may discriminate against an individual because of genetic information that is unrelated to the individual's ability to perform the duties of a particular job or position. An employer also may not require an individual to submit to a genetic test or provide genetic information as a condition of employment or promotion. An employee may voluntarily submit genetic information that is relevant to health and safety in the workplace, and an employer may use genetic information submitted for that purpose.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1050 }, { "id": "nhgri-b4eb80fca01f267541a9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 500.3407b and 550.1401", "primary_url": "http://www.legislature.mi.gov/(S(g5st2y55pdznpradnr10yc45))/mileg.aspx?page=home", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An expense-incurred hospital, medical, surgical policy or certificate or health care corporation may not require an insured or his or her dependent or an asymptomatic applicant or his or her asymptomatic dependent to undergo a genetic test or disclose whether a genetic test has been conducted, the results of a genetic test or genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1051 }, { "id": "nhgri-3e4f482a8426d90f2da4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Michigan", "source_record_label": "State StatuteMichigan: MCL 500.3829a", "primary_url": "http://www.legislature.mi.gov/(S(jfrrgv45d0u1sq55vc2scd45))/mileg.aspx?page=getobject&objectname=mcl-500-3829a&query=on&highlight=genetic", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "Insurers that provide Medicare supplement policies or certificates only may not deny or condition the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information. Insurers of these policies or certificates may not (1) discriminate with respect to pricing on the basis of genetic information, (2) request or require an individual or family member to undergo a genetic test (with an exception regarding requesting a test), or (3) use the manifestation of disease in an individual as genetic information about another group members and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1052 }, { "id": "nhgri-1efcf62f89d985e4da2d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 13.386", "primary_url": "https://www.revisor.mn.gov/statutes/?id=13.386", "source_topics": [ "Privacy", "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Genetic information may be collected by a government entity or any other person only with written informed consent, used only for the purposes stated in the consent, be stored only for the duration consented, and disseminated only with an individual\u0019s consent. Consent to allow dissemination is only valid for one year or a lesser period if specified in the consent. Newborn screening activities are covered under the law.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1053 }, { "id": "nhgri-5de393290c82f5eed06c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 144.125", "primary_url": "https://www.revisor.mn.gov/statutes/?id=144.125", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "During the period in which residual newborn screening specimens is retained, the health department may use blood samples and test results for newborn screening program operations. Newborn screening operations are defined to specifically exclude research, public health studies, or the development of new newborn screening tests.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1054 }, { "id": "nhgri-7e55195d9fa3c04abcdf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 144.192", "primary_url": "https://www.revisor.mn.gov/statutes/?id=144.192", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "The health commissioner may collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the protection of human subjects in Code of Federal Regulations, title 45, part 46. Biological specimens is defined as tissue, fluids, excretions, or secretions that contain human DNA originating from an identifiable individual, either living or deceased.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1055 }, { "id": "nhgri-2a6c08ea0c43820a40eb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 176.138", "primary_url": "https://www.revisor.mn.gov/statutes/?id=176.138", "source_topics": [ "Other Topics", "Privacy" ], "source_status": "Statute", "source_summary": "Medical data collected, stored, used, or disseminated by or filed with the commissioner in connection with a claim for workers' compensation benefits does not constitute genetic information for the purposes of �13.386 of the statutes pertaining to genetic privacy.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1056 }, { "id": "nhgri-c874b68a6ced82eda07d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 181.974", "primary_url": "https://www.revisor.mn.gov/statutes/?id=181.974", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers or employment agencies may not administer a genetic test or request, require, or collect protected genetic information as a condition of employment or affect the terms or conditions of employment or terminate the employment of any person based on protected genetic information. A person may not provide or interpret genetic information on a current or prospective employee for an employer or employment agency. An aggrieved person may bring a civil action.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1057 }, { "id": "nhgri-16a7e2ddec3a6bf9b8c8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 62A.31", "primary_url": "https://www.revisor.mn.gov/statutes/?id=62A.31", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Statute", "source_summary": "An issuer of a Medicare supplement policies or certificates may not deny or condition the issuance or effectiveness of insurance, including pre-existing condition exclusions, on the basis of genetic information. These entities also may not discriminate with respect to pricing on the basis of genetic information; request or require an individual or family member to undergo a genetic test; or use the manifestation of disease in an individual as genetic information about another group member and to further increase premiums for the group. Insurers may request a genetic test from an individual or family member only if the request is pursuant to research that applies to the Common Rule and other criteria are met.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1058 }, { "id": "nhgri-130bbf25f1934d3040be", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 62V.06", "primary_url": "https://www.revisor.mn.gov/statutes/?id=62V.06", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "The law requires the Minnesota Insurance Marketplace to provide any data subject asked to supply private data with a notice of rights related to the handling of genetic information. The Minnesota Insurance Marketplace is a state health benefit exchange as described in section 1311 of the federal Patient Protection and Affordable Care Act (Public Law 111-148), and further defined through amendments to the act and regulations issued under the act.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1059 }, { "id": "nhgri-00b0808262de5f01c63c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Minnesota", "source_record_label": "State StatuteMinnesota: MS 72A.139", "primary_url": "https://www.revisor.mn.gov/statutes/?id=72A.139", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health plan company in determining eligibility for coverage, establishing premiums, limiting coverage, renewing coverage, or any other underwriting decision may not (1) require or request an individual or his or her blood relative to take a genetic test, (2) make any inquiry about a genetic test or what the results of any such test were, or (3) take into consideration the fact that a genetic test was taken or refused or the results of such a test. A life insurance company or fraternal benefit society requiring a genetic test for the purpose of determining insurability for life insurance must obtain informed written consent. A violation is subject to the investigative and enforcement authority of the insurance commissioner.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1060 }, { "id": "nhgri-d42bcfc1eb31bb36d47b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "State StatuteMissouri: MRS 191.331", "primary_url": "https://revisor.mo.gov/main/OneSection.aspx?section=191.331&bid=9575&hl=", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "A residual newborn screening specimen is retained for five years after initial submission to the department. After five years specimens are destroyed. Unless otherwise directed, a biological specimen may be released for anonymous scientific study. At the time of collection, the parent or legal guardian of the child from whom a biological specimen was obtained may direct the department to: (1) Return a biological specimen that remains after all screening tests have been performed; (2) Destroy a biological specimen in a scientifically acceptable manner after all screening tests required have been performed; or (3) Store a biological specimen but not release the biological specimen for anonymous scientific study. A biological specimen released for anonymous study may not contain information that may be used to determine the identity of the donor. The department has authority over the use, retention, and disposal of biological specimens and related information collected in connection with newborn screening tests. The use of such specimens and related information is for public health purposes and must comply with all applicable provisions of federal law. The department may charge a reasonable fee for the use of such specimens for public health research and preparing and supplying specimens for research proposals approved by the department.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1061 }, { "id": "nhgri-33a19110d7baad3a38ab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "State StatuteMissouri: MRS 375.1300 and 375.1303", "primary_url": "https://revisor.mo.gov/main/OneSection.aspx?section=375.1300&bid=20595", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer in making any underwriting decision may not (1) require or request a person or his/her blood relative to provide genetic information or take a genetic test, (2) inquire about a genetic test or what the results of any such test were unless given approval by that person, or (3) consider without the approval of such person the fact that genetic information or a genetic test was taken or refused by a person or blood relative of the person or the results of a test. A violation is an unfair trade practice. The law does not apply to any policy, contract or certificate of life insurance, reinsurance, disability income or long-term care coverage.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1062 }, { "id": "nhgri-f9b699218bc4641f1210", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "State StatuteMissouri: MRS 375.1300 and 375.1306.1", "primary_url": "https://revisor.mo.gov/main/OneSection.aspx?section=375.1300&bid=20595", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not use genetic information or genetic test results of an employee or prospective employee to distinguish between, discriminate against, or restrict any right or benefit otherwise due or available to such employee or prospective employee. Exceptions are provided for the underwriting of group life, disability income and long-term care insurance, actions required by law or regulation, action taken with written permission of an employee or prospective employee, and the use of genetic information when it is directly related to job performance and assigned responsibilities.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1063 }, { "id": "nhgri-3cfe36c476e69837f8c9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "State StatuteMissouri: MRS 375.1300 and 375.1309", "primary_url": "https://revisor.mo.gov/main/OneSection.aspx?section=375.1300&bid=20595", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "This section of the law is applicable to all insurance companies. A person who creates, stores, receives or furnishes genetic information must hold such information as confidential medical records and must obtain written authorization to disclose genetic information. Exceptions include statistical data compiled without reference to the identity of an individual, health research conducted in accordance with the provisions of the federal Common Rule, and health research using medical archives or databases in which the identity of individuals is protected from disclosure by coding or encryption, or by removing all identities. The director of insurance has the authority to enforce these provisions.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1064 }, { "id": "nhgri-347ca546c07a5e6042cc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Missouri", "source_record_label": "State StatuteMissouri: MRS 376.450, 376.451, 379.930, and 379.940", "primary_url": "https://revisor.mo.gov/main/Home.aspx", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health insurance issuer offering group health_insurance_coverage may not establish rules for eligibility or continued eligibility of any individual to enroll under the terms of the group health plan based on health status-related factors, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. A small employer carrier may apply reasonable criteria in determining whether to accept a small employer into a class of business, provided that the criteria are not based on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1065 }, { "id": "nhgri-0aedf1205da838447766", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "State StatuteMontana: MCA 33-18-206", "primary_url": "https://leg.mt.gov/bills/mca/title_0330/chapter_0180/part_0020/section_0060/0330-0180-0020-0060.html", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Unfair discrimination between individuals of the same class and equal expectation of life in any contract of life insurance or of life annuity is prohibited. Unfair discrimination between individuals of the same class and of essentially the same hazard for disability insurance is prohibited. An insurer may not refuse to consider an application for life or disability insurance on the basis of a genetic condition. The rejection of an application or the determining of rates, terms, or conditions of a life or disability insurance contract is permissible if the applicant's medical condition and history as well as either claims experience or actuarial projections establish that substantial differences in claims are likely to result from the genetic condition.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1066 }, { "id": "nhgri-3e56a7b0c4d951f0f944", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "State StatuteMontana: MCA 33-18-901 et seq.", "primary_url": "https://leg.mt.gov/bills/mca/title_0330/chapter_0180/part_0090/sections_index.html", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Statute", "source_summary": "An insurer, health service corporation, health maintenance organization, fraternal benefit society, or other issuer of an individual or group policy or certificate of insurance may not discriminate based on a person\u0019s genetic traits. These entities also may not underwrite or condition coverage on a requirement or agreement to take a genetic test or on genetic information of an individual or his or her family member, and they may not seek genetic information for a purpose that is unrelated to assessing or managing one\u0019s health, inappropriate in an asymptomatic individual, or unrelated to research in which a subject is not personally identifiable. These entities may not require an individual to obtain a genetic test also with some exceptions. The law does not apply to life, disability income or long-term care insurance.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1067 }, { "id": "nhgri-eb7b71c6ab20db1ba39e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Montana", "source_record_label": "State StatuteMontana: MCA 33-22-514 and 33-22-526", "primary_url": "https://leg.mt.gov/bills/mca/title_0330/chapter_0220/part_0050/sections_index.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A group health plan or a health insurance issuer offering group health_insurance_coverage may not impose a pre-existing condition exclusion based on genetic information. A group health plan or a health insurance issuer offering group health_insurance_coverage may not establish rules for eligibility or continued eligibility of any individual to enroll under the terms of the group health plan based on health status-related factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1068 }, { "id": "nhgri-e3f0a37ba122dc74688d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 44-5242.02 and 5246.02", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=44-5242", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Under the Small Employer Health Insurance Availability Act, health status-related factor is defined to include genetic information and pre-existing condition is defined to exclude genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1069 }, { "id": "nhgri-9ffaf8306047b3d0fbb1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 44-6910 et seq.", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=44-6910", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health benefit plan may not treat genetic information as a pre-existing condition in the absence of a diagnosis. A health carrier may not establish rules for eligibility and continued eligibility of any individual to enroll under the terms of the health benefit plan based on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1070 }, { "id": "nhgri-90c430d9d829b6c60ce9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 44-7,100", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=44-7%2C100", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Any hospital, medical, or surgical expense-incurred policy or certificate and self-funded employee benefit plan to the extent not preempted by federal law may not require a covered person or his or her dependent or an asymptomatic applicant for coverage or his or her asymptomatic dependent to undergo any genetic test before issuing, renewing, or continuing the policy or certificate. This does prohibit requiring an applicant for coverage to answer questions concerning family history.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1071 }, { "id": "nhgri-9cc53a8d3b12e6a30cb4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 44-787", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=44-787", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health carrier that decides to discontinue offering a particular type of individual policy or contract in the state and offer another option of coverage must act uniformly without regard to health status-related factors related to any covered individual, including genetic information. A health carrier offering a network health plan must terminate coverage uniformly, as permitted, without regard to health status-related factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1072 }, { "id": "nhgri-dbbc329b1e0ba38ac702", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 48-236", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=48-236", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not discriminate against an employee or applicant because of genetic information that is unrelated to the ability to perform the duties of a particular job or position. An employer also may not require an employee or applicant to submit to a genetic test or to provide genetic information as a condition of employment or promotion. An employee may voluntarily submit genetic information that is related to heath and safety in the workplace.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1073 }, { "id": "nhgri-bb28c6681e34adab6d23", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 71-519", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=71-519", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "The health department must adopt and promulgate rules and regulations relating to the use_of_residual_newborn_screening_specimens and related information. Use may only be made for public health purposes and must comply with all applicable provisions of federal law. The department may charge a reasonable fee for evaluating proposals relating to the use of such specimens for public health research and for preparing and supplying specimens for research proposals approved by the department. The health department also must develop a pamphlet which explains that residual newborn blood specimens may be used for approved public health research.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1074 }, { "id": "nhgri-b5616e246a83103627d8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 71-551", "primary_url": "http://nebraskalegislature.gov/laws/statutes.php?statute=71-551", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "A physician or an individual to whom the physician has delegated authority to perform a selected act, task, or function may not order a predictive genetic test without prior written informed consent and in the manner specified with some exceptions such as newborn screening. The health department must develop a model informed consent form that, if used, bars the person tested from bringing any civil action on the basis that consent was not obtained.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1075 }, { "id": "nhgri-505017466e4fb330fcfe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nebraska", "source_record_label": "State StatuteNebraska: NRS 77-5518, 5519, 5534 and 5537", "primary_url": "http://nebraskalegislature.gov/laws/browse-chapters.php?chapter=77", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "In order for a company to be eligible for the wage benefit credit or the investment tax credit under the Invest Nebraska Act, the company must file an application for an agreement with the board, which must contain a copy of the written policy of the company prohibiting the company, as required by law, from requiring as a condition of employment or promotion at the project that an employee or an individual applying for employment at the project submit to a genetic test or provide genetic information outside of the scope of normal blood testing.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1076 }, { "id": "nhgri-783a42a95cfc7103c28a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "State StatuteNevada: NRS 457", "primary_url": "https://www.leg.state.nv.us/App/NELIS/REL/81st2021/Bill/7773/Text", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires a primary care provider to administer a genetic test for harmful mutations in the BRCA gene if clinically indicated as a result of genetic counseling. The State Plan for Medicaid must pay the nonfederal share of expenditures incurred for screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required. Insurers must cover the cost of screening, genetic counseling and testing for harmful mutations in the BRCA gene for women under circumstances where such screening, genetic counseling or testing is required.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1077 }, { "id": "nhgri-c95a12a9066fb244e76d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "State StatuteNevada: NRS 610.020", "primary_url": "https://www.leg.state.nv.us/NRS/NRS-610.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "genetic_discrimination with regard to apprenticeship agreements is prohibited. Requires the Office of Workforce Innovation to suspend for one year the right of any employer, association of employers or organization of employees acting as agent for an employer to participate in a program under the provisions of apprenticeship program after notice and hearing, finds that the employer, association or organization has discriminated against an individual based on genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1078 }, { "id": "nhgri-984efa2d73344fb9a5d9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "State StatuteNevada: NRS 613.345", "primary_url": "http://www.leg.state.nv.us/NRS/NRS-613.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unlawful employment practice for an employer, a labor organization or an employment agency to (1) ask or encourage a prospective or current employee or member of the labor organization to submit to a genetic test, (2) require or administer a genetic test to a person as a condition of employment or membership, or (3) deny, alter the terms, conditions or privileges of, or terminate employment or membership based on genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1079 }, { "id": "nhgri-3be53a55ab2a3046c4eb", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "State StatuteNevada: NRS 629.101 et seq.", "primary_url": "http://www.leg.state.nv.us/NRS/NRS-629.html", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "It is unlawful to obtain any genetic information of a person without informed consent with some exceptions, including for use in a study where the identities of the persons from whom the genetic information is obtained are not disclosed to the person conducting the study. It is unlawful to retain genetic information that identifies a person without first obtaining the informed consent with some exceptions. Except as otherwise provided, a person who obtains the genetic information for use in a study must destroy that information upon completion of the study or withdrawal of the person from the study. Criminal penalties and a right to civil action are established for violations.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1080 }, { "id": "nhgri-9428559c99e4c157511e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Nevada", "source_record_label": "State StatuteNevada: NRS 689A.417, 689A.545, 689A.585, 689B.420, 689B.450, 689B…", "primary_url": "http://www.leg.state.nv.us/NRS/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health maintenance organization, a carrier serving small employers, a corporation that provides health insurance, individual health insurers and group health insurers may not (1) require an insured person or family member to take a genetic test or disclose whether one has been taken or (2) determine the rates or any other aspect of the coverage or benefits based on genetic information or whether the insured person or member of his family has taken a genetic test. These entities may not establish rules of eligibility based on a health status-related factor, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. The provisions to not apply to any of the above entities in terms of the issuance of a policy of health insurance that provides coverage for long-term care or disability income. Insurers or organizations that provide health coverage pursuant to sections 689A, 689B, 689C, 695A, 695B, 695C, 695D, and 695F must comply with the federal law, the Genetic Information Nondiscrimination Act.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1081 }, { "id": "nhgri-c6a981c42282220a87bd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 132:10-a", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/132/132-10-a.htm", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Samples may not be used for other research or DNA testing purposes unless authorized by the parent or guardian.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1082 }, { "id": "nhgri-45f57b555ff9b6b66d7a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 132:10-a V.", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/132/132-10-a.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "No whole-genome DNA sequencing may be performed for the purpose of newborn screening unless the general court authorizes such sequencing by statute.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1083 }, { "id": "nhgri-61b625abd2309e3cbfb0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 141-H:1, 141-H:2, and 141:H-6", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/141-h/141-h-mrg.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "No individual or his/her family member may be required to undergo genetic testing as a condition of doing business with another person. Genetic testing may not be performed on any individual or anywhere on any resident of the state based on bodily materials obtained within the state without prior written and informed consent with some exceptions. Additional provisions address disclosure of results. The statutes establish a right to civil action by aggrieved individuals.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1084 }, { "id": "nhgri-3cffbf95ae32b6b9acbe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 141-H:1, 141-H:3, and 141:H-6", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/141-h/141-h-mrg.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "No employer, labor organization, employment agency, or licensing agency may (1) solicit, require or administer genetic testing, or (2) affect the terms, conditions, or privileges of, or terminate employment, membership, or licensure based on genetic testing. A person may not sell or provide to these entities any genetic testing relating to an existing or prospective employee, member or licensee unless for the purpose of worker\u0019s compensation or biomonitoring of workplace toxins and with informed consent. The statutes establish a right to civil action by aggrieved individuals.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1085 }, { "id": "nhgri-9aef0222bcd36275a517", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 141-H:1, 141-H:4, and 141:H-6", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/141-h/141-h-mrg.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health insurer in connection with providing health insurance may not (1) require or request an individual or family member to undergo genetic testing, whether a test was taken or the results of the testing, (2) condition the provision of health_insurance_coverage or health care benefits on whether an individual or family member has undergone genetic testing or the results of the testing, or (3) consider in the determination of rates or any other aspect of health_insurance_coverage or benefits whether an individual or family member has undergone genetic testing or the results of the testing. The statutes establish a right to civil action by aggrieved individuals.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1086 }, { "id": "nhgri-3b38c2c0232dc941ec69", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 141-H:1,141-H:5, and 141:H-6", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/x/141-h/141-h-mrg.htm", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A person in the business of providing life, disability income, or long-term care insurance who obtains information about genetic testing of an individual or a family member may not use that information in writing a type of insurance coverage other than life, disability income, or long-term care insurance. An aggrieved individual may bring a civil action.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1087 }, { "id": "nhgri-9622cf8e7d09ea2d7bc7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Hampshire", "source_record_label": "State StatuteNew Hampshire: NHS 420-G:6 and 420-G:7", "primary_url": "http://www.gencourt.state.nh.us/rsa/html/xxxvii/420-g/420-g-mrg.htm", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health carriers may not establish rules of eligibility or continued eligibility for health coverage based on health status related factors of any employee or dependent, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1088 }, { "id": "nhgri-17896700ec7b1bda8f86", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "State StatuteNew Jersey: NJS 17B:30-12", "primary_url": "https://lis.njleg.state.nj.us/nxt/gateway.dll?f=templates&fn=default.htm&vid=Publish%3A10.1048/Enu", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "No person may discriminate against an individual based on genetic information or the refusal of a genetic test with respect to hospital confinement or other supplemental limited benefit insurance. No person may make or permit any unfair discrimination against an individual in the application of the results of a genetic test or genetic information with respect to life insurance, including credit life insurance, an annuity, disability income insurance contract or credit accident insurance coverage, and, if results of a genetic test as permitted by these entities, the insurer must notify the individual who is the subject of the test that it is required and obtain the individual's prior written informed consent. The insurance commissioner has the authority to enforce these provisions.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1089 }, { "id": "nhgri-f6893dc3a64b9cd9eaff", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "State StatuteNew Jersey: NJS 10:5-43 et seq.", "primary_url": "http://lis.njleg.state.nj.us/nxt/gateway.dll?f=templates&fn=default.htm&vid=Publish%3A10.1048/Enu", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "A person may not (1) obtain genetic information from an individual or from an individual's DNA sample or (2) retain an individual\u0019s genetic information without prior informed consent with some exceptions, including for anonymous research where the identity of the subject will not be released. A DNA sample from an individual who is the subject of a research project must be destroyed promptly upon completion of the project or withdrawal of the individual from the project unless consent to retain the sample is provided. Additional provisions address retention and disclosure. The statutes set forth civil and criminal penalties for violations.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1090 }, { "id": "nhgri-f48af42c935cb639240d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "State StatuteNew Jersey: NJS 10:5-5 and 10:5-12(a)", "primary_url": "http://lis.njleg.state.nj.us/nxt/gateway.dll?f=templates&fn=default.htm&vid=Publish%3A10.1048/Enu", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unlawful employment practice to refuse to hire or employ or to bar or to discharge or require to retire from employment such individual or to discriminate against such individual in compensation or in terms, conditions or privileges of employment based on genetic information or because of the refusal to submit to a genetic test.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1091 }, { "id": "nhgri-3592522dd6371fbd53c5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "State StatuteNew Jersey: NJS 17:48-6.18, 17:48A-6.11, 17:48E-15.2, 17B-26-3.2, …", "primary_url": "http://lis.njleg.state.nj.us/nxt/gateway.dll?f=templates&fn=default.htm&vid=Publish%3A10.1048/Enu", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Individual or group hospital service corporations and individual or group medical or health service corporations providing hospital or medical expense benefits, individual health insurance policies, group health insurance policies, and contracts for health care services may not exclude any person or eligible dependent or establish any rates or terms on the basis of any genetic characteristic.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1092 }, { "id": "nhgri-8e4da2382df0c961ece4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Jersey", "source_record_label": "State StatuteNew Jersey: NJS 17B-27-54, 17B-27-57 17B-27-64, 17B:27A-2 and 17B:…", "primary_url": "http://lis.njleg.state.nj.us/nxt/gateway.dll?f=templates&fn=default.htm&vid=Publish%3A10.1048/Enu", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A group health plan may not establish rules for eligibility or continued eligibility based on health status-related factors, including genetic information, or impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. Health status-related factor also is defined to include genetic information applicable to sections 1 to 15 of chapter 17B:27A, and the definition of pre-existing condition excludes genetic information in the absence of a diagnosis under provisions applicable to small employer health benefit plans.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1093 }, { "id": "nhgri-d6c345eac612a8e6ffbe", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "State StatuteNew Mexico: NMSA 24-21-1 et seq.", "primary_url": "https://law.justia.com/codes/new-mexico/2020/chapter-24/article-21/", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "The statutes contain provisions on the acquisition, collection, retention, transmission or use of genetic information. Consent requirements provide an exemption (1) if DNA, genetic information or results of genetic analysis are not identified with the person or person's family members or (2) for the purpose of medical or scientific research and education (including retention of gene products, genetic information or genetic analysis if the identity of the person or person's family members is not disclosed.) Discrimination by an insurer against a person or his/her family member based on genetic analysis, genetic information or genetic propensity is prohibited. Life, disability income or long-term care insurance are exempt if use is based on sound actuarial principles or related to actual or reasonably anticipated experience. Upon request a persons genetic information or samples must be promptly destroyed with some exceptions, including if retention is authorized under a research protocol approved by an institution review board pursuant to federal law. It is unlawful for a person to use genetic information in employment or recruiting. A person whose rights under the provisions of the Genetic Information privacy Act have been violated may bring a civil action for damages or other relief.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1094 }, { "id": "nhgri-e379b16200dd0e0a21fd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "State StatuteNew Mexico: NMSA 52-3-32.1", "primary_url": "https://law.justia.com/codes/new-mexico/2020/chapter-52/article-3/section-52-3-32-1/", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "If a firefighter is diagnosed with breast cancer after five years of employment, and if it is diagnosed before the age of forty without a breast cancer 1 or breast cancer 2 genetic predisposition to breast cancer, the disease is presumed to be proximately caused by employment as a firefighter.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1095 }, { "id": "nhgri-7aa896f380a8d4ada053", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New Mexico", "source_record_label": "State StatuteNew Mexico: NMSA 59A-23C-5.1, 59A-23C-7.1, 59A-23E-2, 59A-23E-11, …", "primary_url": "https://law.justia.com/codes/new-mexico/2020/chapter-59a/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health benefit plan that is offered by a carrier or an approved health plan offered to a small employer and plans subject to the Health Insurance Portability Act may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. A group health plan and a health insurance issuer offering group health_insurance_coverage may not establish rules for eligibility or continued eligibility based a health status-related factor, including genetic information. A group health benefits plan or a health insurance issuer that offers group health_insurance_coverage in connection with a group health benefits plan from adjusting premiums or contribution amounts for the group covered under the plan on the basis of genetic information. Under the Small Group Rate and Renewability Act, provisions allowing a carrier to use health status in establishing the amount an employer may be charged for coverage under a group health plan exclude genetic information from the definition of health status.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1096 }, { "id": "nhgri-0ad9aa7123e8f35ae81e", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NY Public Health Code 2440 et seq.", "primary_url": "https://www.nysenate.gov/legislation/laws/PBH/A24-A", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "The law safeguards the rights and welfare of individual human subjects in the conduct of human research projects and provides protections against the possible conduct of medical or psychological research without voluntary informed consent.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1097 }, { "id": "nhgri-80b14413d6eff16ce88d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (CVR) 48 et seq.", "primary_url": "https://www.nysenate.gov/legislation/laws/CVR/A4-C", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Unless it can be clearly shown that a person's unique genetic disorder, defined to include the sickle cell trait, carriers of Tay-Sachs, and carriers of Cooleys anemia only, would prevent a person from performing the particular job, no person who is otherwise qualified may be denied equal opportunities to obtain or maintain employment or to advance in position in his job solely because a person has a unique genetic disorder.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1098 }, { "id": "nhgri-db537f7f542b2553d445", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (CVR) 79-l", "primary_url": "https://www.nysenate.gov/legislation/laws/CVR/79-L", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Prior informed consent is required to perform a genetic test. Further disclosures require additional consent. For medical research purposes and with approval from an institutional review board and consent, a biological sample may be retained for longer than 60 days and be used for scientific research. Samples may be used for research conducted in accordance with applicable law and regulation and pursuant to a research protocol approved by an institutional review board, if individuals who provided the samples have given prior informed consent for the use of the sample for general research purposes without restrictions, and the samples have been permanently stripped of identifying information or coded to protect the individuals identity. Upon request samples that have not already been used for research must be destroyed. Family members of a research participant may not be contacted without the consent of the individual. Additional provisions address confidentiality, the incorporation of information into medical records, disclosure and penalties for violations.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1099 }, { "id": "nhgri-68d2dc211cc19c80a2c1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (CVS) 115", "primary_url": "https://www.nysenate.gov/legislation/laws/CVS/115", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or classes may not be considered directly or indirectly in determining proper compensation or pay for any individual or group of employees, and no employee with status within one or more protected class to classes may be paid a wage at a rate less than the rate at which an employee without status within the protected class or classes in same establishment is paid for similar work.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1100 }, { "id": "nhgri-9f017f4ee680fcce1080", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (EDN) 2e and (STT) 106-b", "primary_url": "https://nyassembly.gov/leg/?default_fld=&leg_video=&bn=S00893&term=2021&Summary=Y&Actions=Y&Text=Y", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Directs the director of the office of information technology services to conduct a study on the use of biometric identifying technology. Prohibits the use of biometric identifying technology in schools until July 1, 2022 or until the commissioner of education authorizes such purchase or utilization, whichever occurs later. Biometric identifier is defined to include a DNA sequence.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1101 }, { "id": "nhgri-662567d6a5799856a3bf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (EDN) 363", "primary_url": "http://public.leginfo.state.ny.us/lawssrch.cgi?NVLWO%3A=", "source_topics": [ "Other Topics" ], "source_status": "Statute", "source_summary": "Requires the state university of New York to issue a request for proposals to partner with hospitals both within the state university of New York and other not-for-profit hospitals and non-profit higher education research institutions to map the genomes of individuals suffering from or at risk of Alzheimer's.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1102 }, { "id": "nhgri-df9d8241bd7e4d60a813", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (EXC) law 292 and 296", "primary_url": "https://www.nysenate.gov/legislation/laws/EXC/A15", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer or labor organization may not discriminate against employees, applicants or members based on a predisposing genetic characteristic. An employer or employment agency may not print or circulate materials or use a form of application that discriminate based on a predisposing genetic characteristic. Additional provisions apply to employers, labor organizations, employment agencies, and licensing agencies. A genetic test may be required as a condition of employment if directly related to possible increased risk of disease in the work environment or, with informed consent, for workers compensation and to determine susceptibility to toxins found in the workplace environment.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1103 }, { "id": "nhgri-1d3063c14c45ba55205f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (ISC) 2615", "primary_url": "https://www.nysenate.gov/legislation/laws/ISC/2615", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "No insurer may request or require an individual proposed for insurance coverage to submit to a genetic test without prior written informed consent. Further disclosures require additional consent. If an adverse underwriting decision is based on the results of a genetic test, the insurer must notify the individual. No insurer who lawfully possesses information derived from a genetic test on a biological sample may incorporate the information into the record of a non-consenting individual. Penalties for violations are set forth.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1104 }, { "id": "nhgri-9daa824ae438b3bea990", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "New York", "source_record_label": "State StatuteNew York: NYCL (ISC) 3221, 3232, 4305, and 4318", "primary_url": "https://www.nysenate.gov/legislation/laws/ISC", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Insurers or corporations delivering group or blanket health policies that provide hospital, surgical or medical expense coverage may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information. Individual and group or blanket health insurance policies or contracts may not impose pre-existing condition exclusions based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1105 }, { "id": "nhgri-c6548ffdd657569654cd", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "State StatuteNorth Carolina: NCGA 126-34.01 et seq.", "primary_url": "http://www.ncleg.net/EnactedLegislation/Statutes/HTML/BySection/Chapter_126/GS_126-34.01.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "The law sets forth procedures for State employment appeals of grievances and disciplinary actions related to discrimination claims, including discrimination based on genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1106 }, { "id": "nhgri-9b6bb4009a9a49ee8ed9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "State StatuteNorth Carolina: NCGA 58-3-215, 58-51-45, 58-51-95, 58-65-70, 58-68…", "primary_url": "http://www.ncleg.net/gascripts/Statutes/StatutesTOC.pl?Chapter=0058", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health benefit plan, health maintenance organization or multiple employer welfare arrangement may not raise the premium or contribution rates paid for a group health benefit plan, refuse to issue or deliver a health benefit plan, or charge a higher premium rate or charge because of genetic information. Health benefit plans must comply with all applicable standards of the federal Genetic Information Nondiscrimination Act. Insurers providing accident and sickness policies or hospital, medical, or dental health service may not refuse to issue or deliver any policy that affords benefits or coverage for any medical treatment or service authorized or permitted by specified entities or carry a higher premium rate or charge by reason of the fact that the person to be insured possesses sickle cell trait or hemoglobin C trait. A group health insurer may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information, or treat genetic information as a pre-existing condition in the absence of a diagnosis. An individual health insurer may not increase an individual's renewal premium for continued health_insurance_coverage based on a health statusrelated factors, including genetic information. A sponsoring association of an employee welfare benefit program may not condition eligibility for coverage, including continuing eligibility for coverage, on health status related factors such as genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1107 }, { "id": "nhgri-812dd8e23026a69540f4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "State StatuteNorth Carolina: NCGA 58-58-25", "primary_url": "http://www.ncleg.net/EnactedLegislation/Statutes/HTML/BySection/Chapter_58/GS_58-58-25.html", "source_topics": [ "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "No insurance company may refuse to issue or deliver any policy of life insurance solely by reason of the fact that the person to be insured possesses sickle cell trait or hemoglobin C trait. A policy also may not carry a higher premium rate or charge by reason of the fact that the person to be insured possesses these traits.", "base_status": "statute", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1108 }, { "id": "nhgri-68e5575c2633d51e0283", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Carolina", "source_record_label": "State StatuteNorth Carolina: NCGA 95-28.1 and 95-28.1A", "primary_url": "http://www.ncleg.net/gascripts/Statutes/StatutesTOC.pl?Chapter=0095", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "A person, firm, corporation, unincorporated association, state agency, unit of local government, or any public or private entity may not deny or refuse employment to or discharge any person or because of the person's having requested genetic testing or counseling services, on the basis of genetic information obtained concerning the person or a member of the person's family, or because the person possesses sickle cell trait or hemoglobin C trait.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1109 }, { "id": "nhgri-c3fb65948b42c0cc293b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "State StatuteNorth Dakota: NDCC 25-17-07", "primary_url": "http://www.legis.nd.gov/cencode/t25c17.pdf?20150909095532=", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "A person that conducts research on blood spots, other specimens, or registry data maintained by the health department must follow IRB processes for human subjects research, including obtaining parent or guardian authorization.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1110 }, { "id": "nhgri-553c9e90488564b32fcc", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "North Dakota", "source_record_label": "State StatuteNorth Dakota: NDCC 26.1-36.3-01, 26.1-36.3-06 and 26.1-36.4-03.1", "primary_url": "http://www.legis.nd.gov/cencode/t26-1.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Health benefit plans covering small employers and group policies of hospital and medical insurance may not treat genetic information as a pre-existing condition in the absence of a diagnosis. A health status-related factor is defined to include genetic information in the chapter of the law pertaining to small employer employee health insurance.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1111 }, { "id": "nhgri-c8caef2ce7f0f1b67d2c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "State StatuteOhio: ORC 1751.65", "primary_url": "http://codes.ohio.gov/orc/1751.65", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health insuring corporation may not (1) cancel or fail to renew the coverage because of any health status-related factor, including genetic information, (2) require an individual seeking coverage to submit to genetic screening or testing or taken into account or inquire about such testing, (3) make a decision adverse to the applicant based on entries in medical records or other reports of genetic screening or testing, or (4) cancel or refuse to issue or renew coverage for health care services based on the results of genetic screening or testing, or (6) limit benefits of an individual or group policy, contract, or agreement based on the results of genetic screening or testing. A violation of these provisions is an unfair and deceptive act or practice in the business of insurance. Further provisions apply upon the repeal of the current protections, which are in effect until February 9, 2014.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1112 }, { "id": "nhgri-db2df046ff43ac9403df", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Ohio", "source_record_label": "State StatuteOhio: ORC 3901.21, 3901.41 and 3901.501", "primary_url": "http://codes.ohio.gov/orc/3901", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unfair and deceptive act or practice in the business of insurance to engage in any underwriting standard or other practice that due solely to any health status-related factor, including genetic information, terminates or fails to renew an existing individual policy, contract, plan of health benefits, or a health benefit plan issued to an employer, for which an individual would otherwise be eligible, or, with respect to a health benefit plan issued to an employer, excludes or causes the exclusion of an individual from coverage under an existing employer-provided policy, contract, or plan of health benefits. Insurers issuing accident and sickness insurance, self-insurers or public employee health benefit plans may not consider information obtained from genetic screening or testing in processing an application or in determining insurability or inquire into the results of genetic screening or testing or use such information to cancel, refuse to issue or renew, or limit benefits. The superintendent of insurance has the authority to investigate violations of this provision.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1113 }, { "id": "nhgri-46ed6fc04a1719e03bb1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 21-1175", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Parental consent is required to store, transfer, use or database DNA from any newborn child.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1114 }, { "id": "nhgri-6b3fa3d5cff237d42548", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 25-2001", "primary_url": "http://webserver1.lsb.state.ok.us/cf_pdf/2013-14%20ENR/hB/HB1384%20ENR.PDF", "source_topics": [ "Privacy", "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Creates the Parents' Bill of Rights, including the right to consent in writing before any record of a minor child\u0019s blood or DNA is created, stored or shared, except as required by Sections 1-516 (pertaining to syphilis) and 1-524.1 (pertaining to testing arrested persons for sexually transmitted infections and HIV) of Title 63 of the Oklahoma Statutes, or unless authorized pursuant to a court order.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1115 }, { "id": "nhgri-b802e2cd8325e4425729", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 36-3614.1", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Health Insurance Nondiscrimination", "Research" ], "source_status": "Statute", "source_summary": "Any individual, corporation, association, partnership, insurance support organization, fraternal benefit society, insurance producer, third-party administrator, self-insurer, or any other legal entity engaged in the business of insurance that issues accident and sickness insurance policies or administers a health insurance plan may not deny or condition the issuance or effectiveness of a policy on a pre-existing condition or genetic information. These entities also may not discriminate with respect to pricing a policy or certificate, including premiums, based on genetic information. A violation is an unfair and deceptive act or practice. An insurer also may not request or require a genetic test with an exception for research. An insurer may request a genetic test if the request is pursuant to research that complies with the Common Rule and other specified criteria are met.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1116 }, { "id": "nhgri-0b4e7c385b544b4de496", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 36-3614.2", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "For purposes of distinguishing between or discriminating against or restricting any right or benefit otherwise due or available to an employee or prospective employee other than in connection with the determination of insurance coverage or benefits an employer may not (1) seek to obtain or use a genetic test or genetic information of the employee or the prospective employee, or (2) require a genetic test of or require genetic information from the employee or prospective employee.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1117 }, { "id": "nhgri-22e6d82267989b5f5e0c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 36-3614.3", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "A person who maintains genetic information may not be compelled to disclose the information except under specified circumstances.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1118 }, { "id": "nhgri-56ddfff32c5e25536ef6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 36-3614.4", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "The statutes related to research apply to genetic research studies approved by an institutional review board as defined in 21 CFR, � 50 or conducted subject to the requirements of the federal common rule at 21 CFR, � 50 and � 56, and 45 CFR, � 46. research records are confidential and may not be disclosed to employers or health insurers without informed consent. The provision does not apply to an insurer or to an individual dealing with an insurer in the course of underwriting, conducting or administering life, disability income or long-term care insurance. Stored tissues, including blood, that arise from surgery, other diagnostic or therapeutic steps, or autopsy may be disclosed for genetic or other research studies with informed consent. Results of genetic research studies may be published if no individual subject is identified.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1119 }, { "id": "nhgri-e9e55987399ec60ae653", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Oklahoma", "source_record_label": "State StatuteOklahoma: OS 36-4502", "primary_url": "http://www.lsb.state.ok.us/osStatuesTitle.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Group accident and sickness policies may not treat genetic information as a pre-existing condition or base eligibility or continued eligibility of any individual on health-status-related factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1120 }, { "id": "nhgri-2e3c6174c3fad6c09ce8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "State StatuteRhode Island: RIGL 27-18-41", "primary_url": "http://webserver.rilin.state.ri.us/statutes/title27/27-18/27-18-41.htm", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Every individual or group hospital or medical insurance policy or individual or group hospital or medical services plan contract delivered, issued for delivery, or renewed in this state shall pay for two (2) screening mammograms per year when recommended by a physician for women who have been treated for breast cancer within the last five (5) years or are at high risk of developing breast cancer due to genetic predisposition (BRCA gene mutation or multiple first degree relatives) or high risk lesion on prior biopsy (lobular carcinoma in situ) or atypical ductal hyperplasia.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1121 }, { "id": "nhgri-508664d6e237475a3e4c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "State StatuteRhode Island: RIGL 27-18-52, 27-18-52.1, 27-19-44, 27-19-44.1, 27-…", "primary_url": "http://webserver.rilin.state.ri.us/Statutes/TITLE27/INDEX.HTM", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Insurance administrators, health plans and providers of accident and sickness insurance, nonprofit hospital corporations, nonprofit medical service corporations, and HMOs are prohibited from releasing genetic information without prior written authorization. Individuals participating in research settings governed by the Federal Policy for the Protection of Human research Subjects are exempt. Tests conducted purely for research are excluded from the requirements set forth, as are tests for somatic (as opposed to heritable) mutations, and testing for forensic purposes. An individual or group health insurance contract, plan or policy (excluding disability income, long term care and insurance supplemental policies) may not use a genetic test or genetic information or request for genetic tests or genetic information or the results of a genetic test for specified purposes, including for underwriting. Provisions pertaining to the release the results of a genetic test or genetic information do not apply to releases in a format whereby individual identifiers are removed, encrypted, or encoded so that the identity of the individual is not disclosed. Authorization is required for each re-disclosure except for participating in research settings governed by the Federal Policy for the Protection of Human research Subjects.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1122 }, { "id": "nhgri-5bfb651b15737ccb4b95", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "State StatuteRhode Island: RIGL 27-18.5-2, 27-18.6-2, 27-18.6-3, and 27-50-3", "primary_url": "http://webserver.rilin.state.ri.us/Statutes/TITLE27/INDEX.HTM", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "In the statute sections pertaining to large group, individual health insurance and small employer health insurance a health status-related factor is defined to include genetic information, and pre-existing condition exclusions may not be based on genetic information the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1123 }, { "id": "nhgri-1b1b8d9f5b65c07e88e9", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Rhode Island", "source_record_label": "State StatuteRhode Island: RIGL 28-6.7-1 et seq.", "primary_url": "http://webserver.rilin.state.ri.us/Statutes/TITLE28/28-6.7/INDEX.HTM", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer, employment agency, or licensing agency may not (1) request, require or administer a genetic test, (2) affect the terms, conditions, or privileges of or terminate employment or licensure of any person who obtains a genetic test, (3) take any other action affecting the terms, conditions or privileges of employment against an employee or a license holder based on the results of a genetic test or the refusal to take a genetic test, submit family history, or reveal whether the employee, applicant or holder has taken a genetic test, (4) otherwise use genetic information to adversely affect the employment, licensure, or application for employment or licensure of any individual, or (5) reveal genetic information about employees, licensees, or applicants. Penalties for violations are set forth.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1124 }, { "id": "nhgri-d4d96f40c60b8d44e0cf", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "State StatuteSouth Carolina: SCCL 38-41-45, 38-71-670, 38-71-840, 38-71-860 and…", "primary_url": "http://www.scstatehouse.gov/code/title38.php", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Group health insurers may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information or impose a pre-existing condition exclusion based on genetic information. The sections of the statutes pertaining to Individual health insurance and multiple employer self-insured health plans define health status-related factor to include genetic information. Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis within the South Carolina health insurance pool.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1125 }, { "id": "nhgri-7132f32ca9f0ef15a37a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "State StatuteSouth Carolina: SCCL 38-93 et seq.", "primary_url": "http://www.scstatehouse.gov/code/t38c093.php", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "Health insurers offering individual health plans may not cancel, deny, adjust premiums or rates or impose pre-existing conditions exclusions based on the genetic information of an individual or family member or based on a request for genetic services. Health insurers offering group health plans may not adjust premiums or contributions based on genetic information. Health insurers may not request or require genetic information or require an individual to undergo a genetic test. The law also prohibits disclosure of genetic information without informed written consent, with some exceptions such as for law enforcement purposes or as allowable under state and federal statutes. It is required to obtain informed consent prior to performing a genetic test, with some exceptions such as for diagnosis or treatment of an individual if performed by a clinical laboratory that has received a specimen referral from the individual's treating physician or another clinical laboratory. Penalties for violations of the law are established and are intended to be in addition to those set forth under the Genetic Information Nondiscrimination Act of 2008, Public Law 110-233.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1126 }, { "id": "nhgri-bee4665e08e0665753e5", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "State StatuteSouth Carolina: SCCL 38-93-10 et seq.", "primary_url": "http://www.scstatehouse.gov/code/t38c093.php", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "An accident and health insurer providing hospital, medical and surgical, or major medical coverage on an expense incurred basis, providing a corporate health services plan, or providing a health care plan for health care services by a health maintenance organization may not (1) terminate, restrict, limit, or otherwise apply conditions to coverage or restrict the sale to an individual, (2) cancel or refuse to renew the coverage of an individual, (3) exclude an individual from coverage, (4) impose a waiting period, (5) impose a pre-existing condition exclusion; (6) require inclusion of a rider that excludes coverage for certain benefits and services, or (7) adjust premium contribution amounts or establish differential in premium rates for coverage based on genetic information or a request for genetic services. Additional provisions address consent to disclose genetic information and consent to perform genetic testing. An aggrieved individual may bring civil action. he penalties and enforcement provisions of subsections (A) and (B) are in addition to penalties and enforcement provisions of federal law, including those set forth in the Genetic Information Nondiscrimination Act of 2008.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1127 }, { "id": "nhgri-c18ad34e145526eb66c7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Carolina", "source_record_label": "State StatuteSouth Carolina: SCCL 44-37-30", "primary_url": "http://www.scstatehouse.gov/code/t44c037.php", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Residual newborn screening blood samples may be released for purposes of confidential, anonymous scientific study unless the newborn screening program is otherwise directed. The release of a blood sample must conform with departmental regulations. At the time of testing or at any time after that, the parent or legal guardian of the child from whom a blood sample was obtained, or the child when eighteen years of age or older, may direct the department to: (1) return a blood sample in its entirety and any test results not less than two years after the date of testing; (2) destroy a blood sample in not less than two years after the date of the testing; or (3) store a blood sample but not release the blood sample for confidential, anonymous scientific study. A blood sample released for confidential, anonymous study must not contain identifiable information. If scientific study identifies genetic information that may benefit the child, the department may notify confidentially the parent or legal guardian, or the child if eighteen years of age or older, of this information.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1128 }, { "id": "nhgri-173a5727261fa36b02ab", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "State StatuteSouth Dakota: SDCL 34-14-21 et seq.", "primary_url": "http://sdlegislature.gov/Statutes/Codified_Laws/DisplayStatute.aspx?Type=Statute&Statute=34", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Informed written consent consisting of the information specified in the statute is required prior to ordering a predictive genetic test. The person to be tested must receive a signed copy of the form, which also must be placed in the medical record. Tests performed per a court order or for a criminal investigation are exempt.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1129 }, { "id": "nhgri-8b2d61a5d504eb9d9014", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "State StatuteSouth Dakota: SDCL 58-1-24, 58-1-25, 58-17-84, 58-18-45, 58-18-87,…", "primary_url": "http://sdlegislature.gov/Statutes/Codified_Laws/DisplayStatute.aspx?Type=Statute&Statute=58", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "A health carrier, long-term care insurer or life insurer from requiring or requesting an individual or his/her blood relative to take a genetic test or consider the fact that a genetic test was refused in determining eligibility for coverage, establishing premiums, limiting coverage, renewing coverage, or any other underwriting decision in connection with the offer, sale, or renewal of health insurance. The insurance director may promulgate rules concerning genetic information and group health benefit plans. In individual, group and blanket health insurance plans, genetic information may not be treated as a pre-existing condition in the absence of a diagnosis. Small employer carriers may not establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information. Prohibits any company providing genetic testing directly to a consumer from sharing any genetic test, genetic information, or other personally identifiable information of a consumer with any health carrier, life insurer, or long-term care insurer without written consent from the consumer. A company that provides genetic testing may communicate with a health carrier for the purposes of payment, coordination of medical treatment, or patient care so long as such communication is compliant with the Health Insurance Portability and Accountability Act and only used for the purposes permitted.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1130 }, { "id": "nhgri-8b39c48545ad482c06d6", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "South Dakota", "source_record_label": "State StatuteSouth Dakota: SDCL 60-2-20 and 21", "primary_url": "http://sdlegislature.gov/Statutes/Codified_Laws/DisplayStatute.aspx?Type=Statute&Statute=60", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not to seek to obtain, obtain, or use genetic information of a current or prospective employee discriminate or restrict any right or benefit otherwise due or available to an employee or a prospective employee. A few exceptions are provided such as if the employer uses the test results for the limited purpose of taking disciplinary action against the employee based only on alleged misconduct. Any employee or prospective employee claiming to be aggrieved by an unlawful employment practice may bring a civil suit.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1131 }, { "id": "nhgri-58c1ba4074079ab58a17", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "State StatuteTennessee: TC 49-1-702", "primary_url": "http://www.capitol.tn.gov/Bills/110/Bill/HB2690.pdf", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Schools must obtain written informed consent from a parent, legal guardian, or student, if the student is 18 years of age or older, before the collection of individual student biometric data, including DNA. The law also establishes additional protections for personally identifiable information, which includes biometric data, maintained by schools.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1132 }, { "id": "nhgri-cc308262525c8fb0b2c8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "State StatuteTennessee: TC 56-7-2701 et seq.", "primary_url": "http://www.lexisnexis.com/hottopics/tncode/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurance provider may not deny or cancel health_insurance_coverage or vary the premiums, terms, or conditions for health_insurance_coverage for an individual or his or her family member on the basis of a request or receipt of genetic services. An insurer may not request or require an individual to whom it provides health_insurance_coverage or an applicant to disclose to the insurer genetic information about the individual or family member of the individual. Life insurance, disability income, long-term care, accident only, hospital indemnity or fixed indemnity, dental or vision policies are exempt from the law.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1133 }, { "id": "nhgri-9087a4d6aeb97ea8ef1f", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Tennessee", "source_record_label": "State StatuteTennessee: TC 56-7-2802 and 56-7-2804", "primary_url": "http://www.lexisnexis.com/hottopics/tncode/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Under the Health Insurance Portability, Availability and Renewal Act group health plans and other issuing group health_insurance_coverage may not base rules for eligibility or continued eligibility on a health status-related factor, including genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1134 }, { "id": "nhgri-cb6cfb81f0d823571e07", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas TS (Civil Practice and Remedies) Code 74.052", "primary_url": "https://statutes.capitol.texas.gov/Docs/CP/htm/CP.74.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "Pertains to medical authorization required to release protected health information in a health care liability claim. Allows the patient or patient's personal or legal representative to exclude genetic information from the authorization.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1135 }, { "id": "nhgri-d8859881e03dcd634739", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: Health and Safety Code 33.0111 et seq.", "primary_url": "http://www.statutes.legis.state.tx.us/Docs/HS/htm/HS.33.htm", "source_topics": [ "Use of Residual Newborn Screening Specimens" ], "source_status": "Statute", "source_summary": "Reports, records, and information obtained by the health department for newborn screening that do not identify a child or the family of a child will not be released for public health research purposes unless a parent, managing conservator, or guardian of the child consents to disclosure. Newborn screening blood spots and associated data are confidential under law and may only be used as specified. If a family consents to disclosure of nonidentifiable reports, records and information for public health research, any subsequent disclosures must be approved by an IRB or privacy board of the health department and the Health Commissioner or his or her designee. research for public health purposes is defined to include purposes that relate to cancer, a birth defect, an infectious disease, a chronic disease, environmental exposure, or newborn screening.", "base_status": "statute", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1136 }, { "id": "nhgri-c9b54dc766bb916ea254", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: TS (Insurance) Code 546.001 et seq.", "primary_url": "http://www.statutes.legis.state.tx.us/Docs/IN/htm/IN.546.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "Individual and group health benefit plans that request an applicant for coverage to submit to a genetic test for a permissible purpose must notify the applicant that the test is required, disclose to the applicant the proposed use of the results, and obtain prior written informed consent. A health benefit plan issuer may not use genetic information or the refusal of an applicant to submit to a genetic test to reject, deny, limit, cancel, refuse to renew, increase the premiums for, or otherwise adversely affect eligibility for or coverage under the plan. Genetic material obtained from an individual for a genetic test must be destroyed promptly after the purpose for which it was obtained with some exceptions, including (1) authorized retention of the sample for medical treatment or scientific research or (2) if the sample was obtained for research that is cleared by an institutional review board, and retention of the sample is under a requirement the institutional review board imposes on a specific research project or authorized by the research participant with institutional review board approval under federal law. A health benefit plan issuer may redisclose genetic information without authorization for actuarial or research studies if the tested individual could not be identified in any actuarial or research report and any materials that identify a tested individual are returned or destroyed as soon as reasonably practicable.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1137 }, { "id": "nhgri-c95224cfc1bb5f354bf1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: TS (Insurance) Code 846.01 and 1501.001 et seq.", "primary_url": "http://www.statutes.legis.state.tx.us/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Pre-existing conditions and health status-related factors are defined to include genetic information with respect to multiple-employer welfare arrangements and the health insurance portability and accountability act.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1138 }, { "id": "nhgri-a1f38589300ca25dc122", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: TS (Labor) Code 21.401-405", "primary_url": "http://www.statutes.legis.state.tx.us/Docs/LA/htm/LA.21.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unlawful employment practice if an employer, labor organization, or employment agency discriminates against an individual on the basis of genetic information or refusal to submit to a genetic test. An employer, labor organization, or employment agency commits an unlawful employment practice if these entities limit, segregate, or classify an employee, member, or applicant in a way that would deprive or tend to deprive the employee, member, or applicant of employment opportunities or otherwise adversely affect the status of his or her status on the basis of genetic information or the refusal to submit to a genetic test.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1139 }, { "id": "nhgri-633f0da607315f9e6cec", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: TS (Labor) Code 301.156", "primary_url": "http://www.statutes.legis.state.tx.us/Docs/LA/htm/LA.301.htm", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "The Texas Workforce Commission collects and reports on complaints of employment discrimination, including those related to the use of genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1140 }, { "id": "nhgri-17af94d16b2594e27f34", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "State StatuteTexas: TS (Occupations) Code 58.001 et seq.", "primary_url": "http://www.statutes.legis.state.tx.us/Docs/OC/htm/OC.58.htm", "source_topics": [ "Employment Nondiscrimination", "Privacy", "Research" ], "source_status": "Statute", "source_summary": "The statutes restrict the use and disclosure of genetic tests and the use of family history by a licensing authority. A sample obtained from an individual for a genetic test must be destroyed promptly after the purpose for which the sample was obtained with some exceptions, including (1) authorized retention of the sample for medical treatment or scientific research or (2) if the sample was obtained for research that is cleared by an institutional review board, and retention of the sample is under a requirement the institutional review board imposes on a specific research project or authorized by the research participant with institutional review board approval under federal law. Genetic information may not be disclosed without written authorization with some exceptions, including (1) if the disclosure is for information from a research study in which the procedure for obtaining informed written consent and the use of the information is governed by national standards for protecting participants involved in research projects, including guidelines issued under 21 C.F.R. Part 50 and 45 C.F.R. Part 46 and (2) the information does not identify a specific individual.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1141 }, { "id": "nhgri-3b4eb5d9926d990b4054", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "State StatuteUC 26-18-25", "primary_url": "https://le.utah.gov/~2019/bills/static/HB0435.html", "source_topics": [ "Health Insurance Coverage" ], "source_status": "Statute", "source_summary": "Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21.", "base_status": "statute", "mapped_topics": [ "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1142 }, { "id": "nhgri-88be3b4d590030c00c25", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "State StatuteUtah: UC 13-58-101 et seq.", "primary_url": "https://le.utah.gov/~2021/bills/sbillenr/SB0227.pdf", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: (1) provide a consumer clear information regarding the company's collection, use, and disclosure of genetic data; (2) provide a consumer a publicly available privacy notice; (3) obtain a consumer's consent for certain collection, use, or disclosure of the consumer's genetic data; (4) protect a consumer's genetic data; (5) allow a consumer to access and delete the consumer's genetic data; and (6) upon request, destroy a consumer's biological sample. Prohibits a direct-to-consumer genetic testing company from disclosing a consumer's genetic data to certain persons.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1143 }, { "id": "nhgri-3bf57d111d5fbd6bd046", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "State StatuteUtah: UC 26-45-101 et seq.", "primary_url": "https://le.utah.gov/xcode/code.html", "source_topics": [ "Employment Nondiscrimination", "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "An employer may not in connection with a hiring, promotion, retention, or other related decision access or (1) take into account genetic information, (2) request or require an individual to consent to release genetic information, (3) submit to a genetic test, or (4) inquire or take into account that an individual or blood relative of that person has taken a genetic test. An employer may compel disclosure of genetic information for specified reasons. A health care insurer may not in connection with the offer or renewal of an insurance product or in the determination of any underwriting decision access or otherwise (1) take into consideration private genetic information about an asymptomatic individual, (2) request or require an asymptomatic individual to consent to a release for the purpose of accessing private genetic information, (3) request or require an asymptomatic individual or his blood relative to submit to a genetic test, or (4) inquire into or otherwise take into consideration the fact that an asymptomatic individual or his blood relative has taken or refused to take a genetic test. An individual whose rights have been violated bring civil action.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1144 }, { "id": "nhgri-7f1cfc8cd6421fd47dda", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "State StatuteUtah: UC 31A-1-301, 31A-22-620, 31A-22-1602", "primary_url": "https://le.utah.gov/xcode/code.html", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis. The genetic testing privacy act, which prohibits health insurance discrimination, is applicable to insurers except as permitted under the Medicare Supplement Minimum Standards Act. The insurance commissioner may adopt rules regarding nondiscrimination for genetic testing or genetic information in Medicare supplement policies and certificates.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1145 }, { "id": "nhgri-ce4082d2848c2b6d3856", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Utah", "source_record_label": "State StatuteUtah: UC 53A-1-1401 et seq.", "primary_url": "https://le.utah.gov/xcode/code.html", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1146 }, { "id": "nhgri-0833cb6c480e5ae63004", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "State StatuteVermont: VSA 18 9331 et seq.", "primary_url": "http://legislature.vermont.gov/statutes/chapter/18/217", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "A person may not be required to undergo genetic testing with some exceptions. Genetic testing may not be performed on any individual or any bodily materials be released for purposes of genetic testing without prior written authorization and informed consent except for (1) medical research where the identity of the subject is unknown, (2) if the research is conducted with anonymized medical information, where individual identifiers are encrypted or encoded, and the identity of the individual is not disclosed, or (3) if the identity of the individual is known, where standards of protection are equal to those contained in regulations promulgated by the federal Office for Protection from research Risk (OPRR).", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1147 }, { "id": "nhgri-ef4bf90cbac40e3b0d31", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "State StatuteVermont: VSA 18 9331 et seq.", "primary_url": "http://legislature.vermont.gov/statutes/chapter/18/217", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A policy of insurance may not be underwritten or conditioned on a requirement to undergo genetic testing or the results of genetic testing. Civil and criminal penalties are set forth for violations.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1148 }, { "id": "nhgri-aaf72b3fa37e160aa837", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "State StatuteVermont: VSA 18 9331 et seq.", "primary_url": "http://legislature.vermont.gov/statutes/chapter/18/217", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Employers or labor organizations may not use information about genetic testing, genetic counseling, or genetic disease for purposes specified. Civil and criminal penalties are set forth for violations.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1149 }, { "id": "nhgri-a6da9999809d1c8f75e4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "State StatuteVermont: VSA 8 4724", "primary_url": "http://legislature.vermont.gov/statutes/section/08/129/04724", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "It is an unfair method of competition or unfair and deceptive act or practice to (1) make or permit any unfair discrimination against any individual by conditioning insurance rates, the provision or renewal of insurance coverage, or other conditions of insurance based on the results of genetic testing where there is not a relationship between the information and the cost of the insurance risk that the insurer would assume by insuring the proposed insured or (2) to violate the Title 18 � 9334.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1150 }, { "id": "nhgri-39e5ec5e2f2be0ca5d8a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "State StatuteVermont: VSA 9 2430 et seq.", "primary_url": "https://legislature.vermont.gov/Documents/2020/Docs/ACTS/ACT089/ACT089%20As%20Enacted.pdf", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Requires (1) the State Court Administrator for the Judicial Branch; (2)the Director of Information Technology for the Legislative Branch; and (3) the Chief Data Officer within the Agency of Digital Services and the Chief Records Officer within the Office of the Secretary of State for the Executive Branch to conduct a data privacy inventory for their respective branches of government. The inventory must address the collection and management of personally identifiable information, including genetic information. Requires a report to the legislature on or before January 15, 2021.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1151 }, { "id": "nhgri-d9c4cd0b4860f28c07a3", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "State StatuteVirginia: Code of Va. 32.1-162.16.", "primary_url": "https://law.lis.virginia.gov/vacode/title32.1/chapter5.1/section32.1-162.16/", "source_topics": [ "Research" ], "source_status": "Statute", "source_summary": "Requires informed consent to conduct human research. Requires institutions or agencies conducting or proposing to conduct or authorize human research to establish a human research review committee.", "base_status": "statute", "mapped_topics": [ "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1152 }, { "id": "nhgri-4123bb5f89955889e9ed", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "State StatuteVirginia: Code of Va. 38.2-508.4 and 38.2-613", "primary_url": "https://law.lis.virginia.gov/vacode/title38.2/chapter34/section38.2-3431/", "source_topics": [ "Health Insurance Nondiscrimination", "Privacy" ], "source_status": "Statute", "source_summary": "A person proposing to issue, re-issue, or renew accident and sickness insurance, excluding disability income insurance, issued by any insurer providing hospital, medical and surgical or major medical coverage on an expense incurred basis, a corporation providing a health services plan, or an HMO providing a health care plan may not on the basis of any genetic information or a request for genetic services (1) terminate, restrict, limit, or otherwise apply conditions to coverage of an individual or restrict the sale to an individual, (2) cancel or refuse to renew the coverage of an individual, (3) exclude an individual from coverage, (4) impose a waiting period, (5) require inclusion of a rider that excludes coverage for certain benefits and services, (6) establish differentials in premium rates for coverage, or (7) disclose any genetic information about an individual or his/her family member collected or received in connection with any insurance transaction unless the disclosure is made with the written authorization of the individual.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "genetic-privacy", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1153 }, { "id": "nhgri-5a19e2b7d317c7087ea7", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "State StatuteVirginia: Code of Va. 38.2-3431", "primary_url": "https://law.lis.virginia.gov/vacode/title38.2/chapter34/section38.2-3431/", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "In the statutes pertaining to group health plans, health status-related factors are defined to include genetic information, and pre-existing condition exclusion may not be based on genetic information in the absence of a diagnosis.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1154 }, { "id": "nhgri-c3db0f63f21c7c08a6d2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "State StatuteVirginia: Code of Va. 40.1-120.1", "primary_url": "https://law.lis.virginia.gov/vacode/title40.1/chapter6/section40.1-120.1/", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "Prohibits a sponsor of a registered apprenticeship program from discriminating against an apprentice or applicant for apprenticeship on the basis of various factors, including genetic information.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1155 }, { "id": "nhgri-daa79f321854ad13c634", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "State StatuteVirginia: Code of Va. 40.1-28.7:1", "primary_url": "https://law.lis.virginia.gov/vacode/title40.1/chapter3/section40.1-28.7:1/", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer may not request, require, solicit or administer a genetic test as a condition of employment or refuse to hire, fail to promote, discharge or otherwise adversely affect any terms or conditions of employment of any employee or prospective employee solely on the basis of a genetic characteristic or the results of a genetic test, regardless of how the employer obtained such information or results. An employee may bring an action in a court of competent jurisdiction over an employer who took adverse action against the employee.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1156 }, { "id": "nhgri-8f37ed93dffc0fe775d2", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "State StatuteWashington: RCW 40.26.010 et seq.", "primary_url": "https://app.leg.wa.gov/RCW/default.aspx?cite=40.26.010", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "Modifies the state privacy law pertaining to biometric information by adding DNA to the definition of biometric identifiers. Provides an exception for law enforcement agencies.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1157 }, { "id": "nhgri-d9574803f9536ffa1101", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "State StatuteWashington: RCW 48.43.012", "primary_url": "http://lawfilesext.leg.wa.gov/biennium/2019-20/Pdf/Bills/Session%20Laws/House/1870-S.SL.pdf", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "Makes state law consistent with selected federal consumer protections in the patient protection and affordable care act. Prohibits a health carrier or health plan from establishing rules for eligibility based on health-status related factors such as genetic information.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1158 }, { "id": "nhgri-03b25de8fcdbac7df220", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "State StatuteWashington: RCW 49.44.180", "primary_url": "http://apps.leg.wa.gov/rcw/default.aspx?cite=49.44.180", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "A person, firm, corporation, or the state of Washington, its political subdivisions, or municipal corporations may not require any employee or prospective employee to submit genetic information or submit to screening for genetic information as a condition of employment or continued employment.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1159 }, { "id": "nhgri-3f23249de0add6e632ec", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Washington", "source_record_label": "State StatuteWashington: RCW 70.02.010 et seq.", "primary_url": "http://apps.leg.wa.gov/rcw/default.aspx?cite=70.02.010", "source_topics": [ "Privacy", "Research" ], "source_status": "Statute", "source_summary": "A health care provider, an individual who assists a health care provider in the delivery of health care, or an agent and employee of a health care provider may not disclose health care information, including a patient's deoxyribonucleic acid and identified sequence of chemical base pairs, about a patient to any other person without the patient's written authorization. A health care provider may disclose health care information to researchers if the health care provider or health care facility obtains the informed consent for the use of the patient's health care information for research purposes.", "base_status": "statute", "mapped_topics": [ "genetic-privacy", "research" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1160 }, { "id": "nhgri-37f31a29d9609c264b4b", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "State StatuteWest Virginia: WVC 18-2-5h", "primary_url": "http://www.legis.state.wv.us/WVCODE/ChapterEntire.cfm?chap=18&art=2§ion=5h&year=2016&sessiontype=RS&btype=bill&input=4261", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "The Department of Education must prohibit the collection of confidential student information, including genetic information. The Department may not transfer student or redacted data that is confidential except under specified circumstances.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1161 }, { "id": "nhgri-df8fe0e9d415d7390ee0", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "State StatuteWest Virginia: WVC 33-15-2a, 33-16-1a, and 33-16-3k", "primary_url": "http://www.legis.state.wv.us/WVCODE/Code.cfm?chap=33&art=1", "source_topics": [ "Health Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A health benefit plan issued in connection with a group health plan may not impose a pre-existing condition exclusion based on genetic information in the absence of a diagnosis. A health status-related factor is defined to include genetic information as defined in section of the statutes pertaining to individual group accident and sickness insurance.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1162 }, { "id": "nhgri-936b25512cc744b2ee41", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "State StatuteWisconsin: WSA 111.31 et seq. , 942.07", "primary_url": "https://docs.legis.wisconsin.gov/statutes/statutes", "source_topics": [ "Employment Nondiscrimination" ], "source_status": "Statute", "source_summary": "An employer, labor organization or employment or licensing agency may not (1) solicit, require or administer a genetic test to any person as a condition of employment, labor organization membership or licensure or affect the terms, conditions or privileges of employment, labor organization membership or licensure; (2) terminate the employment, labor organization membership or licensure of any person who obtains a genetic test; or (3) require or administer a genetic test without the prior written and informed consent of the employee, labor organization member or licensee, or of the prospective employee, labor organization member or licensee, who is the subject of the test. No person may disclose to an employer, labor organization, employment agency or licensing agency that an employee, labor organization member or licensee, or a prospective employee, labor organization member or licensee, has taken a genetic test, and no person may disclose the results of such a test to an employer, labor organization, employment agency or licensing agency without the prior written and informed consent of the subject of the test.", "base_status": "statute", "mapped_topics": [ "employment", "genetic-discrimination" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1163 }, { "id": "nhgri-fd5a3733b1ebe5e2c35a", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wisconsin", "source_record_label": "State StatuteWisconsin: WSA 631.89", "primary_url": "https://docs.legis.wisconsin.gov/statutes/statutes/631/III/89", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "An insurer offering group health_insurance_coverage may not use genetic information as the basis for a pre-existing condition exclusion in the absence of a diagnosis or establish rules for eligibility or continued eligibility based on health status-related factors, including genetic information. An insurer with respect to a self-insured health plan, or a county, city, village or school board that provides health care services for individuals on a self-insured basis, may not (1) require or request any individual or a member of the individual's family obtain a genetic test or reveal whether a test was taken or the results or (2) condition coverage or health care benefits on or use in the determination of rates whether an individual or his/her family member has taken a genetic test or what the results of the test were. Life insurance or income continuance insurers are not subject to the above provisions but may not provide rates or aspects of coverage that are contrary to the risk involved.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1164 }, { "id": "nhgri-a849bfec9dd6338f3cee", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wyoming", "source_record_label": "State StatuteWyoming WSA 35-31-101 et seq.", "primary_url": "https://wyoleg.gov/NXT/gateway.dll?f=templates&fn=default.htm", "source_topics": [ "Privacy" ], "source_status": "Statute", "source_summary": "The law prohibits the collection, retention and disclosure of genetic information without informed consent with some exceptions such as for law enforcement purposes, newborn screening and anonymous research. An individual may inspect, correct and obtain retained genetic information. A person conducting genetic analysis must destroy an individual's genetic information upon request. Genetic information about an individual obtained for purposes exempt from consent requirements may only be used for the purposes obtained and must be destroyed or returned to the individual upon completion of use or in accordance with law.", "base_status": "statute", "mapped_topics": [ "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1165 }, { "id": "nhgri-9adca6e68df29f7c1fa4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Wyoming", "source_record_label": "State StatuteWyoming: WSA 26-19-107 and 26-19-306", "primary_url": "https://wyoleg.gov/NXT/gateway.dll?f=templates&fn=default.htm", "source_topics": [ "Health Insurance Nondiscrimination", "Other Lines of Insurance Nondiscrimination" ], "source_status": "Statute", "source_summary": "A policy of group or blanket disability insurance or health benefit plan covering small employers may not treat genetic information as a pre-existing condition in the absence of a diagnosis or establish rules for eligibility or continued eligibility based on a health status-related factor, including genetic information. These entities also may not deny eligibility, or adjust premium or contribution rates based on genetic testing information of an individual or family member or request or require predictive genetic testing information about an individual or family member except as needed for diagnosis, treatment, or payment purposes.", "base_status": "statute", "mapped_topics": [ "genetic-discrimination", "health-insurance" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1166 }, { "id": "nhgri-dde7d07fcfa0cd7bb854", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "Texas HB 2545", "primary_url": "http://capitol.texas.gov/tlodocs/88R/billtext/pdf/HB02545F.pdf", "source_topics": [ "Genetic data storage/privacy/sharing (industry)" ], "source_status": "Approved", "source_summary": "Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p...", "base_status": "approved", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1167 }, { "id": "nhgri-cd01cb26ab196045bf54", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "Texas HB 270", "primary_url": "http://capitol.texas.gov/tlodocs/88R/billtext/pdf/HB00270E.pdf", "source_topics": [ "Genetic Data & Law Enforcement" ], "source_status": "Passed House", "source_summary": "Relating to postconviction forensic DNA testing.", "base_status": "passed-house", "mapped_topics": [ "law-enforcement" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1168 }, { "id": "nhgri-19e9e14b2a8224cd07e8", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "Texas SB 1544", "primary_url": "http://capitol.texas.gov/tlodocs/88R/billtext/pdf/SB01544I.pdf", "source_topics": [ "Genetic data storage/privacy/sharing (industry)" ], "source_status": "Introduced", "source_summary": "Relating to the use of an individual's genetic data by certain genetic testing companies for commercial purposes; authorizing a civil penalty.", "base_status": "introduced", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1169 }, { "id": "nhgri-46d21845517f50f2025d", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Texas", "source_record_label": "Texas SB 1697", "primary_url": "http://capitol.texas.gov/tlodocs/88R/billtext/pdf/SB01697I.pdf", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "Relating to an annual report regarding certain newborn screening tests.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1170 }, { "id": "nhgri-1b01f75e0b4704d41b51", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Vermont", "source_record_label": "Vermont SB 74", "primary_url": "http://legislature.vermont.gov/Documents/2024/Docs/BILLS/S-0074/S-0074%20As%20Introduced.pdf", "source_topics": [ "Neonatal sequencing" ], "source_status": "Introduced", "source_summary": "An act relating to incremental implementation of Green Mountain Care.", "base_status": "introduced", "mapped_topics": [ "newborn-screening" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1171 }, { "id": "nhgri-59330a2d5c076e42a0ce", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "Virginia HB 1077", "primary_url": "http://leg1.state.va.us/cgi-bin/legp504.exe?231_ful_HB1077_hil=", "source_topics": [ "Parentage law" ], "source_status": "Died", "source_summary": "Provides that any person who knowingly gives any false information or makes any false statements for the purpose of determining paternity is guilty of a Class 6 felony. The bill further requires an a...", "base_status": "died", "mapped_topics": [], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1172 }, { "id": "nhgri-12c839f11ed2ee257e0c", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "Virginia SB 1087", "primary_url": "https://lis.virginia.gov/cgi-bin/legp604.exe?231_ful_CHAP0526=", "source_topics": [ "Genetic data storage/privacy/sharing (industry)", "Lab Developed Tests" ], "source_status": "Enacted", "source_summary": "Establishes requirements for direct-to-consumer genetic testing companies, defined in the bill, including requirements related to information to be provided to consumers, express consent requirements...", "base_status": "enacted", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1173 }, { "id": "nhgri-25a94e307352f801cdb1", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "Virginia", "source_record_label": "Virginia SB 419", "primary_url": "http://leg1.state.va.us/cgi-bin/legp504.exe?231_ful_SB419_hil=", "source_topics": [ "Genetic data storage/privacy/sharing (industry)" ], "source_status": "Died", "source_summary": "Establishes requirements for direct-to-consumer genetic testing companies, including requirements related to information to be provided to consumers, consent requirements, requirements related to sec...", "base_status": "died", "mapped_topics": [ "data-sharing", "genetic-privacy" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1174 }, { "id": "nhgri-b0d33c71a0c96854c1b4", "source_dataset": "NHGRI Genome Statute and Legislation Database", "jurisdiction": "West Virginia", "source_record_label": "West Virginia HB 3025", "primary_url": "http://www.legis.state.wv.us/Bill_Status/bills_text.cfm?billdoc=hb3025%20intr.htm&yr=2023&sesstype=RS&i=3025", "source_topics": [ "Genetic Data & Law Enforcement" ], "source_status": "Introduced", "source_summary": "Relating to DNA data maintained for law enforcement purposes.", "base_status": "introduced", "mapped_topics": [ "law-enforcement" ], "inferred_year": null, "verification_status": "reviewed-nhgri", "source_page": "https://www.genome.gov/about-genomics/policy-issues/Genome-Statute-Legislation-Database", "source_row_number": 1175 } ]