Illinois
Explore the Illinois records currently included in this collection. Coverage is not complete.
State Laws Database: 0 records
NHGRI database archive: 35 records
Status: 13 enacted or approved; 5 proposed or pending
Most common mapped topics: Privacy (18) · Health Insurance Coverage (8) · Employment Nondiscrimination (4)
Records in Illinois
Showing 20 of 35; State Laws Database records appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| Illinois | 2021 State Bills Illinois 2021 HB 1779NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Enacted | An individual or group health care service plan contract that is issued, amended, delivered, or renewed on or after January 1, 2022 may not require prior authorization for biomarker testing for an insured with advanced or metastatic stage 3 or 4 cancer, nor shall prior authorization be required for biomarker testing of cancer progression or recurrence in the insured with advanced or metastatic stage 3 or 4 cancer. Biomarker testing is defined as analysis of tissue blood or fluid specimen for the presence of a biomarker. Biomarker testing includes, but not limited to, single-analyte tests, multiplex tests, and partial or whole genome sequencing. 7/30/21 Governor approved. Effective 1/1/2022. |
| Illinois | 2021 State Bills Illinois 2021 HB 2109NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Enacted | Provides that an individual or group policy of accident and health insurance or managed care plan that is amended, delivered, issued, or renewed on or after the effective date of the amendatory Act must provide coverage for medically necessary comprehensive cancer testing and testing of blood or constitutional tissue for cancer predisposition testing as determined by a physician. Comprehensive cancer testing includes, but is not limited to, the following forms of testing: (1) targeted cancer gene panels; (2) whole-exome genome testing; (3) whole genome testing; (4) RNA sequencing; and (5) tumor mutation burden. 8/27/21 Approved by the Governor. Effective 1/1/2022. |
| Illinois | 2021 State Bills Illinois 2021 HB 2880NHGRI archive2021 legislative sessionPrimary source | Privacy | Died | Amends the Personal Information Protection Act. Provides that individuals and entities have intellectual property rights in their digital identity assets. Provides for the payment of royalties to individuals and entities for access, for the purpose of commercial advertising, to their digital assets. Digital assets include, but are not limited to, information accumulated regarding an individual's or entity's personal information. Personal information includes medical history such as RNA and DNA profiles and genetic history. Carries over to 2022 session. |
| Illinois | 2020 State Bills Illinois 2020 HB 4656NHGRI archive2020 legislative sessionPrimary source | Health Insurance Coverage | Died | Amends the Medical Patient Rights Act. Provides that all persons have a right to request an annual breast cancer screening mammogram under the age of 40 if such person has a family history of breast cancer or genetic testing has confirmed likelihood that such person has otherwise tested positive for BRCA1 or BRCA2 mutations. Died. |
| Illinois | 2020 State Bills Illinois 2020 HB 5288NHGRI archive2020 legislative sessionPrimary source | Privacy | Died | Establishes consumer rights to copies of information held by persons who control and process data. Provides for the correction of inaccurate data. Provides for restrictions on the use of personal data. Defines health care information to include a patient's deoxyribonucleic acid. Died. |
| Illinois | 2020 State Bills Illinois 2020 HB 5603NHGRI archive2020 legislative sessionPrimary source | Privacy | Died | Creates the Consumer privacy Act. Personal information is defined to include biometric information such as deoxyribonucleic acid. Provides consumers rights with regard to the collection and use of personal information businesses. Died. |
| Illinois | 2020 State Bills Illinois 2020 SB 3092NHGRI archive2020 legislative sessionPrimary source | Privacy | Died | Amends the Genetic Information privacy Act. Requires informed consent for a person or business to disclose an individual's genetic information to third parties specifically for marketing, advertising, or sales purposes. Died. |
| Illinois | 2019 State Bills Illinois 2019 HB 2189NHGRI archive2019 legislative sessionPrimary source | Other Lines of Insurance Nondiscrimination | Enacted | A company providing direct-to-consumer commercial genetic testing is prohibited from sharing genetic test information or other personally identifiable information about a consumer with any health or life insurance company without written consent from the consumer. Direct-to-consumer genetic tests are added to the definition of genetic test under the Genetic Information privacy Act. 7/26/2019 Public Act. Effective January 1, 2020. |
| Illinois | 2019 State Bills Illinois 2019 SB 1307NHGRI archive2019 legislative sessionPrimary source | Privacy | Died | Amends the Genetic Information privacy Act provisions concerning uses and disclosures for treatment, payment, health care operations, health oversight activities, and public health activities; uses and disclosures of information to a health information exchange; business associates; and establishment and disclosure of limited data sets and de-identified information. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died. |
| Illinois | 2019 State Bills Illinois 2019 SB 2263NHGRI archive2019 legislative sessionPrimary source | Privacy | Died | Establishes consumer rights to copies of information held by persons who control and process data. Provides for the correction of inaccurate data. Provides for restrictions on the use of personal data. Defines health care information to include a patient's deoxyribonucleic acid. Died. |
| Illinois | 2018 State Bills Illinois 2018 SB 2924NHGRI archive2018 legislative sessionPrimary source | Privacy | Died | Amends the Genetic Information privacy Act provisions concerning uses and disclosures. Provides that various uses or disclosures of a patient's genetic information may not (rather than may) occur without the patient's consent. Died. |
| Illinois | 2017 State Bills Illinois 2017 SB 318NHGRI archive2017 legislative sessionPrimary source | Employment Nondiscrimination, Privacy | Enacted | Amends the state genetic nondiscrimination law for employment. An employer may not penalize an employee who does not disclose his or her genetic information or does not choose to participate in a program requiring disclosure of the employee's genetic information. 8/25/2017 Approved by the Governor. Effective 1/1/2018. |
| Illinois | 2015 State Bills Illinois 2015 HB 1536NHGRI archive2015 legislative sessionPrimary source | Privacy | Died | Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. |
| Illinois | 2015 State Bills Illinois 2015 HB 810NHGRI archive2015 legislative sessionPrimary source | Privacy | Died | Amends the School Code to add provisions concerning student and educator data privacy. Protections cover biometric records, defined to include DNA. Died. |
| Illinois | 2015 State Bills Illinois 2015 HB 887NHGRI archive2015 legislative sessionPrimary source | Privacy | Died | Requires health insurance providers to protect health information related to sensitive services. A 2016 House Amendment would define sensitive services to include genetic testing. Died. |
| Illinois | 2015 State Bills Illinois 2015 SB 54NHGRI archive2015 legislative sessionPrimary source | Health Insurance Coverage | Enacted | Adds tomosynthesis to health_insurance_coverage requirements for women at increased risk of breast cancer because of positive genetic testing. 8/19/2015 Signed By the Governor. |
| Illinois | 2014 State Bills Illinois 2014 HB 5925NHGRI archive2014 legislative sessionPrimary source | Privacy | Enacted | Amends the Genetic Information privacy Act to add a provision related to electronic health records. The bill states that the disclosure of genetic information, when allowed, must be performed in accordance with the minimum necessary standard when required under HIPAA. Approved by the Governor August 25, 2014. |
| Illinois | 2014 State Bills Illinois 2014 HB 5998NHGRI archive2014 legislative sessionPrimary source | Privacy | Died | Amends the Genetic Information privacy Act. Makes a technical change in a section concerning the short title. Died. |
| Illinois | 2012 State Bills Illinois 2012 HB 6248NHGRI archive2012 legislative sessionPrimary source | Health Insurance Coverage | Died | The Department of Healthcare and Family Services must authorize the provision of, and payment for, a baseline mammograms for women 35-39 and mammograms at certain intervals for women over 40. Women under 40 with risk factors such as positive genetic testing should receive mammograms as medical necessary. Measure failed. |
| Illinois | 2009 State Bills Illinois 2009 SB 2493NHGRI archive2009 legislative sessionPrimary source | Health Insurance Nondiscrimination | Died | This bill deletes provisions in the statutes related to pre-existing conditions and the treatment on genetic information as such a condition. Measure failed. |