New York
Explore the New York records currently included in this collection. Coverage is not complete.
State Laws Database: 1 record
NHGRI database archive: 124 records
Status: 25 enacted or approved; 17 proposed or pending
Most common mapped topics: Privacy (35) · Employment Nondiscrimination (24) · Health Insurance Coverage (23)
Records in New York
Showing 20 of 125; State Laws Database records appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| New York | Confidentiality of records of genetic testsWho Owns Your DNA?StatutePrimary source | Privacy, Research | Statute | New York Civil Rights Law section 79-l generally requires written informed consent before a genetic test is performed and before results are disclosed. It also treats genetic-test records and results as confidential and regulates the retention, research use, and destruction of biological samples. |
| New York | 2021 State Bills New York 2021 A1758NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Pending | Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer when the attending physician determines such person has a significant risk thereof. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A3586NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Biometric information is defined to include DNA. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A3709NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A3802NHGRI archive2021 legislative sessionPrimary source | Research | Pending | Regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Addresses exclusion or inclusion of subjects to participate in human research based on race, ethnicity or sex. Requires reporting certain information relating to the collection of data. Provides that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A404NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Pending | Requires health insurance policies to cover comprehensive screening for ovarian cancer, including genetic testing. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A460NHGRI archive2021 legislative sessionPrimary source | Employment Nondiscrimination, Other Topics | Pending | Declares that it is an unlawful discriminatory practice for a hiring party to subject a model to harassment based on various characteristics, including predisposing genetic characteristics. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A592NHGRI archive2021 legislative sessionPrimary source | Other Topics | Pending | Establishes a genetics advisory council. Requires a preliminary report to the governor and legislature before March 1, 2023 and a final report by December 1, 2023 on issues relating to genetic counseling, genetic testing and public education. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A6042NHGRI archive2021 legislative sessionPrimary source | Other Topics, Privacy | Pending | Prohibits businesses from processing personal information for the purpose of advertising, marketing, soliciting, offering, selling, leasing, licensing, renting, or otherwise commercially contracting for employment, finance, health care, credit, insurance, housing, or education opportunities, in a manner that discriminates against or otherwise makes the opportunity unavailable on the basis of an individual's or class of individuals' actual or perceived predisposing genetic characteristics. Requires businesses to obtain freely given, specific, informed, and unambiguous opt-in consent from an individual to: (a) Process such individual's personal information; and (b) Make any changes in the processing of such individual's information that necessitate a change to the entity's required short-form privacy notice. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A680NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Enacts the NY privacy act to require companies to disclose their methods of de-identifying personal information such as biometric information, to place special safeguards around data sharing and to allow consumers to obtain the names of all entities with whom their information is shared. Biometric information is defined to include DNA. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A687NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Imposes requirements for the collection and use of emergency health data and personal information and the use of technology to aid during the COVID-19 public health emergency. Requires entities using technology to get consent from individuals and to disclose certain information including the right to privacy and who will have access to the data. Emergency health data is defined to include genetic data. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A700NHGRI archive2021 legislative sessionPrimary source | Employment Nondiscrimination, Other Topics | Pending | Requires companies to file a biennial climate report. The requirements for the form and content of the climate report at a minimum must include: (i) Company climate surveys to be filled out anonymously by employees, which are designed to assess such company's workplace environment including, but not limited to, pay equity, sexual harassment and discrimination based on an individual's age, race, creed, color, national origin, sexual orientation, military status, sex, disability, predisposing genetic characteristics, familial status, marital status or domestic violence victim status. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 A954NHGRI archive2021 legislative sessionPrimary source | Privacy | Enacted | Directs the director of the office of information technology services to conduct a study on the use of biometric identifying technology. Prohibits the use of biometric identifying technology in schools until July 1, 2022 or until the commissioner of education authorizes such purchase or utilization, whichever occurs later. Biometric identifier is defined to include a DNA sequence. 1/28/2021 Signed by the Governor. Effective immediately. |
| New York | 2021 State Bills New York 2021 S105NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Pending | Requires health insurance policies to cover comprehensive genetic screening for ovarian and prostate cancers. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S4021NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Establishes the "It's Your Data Act" for the purposes of providing protections and transparency in the collection, use, retention, and sharing of personal information, including biometric data. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S567NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Grants a consumer a right to request a business to disclose the categories and specific pieces of personal information such as biometric information that it collects about the consumer, the categories of sources from which that information is collected, the business purposes for collecting or selling the information, and the categories of third parties with which the information is shared. Biometric information is defined to include an individual's deoxyribonucleic acid. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S605NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Pending | Requires health insurers to provide coverage for expenses incurred in obtaining a colonoscopy when a subscriber has a high-risk predisposition to colon cancer based on genetic or family history. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S6681NHGRI archive2021 legislative sessionPrimary source | Employment Nondiscrimination, Other Topics | Pending | Declares that it is an unlawful discriminatory practice for a hiring party to subject a model to harassment based on various characteristics, including predisposing genetic characteristics. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S6701NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Enacts the NY privacy act to require companies to disclose their methods of de-identifying personal information such as biometric information, to place special safeguards around data sharing and to allow consumers to obtain the names of all entities with whom their information is shared. Biometric information is defined to include DNA. Carries over to 2022. |
| New York | 2021 State Bills New York 2021 S7430NHGRI archive2021 legislative sessionPrimary source | Other Topics | Enacted | Prohibits the state, or any agency or bureau, or any other entity from denying a refugee resettlement anywhere within the state based on any criterion, method of administration, or practice that has the purpose or effect of discriminating on the basis of various factors, including predisposing genetic characteristics. Carries over to 2022. |