Genetic data storage/privacy/sharing (medicine)
Rules for storing, protecting, or sharing genetic data in medical settings.
Records grouped under the same topic may offer different rights and protections.
This database: 1 record
NHGRI database archive: 2 records
Records about genetic data storage/privacy/sharing (medicine)
Showing 3 of 3; records from this database appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| United States | HIPAA Privacy Rule treatment of genetic informationWho Owns Your DNA?Regulation ยท Effective: March 26, 2013Primary source | Genetic data storage/privacy/sharing (medicine), Health Insurance Nondiscrimination | Approved | The 2013 HIPAA final rule made clear that genetic information is health information under the HIPAA Privacy Rule. It also prohibited most health plans covered by HIPAA from using or disclosing protected health information that is genetic information for underwriting. |
| New Hampshire | New Hampshire SB 240NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (medicine) | Approved | Relative to conditions for genetic testing. |
| Hawaii | A BILL FOR AN ACTNHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (medicine), Neonatal sequencing | Died | Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means. |