Neonatal sequencing
Laws and policies concerning genomic sequencing of newborns.
Records grouped under the same topic may offer different rights and protections.
This database: 0 records
NHGRI database archive: 20 records
Records about neonatal sequencing
Showing 20 of 20; records from this database appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| California | California SB 625NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Pending | Newborn screening: genetic diseases: blood samples collected. |
| California | https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | SB 625 would make changes to the California Newborn Screening Program. |
| Florida | Florida SB 1548NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | Children?s Medical Services Program; Deleting a requirement that the Department of Health consult with the Department of Education before prescribing certain newborn testing and screening requirement... |
| Illinois | http://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1024lv&SessionID=11…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | As Introduced: Creates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Public Health to establish a grant program for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; and (2) make available grants to groups and organizations that meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be given to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas with a higher population of sickle cell disease patients. Requires the Department to determine the maximum amount available for each grant; determine policies for the expiration and renewal of grants; require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease; and develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to specified persons and institutions. Permits the Department to contract with an entity to implement the outreach program. Requires the Department to adopt rules. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Provides that implementation of the Act is subject to appropriation. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund. |
| Illinois | https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB1436lv&SessionID=1…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | As Introduced: Amends Cannabis Regulation and Tax Act. Creates the Cannabis Equity and Oversight Commission. Provides that the Commission shall administer and enforce the provisions of the Act relating to the oversight, licensing, registration, and certification of dispensing organizations, cultivation centers, craft growers, infuser organizations, transporting organizations, laboratories, and agents, including, but not limited to, the issuance of identification cards and establishing limits on the potency or serving size of cannabis or cannabis products. Provides that the Commission may suspend or revoke the license of, or impose other penalties upon, dispensing organizations, cultivation centers, craft growers, infuser organizations, transporting organizations, laboratories, and their principal officers, agents-in-charge, and agents for violations of the Act or any rules adopted under the Act. Makes conforming changes throughout various Acts. Contains other provisions. Effective July 1, 2023. |
| Illinois | https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2178lv&SessionID=1…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | As Introduced: Restores the statutes to the form in which they existed before their amendment by Public Act 102-662. Repeals the Energy Transition Act, the Energy Community Reinvestment Act, the Community Energy, Climate, and Jobs Planning Act, and the Illinois Clean Energy Jobs and Justice Fund Act. Effective immediately. |
| Illinois | https://www.ilga.gov/legislation/fulltext.asp?DocName=10300HB2605lv&SessionID=1…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | As Introduced: Repeals the Firearm Owners Identification Card Act. Amends various Acts to make conforming changes. Effective immediately. |
| Georgia | https://www.legis.ga.gov/api/legislation/document/20232024/215369NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | Relating to medical assistance generally, so as to provide for Medicaid coverage of rapid whole genome sequencing; to define a term; to provide for eligibility criteria; to provide for coverage criteria; to provide for necessary approvals and administrative actions. |
| Georgia | https://www.legis.ga.gov/api/legislation/document/20232024/215369NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | Relating to medical assistance generally, so as to provide for Medicaid coverage of rapid whole genome sequencing; to define a term; to provide for eligibility criteria; to provide for coverage criteria; to provide for necessary approvals and administrative actions. |
| Kansas | Kansas SB 139NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | Expanding newborn screening services and increasing transfer from the medical assistance fee fund to the Kansas newborn screening fund. |
| Massachusetts | Massachusetts HB 181NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
| Massachusetts | Massachusetts HD 1NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | An Act making appropriations for the Fiscal Year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
| Massachusetts | Massachusetts HD 777NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | An Act relative to early intervention services for children with prenatal exposure to opioids. |
| Massachusetts | Massachusetts SB 2400NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | An Act making appropriations for the fiscal year 2024 for the maintenance of the departments, boards, commissions, institutions, and certain activities of the Commonwealth, for interest, sinking fund... |
| Montana | Montana HB 682NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Approved | Revise laws related to collection of genetic material for newborn screenings. |
| Hawaii | http://data.capitol.hawaii.gov/sessions/session2024/bills/SB1471_.htmNHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means. |
| Hawaii | A BILL FOR AN ACTNHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (medicine), Neonatal sequencing | Died | Relating to privacy. Prohibits the department of health or any recipient of individually identifiable health information of a newborn child obtained through genetic and metabolic screening tests required by law to disclose to any person other than the newborn child's parents, guardian, or other persons having custody or control of the newborn child, any individually identifiable health information of a newborn child, including disclosure to a law enforcement officer. establishes that any information obtained by a law enforcement officer in violation of this prohibition shall be deemed evidence acquired by unlawful means. |
| California | https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240…NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Died | SB 625 would make changes to the California Newborn Screening Program. |
| Texas | Texas SB 1697NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | Relating to an annual report regarding certain newborn screening tests. |
| Vermont | Vermont SB 74NHGRI archiveDate not stated in source labelPrimary source | Neonatal sequencing | Introduced | An act relating to incremental implementation of Green Mountain Care. |