Alabama · legislation
HB 21 (2024)
Alabama Genetic Data Privacy Act
EnactedTopics: Genetic privacy · Direct-to-consumer genetic testing · Consent · Data sharing · Data deletion · Sample destruction
Summary
Alabama HB 21 enacted the Alabama Genetic Data Privacy Act, which regulates covered direct-to-consumer genetic testing companies and their contractors. The act requires privacy notices, consent for specified uses and disclosures, and procedures for accessing or deleting genetic data and destroying samples.
What the law or policy does
Covered companies must obtain express consent for specified data collection, use, retention, and disclosure practices. The act also requires informed consent for certain research, reasonable security practices, deletion and sample-destruction procedures, and confidentiality protections. The Attorney General may seek civil remedies for violations.
What this means
A covered consumer genetic testing company must explain how it uses genetic information and obtain specific permission for several uses. Consumers may access their data, revoke consent, and request deletion or sample destruction within the act's stated procedures.
Primary sources
- HB 21 enrolled act. Alabama Legislature. Accessed August 31, 2026.
- Alabama Code § 8-43-2. Alabama Legislature. Accessed August 31, 2026.
Record details
Record history
- February 6, 2024: Bill introduced and referred to the House Judiciary Committee. Source: Alabama Legislature.
- February 20, 2024: House passed the bill. Source: Alabama Legislature.
- May 8, 2024: Senate passed the bill as amended. Source: Alabama Legislature.
- May 16, 2024: Enacted as Act 2024-384. Source: Alabama Legislature.
- October 1, 2024: Act became effective. Source: Alabama Legislature.
- August 31, 2026: Record created from the enrolled act, current code, and legislative history. Source: Project review.
Technical metadata
Record ID: al-hb-21-2024
Topics: genetic-privacy, direct-to-consumer-testing, consent, data-sharing, data-deletion, sample-destruction
Canonical source file: data/states/alabama/al-hb-21-2024.yaml
Cite this record
Who Owns Your DNA? HB 21 (2024): Alabama Genetic Data Privacy Act. U.S. Genetics & Genomics Law and Policy Tracker. Record version 1.0. Accessed [date].