California · Legislation

SB 41 (2021)

Genetic Information Privacy Act

Status
Enacted
Effective date
January 1, 2022
Last reviewed
September 2, 2026
Source review
Primary source reviewed

Summary

California's Genetic Information Privacy Act took effect on January 1, 2022. It regulates direct-to-consumer genetic testing companies that collect, use, maintain, or disclose genetic data collected or derived from a consumer or from the consumer's biological sample.

Topics: Genetic data storage/privacy/sharing (industry)

What it requires or prohibits

Covered companies must publish privacy notices, obtain separate express consent for listed uses and disclosures, provide access and deletion methods, and maintain reasonable security practices. After a qualifying consent revocation, a company must destroy the consumer's biological sample within 30 days.

In plain language

If you use a genetic testing company covered by the act, it must explain its data practices and ask separately before several uses or disclosures. You may access or delete your data and request sample destruction through the act's procedures.

Primary sources

Record details

Record metadata
Record history
  1. December 7, 2020: Bill introduced. Source: California Legislative Information.
  2. October 6, 2021: Approved by the Governor and chaptered. Source: California Legislative Information.
  3. August 31, 2026: Record created from the chaptered bill text.
  4. September 2, 2026: Project-authored analysis revised after primary-source review.
Technical metadata

Record ID: ca-sb-41-2021

Topics: genetic-data-storage-privacy-sharing-industry

Record data file: data/states/california/ca-sb-41-2021.yaml

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Cite this record

Who Owns Your DNA? SB 41 (2021): Genetic Information Privacy Act. U.S. Genetics & Genomics Law and Policy Tracker. Record version 1.1. Accessed [date]. https://whoownsyourdna.org/records/ca-sb-41-2021/

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