United States · policy
NOT-OD-14-124
NIH Genomic Data Sharing Policy
ApprovedTopics: Research · Consent · Data sharing
Summary
The NIH Genomic Data Sharing Policy establishes expectations for the broad and responsible sharing of large-scale genomic data generated by NIH-funded research and describes institutional certification, consent, repository, and data-access considerations.
What the law or policy does
The policy sets NIH funding expectations for data-sharing plans, submission timelines, institutional certification, repositories, and access mechanisms for covered large-scale genomic data.
What this means
NIH-funded projects within the policy's scope are expected to plan for genomic data sharing. Human data may be shared through controlled-access or unrestricted mechanisms depending on consent and other review requirements.
Primary sources
- NIH Genomic Data Sharing Policy. National Institutes of Health. Accessed August 31, 2026.
Record details
Record history
- August 27, 2014: Final policy announced. Source: NOT-OD-14-124.
- January 25, 2015: Policy became effective for covered applications and proposals. Source: NOT-OD-14-124.
- August 31, 2026: Record created from the official policy notice. Source: Project review.
Technical metadata
Record ID: federal-nih-gds-policy-2014
Topics: research, consent, data-sharing
Canonical source file: data/federal/federal-nih-gds-policy-2014.yaml
Cite this record
Who Owns Your DNA? NOT-OD-14-124: NIH Genomic Data Sharing Policy. U.S. Genetics & Genomics Law and Policy Tracker. Record version 1.0. Accessed [date].