NHGRI source snapshot
2021 State Bills Rhode Island 2021 S171
Rhode Island
Retrieved from NHGRI
NHGRI summary
Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 4/1/2021 Committee recommended measure be held for further study. Died.
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Provenance
Courtesy: National Human Genome Research Institute. This source layer preserves the state, primary link, topic, bill status, and summary retrieved from NHGRI.