NHGRI source snapshot

2021 State Bills Delaware 2021 HB 184

Delaware

Retrieved from NHGRI

Jurisdiction
Delaware
Status
Enacted
NHGRI topic(s)
Research, Use of Residual Newborn Screening Specimens
Record year or session
2021
NHGRI database updated
February 8, 2024
Snapshot retrieved
September 1, 2026 at 2:32 AM UTC
Source row
751
Stable source ID
nhgri-ca6d5d0e8965dd627e66

NHGRI summary

Amends the provision pertaining to use of stored blood specimens. Removes language permitting the Division of Public Health use of specimens for (1) quality assurance or performance improvement activities, including pilot studies, when a new disorder is being considered for addition to the panel; or (2) any other purpose authorized by law. research use in population based studies of de-identified specimens is permitted with parental consent. However, an amendment to the existing statute requires the destruction of blood specimens after screening and testing are complete. Signed by the Governor on 9/15/2021. Effective upon Governor's signature.

Source links

Provenance

Courtesy: National Human Genome Research Institute. This source layer preserves the state, primary link, topic, bill status, and summary retrieved from NHGRI.