2021 State Bills Utah 2021 SB 227

NHGRI summary

Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: (1) provide a consumer clear information regarding the company's collection, use, and disclosure of genetic data; (2) provide a consumer a publicly available privacy notice; (3) obtain a consumer's consent for certain collection, use, or disclosure of the consumer's genetic data; (4) protect a consumer's genetic data; (5) allow a consumer to access and delete the consumer's genetic data; and (6) upon request, destroy a consumer's biological sample. Prohibits a direct-to-consumer genetic testing company from disclosing a consumer's genetic data to certain persons. 3/17/2021 Signed by the Governor. Effective 5/5/2021.