Rhode Island
Explore the Rhode Island records currently included in this collection. Coverage is not complete.
State Laws Database: 0 records
NHGRI database archive: 11 records
Status: 4 enacted or approved; 2 proposed or pending
Most common mapped topics: Health Insurance Coverage (4) · Privacy (3) · Coverage and reimbursement (2)
Records in Rhode Island
Showing 11 of 11; State Laws Database records appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| Rhode Island | 2021 State Bills Rhode Island 2021 H5081NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Died | Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 2/23/2021 Committee recommended measure be held for further study. Died. |
| Rhode Island | 2021 State Bills Rhode Island 2021 S171NHGRI archive2021 legislative sessionPrimary source | Health Insurance Coverage | Died | Establishes a rare disease medication reinsurance fund. Creates and establishes funding for a rare disease medication advisory council. Based on information from the Secretary of Health and Human Services, the council must recommend the drugs to be covered, an assessment rate, and a funding distribution method. The council must recommend for inclusion only those medications that are high cost prescription drugs, gene therapies or cell therapies designated as orphan drugs by the federal drug administration. 4/1/2021 Committee recommended measure be held for further study. Died. |
| Rhode Island | 2020 State Bills Rhode Island 2020 S2430NHGRI archive2020 legislative sessionPrimary source | Privacy | Died | Creates the Consumer privacy Protection Act. Establishes requirements for the collection, use, sale, retention and disclosure of personal information by businesses. Personal information is defined to include biometric information such as DNA. Died. |
| Rhode Island | 2019 State Bills Rhode Island 2019 S234NHGRI archive2019 legislative sessionPrimary source | Privacy | Died | Enacts the Consumer Protection privacy Act. Establishes consumer protections pertaining to the collection and use of personal information, including an individual's DNA, by businesses. Died. |
| Rhode Island | 2019 State Bills Rhode Island 2019 S929NHGRI archive2019 legislative sessionPrimary source | Health Insurance Coverage | Died | Requires nonprofit hospital service contract, plan, or insurance policy delivered, issued for delivery, or renewed in this state must provide coverage of all blood testing services, including specified genetic tests. Died. |
| Rhode Island | Rhode Island HB 5351NHGRI archiveDate not stated in source labelPrimary source | Consumer Personal Data Privacy, Coverage and reimbursement | Introduced | An act relating to insurance -- accident and sickness insurance policies (mandates insurance policies, provides coverage to diagnose & treat infertility for women between 25 & 42 years, including pre... |
| Rhode Island | Rhode Island SB 107NHGRI archiveDate not stated in source labelPrimary source | Coverage and reimbursement | Passed Senate | An act relating to insurance -- accident and sickness insurance policies (mandates all insurance contracts/plans/policies provide coverage for the expense of diagnosing/treating infertility for women... |
| Rhode Island | State StatuteRhode Island: RIGL 27-18-41NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Coverage | Statute | Every individual or group hospital or medical insurance policy or individual or group hospital or medical services plan contract delivered, issued for delivery, or renewed in this state shall pay for two (2) screening mammograms per year when recommended by a physician for women who have been treated for breast cancer within the last five (5) years or are at high risk of developing breast cancer due to genetic predisposition (BRCA gene mutation or multiple first degree relatives) or high risk lesion on prior biopsy (lobular carcinoma in situ) or atypical ductal hyperplasia. |
| Rhode Island | State StatuteRhode Island: RIGL 27-18-52, 27-18-52.1, 27-19-44, 27-19-44.1, 27-…NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Nondiscrimination, Privacy, Research | Statute | Insurance administrators, health plans and providers of accident and sickness insurance, nonprofit hospital corporations, nonprofit medical service corporations, and HMOs are prohibited from releasing genetic information without prior written authorization. Individuals participating in research settings governed by the Federal Policy for the Protection of Human research Subjects are exempt. Tests conducted purely for research are excluded from the requirements set forth, as are tests for somatic (as opposed to heritable) mutations, and testing for forensic purposes. An individual or group health insurance contract, plan or policy (excluding disability income, long term care and insurance supplemental policies) may not use a genetic test or genetic information or request for genetic tests or genetic information or the results of a genetic test for specified purposes, including for underwriting. Provisions pertaining to the release the results of a genetic test or genetic information do not apply to releases in a format whereby individual identifiers are removed, encrypted, or encoded so that the identity of the individual is not disclosed. Authorization is required for each re-disclosure except for participating in research settings governed by the Federal Policy for the Protection of Human research Subjects. |
| Rhode Island | State StatuteRhode Island: RIGL 27-18.5-2, 27-18.6-2, 27-18.6-3, and 27-50-3NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Nondiscrimination | Statute | In the statute sections pertaining to large group, individual health insurance and small employer health insurance a health status-related factor is defined to include genetic information, and pre-existing condition exclusions may not be based on genetic information the absence of a diagnosis. |
| Rhode Island | State StatuteRhode Island: RIGL 28-6.7-1 et seq.NHGRI archiveDate not stated in source labelPrimary source | Employment Nondiscrimination | Statute | An employer, employment agency, or licensing agency may not (1) request, require or administer a genetic test, (2) affect the terms, conditions, or privileges of or terminate employment or licensure of any person who obtains a genetic test, (3) take any other action affecting the terms, conditions or privileges of employment against an employee or a license holder based on the results of a genetic test or the refusal to take a genetic test, submit family history, or reveal whether the employee, applicant or holder has taken a genetic test, (4) otherwise use genetic information to adversely affect the employment, licensure, or application for employment or licensure of any individual, or (5) reveal genetic information about employees, licensees, or applicants. Penalties for violations are set forth. |