Utah
Explore the Utah records currently included in this collection. Coverage is not complete.
State Laws Database: 0 records
NHGRI database archive: 13 records
Status: 9 enacted or approved; 0 proposed or pending
Most common mapped topics: Privacy (8) · Employment Nondiscrimination (3) · Health Insurance Nondiscrimination (3)
Records in Utah
Showing 13 of 13; State Laws Database records appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| Utah | 2021 State Bills Utah 2021 HB 274NHGRI archive2021 legislative sessionPrimary source | Privacy | Died | Requires a government agency to make an annual report to the state auditor regarding: the government agency's collection, use, and disclosure of personal identifying information; any misuse or improper disclosure of personal identifying information; and measures taken to notify individuals of any misuse or improper disclosure. Personal identifying information includes DNA. 3/5/2021 House filed. |
| Utah | 2021 State Bills Utah 2021 SB 200NHGRI archive2021 legislative sessionPrimary source | Privacy | Died | Provides consumers the right to access, correct, and delete certain personal data. Gives consumers the right to opt out of the collection and use of personal data for certain purposes. Requires certain businesses that control and process personal data of consumers to: safeguard personal data; provide clear information to consumers regarding how the consumer's personal data are used; accept consumer requests to exercise the consumer's rights under this bill; comply with a consumer's request to exercise the consumer's rights under this bill; and maintain data protection assessments. Creates a process for a consumer to submit requests and appeal a business's decision regarding the business's processing of the consumer's personal data. Allows the Division of Consumer Protection to accept and investigate consumer complaints regarding the processing of personal data. Creates a right for a consumer to know what personal information a business collects, how the business uses the personal information, and whether the business sells the personal information. Allows a consumer to require a business to delete personal information, with exceptions, and direct a business that sells personal information to stop selling the consumer's personal information. 3/5/2021 Senate Filed. Died. |
| Utah | 2021 State Bills Utah 2021 SB 227NHGRI archive2021 legislative sessionPrimary source | Privacy | Enacted | Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: (1) provide a consumer clear information regarding the company's collection, use, and disclosure of genetic data; (2) provide a consumer a publicly available privacy notice; (3) obtain a consumer's consent for certain collection, use, or disclosure of the consumer's genetic data; (4) protect a consumer's genetic data; (5) allow a consumer to access and delete the consumer's genetic data; and (6) upon request, destroy a consumer's biological sample. Prohibits a direct-to-consumer genetic testing company from disclosing a consumer's genetic data to certain persons. 3/17/2021 Signed by the Governor. Effective 5/5/2021. |
| Utah | 2020 State Bills Utah 2020 HB 231NHGRI archive2020 legislative sessionPrimary source | Employment Nondiscrimination, Health Insurance Nondiscrimination | Died | Removes provisions regulating an employer's and a health insurer's use of personal genetic information. Died. |
| Utah | 2020 State Bills Utah 2020 HB 265NHGRI archive2020 legislative sessionPrimary source | Privacy | Died | Requires government agencies to provide an annual report to the state auditor detailing the collection, use, and disclosure of personally identifying information, including DNA. Died. |
| Utah | 2019 State Bills Utah 2019 HB 435NHGRI archive2019 legislative sessionPrimary source | Health Insurance Coverage | Enacted | Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21. March 26, 2019 Governor Signed. Effective 60 days after adjournment on March 14, 2019. |
| Utah | 2019 State Bills Utah 2019 SB 147NHGRI archive2019 legislative sessionPrimary source | Employment Nondiscrimination | Enacted | Introduced version prohibited a lobbyist from engaging in unlawful harassment, including based on genetic information. The language pertaining to genetic information was not included in the final version signed by the Governor on 3/26/2019. |
| Utah | 2016 State Bills Utah 2016 HB 358NHGRI archive2016 legislative sessionPrimary source | Privacy | Enacted | Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities. Signed by the Governor on 3/23/2016. |
| Utah | State StatuteUC 26-18-25NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Coverage | Statute | Requires the Medicaid program to reimburse for exome sequencing for undiagnosed enrollees under the age of 21. |
| Utah | State StatuteUtah: UC 13-58-101 et seq.NHGRI archiveDate not stated in source labelPrimary source | Privacy | Statute | Enacts the Genetic Information privacy Act. Requires a direct-to-consumer genetic testing company to: (1) provide a consumer clear information regarding the company's collection, use, and disclosure of genetic data; (2) provide a consumer a publicly available privacy notice; (3) obtain a consumer's consent for certain collection, use, or disclosure of the consumer's genetic data; (4) protect a consumer's genetic data; (5) allow a consumer to access and delete the consumer's genetic data; and (6) upon request, destroy a consumer's biological sample. Prohibits a direct-to-consumer genetic testing company from disclosing a consumer's genetic data to certain persons. |
| Utah | State StatuteUtah: UC 26-45-101 et seq.NHGRI archiveDate not stated in source labelPrimary source | Employment Nondiscrimination, Health Insurance Nondiscrimination, Privacy | Statute | An employer may not in connection with a hiring, promotion, retention, or other related decision access or (1) take into account genetic information, (2) request or require an individual to consent to release genetic information, (3) submit to a genetic test, or (4) inquire or take into account that an individual or blood relative of that person has taken a genetic test. An employer may compel disclosure of genetic information for specified reasons. A health care insurer may not in connection with the offer or renewal of an insurance product or in the determination of any underwriting decision access or otherwise (1) take into consideration private genetic information about an asymptomatic individual, (2) request or require an asymptomatic individual to consent to a release for the purpose of accessing private genetic information, (3) request or require an asymptomatic individual or his blood relative to submit to a genetic test, or (4) inquire into or otherwise take into consideration the fact that an asymptomatic individual or his blood relative has taken or refused to take a genetic test. An individual whose rights have been violated bring civil action. |
| Utah | State StatuteUtah: UC 31A-1-301, 31A-22-620, 31A-22-1602NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Nondiscrimination | Statute | Genetic information may not be treated as a pre-existing condition in the absence of a diagnosis. The genetic testing privacy act, which prohibits health insurance discrimination, is applicable to insurers except as permitted under the Medicare Supplement Minimum Standards Act. The insurance commissioner may adopt rules regarding nondiscrimination for genetic testing or genetic information in Medicare supplement policies and certificates. |
| Utah | State StatuteUtah: UC 53A-1-1401 et seq.NHGRI archiveDate not stated in source labelPrimary source | Privacy | Statute | Governs the use of biometric identifiers, including human biological samples used for valid scientific testing or screening, by educational entities. |