Delaware
Explore the Delaware records currently included in this collection. Coverage is not complete.
State Laws Database: 0 records
NHGRI database archive: 15 records
Status: 10 enacted or approved; 1 proposed or pending
Most common mapped topics: Privacy (6) · Health Insurance Nondiscrimination (3) · Research (3)
Records in Delaware
Showing 15 of 15; State Laws Database records appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| Delaware | 2021 State Bills Delaware 2021 HB 184NHGRI archive2021 legislative sessionPrimary source | Research, Use of Residual Newborn Screening Specimens | Enacted | Amends the provision pertaining to use of stored blood specimens. Removes language permitting the Division of Public Health use of specimens for (1) quality assurance or performance improvement activities, including pilot studies, when a new disorder is being considered for addition to the panel; or (2) any other purpose authorized by law. research use in population based studies of de-identified specimens is permitted with parental consent. However, an amendment to the existing statute requires the destruction of blood specimens after screening and testing are complete. Signed by the Governor on 9/15/2021. Effective upon Governor's signature. |
| Delaware | 2021 State Bills Delaware 2021 HB 262NHGRI archive2021 legislative sessionPrimary source | Privacy | Pending | Seeks to provide consumers with critical information about how their personal information is being used by data brokers. Data brokers must register with the Consumer Protection Unit of the Department of Justice and answer questions regarding their use of personal information that would be published online to inform consumers. Data brokers are required annually to complete an electronic form designated by the Director of Consumer Protection. Data brokers must report on the form the types of consumer data, including genetic data, collected directly from consumers and from consumers� devices. Carries over to 2022. |
| Delaware | 2019 State Bills Delaware 2019 SB 144NHGRI archive2019 legislative sessionPrimary source | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic information in the issuance or renewal of disability, long-term care, and life insurance. Died. |
| Delaware | 2019 State Bills Delaware 2019 SB 17NHGRI archive2019 legislative sessionPrimary source | Other Lines of Insurance Nondiscrimination | Died | Prohibits discrimination based upon genetic characteristics and information in the issuance or renewal of disability and long term care insurance. Insurers also must provide notice if a genetic test is required. Died. |
| Delaware | 2017 State Bills Delaware 2017 HS 1 for HB 180NHGRI archive2017 legislative sessionPrimary source | Privacy | Enacted | Establishes protections for personal information, including a deoxyribonucleic profiles, owned, maintained, or licensed by businesses in the state. Businesses must implement and maintain reasonable procedures and practices to prevent the unauthorized access to or acquisition, use, modification, disclosure, or destruction of personal information collected or maintained in the regular course of business. 8/17/2017 Signed by the Governor. Effective 4/14/2018. |
| Delaware | 2015 State Bills Delaware 2015 SB 151NHGRI archive2015 legislative sessionPrimary source | Privacy | Enacted | This bill addresses informed consent for disclosing genetic information by adding those individuals authorized to access EMR and DHIN. Signed by the Governor on 7/27/2015. |
| Delaware | 2015 State Bills Delaware 2015 SB 58NHGRI archive2015 legislative sessionPrimary source | Research, Use of Residual Newborn Screening Specimens | Enacted | Prohibits utilizing newborn screening stored blood specimens or stored data without parental consent, except for population based studies in which all identifying information is removed. Blood spots may be used within the Division of Public Health for quality assurance or performance improvement activities, including pilot studies when a new disorder is being considered for addition to the panel, or may be used by Division of Public Health for any other purpose authorized by law. Jul 15, 2015 - Signed by Governor. |
| Delaware | 2015 State Bills Delaware 2015 SB 68NHGRI archive2015 legislative sessionPrimary source | Privacy | Died | Restricts the use of a child's personally identifiable information, including DNA and other genetic material, by the operator of an internet service. Substitute bill passed by House and Senate, but substitute bill does not include language regarding DNA and genetic information. Substituted bill was signed by the Governor. |
| Delaware | 2015 State Bills Delaware 2015 SB 79NHGRI archive2015 legislative sessionPrimary source | Privacy | Died | Requires the Department of Education to promulgate rules and regulations relating to the privacy and protection of student data, including DNA or other genetic material. Senate Substitute Version passed in House and Senate -- DNA or other genetic information is replaced by biometric information. The term biometric information is not defined. Substituted bill was signed by the Governor. |
| Delaware | 2013 State Bills Delaware 2013 HB 162NHGRI archive2013 legislative sessionPrimary source | Health Insurance Nondiscrimination | Enacted | Prohibits group health insurers from establishing rules for eligibility of an individual to enroll based on a health status related factor of individuals, including genetic information. Prohibits individual health insurers from establishing rules for eligibility of an individual to enroll under the terms of the coverage based on health status-related factors, including genetic information. Signed by the Governor on July 15, 2013. |
| Delaware | State StatuteDelaware: Del. Code 16 1201 et seq.NHGRI archiveDate not stated in source labelPrimary source | Privacy, Research | Statute | Informed consent is required to obtain or retain genetic information about an individual. Exemptions include anonymous research where the identity of the subject will not be released. A sample from which genetic information has been obtained must be promptly destroyed with certain exceptions, including retention for anonymous research. An individual may inspect, request correction of and obtain genetic information from the records of that individual. The law sets forth civil penalties for violations. |
| Delaware | State StatuteDelaware: Del. Code 18 2317NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Nondiscrimination | Statute | Discrimination is prohibited in the issuance, denial or renewal of or in the fixing of the rates, terms or conditions for health insurance, excluding disability or long-term care insurance. The law provides for a cause of action in the nature of defamation, invasion of privacy or negligence with some exceptions. |
| Delaware | State StatuteDelaware: Del. Code 18 3571M, 3572, 3602, 3611, and 7202NHGRI archiveDate not stated in source labelPrimary source | Health Insurance Nondiscrimination | Statute | A health status-related factor is defined to include genetic information with respect to large group health plans, individual health plans and small employer health insurance. Group health insurers may not establish rules for eligibility of an individual to enroll based on a health status related factor. Individual health insurers may not establish rules for eligibility of an individual to enroll under the terms of the coverage based on a health status-related factor. |
| Delaware | State StatuteDelaware: Del. Code 19 710 et seq.NHGRI archiveDate not stated in source labelPrimary source | Employment Nondiscrimination | Statute | Employers, employment agencies, labor organization or joint labor-management committee controlling apprenticeships or other training may not discriminate based on genetic information. These entities may admit or employ any individual on the basis of genetic information in those certain instances where genetic information is a bona fide occupational qualification reasonably necessary to the normal operation of that particular business or enterprise. Enforcement provisions, processes for civil action by the Attorney General or charging party, judicial remedies and civil penalties are established. |
| Delaware | State StatuteDelaware: Del. Code 801CNHGRI archiveDate not stated in source labelPrimary source | Use of Residual Newborn Screening Specimens | Statute | Prohibits research utilizing stored blood specimens or the stored data without parental consent, except for population-based studies in which all identifying information is removed. Parents may elect not to participate in blood spot storage. |