Genetic data storage/privacy/sharing (industry)
Rules for storing, protecting, or sharing genetic data in commercial settings.
Records grouped under the same topic may offer different rights and protections.
This database: 4 records
NHGRI database archive: 6 records
Records about genetic data storage/privacy/sharing (industry)
Showing 10 of 10; records from this database appear first.
| Jurisdiction | Law or policy | Topics | Status | Summary |
|---|---|---|---|---|
| Alabama | Alabama Genetic Data Privacy ActWho Owns Your DNA?Legislation · Effective: October 1, 2024Primary source | Genetic data storage/privacy/sharing (industry) | Enacted | Alabama's Genetic Data Privacy Act took effect on October 1, 2024. It regulates businesses that directly solicit biological samples from consumers for genetic-testing products or services, as well as contractors handling data for those businesses. |
| Alabama | Biological and neural data in health and fitness appsWho Owns Your DNA?Legislation · Last action: March 11, 2026Primary source | Genetic data storage/privacy/sharing (industry) | Died | Alabama HB 263 did not become law. It would have regulated health and fitness applications that collect biological or neural data, including information generated by analyzing genetic or other biological properties to identify a person. |
| Alabama | Biological and neural data protectionsWho Owns Your DNA?Legislation · Last action: March 18, 2025Primary source | Genetic data storage/privacy/sharing (industry) | Died | Alabama HB 436 did not become law. It would have regulated businesses that maintained, owned, or licensed biological or neural data, including data generated by analyzing genetic or other biological properties for identifying a person. |
| California | Genetic Information Privacy ActWho Owns Your DNA?Legislation · Effective: January 1, 2022Primary source | Genetic data storage/privacy/sharing (industry) | Enacted | California's Genetic Information Privacy Act took effect on January 1, 2022. It regulates direct-to-consumer genetic testing companies that collect, use, maintain, or disclose genetic data collected or derived from a consumer or from the consumer's biological sample. |
| Minnesota | Minnesota SB 1138NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Introduced | Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent. |
| Minnesota | https://www.revisor.mn.gov/bills/text.php?number=SF1138&version=latest&session=…NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Died | Direct-to-consumer genetic testing companies requirement to provide disclosure notices and obtain consent. |
| Texas | Texas HB 2545NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry) | Approved | Relating to an individual's genetic data, including the use of that data by certain genetic testing companies for commercial purposes and the individual's property right in DNA; authorizing a civil p... |
| Texas | Texas SB 1544NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry) | Introduced | Relating to the use of an individual's genetic data by certain genetic testing companies for commercial purposes; authorizing a civil penalty. |
| Virginia | Virginia SB 1087NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry), Lab Developed Tests | Enacted | Establishes requirements for direct-to-consumer genetic testing companies, defined in the bill, including requirements related to information to be provided to consumers, express consent requirements... |
| Virginia | Virginia SB 419NHGRI archiveDate not stated in source labelPrimary source | Genetic data storage/privacy/sharing (industry) | Died | Establishes requirements for direct-to-consumer genetic testing companies, including requirements related to information to be provided to consumers, consent requirements, requirements related to sec... |